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Kidney Transplant
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Is depression normal for kidney transplant?

Hi, I just found out yesterday that I have to get a kidney transplant and I've been really depressed and have cried a few times. My question is...am I overreacting? I feel like I am but I can't help it. Is it just that I'm in shock maybe? Were any of you depressed when you found out? I guess I'm just scared and can't believe this is happening.

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No I don't think you are overreacting at all. This is completely normal. When I was diagnosed with stage 4 CKD three years ago I became very depressed. It is constantly on my mind and as each subsequent blood test shows my kidney function falling all the time this has just increased my depression. I tried to bottle it all up and then 18 months after diagnosis I just burst into tears while at work. I am currently at 12% eGFR and I cant imagine myself on dialysis so like you I am scared of the unknown. If you google the "grief curve diagram" I bet you will relate to it. I certainly do. For me its like snakes and ladders. I have good days and I move up a bit then every time I lose another bit of my kidney function it is like starting all over again. But help is at hand. One of the things that I find has been the best support for me is this forum. It is full of people like us and they are all good people who have provided support and advice when I needed it most and they will do the same for you. So stay in touch, you are not alone.

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Sorry to hear about your low GFR, mine is at 17. I dread dialysis as well so I feel for you. I will definitely take a look at that grief curve diagram and I'll keep coming back to this forum too. Thanks for taking the time to answer me back, I appreciate it. Good luck!

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Like rabbit01 says we all have are highs and lows and your still in shock. Have they told you what your egfr is. Is this the first time you've know you have kidney problems.

I was first diagnosed 18hears ago although I was born with it and was told I would need a transplant in 2009 or dialysis. This still hasn't happened a d like you I was shocked and couldn't believe it was happening but I decided I was going to stay strong and not let this disease take over my life as I was only 20 at the time and had so much i want to do. If you've been newly diagnosed ask to see a kidney dietican as diet, exercise, the right medication and positive attitude I turkey believe you can delay things.

At the moment known of this seems possible and you have to let your self get upset and grief and be angry and think why me it natural.

There are always high and lows with the disease and for each milestone (this is what I call them-not good ones either) yu have to let your self get upset but everyone on this forum are here for you to help and to be a shoulder to cry on so to speak.

Everyone on here is always will to help and I've made so great friends which have supported me throughout times and don't know what I would have done with out them. This forum allows you to message people privately too. So you have that option when you think you've found someone that to want to start a friendship with as you like the support they other.

Don't ever go through the unknown alone as there is bound to be some one going or has gone through the same.

Maybe the doctor said about a transplant because he is hoping you could have a live transplant from a family member or friend and the work up takes about 12 to months 18months so was trying to be proactive bit all it's done is scare and cause your low mood which is only natural.

Take care and don't walk this journey alone.

Charlene xx

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My GFR is 17 and I'm 45 and just found out my kidneys are failing about 6 months ago. My GFR started out at 20. I'm glad to hear it takes so long to get it done, that'll help give me time to get used to the idea. I can't imagine having to go through this at a young age like you had to and to have to deal with it for so long, I really hate to hear that. I wish you the best.

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I am still not had a transplant as my love donors didn't work out and still not on dialysis but that might change as of tomorrow. My renal function was stable at gfr7.5% but in the last 3 weeks it's dropped all of a sudden to 4% so unless things have really improved I will be starting dialsys.

I think your doctor was probably just try to prepare you that a transplant will be required bit you are still in stage 4 so plenty of time. I have always listen to my doctor and renal dietican and I have to say I follow what they say to the letter and truly believe that is what has got me this far. The joke is I'm the come back queen in my unit and a friend from the forum also said a similar thing recently.

Stay strong. The unknown is the scary part of the disease so try and learn as much as you can. I hope you have a good renal unit. Never be scared to ask them questions and of you don't feel comfortable to do that ask the people on the forum. Of course we are not doctors but we might be able to offer some advice which you can the ask your doctor. Everyone's restrictions are very different so never follow someone else's before speaking to your doctor. Sorry if that sounds obvious but you would be surprised how many think one size fits all.

