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ANA used to be 1:1320 but is now negative. Thoughts?
Hi. I'm new here. Hope that explains the slightly long intro :). In 2014, my ANA was ~1:1320. I was diagnosed with ITP and SLE; I was in the ER 3 times and was found on at least four occasions to have severely low platelets (2-6 range). I was initially treated with prednisone, and, since it proved to
Hi. I'm new here. Hope that explains the slightly long intro :). In 2014, my ANA was ~1:1320. I was diagnosed with ITP and SLE; I was in the ER 3 times and was found on at least four occasions to have severely low platelets (2-6 range). I was initially treated with prednisone, and, since it proved to
Newla
in
LUPUS UK
7 years ago
Biologics v Biosimilar Sulfra or Flare?
Hi All I had been on Enbrel for about 18 months for AS ( Ankylosing Spondylitis ) when I was informed I would be changing to Benepali. I went with it as I am all for saving the NHS money but now 8 weeks in the main AS symptoms Enbrel worked so well to keep in check have returned and i feel much worse
Hi All I had been on Enbrel for about 18 months for AS ( Ankylosing Spondylitis ) when I was informed I would be changing to Benepali. I went with it as I am all for saving the NHS money but now 8 weeks in the main AS symptoms Enbrel worked so well to keep in check have returned and i feel much worse
sappy
in
NRAS
7 years ago
New here-going to MS clinic this week
My Qs: anyone here diagnosed with normal lumbar puncture? Or misdiagnosed with migraine before MS diagnosis? This seems like a lovely community. I'm just going to jump in as I have my first MS clinic appt this week. I have seen two neurologists that say my mri lesions are migraine but my GP said no way
My Qs: anyone here diagnosed with normal lumbar puncture? Or misdiagnosed with migraine before MS diagnosis? This seems like a lovely community. I'm just going to jump in as I have my first MS clinic appt this week. I have seen two neurologists that say my mri lesions are migraine but my GP said no way
Qt314grl
in
My MSAA Community
7 years ago
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Methotrexate and sore throat
Hiya all Yesterday was feeling like burning up.But only I can feel it.This morning woke up with my first sore throat.had my depo Medrol jab a few days ago.normal it does not bother me.but went for my blood test yesterday.nurse took two attempts to take it.never had problem before.should I contact my
Hiya all Yesterday was feeling like burning up.But only I can feel it.This morning woke up with my first sore throat.had my depo Medrol jab a few days ago.normal it does not bother me.but went for my blood test yesterday.nurse took two attempts to take it.never had problem before.should I contact my
Nuttyshirlz
in
NRAS
6 years ago
Free of PMR
Hi, in 2011 i was diagnosed with PMR and started with 16mgr medrol. Everytime we lowered the dose to 4mgr, i had to go back to 12mgr or 8 mgr because i was back in pain and my blood results were bad. End 2015 i've stopped the medication and went to another doctor. She put me on a detox and an other way
Hi, in 2011 i was diagnosed with PMR and started with 16mgr medrol. Everytime we lowered the dose to 4mgr, i had to go back to 12mgr or 8 mgr because i was back in pain and my blood results were bad. End 2015 i've stopped the medication and went to another doctor. She put me on a detox and an other way
Heja1801
in
PMRGCAuk
7 years ago
Would appreciate feedback on doctor
I realise this may sound strange but, lately, I have been trying to figure out if my so called hormone doctor is a good doctor or not, at least as far as I'm concerned...so I'd appreciate any feedback on the treatment so far (first visit to doctor in late 2011): - I was diagnosed with adrenal fatigue
I realise this may sound strange but, lately, I have been trying to figure out if my so called hormone doctor is a good doctor or not, at least as far as I'm concerned...so I'd appreciate any feedback on the treatment so far (first visit to doctor in late 2011): - I was diagnosed with adrenal fatigue
Hidden
in
Thyroid UK
7 years ago
Living with PMR
I'm a 53 year old female suffering from PMR for a year and a half now. I am down to 6mg a day and feeling pretty good. I have learned when you go down in your dosage to do it real slow. I got very swollen and puffy in my face, tummy and back of the neck. I didn't even recognize myself. I have decreased
I'm a 53 year old female suffering from PMR for a year and a half now. I am down to 6mg a day and feeling pretty good. I have learned when you go down in your dosage to do it real slow. I got very swollen and puffy in my face, tummy and back of the neck. I didn't even recognize myself. I have decreased
smoothilly
in
PMRGCAuk
7 years ago
How much adrenal cortex is there in whole adrenal...?
