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Stem cell and bone marrow transplants
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Transplant
Can a liver and kidney transplant patient use hymilayn salt on foods?
Can a liver and kidney transplant patient use hymilayn salt on foods?
SexMachine
in
Kidney Disease
6 years ago
So what does a liver transplant scar look like?
Just wondering??
Just wondering??
Brett11
in
British Liver Trust
6 years ago
My story
Hi all. I am including the link to the story that the National Kidney Foundation wrote about "my kidney journey." https://www.kidney.org/newsletter/woman-waiting-kidney-shares-her-story-and-helps-others-process A Woman Waiting for a Kidney Shares Her Story and Helps Others in the Process
Hi all. I am including the link to the story that the National Kidney Foundation wrote about "my kidney journey." https://www.kidney.org/newsletter/woman-waiting-kidney-shares-her-story-and-helps-others-process A Woman Waiting for a Kidney Shares Her Story and Helps Others in the Process
WYOAnne
NKF Ambassador
in
Kidney Transplant
6 years ago
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Prescription exemption
I fully appreciate the concerns and myself have a question my husband is on the heart lung transplant list he also has suspected cancer mark on face but apparently doesn't cover prescription exemption but never the less as transplant patient who also has blood clots he's not got a lot going in way if
I fully appreciate the concerns and myself have a question my husband is on the heart lung transplant list he also has suspected cancer mark on face but apparently doesn't cover prescription exemption but never the less as transplant patient who also has blood clots he's not got a lot going in way if
CAZBERRY59
in
Thyroid UK
6 years ago
TIPS offered as alternative to transplant
After waiting over 9 months for Liver Transplant assessment I'm offered a TIPS by the transplant team. They say they are not ruling out transplant in the future but that a TIPS can improve my quality of life (Acities fills me up every week and I have a drain once a month) but Ive yet to find out the
After waiting over 9 months for Liver Transplant assessment I'm offered a TIPS by the transplant team. They say they are not ruling out transplant in the future but that a TIPS can improve my quality of life (Acities fills me up every week and I have a drain once a month) but Ive yet to find out the
hawksey
in
British Liver Trust
6 years ago
Surgery May Send Me to the Back of the Queue.
The Transurethral Urinary Bladder Tumor Resection I had last Wednesday may impede my standing for a lung transplant. The pulmonologist upon learning of this diagnosis said in order to be on the donor waiting list, you have to be cancer free for at least two years. However, the urologist said the tumors
The Transurethral Urinary Bladder Tumor Resection I had last Wednesday may impede my standing for a lung transplant. The pulmonologist upon learning of this diagnosis said in order to be on the donor waiting list, you have to be cancer free for at least two years. However, the urologist said the tumors
Sharp5Flat13
in
Lung Conditions Community Forum
6 years ago
Where to inject
Hi I wanted to ask ? Where on the thigh is the correct position for self injections. Iv watched a lot of videos on YouTube . Some are on the front but I have read here that it is the side . How do you measure , exActly where also do I withdraw the needle to check if I’m in a vein that is a big worry
Hi I wanted to ask ? Where on the thigh is the correct position for self injections. Iv watched a lot of videos on YouTube . Some are on the front but I have read here that it is the side . How do you measure , exActly where also do I withdraw the needle to check if I’m in a vein that is a big worry
Andypandy30
in
Pernicious Anaemia Society
6 years ago
post liver op.
I am nearly 5 weeks post op liver transplant and I wondered how long the initial pain goes on from the operation incision? I am still having to take quite strong pain killers at regular intervals and I wanted to know if this is quite normal? Other than that I am feeling fine, a bit tired but a lot of
I am nearly 5 weeks post op liver transplant and I wondered how long the initial pain goes on from the operation incision? I am still having to take quite strong pain killers at regular intervals and I wanted to know if this is quite normal? Other than that I am feeling fine, a bit tired but a lot of
alfredthegreat
in
British Liver Trust
6 years ago
13 months post-transplant and quality of life
Hello. I had my liver transplant on the 15th August 2017 and have recovered pretty well so far. My operation had several problems including my kidneys failing, 2 seizures and internal bleeding. I seem to be suffering from a little brain fog, anxiety and a fair bit of low mood which I presume is the Ciclosporin
Hello. I had my liver transplant on the 15th August 2017 and have recovered pretty well so far. My operation had several problems including my kidneys failing, 2 seizures and internal bleeding. I seem to be suffering from a little brain fog, anxiety and a fair bit of low mood which I presume is the Ciclosporin
AndyEssex
in
British Liver Trust
6 years ago
Love your liver roadshow
Hi everyone, I live in Ireland but I am considering travelling to the north of England next week to the love your liver roadshow to have a fibroscan done. I have real concerns even though my blood work has always been within the normal range. I will be requesting an ultrasound through my GP when I see
Hi everyone, I live in Ireland but I am considering travelling to the north of England next week to the love your liver roadshow to have a fibroscan done. I have real concerns even though my blood work has always been within the normal range. I will be requesting an ultrasound through my GP when I see
Liberty82
in
British Liver Trust
6 years ago
Inadvertently joined weight loss
Hi I inadvertently joined the weight loss part of this site - it defauled to this part of the site when i did a search for posts. I dint need weight loss info as all the new tablets im having post liver transplant seem to be losing weight forme 😀. I cant find how to undo! Anyone please?
