Vaccine : Hello I don't post much on... - British Liver Trust

British Liver Trust

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Vaccine

Treeclimber62
Treeclimber62

Hello I don't post much on here I've had my call for the vaccine tomorrow bit of a shock as I didn't expect it so soon I'm 66 had a liver transplant 4 years this April other wise in good health I still work as a tree surgeon I did phone my transplant centre but couldn't speak to anyone probably too busy anyway it's the Oxford onEnglish I'm due to have anyone had one yet? I'm not sure of possible side affects any advice would be great

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62 Replies

May I ask please, did the call come from your GP, local hospital or transplant centre? I just wonder if it's going to be a postcode lottery. In which case I won't be expecting a call.

GP

I have seen several people on here have had theirs and Tt2018 has his on Sunday. Great news for you.... all the best x

Thanks for reply that's very kind of you and good luck to you and stay safe

East of England are lagging behind 🤷🏻‍♀️

Ashw88
Ashw88 in reply to Laura009

I can vouch for that seems to be a postcode lottery at the moment...... somebody's knocking on your door, someone's ringing your bell 🤣🤣 well not down south east anyways.

Laura009
Laura009 in reply to Ashw88

🤣🤣 . Hubby and l aren't in the vulnerable group, not key workers, 58 and 59 yrs old, in Norfolk so will probably be in the 60 to 70 age group by the time we get ours 🤣

Ashw88
Ashw88 in reply to Laura009

You don't look it 🙈😅 and im saying that as my nan is 82 and she's yet to receive hers which we are not happy about at all so chasing that up daily and I'm not even gonna guess when they'll send one my way but millions are in the same boat 👍but way things are going im on the night boat to Cairo 🥳🤣🚤⛵

Laura009
Laura009 in reply to Ashw88

I was only 54 in my photo. My Mum in law is 90 she's had hers l am pleased to say. 👍🤣Don't forget quarantine !!

xx

I got a text message via, I'm assuming, my gp's clinical commissioning group.

I got the call from my GP last week, and I'm still awaiting advice from my liver consultant to assure me it's safe. I know that the general opinion from gastro's is that either vaccine is ok, but my consultant knows me and my specific needs. Having said that, I would prefer the Oxford....

My wife is a frontliner who had her first Pfizer dose just before New Year. Thankfully, she had no side effects, unlike some of her colleagues who had flu like symptoms after having it. That's the last thing I need from an essential inoculation!

I had mine last Saturday and other than an ache in my arm for around 24hrs no side effects. I am 7 months post transplant and had the Astra Zeneca vaccine. My liver consultant had already reassured me that both of the approved vaccines are OK for those of us that are on immune suppressant.

I would definitely recommend 👍

Hidden
Hidden

Hello, just a word of warning, I have been advised that the OXFORD Vaccine is not suitable for anyone that has had a transplant and is on immunosuppressants, I have been told this from the UK People and my surgeon that did my transplant in France in 2014, apparently the OXFORD vaccine is a live vaccine and not good for us.

Kristian
Kristian in reply to Hidden

That seems to run contrary to all advice that is currently being given now. You may want to check again.

Laura009
Laura009 in reply to Hidden

None of the covid19 vaccines are considered live

Pinklint
Pinklint in reply to Hidden

You might find this helpful. I'm immunosuppressed (Autoimmune Hepitits) and had the Oxford jab yesterday and so far no side effects or reactions. gov.uk/government/publicati... wishes.

Pinklint
Pinklint in reply to Pinklint

Sorry link is: gov.uk/government/publicati...

Hidden
Hidden in reply to Pinklint

All I can say is I have been told this by people with more knowledge and are in the medical health business, I was distinctly told the Oxford Virus was a live virus and under no circumstances was I to accept it, this was from two separate sources in two different countries, I do not trust our government, but I do trust people with a far better education than me.

Laura009
Laura009 in reply to Hidden

It's scientific not political

Hidden
Hidden in reply to Laura009

I remarked I do not trust the government, do you? I didnt turn this into a political debate, I merely mentioned who I would trust!!

Laura009
Laura009 in reply to Hidden

Trust the scientists. The goverment doesn't listen to them. If they did we would have been in lockdown over Christmas and we wouldn't have the horrendous death toll we now have. The only way out of this damn pandemic are the vaccines ... they are our only hope now.

Trust1
Trust1Administrator in reply to Hidden

Hidden We have not had any such information shared with the British Liver Trust and we will continue to update our website with the latest government and Department of Health guidance.

Hidden
Hidden in reply to Trust1

Its up to people to look into this and make their own opinions, but I have been told that the OXFORD vaccine is not suitable for me, by people from my UK team and my French Surgeon, now is this because my Immunosuppressant is Everolimus I do not know, as I had my transplant whilst living in France I am using their recommended immunosuppressants, all I urge is caution, I do feel that we suffer from a lot of non and mis information.

