Good morning or afternoon!
I've mentioned in some other posts that almost 19 years ago I had a liver transplant. I have done well and feel these 19 years added to my life are such a gift. Shortly after I retired from nursing I began volunteering my time at MidAmerica Transplant. This is a local (St. Louis,MO) organization that actually procures organs and performs the transplants in their state of the art facility here.
Over the course of time, I've become good friends with many who work there including their CEO, Kevin Lee. Tonight they hold their annual Donate LIfe Trivia Night . I look forward to it every year. Hundreds of people who have been affected by organ donation either as a donor famly, recipient, or family member who was. It is quite the emotional night for me even after 19 years. They, of course, recognize all the recipients having them stand up. We have a table of 8 of us. All of these wonderful people who are attending with me this evening have been with me thru it all... good and bad over the last years before and after my transplant. I just wanted to share with you all that even if the PBC progresses, in my case after 20+ years, there is still a life to be lived. Tonight I celebrate my life of 19 extra years. donatelife.net
Long time off of here due to life lol.
Am an oldie on here by sounds of things in relation to how long have had pbc!
Lack of support for PBC cirhossis....and venting feelings.
A cure (possibly temporary) for the dreaded itch