Thanks for your kind words but I won't let this disease beat me it's going to take me kicking and screaming. I'm stubborn like that.

Take care mindy73

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Hi, sorry I just now saw your response. Do you mind me asking how your doctor appointment went? Are you going on dialysis?

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Thank you for asking. The appointment went well thank you. I had my ferritin injection and re-started my epo injections and because I had lost 2.5kilos over the weekend and they re-xrayed my chest they could see my lungs have no longer have fluid on them but still very much on my legs he's goes my diuretic to 590mg spilt into two doses (huge amount I know) fluid restriction cut to 550mls and we are doing this to next Wednesday. If this doesn't help then I will be starting dialysis. I saw the anaesthetic doctor and he has explained I will probably end up in intensive care once I get my transplant die to my low blood pressure.

How are you feeling now? I hope people responses have helped a little so you know your not alone in what your going through.

Charlene x

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Glad to hear that you didn't have to start dialysis yet. I'm feeling pretty good now and yes everyone on here has been very helpful and kind.

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Oh no you’re not over reacting at all. This diagnosis changes your life and can be very scary until you know all the facts and even then it can be tough. I was on dialysis for ten years before I got my transplant as I had no family or friends eligible. Dialysis can be difficult to get used to, but you have to think positively and not let it take over your life. With some adjustments you can continue to live your life pretty much the same, I always did, and there are several options for dialysis and you can decide which works best for you. You just hang in there, you’ll make it!!

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Thank you for your words of support. Sorry to hear that you've been on dialysis for so long but I'm happy to hear that you finally got a kidney.

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Mindy 73, it made me sad and somewhat depressed when I found out the same. However, getting thevtransplant certainly beats the alternative; dialysis or illness resulting in death. I am 3 yrs post transplant and basically doing everything I did before the surgery. I really didn’t get too I’ll before the transplant and I think that has helped me to recover as great as I did. Go for it, the sooner the better and start enjoying your life. Best of luck and prayers to you.

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Thank you. I agree that it would be better to get it done before I get sick and it is definitely better than the alternatives for sure.

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My best and prayers to you. Look forward and not backwards. You’ve gotta lot of living to do ♥️

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Mindy73,

Hearing that you will need a transplant is scary to hear. It’s okay to feel sad. Not knowing what to expect, how soon you will need it and so many other unanswered questions take a toll on your emotions. Have faith that all will turn out well. We are here to help you through your journey.

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Thank you, I'm actually feeling much better now. I think I was just in shock but I've been doing some research and found out that it's not quite as horrible as I had feared.

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hey there! Here's a little about my background and being diagnosed and having being transplanted. I was first diagnosed at 13 with total kidney failure, with that news being heard at 13 i was very upset. I remember being put on Prozac for the depression, but thankfully my mom had me taken off it shortly after she could see i had no reaction to anything!! Having a good support system helped me a lot. I had gotten my transplant when I was 16, but it failed shortly after when I was 21. I'm now 29, and just had my second and probably last transplant 2 years ago in august. I think about the life expectancy of a deceased kidney, ( the kind I received) and it gets me down knowing that Ill probably end up on dialysis again when I'm older but I just take each day at a time. Having health issues is probably the hardest thing about life, its unavoidable. but how you react to certain situations will determine how your happiness will play out. and I'm sorry that you have to go through this also, no should ever have to have a kidney transplant. But we do not live in a perfect world, and we do. luckily we have the technology and dr's to perform these surgeries. Prayers for you, and hoping you stay positive. oh and cry!!! cry! cry! LOL its good for you, just don't dwell. and have HOPE!! <3

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Thank you so much. I agree, crying usually makes me feel better. I cannot even imagine going through this at 13 and 16 yrs old, I feel very fortunate that it happened to me as an adult, I'm sorry you had to go through that. Good luck with your kidneys and hopefully you will go a long time without dialysis.

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