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Cutaneous Vasculitis
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
Hi all Back in early 2015 I had the most awful rash and raised itchy lumps over the lower part of my legs. I went to my GP who suggested treating the whole family for Scabies. After many tests and appointments later and biopsies they confirmed Cutaneous Vasculitis. Back in 2018 from July to December
lou1972
in
Vasculitis UK
5 years ago
Job interview - dealing with embarrassing sweats
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming much less and bearable EXCEPT I suffer from red hot flushes to the face and terrible head sweats. I have noticed that these occur spontaneously but they are definitely
EscapedtoWales
in
PMRGCAuk
5 years ago
Guess who's getting home tomorrow
Yes! After 24 days, at long last. That was a journey! Chest infection,collapsed lung,Ascites drain full of blood, high potassium, low potassium, stomach cramps and bowel incontinence... Oh yes, and a liver transplant! Now my hard work begins, looking after him, and keeping him in check!
Yes! After 24 days, at long last. That was a journey! Chest infection,collapsed lung,Ascites drain full of blood, high potassium, low potassium, stomach cramps and bowel incontinence... Oh yes, and a liver transplant! Now my hard work begins, looking after him, and keeping him in check!
Yuiop
in
British Liver Trust
5 years ago
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Has anyone had a bone marrow transplant who has PV?
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were
My husband has PV he was diagnosed in 2012. He's had a scan and his spleen has doubled in size. He's had to have a bone marrow biopsy. We have got the biopsy results back today. His bone marrow has a lot of scar fibrosis so he is referring him to the RVI Newcastle for a bone marrow transplant. We were
tracey13
in
MPN Voice
5 years ago
two kids diagnosed with ALD
I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude
I have two son's who have been diagnosed with ALD. One of them is 8 year old and the other is 3 year old. Both don't show any physical symptoms of ALD as such. The only symptom the elder one has is lack of concentration and forgetfulness. Does this mean my elder son is symptomatic? I am not able to conclude
aadilmadarveet
in
Leukodystrophy Support
5 years ago
Identify the carrier.
How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is
How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone marrow transplant done for my elder son and I 'll be the donor for him. So trying to verify with all the sources I have as to what I am doing is
aadilmadarveet
in
Parents of ALD Newborns
5 years ago
Lukiemia and High white blood count
Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count really high but abs neutripils are very low. Red blood a bit low. He has 40 Percent blast and they have been treating him. So far he's not showing
Extremely fatigued, tired and sleeping all the time. Weak and hard to walk without loosing breath. Loss of appetite. And eating very little. White blood count really high but abs neutripils are very low. Red blood a bit low. He has 40 Percent blast and they have been treating him. So far he's not showing
ConcernedSpouse2012
in
CLL Support
5 years ago
Unable to walk
I don’t know if I am on the right page to ask this question but I need a bit of help Since age of14 now 72 I have had hip knee replacements kidney transplants spine op I’m in a/f other problems going on Lost my husband 3years ago at that time I was using one crutch to get around in pain but coping
I don’t know if I am on the right page to ask this question but I need a bit of help Since age of14 now 72 I have had hip knee replacements kidney transplants spine op I’m in a/f other problems going on Lost my husband 3years ago at that time I was using one crutch to get around in pain but coping
Rusty8
in
Pain Concern
5 years ago
Stem Cell Success for MS
I remain really hopeful that
stem
cell
research will change our world. https://www.thisisinsider.com/
stem
-
cell
-
transplant
-ms-treatment-2018-10
I remain really hopeful that
stem
cell
research will change our world. https://www.thisisinsider.com/
stem
-
cell
-
transplant
-ms-treatment-2018-10
jimcaster
in
Cure Parkinson's
6 years ago
11642
Had a kidney transplant 7/13. Can I take flax seed ?? Is it good for me? How much should o take Thanks
Had a kidney transplant 7/13. Can I take flax seed ?? Is it good for me? How much should o take Thanks
11642
in
Kidney Disease
5 years ago
Liver transplant
What does the 5 day liver transplant involve for my husband
What does the 5 day liver transplant involve for my husband
Whitelock
in
British Liver Trust
5 years ago
Rls don’t give up
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
rdbyam
in
Restless Legs Syndrome
5 years ago
For my son
