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PolyBursitis Rheumatica & Bacon Sandwiches
Hello everyone, Had my 2 month visit with my Rheumatologist last week. My first question was what exactly happens in the body with PMR? She said PMR is really not a good name for this disorder because the inflammation affects the bursa, the small fluid-filled sacs that cushion joints. Then I asked
Hello everyone, Had my 2 month visit with my Rheumatologist last week. My first question was what exactly happens in the body with PMR? She said PMR is really not a good name for this disorder because the inflammation affects the bursa, the small fluid-filled sacs that cushion joints. Then I asked
Marie1479
in
PMRGCAuk
6 years ago
Tomorrow begins the test
Well the home nurse will be here at 9 tomorrow morning to set me up for my first solumedrol iv infusion. Been a long time coming so I sure hope it was with the wait. Blessings to all Donnie
Well the home nurse will be here at 9 tomorrow morning to set me up for my first solumedrol iv infusion. Been a long time coming so I sure hope it was with the wait. Blessings to all Donnie
Doubled51
in
My MSAA Community
6 years ago
Exasperated
I hv been diagnosed for 13 years. Am 52 years old female from India. Due to the cost, have never been on interferons. Had brain lesions when diagnosed. Now had an active lesion in cervical cord, and was administered solumedrol. Present issues are am diagnosed with angina and am on ivabrad 5mg twice and
I hv been diagnosed for 13 years. Am 52 years old female from India. Due to the cost, have never been on interferons. Had brain lesions when diagnosed. Now had an active lesion in cervical cord, and was administered solumedrol. Present issues are am diagnosed with angina and am on ivabrad 5mg twice and
Zapped
in
My MSAA Community
6 years ago
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GP appointment
How do you get one?!? I can’t ever get past the receptionist. For the 3rd time in 6 wks I’ve had a chest infection that has quickly become nasty. On Tuesday I turned up and tried to demand an appointment and I got a letter from the practice to say my behaviour was inappropriate and won’t be tollerated
How do you get one?!? I can’t ever get past the receptionist. For the 3rd time in 6 wks I’ve had a chest infection that has quickly become nasty. On Tuesday I turned up and tried to demand an appointment and I got a letter from the practice to say my behaviour was inappropriate and won’t be tollerated
Kazwaz1980
in
LUPUS UK
6 years ago
Medrol injection
I had a Medrol injection early December and it was brilliant. I started hydrochloroquine end of Dec but symptoms started creeping back in during February. 4 days ago I had a 2nd injection, but i don’t feel it has been as successful. My fingers have gone down but first finger isn’t perfect. Toes are now
I had a Medrol injection early December and it was brilliant. I started hydrochloroquine end of Dec but symptoms started creeping back in during February. 4 days ago I had a 2nd injection, but i don’t feel it has been as successful. My fingers have gone down but first finger isn’t perfect. Toes are now
Kazwaz1980
in
LUPUS UK
6 years ago
Herniated Disc MicroDiscectomy
Hello everyone. I wanted to post here to update everyone on my condition so that it can be a learning experience for those with similar condition. I had 6 weeks intense sciatica due to L5-S1 herniated disc and nerve root compression. The symptoms I felt were throbbing pain in buttock, going down to
Hello everyone. I wanted to post here to update everyone on my condition so that it can be a learning experience for those with similar condition. I had 6 weeks intense sciatica due to L5-S1 herniated disc and nerve root compression. The symptoms I felt were throbbing pain in buttock, going down to
Alisheikalisheikh
in
NRAS
6 years ago
Skin Problems Associated with PMR/ GCA?