Trust1
Trust1Administrator in reply to Hidden

Of course, we would always say to liver patients to follow medical advice from their own liver specialist and medical team.

If we do hear any of generic advice regarding vaccine we will share as soon as we can.

Hidden
Hidden in reply to Trust1

Hello to the Trust, very good advice, I think we are all suffering from a lack of the truth with rumors and innuendos thrown in, I hate people for spouting when they have nothing to back the information up, fortunately not often found on here, this seems to be a very stable group. I attended Kings when I returned from France mainly because they seemed to be the only Hospital able to check my Everolimus levels, but the 8 hour round trip from Southampton for a blood test got tedious, a chance remark when I was having bloods taken at Southampton General lead to me not having to go to London, it seems if more people asked the right questions they would get the right answers!!!

will2k8
will2k8 in reply to Hidden

Somebody's been watching too many you tube videos. I hope your tin foil hat fits correctly. Spread your nonsense somewhere else.

TT-2018
TT-2018 in reply to Hidden

I am part of a patient group at University Hospital Southampton, they worked with Oxford to develop this vaccine and the research is an ongoing process. The vaccine is definitely NOT live and is safe to take for people who are taking immunosuppressive medication. Any risk is considerably lower than catching the virus.

Please stop adding to peoples anxieties. It is an individual choice weather or not to take it but it’s a decision that should be made by talking to the relevant medical professionals. Not reading things on social media.

Hidden
Hidden in reply to TT-2018

I can only relate to what I have been told, if this information is incorrect then the people telling me should be questioned?

TT-2018
TT-2018 in reply to Hidden

Perhaps you should question them before posting incorrectly, the Oxford and Pfizer vaccines are definitely NOT LIVE, as you have claimed?

Hidden
Hidden in reply to TT-2018

I do believe you could find fault in an empty room

Laura009
Laura009 in reply to Hidden

Out of order !

Hidden
Hidden in reply to TT-2018

I have been sent a tip to look at this 'adenovirus vector in the Oxford vaccine', which apparently comes from Chimpanzees? and is the live part of the Oxford vaccine, I did a google where I came across the Chimpanzee bit, what we need is a very knowledgeable person to decipher what we find on line, if I am wrong then I am wrong.

TT-2018
TT-2018 in reply to Hidden

I’ll just be taking whatever vaccine they give me, the call came from the surgery who hold my medical records.

By all means, carry on googling. It is definitely an individual choice.

Hidden
Hidden in reply to TT-2018

I said the Oxford contained Live matter, NOT the others.

TT-2018
TT-2018 in reply to Hidden

I will still take whatever I am offered, the surgery have made the appointment and am fully aware of the medication I take.

If you want to worry about Chimpanzees, then google away. I will be heading for the vaccination appointment.

AyrshireK
AyrshireK in reply to Hidden

The Oxford - Astra Zeneca vaccine isn't live in the conventional sense say like the Yellow Fever jag which is live and isn't suitable for people on immune suppression.

The vaccine Green Book for the medical profession states the following with regards to the vaccine & those on immune suppression and those with HIV.

"Although Astra-Zeneca Covid-19 vaccination contains a live adenovirus vector , this vector is not replicating and is considered safe in immunosuppressed people".

The technical description is "Recombinant, replication-deficient chimpanzee adenovirus vector encoding the SARS CoV 2 Spike (S) glycoprotein"

The live element can not replicate in humans.

This is an excerpt of a letter from Prof David Salisbury (rtd. Public Health Expert who made the faux pas of claiming Oxford was live on a TV show recently. This letter was sent to a member of the AIH Support Group who wrote to him for clarification owing to the confusion he had caused to immune suppressed AIH patients.)

The two mRNA vaccines (Pfizer and Moderna) are effectively synthetic since they only have the constructed gene that gives immunity to coronavirus. The AZ Oxford vaccine is a non-human adenovirus that has been manipulated so it can’t replicate or infect humans. It also has the gene that protects against coronavirus inserted. All of these vaccines can be given to immunosuppressed people.

Katie

Laura009
Laura009 in reply to Hidden

Well you have obviously made your mind up and whether or not you decide to refuse whichever vaccine becomes available to you first is your choice. Just remember catching covid carries a far higher risk of taking your life than any MILD side effect you MIGHT get from any of the vaccines.

alfredthegreat
alfredthegreat in reply to Hidden

The Oxford vaccine is inert, definitely not live Jumbot.

Alf

I’ve got my vaccine next Thursday 4th Feb - believe it is going to be the Pfizer one. I would be stark raving mad NOT to have it! And yes, I’m on immunos - 2 and a half years now - thanks to QEHB 😀👍.

Miles

Good luck miles

Thanks Brick! Long time no speak!! Hope you are doing well...🤞.