Hi I inadvertently joined the weight loss part of this site - it defauled to this part of the site when i did a search for posts. I dint need weight loss info as all the new tablets im having post liver transplant seem to be losing weight forme 😀. I cant find how to undo! Anyone please?
Hidden
in
Weight Loss Support
6 years ago
Kidney transplant for a 1 year old
I am new to this so I don't know much about it. I am researching kidney transplant for a 1 year old O Positive blood
I am new to this so I don't know much about it. I am researching kidney transplant for a 1 year old O Positive blood
dhebert76
in
Kidney Transplant
6 years ago
Stem Cell Transplants
Interesting interview about
Stem
Cell
Transplant
risk:reward and timing. I thought quite reassuring, especially since odds improving all the time. Five year survival rates are based on transplants pre 2013. The odds and risks should be even better by the time most of us on this Board require SCT.
Interesting interview about
Stem
Cell
Transplant
risk:reward and timing. I thought quite reassuring, especially since odds improving all the time. Five year survival rates are based on transplants pre 2013. The odds and risks should be even better by the time most of us on this Board require SCT.
Paul123456
in
MPN Voice
6 years ago
Recent SLL/CLL Patient Question
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
DriedSeaweed
in
CLL Support
6 years ago
Is depression normal for kidney transplant?
Hi, I just found out yesterday that I have to get a kidney transplant and I've been really depressed and have cried a few times. My question is...am I overreacting? I feel like I am but I can't help it. Is it just that I'm in shock maybe? Were any of you depressed when you found out? I guess I'm just
Hi, I just found out yesterday that I have to get a kidney transplant and I've been really depressed and have cried a few times. My question is...am I overreacting? I feel like I am but I can't help it. Is it just that I'm in shock maybe? Were any of you depressed when you found out? I guess I'm just
Mindy73
in
Kidney Transplant
6 years ago
Need help
Hello, my dad is not a uk resident and he need a liver transplant, where should we go first and what to do? Thank you
Hello, my dad is not a uk resident and he need a liver transplant, where should we go first and what to do? Thank you
Dianamd91
in
British Liver Trust
6 years ago
CMV infection in liver transplant patients
Hello all, I hope you are doing well. I am 5.5 months post transplant and have D+R- CMV (so I got CMV with my dear liver). I have been taking Valganciclovir for prevention for more than 3 months and have recently stopped advised by my doctor. Within one week of stopping, I have developed a cold sore
Hello all, I hope you are doing well. I am 5.5 months post transplant and have D+R- CMV (so I got CMV with my dear liver). I have been taking Valganciclovir for prevention for more than 3 months and have recently stopped advised by my doctor. Within one week of stopping, I have developed a cold sore
Pizamkazdw
in
British Liver Trust
6 years ago
Graduation run!
So at 56 having never considered myself to be a runner I decided to have a go at C25K and today I ran the whole 5K (took me 43 mins though - I am SLOW) Am feeling very proud of myself and thankful to my donor and their family ( I have had a liver transplant for an autoimmune condition) without them
So at 56 having never considered myself to be a runner I decided to have a go at C25K and today I ran the whole 5K (took me 43 mins though - I am SLOW) Am feeling very proud of myself and thankful to my donor and their family ( I have had a liver transplant for an autoimmune condition) without them
busylady
Graduate
in
Couch to 5K
6 years ago
Sickle-cell September: What is Sickle-cell?
What is Sickle-Cell Disease? Sickle cell disease (SCD) is an inherited condition that affects the red blood cells and various organs in the body. SCD affects the production of a protein called haemoglobin that carries oxygen throughout the body. Each person inherits two haemoglobin genes, one
What is Sickle-Cell Disease? Sickle cell disease (SCD) is an inherited condition that affects the red blood cells and various organs in the body. SCD affects the production of a protein called haemoglobin that carries oxygen throughout the body. Each person inherits two haemoglobin genes, one
Anzy
in
Sickle Cell Society
6 years ago
ASK IT...GET AN OPINION! What is one question you have been thinking on and need some suggestions?
Like last week--I am going to be the first ASK IT... I often wonder where I should go to find an answer to helping with the issues I face in being a caregiver to my adult son who received his first kidney transplant nearly three years ago? ANSWER: One great source along the way has been the NKF Cares
Like last week--I am going to be the first ASK IT... I often wonder where I should go to find an answer to helping with the issues I face in being a caregiver to my adult son who received his first kidney transplant nearly three years ago? ANSWER: One great source along the way has been the NKF Cares
Bobbiereed
NKF Ambassador
in
Kidney Transplant
6 years ago
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