I have a likely diagnosis of PMR/GCA; I also have many red marks, particularly on my lower legs , ankles and feet in various shapes; I have had many small squamous cell carcinomas removed due to a life in the sun until recently; still have a few tiny ones needing attention. I know what they are and how
I have a likely diagnosis of PMR/GCA; I also have many red marks, particularly on my lower legs , ankles and feet in various shapes; I have had many small squamous cell carcinomas removed due to a life in the sun until recently; still have a few tiny ones needing attention. I know what they are and how
Alliand
in
Vasculitis UK
6 years ago
Major Panic Atasck
Well the short of it. I was about to graduate in 2010 with a degree in Criminal Justice. I had to have acid reflux surgery and afterwards was given too much of the steroid Medrol. At any rate my body freaked out and for the next month I had constant panic attacks until my doctor prescribed me Paxil
Well the short of it. I was about to graduate in 2010 with a degree in Criminal Justice. I had to have acid reflux surgery and afterwards was given too much of the steroid Medrol. At any rate my body freaked out and for the next month I had constant panic attacks until my doctor prescribed me Paxil
MattFW
in
Anxiety Support
6 years ago
Hello
Hi! I am new here. I was diagnosed with behcets last November 2017. I have been taking methylprednisolone since then and now it has been tapered to 8mg medrol once a day. My face is really puffy, though i know it is the side effect of the medicine. I just wonder when it will subside? Or will it ever
Hi! I am new here. I was diagnosed with behcets last November 2017. I have been taking methylprednisolone since then and now it has been tapered to 8mg medrol once a day. My face is really puffy, though i know it is the side effect of the medicine. I just wonder when it will subside? Or will it ever
Joyceegirl
in
Behçet's UK
6 years ago
Newly Diagnosed
Hello my name is Eveliz. I am 40 yrs young, married with 2 adult sons. I was dx. 4 wks ago with RRMS and was dx after complaining to my PCP of heavy feeling/discomfort in my left arm, leg & foot, migraines, muscle spasms & daily extreme fatigue. Since I struggle with managing my cholesterol appropriately
Hello my name is Eveliz. I am 40 yrs young, married with 2 adult sons. I was dx. 4 wks ago with RRMS and was dx after complaining to my PCP of heavy feeling/discomfort in my left arm, leg & foot, migraines, muscle spasms & daily extreme fatigue. Since I struggle with managing my cholesterol appropriately
Eveliz
in
My MSAA Community
6 years ago
Can you go from adrenal fatigue to taking too much adrenal supplements...?
I took Medrol (4 mg daily) for a couple of years, prescribed by hormone doctor for adrenal fatigue...one day, that felt too much, so I ordered Metavive III instead and have been doing great on it. However, in the past couple of weeks, I have been feeling slightly hyperthyroid and wanted to know if anyone
I took Medrol (4 mg daily) for a couple of years, prescribed by hormone doctor for adrenal fatigue...one day, that felt too much, so I ordered Metavive III instead and have been doing great on it. However, in the past couple of weeks, I have been feeling slightly hyperthyroid and wanted to know if anyone
Hidden
in
Thyroid UK
6 years ago
Medications that are BAD for your bones?
Have you ever taken a moment to read the package insert that comes with your prescription drugs? There are many that can harm your bones. You may need to take one of these medications, but it is extra important to take steps to protect your bones.
Here are the most common medications that can harm
Have you ever taken a moment to read the package insert that comes with your prescription drugs? There are many that can harm your bones. You may need to take one of these medications, but it is extra important to take steps to protect your bones.
Here are the most common medications that can harm
Hidden
in
Osteoporosis Support
6 years ago
PMR where are you?
Recap, 1 week ago my Rheumatologist gave me a shot of Depo Medrol because I had a terrible flare due to tapering to quickly that affected not just the shoulders but the fingers and knees. She advised me to stay at my current dose of Rayos for 2 months along with Actemra. 2 days after the shot all the
Recap, 1 week ago my Rheumatologist gave me a shot of Depo Medrol because I had a terrible flare due to tapering to quickly that affected not just the shoulders but the fingers and knees. She advised me to stay at my current dose of Rayos for 2 months along with Actemra. 2 days after the shot all the
Marie1479
in
PMRGCAuk
6 years ago
34 yr old with Temperal Arteritis?