Testing times these, eh, metaphorically and literally 😀.

Miles

indeed they are miles-I'm alright thanks-no change since last time we "spoke" which is getting on for a year now. once lockdown is relaxed I suppose I'll chase up my doc-no rush. cheers

Yep, they are doing our group now as anyone having a transplant is in priority group 4. Its us and the 70 year old, lol.

I got a text message on Tuesday inviting me to make an appointment for mine and i'm having it Sunday 🙂.

Hi I have got my invitation for COVID-19 vaccine and I was not sure as waiting for transplant so emailed Kings College my liver transplant co-odinator and they were very helpful and got back to me within a day with the ok 👍. Good luck hope you get a reply quickly.Stay Safe All

Dogbot 🐶🌈

Thanks to all who replied I think on balance it's best to take it good luck to you all

Hi, I received a personalised text message from my surgery last week and was able to arrange a convenient time for a few days later. I asked the same question as yours of my Hospital Liver coordinators and they said either vaccine is ok to take. I was given the Oxford AstraZeneca vaccine and it was all done very quickly - in and out in 5 minutes (literally). For me no pain and no side effects whatsoever. The main issue for everyone that's on immunosuppressants is whether enough antibodies will be produced to be effective. It'll be a while before there's data to assess effectiveness.

Thanks for reply let's hope it works

👍

Hi I too do not post too much, but what a great forum and support. I have learned lots. I was diagnosed with Cirrhosis July last year. I feel guilty and ashamed about how I got to this situation and lived in denial for many years, being able to work, raise a family etc. I had Covid last March and subsequently horrendous nose bleeds before being diagnosed. I believe I had long Covid, and hopefully recovering slowly now. I stopped drinking immediately and almost 7 months with out drinking. I have lost 2. This forum is amazing with such great people and source of support. Going back to vaccination, I work in the NHS so was fortunate to have my jab and did check with my liver nurse and consultant who recommended to have it. As others would say do check with your specialist to reassure you. Only side affect I had was a sore armBest wishes to everyone 😊

Amazing ❤

Well done for giving up drinking I haven't drunk for 17 years long before I had a transplant and I used to like a drink a lot can't say I miss it i can't stand being around people who have drunk too much good luck to you

Trust1
Trust1Administrator in reply to Scoobydoo100

We are so pleased you find the forum so useful. If you ever need a chat our helpline is open Monday to Friday 10am to 3pm on 0800 652 7330

Thank you. Yes a habit that got out of control, but making positive changes and looking forward, not back. 😊

I will having mine tomorrow. I live in Northern Ireland and I am 66. Apparently they have spare vaccine so need to get it out ASAP (will have to travel 35 miles to the venue though) Although, some of our over 70s friends still have to wait two weeks more! I was listening to Johnathan Van Tam on Channel Four last night and he recommend if you are immune suppressant medication you should go for it. They are currently doing the research to ascertain if it provides the same immunity for us but I am elated. I might add I have no knowledge on what the issues are for transplant patients. All the best.

Same to you good luck

Hi Good luck. We're the same age but had my TX in 2006. Not heard anything from anyone a jab yet. GP might be upset with me as I got my ordinary flu jab from the chemist this winter. When he phoned to say could I come in and get it, told him what happened. He complained about the Chemist being opportunistic (probably meant he missed out on some fee). Then he asked for my wife, who is EXTREMELY needle phobic. He tried to guilt trip her so she put the phone down on him.

Anecdotally some friends of the wife (just old folk) have had the AZ-Oxford covid jab. All had some post jab pain in their arms. Hopefully it was just something peculiar about them.

Anyway. Good news for you. Please update us on any post jab issues.

Thanks for the good wishes so far so good no ill effects as yet my arms ok no pain but then again I work as a tree surgeon so am always getting knock hope you get yours soon best wishes to you

Trust1
Trust1Administrator

We have updated our guidance, please see here

britishlivertrust.org.uk/up...

Hi Treeclimber.Glad to hear all is well with you.

I got a text today via my GP surgery with a contact link to to book my vaccination. I'm going on Feb 3rd. Mine is the Oxford vaccine too. I have heard that this vaccine is ok for us.

Alf

Great news mate had mine today no ill.affects let's hope they get more done fair play to Boris I'm not a fan but credit where credit is due he got this right god bless the nhs take care alfred and the best of British

Was there really any need of you to try to scaremonger? People are scared enough of this virus without the likes of you spreading this crap. I spoke to my gasteoenterologist months ago and was told the vaccines were safe as were many more people on this group. Who are you to spread this type of rubbish? Do what you like just don't complain if this virus makes you ill and you haven't had your jab

Trust9
Trust9Administrator

I am closing this post to further comments, whilst we value all individual opinions , when it becomes confrontational and comments have been reported it is not in the spirit of this forum.

Trust9

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