Does anyone have any idea how much adrenal cortex whole adrenal approximately contains? I have been on 250 mg of adrenal cortex extract for the past year, after weaning off Medrol for adrenal fatigue, and have felt wonderful on it. But I have just started taking a supplement containing, among other things
Does anyone have any idea how much adrenal cortex whole adrenal approximately contains? I have been on 250 mg of adrenal cortex extract for the past year, after weaning off Medrol for adrenal fatigue, and have felt wonderful on it. But I have just started taking a supplement containing, among other things
Hidden
in
Thyroid UK
7 years ago
Treatment of Systemic Onset JIA with Actemra (Tocilizumab)
My 2 year old Son was diagnosed with Systemic onset JIA on in June 2017. Though the symptoms started few days before diagnosis, pediatric rheumatologist started treatment of SoJIA after ruling out septic arthritis. NSAID - 2 weeks Predinsolone - 4 weeks ( 2mg/kg/day) - Now in tapering
My 2 year old Son was diagnosed with Systemic onset JIA on in June 2017. Though the symptoms started few days before diagnosis, pediatric rheumatologist started treatment of SoJIA after ruling out septic arthritis. NSAID - 2 weeks Predinsolone - 4 weeks ( 2mg/kg/day) - Now in tapering
Siva_Uddanti
in
JIA-at-NRAS
7 years ago
Depo-Medrone
I am booked to have a Depo-Mexrone 120mg injection but haven't had one before. Any views on it????
I am booked to have a Depo-Mexrone 120mg injection but haven't had one before. Any views on it????
Rubylu
in
LUPUS UK
7 years ago
Depo-Medrone
I am books to have a Depo-Mexrone 120mg ink. Haven't had one before. Any views on it????
I am books to have a Depo-Mexrone 120mg ink. Haven't had one before. Any views on it????
Rubylu
in
LUPUS UK
7 years ago
Update
I think myself lucky to have an attentive rheumi team. I can ring and leave a message for the specialist nurses / consult or email them (handy if I've got significant changes I can photo), and within 3 working days they get back with feedback. On this occasion they are recommending depo-medrone 120mg
I think myself lucky to have an attentive rheumi team. I can ring and leave a message for the specialist nurses / consult or email them (handy if I've got significant changes I can photo), and within 3 working days they get back with feedback. On this occasion they are recommending depo-medrone 120mg
Rubylu
in
LUPUS UK
7 years ago
Hip and thigh pains.
Hi everyone here,Im glad to be part of this great Community.I have been having pains in my hips for few weeks now.Have tried many medications like pain killers but no impressive result.Im thinking of taking Depo Medrol injection 40mg if it will work.Please enlighten me,if you have similar experience
Hi everyone here,Im glad to be part of this great Community.I have been having pains in my hips for few weeks now.Have tried many medications like pain killers but no impressive result.Im thinking of taking Depo Medrol injection 40mg if it will work.Please enlighten me,if you have similar experience
Olapeter
in
PMRGCAuk
7 years ago
New to MSAA Community
Hello Everyone! I had been diagnosed with RRMS in 2009. Found out this past Thurs. it was wrong, actually PPMS. All these years of unnecessary DMT's, awful side effects and far too many infusions of Solumedrol. Be brave, power forward and as patients NEVER stop questioning your healthcare providers!
Hello Everyone! I had been diagnosed with RRMS in 2009. Found out this past Thurs. it was wrong, actually PPMS. All these years of unnecessary DMT's, awful side effects and far too many infusions of Solumedrol. Be brave, power forward and as patients NEVER stop questioning your healthcare providers!