All starts tomorrow I need to do this for not just myself but my son to he needs a kidney transplant and I’m hoping to be the the one to provide this have not run for years wish me luck
All starts tomorrow I need to do this for not just myself but my son to he needs a kidney transplant and I’m hoping to be the the one to provide this have not run for years wish me luck
Wolvesmel
in
Couch to 5K
5 years ago
To All The Forum Family For 2019
After a few weeks of Discussion with My Hubby, Family & my Consultant Amy, I have Decided to Come off the Transplant List. I am having an Emotional Time at the moment,, it is a case of carry on waiting, getting older, I am now 67. As most of you know from my Posts, I have maintained my Body capability
After a few weeks of Discussion with My Hubby, Family & my Consultant Amy, I have Decided to Come off the Transplant List. I am having an Emotional Time at the moment,, it is a case of carry on waiting, getting older, I am now 67. As most of you know from my Posts, I have maintained my Body capability
Hacienda
in
Lung Conditions Community Forum
5 years ago
Fear for my brother
It has been a year since I posted on here and I got a lot of love and advise so here I go again... my brother has been put forward for a double lung transplant but is very under weight, the problem is on top of everything my brother has had an eating disorder for years which has never been addressed
It has been a year since I posted on here and I got a lot of love and advise so here I go again... my brother has been put forward for a double lung transplant but is very under weight, the problem is on top of everything my brother has had an eating disorder for years which has never been addressed
Nibblet
in
Lung Conditions Community Forum
5 years ago
Single lung transplant
I have come upon this site whilst searching for post transplant information and am so moved by these Christmas posts. I want to tell you a little about our Christmas story, to give some hope maybe. My husband has IPF and probably had 2-3 months left when our whirlwind Christmas took off when on Fri
I have come upon this site whilst searching for post transplant information and am so moved by these Christmas posts. I want to tell you a little about our Christmas story, to give some hope maybe. My husband has IPF and probably had 2-3 months left when our whirlwind Christmas took off when on Fri
bigjo
in
Lung Conditions Community Forum
5 years ago
4 Months Post Kidney Transplant
40 year old female, 4 months post transplant .. just looking for a support team who undergone the same things as i am experiencing right now as a post transplant patient. It could be frustrating because I don't have someone to talk to or ask advices and stuff of what I'm going through. I feel like this
40 year old female, 4 months post transplant .. just looking for a support team who undergone the same things as i am experiencing right now as a post transplant patient. It could be frustrating because I don't have someone to talk to or ask advices and stuff of what I'm going through. I feel like this
charlen24
in
Kidney Transplant Patient Support
5 years ago
Treatments for C3G
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
There are no medicines that specifically treat C3G. Instead, current treatments aim to keep blood pressure, proteinuria (protein in the urine) and blood cholesterol levels low, and to control the immune system (the body’s defense against infections). The term C3G includes two conditions - dense deposit
DavidF_NKF
Administrator
in
C3 Glomerulopathy
5 years ago
C3G - Knowing the Signs and Symptoms
Complement 3 glomerulopathy (C3G) is a rare kidney disease that has two forms: dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Each is caused by genetic or acquired problems in controlling the body’s complement system, which helps fight infections. Genetic problems can be inherited or not
Complement 3 glomerulopathy (C3G) is a rare kidney disease that has two forms: dense deposit disease (DDD) and C3 glomerulonephritis (C3GN). Each is caused by genetic or acquired problems in controlling the body’s complement system, which helps fight infections. Genetic problems can be inherited or not
DavidF_NKF
Administrator
in
C3 Glomerulopathy
5 years ago
TWO TREES AT CHRISTMAS (A CHRISTMAS WISH)
It’s Christmas time. A time for miracles. A time, I stubbornly insisted, for a real Christmas tree. ‘But the needles,’ my mother said. ‘The mess...’ And even so, she relented. Just a small one... Well, actually... in the end... we got two. One a nice normal-ish size... she was very fluffy when
It’s Christmas time. A time for miracles. A time, I stubbornly insisted, for a real Christmas tree. ‘But the needles,’ my mother said. ‘The mess...’ And even so, she relented. Just a small one... Well, actually... in the end... we got two. One a nice normal-ish size... she was very fluffy when
lupusinflight
in
LUPUS UK
5 years ago
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