Anyone out there younger with this diagnosis? I believe this is what I'm dealing with but docs don't even want to entertain the idea because I'm too young. I'm 34. I'm feeling lost & scared. I'm on 4mg dose pack of Medrol steroid. It isn't helping much. I took this same dose pack a month ago & it helped
Anyone out there younger with this diagnosis? I believe this is what I'm dealing with but docs don't even want to entertain the idea because I'm too young. I'm 34. I'm feeling lost & scared. I'm on 4mg dose pack of Medrol steroid. It isn't helping much. I took this same dose pack a month ago & it helped
Hmc10
in
PMRGCAuk
6 years ago
Depo medrol pain! Ouch!
Hey guys! I had Depo medrol injection for inflammation in my buttock area following a Sequestrated Disc and Sciatic nerve pull. The injection site hurts like f***... is that normal? :/ It feels sore and weird ...
Hey guys! I had Depo medrol injection for inflammation in my buttock area following a Sequestrated Disc and Sciatic nerve pull. The injection site hurts like f***... is that normal? :/ It feels sore and weird ...
Alisheikalisheikh
in
NRAS
6 years ago
Depo Medrol shot for Flare
Hi everyone, I am on Actemra for PMR. I am also currently on 4mg of Rayos (time released Prednisone). I recently had a flare because I reduced too quickly. Completely my fault as I was feeling so great. The drop to 3mg was too fast and against Dr orders (and the Aunties). The next morning I could
Hi everyone, I am on Actemra for PMR. I am also currently on 4mg of Rayos (time released Prednisone). I recently had a flare because I reduced too quickly. Completely my fault as I was feeling so great. The drop to 3mg was too fast and against Dr orders (and the Aunties). The next morning I could
Marie1479
in
PMRGCAuk
6 years ago
Medrol
Are there any PMR patients in the United States taking Medrol instead of prednisone? Will U.S. doctors prescribe Medrol instead of prednisone if requested by the PMR patient?
Are there any PMR patients in the United States taking Medrol instead of prednisone? Will U.S. doctors prescribe Medrol instead of prednisone if requested by the PMR patient?
skipspmr
in
PMRGCAuk
6 years ago
Prednisone vs Prednisolone
I don't understand why prednisone is prescribed when prednisolone is available. Why do doctors in the U.S. prescribe prednisone when Medrol is available. If the liver has to convert the prednisone into prednisolone why not just take the prednisolone directly? I suspect that in the U.S. that prednisone
I don't understand why prednisone is prescribed when prednisolone is available. Why do doctors in the U.S. prescribe prednisone when Medrol is available. If the liver has to convert the prednisone into prednisolone why not just take the prednisolone directly? I suspect that in the U.S. that prednisone
skipspmr
in
PMRGCAuk
6 years ago
Still no diagnosis
Hello everyone, I am posting cause i am hoping someone has similar symptoms and can help me. To start I am a 45 yo female who is active doing taekwondo, yoga, and zumba. I was working full time and in grad school full time when in June I awoke and had excruciating right hip pain. The pain was in my
Hello everyone, I am posting cause i am hoping someone has similar symptoms and can help me. To start I am a 45 yo female who is active doing taekwondo, yoga, and zumba. I was working full time and in grad school full time when in June I awoke and had excruciating right hip pain. The pain was in my
Ladyheart
in
Foggy's "Invisible Illness" Support
6 years ago
ANA used to be 1:1320 but is now negative. Thoughts?
Hi. I'm new here. Hope that explains the slightly long intro :). In 2014, my ANA was ~1:1320. I was diagnosed with ITP and SLE; I was in the ER 3 times and was found on at least four occasions to have severely low platelets (2-6 range). I was initially treated with prednisone, and, since it proved to
Hi. I'm new here. Hope that explains the slightly long intro :). In 2014, my ANA was ~1:1320. I was diagnosed with ITP and SLE; I was in the ER 3 times and was found on at least four occasions to have severely low platelets (2-6 range). I was initially treated with prednisone, and, since it proved to
Newla
in
LUPUS UK
6 years ago
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