HighTide
in
My MSAA Community
7 years ago
Likely GCA but not yet diagnosed and scared to death!
Firstly, I want to say this is a wonderful and valuable forum. Although this is my first post, I think I've already read just about every post in your archives. My autoimmune history is long and too involved to explain but two years ago, I developed dramatic new symptoms which presented like PMR/GCA
Firstly, I want to say this is a wonderful and valuable forum. Although this is my first post, I think I've already read just about every post in your archives. My autoimmune history is long and too involved to explain but two years ago, I developed dramatic new symptoms which presented like PMR/GCA
AnnS
in
PMRGCAuk
7 years ago
Solumedrol
Hello all!!!!! Today I start 3 freaking days of steroids!!!! I hate steroids! They totally mess with my diabetes! The next 6 days of my blood sugars are going to suck!!!! No carbs for me. Grrrrrrrr. So if you all could say a prayer I get ahead of the high sugars and exhaustion to follow. I would be most
Hello all!!!!! Today I start 3 freaking days of steroids!!!! I hate steroids! They totally mess with my diabetes! The next 6 days of my blood sugars are going to suck!!!! No carbs for me. Grrrrrrrr. So if you all could say a prayer I get ahead of the high sugars and exhaustion to follow. I would be most
rlh1974
in
My MSAA Community
7 years ago
Depo-Medrone 12l Intramuscular
Hi everyone. I have been having the above steroid jabs in my bum. The Rheumatology Nurse does one at the hospital (& between her & my Consultant I have the usual checks). Three months later the next jab is done at my GP Surgery. My last jab was booked at my surgery for 12 July. Fine. Then I received
Hi everyone. I have been having the above steroid jabs in my bum. The Rheumatology Nurse does one at the hospital (& between her & my Consultant I have the usual checks). Three months later the next jab is done at my GP Surgery. My last jab was booked at my surgery for 12 July. Fine. Then I received
Blackwitch
in
NRAS
7 years ago
2nd half-dose Ocrevus Infusion Completed
As many of you following Ocrevus news and experiences are aware, the first 600 mg. dose of Ocrevus (ocrelizumab) is divided into two half-doses spaced two weeks apart. I posted earlier about my first infusion ("Ocrevus - Tomorrow's the Day"), and yesterday I completed the second infusion installment.
As many of you following Ocrevus news and experiences are aware, the first 600 mg. dose of Ocrevus (ocrelizumab) is divided into two half-doses spaced two weeks apart. I posted earlier about my first infusion ("Ocrevus - Tomorrow's the Day"), and yesterday I completed the second infusion installment.
dianekjs
in
My MSAA Community
7 years ago
Would appreciate some input on newest labs!
I went to the lab two weeks ago and got my results today (seeing hormone doctor later this week). I feel quite confused and I'd really appreciate some feedback on them (long post!) I have been on 5 grains of Thyroid-S for the past two years. Last year, I even tried raising it after labs came back: TSH
I went to the lab two weeks ago and got my results today (seeing hormone doctor later this week). I feel quite confused and I'd really appreciate some feedback on them (long post!) I have been on 5 grains of Thyroid-S for the past two years. Last year, I even tried raising it after labs came back: TSH
Hidden
in
Thyroid UK
7 years ago
Glioblastoma diagnosed: tapered, stopped Medrol
Hi, i was on Medrol for 3 months, diagnosed with glioblastoma. After radiation of 6 weeks, the Medrol has been tapered and stopped. I feel tasteless, very weak, have headaches, fever, depression and much more. It has been 2 days after stop. Can I take dolo 650 for this?
Hi, i was on Medrol for 3 months, diagnosed with glioblastoma. After radiation of 6 weeks, the Medrol has been tapered and stopped. I feel tasteless, very weak, have headaches, fever, depression and much more. It has been 2 days after stop. Can I take dolo 650 for this?
Sarojinivm
in
PMRGCAuk
7 years ago
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