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Opinions Please!!!
Hi :) I need everyones opinions & input but first let me fill you in on my family medical history with autoimmune disease as well as my own. Family History: Twin Sister: Eczema, Raynauds (Not severe), Erythema Nodosum Grandfather: Protein C deficiency & Factor 5 Leiden Mutation "Sticky Blood" (Blood
Hi :) I need everyones opinions & input but first let me fill you in on my family medical history with autoimmune disease as well as my own. Family History: Twin Sister: Eczema, Raynauds (Not severe), Erythema Nodosum Grandfather: Protein C deficiency & Factor 5 Leiden Mutation "Sticky Blood" (Blood
Hidden
in
LUPUS UK
10 years ago
Rheumatoid arthritis diagnosis. yes or no?
Hi all, This is my first post as i need help and clarification. Back in March this year 2014, out of no where i woke up with Swollen fingers in the AM, did think much of it. Long story short. After a couple of months and no help from DR's i couldn't walk in the AM. My hands were so swollen and painful
Hi all, This is my first post as i need help and clarification. Back in March this year 2014, out of no where i woke up with Swollen fingers in the AM, did think much of it. Long story short. After a couple of months and no help from DR's i couldn't walk in the AM. My hands were so swollen and painful
hall10
in
NRAS
10 years ago
How long does IM depo medrone last?
Hi, Does anyone else get IM steroid injections. I had my last about a month ago and it made such a difference but today I feel exhausted again, with the knees and feet starting to get tender. I realize it could be the temperature and the fact we had a weekend visiting friends but I had been feeling so
Hi, Does anyone else get IM steroid injections. I had my last about a month ago and it made such a difference but today I feel exhausted again, with the knees and feet starting to get tender. I realize it could be the temperature and the fact we had a weekend visiting friends but I had been feeling so
Whathappned
in
LUPUS UK
10 years ago
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worried about trying methotrexate.
Hi all i have been taking azathioprine for nearly 2 yrs. I had a flare up which started a month ago and had a depo medrone steroid 2 weeks ago which didn't touch me. I went to rheum clinic today and the consultant decided to put me on methotrexate which i am a bit worried about. Mostly its the side effects
Hi all i have been taking azathioprine for nearly 2 yrs. I had a flare up which started a month ago and had a depo medrone steroid 2 weeks ago which didn't touch me. I went to rheum clinic today and the consultant decided to put me on methotrexate which i am a bit worried about. Mostly its the side effects
ush1401
in
LUPUS UK
10 years ago
Inactive lymph nodes? Mine don't seem to be working could that be PMR related?
Last week I had a very nasty suspected infected insect bite on my face which became very swollen and alarmed my GP so much he sent me to a specialist ENT to get it drained. The ENT sent me for an ultrasound which ruled out a dental or bone abscess but showed that the lymph glands in my neck had not reacted
Last week I had a very nasty suspected infected insect bite on my face which became very swollen and alarmed my GP so much he sent me to a specialist ENT to get it drained. The ENT sent me for an ultrasound which ruled out a dental or bone abscess but showed that the lymph glands in my neck had not reacted
Loco99
in
PMRGCAuk
10 years ago
Massive fluid retention after injection of cortisone
Hi All. Has anyone else had lots of fluid retention, particularly in thighs and belly, after injection of Depo-Medrone (cortisone)? I had 120 mgs after crawling off to GP when my batteries had run down and blew up some days later. I'm on 7.5mgs daily but am waiting for hip replacement so am off everything
Hi All. Has anyone else had lots of fluid retention, particularly in thighs and belly, after injection of Depo-Medrone (cortisone)? I had 120 mgs after crawling off to GP when my batteries had run down and blew up some days later. I'm on 7.5mgs daily but am waiting for hip replacement so am off everything
Hidden
in
NRAS
10 years ago
Does anyone else get allergic reactions from vitamin supplements?
I've had PMR for four years and am down to 4mg of Medrol with the odd flare now and then. I am getting rather fed up because I would like to take a multivitamin supplement but every one I've tried so far has given me an allergic reaction, a sensation of pins and needles and a hot tingling sensation.
I've had PMR for four years and am down to 4mg of Medrol with the odd flare now and then. I am getting rather fed up because I would like to take a multivitamin supplement but every one I've tried so far has given me an allergic reaction, a sensation of pins and needles and a hot tingling sensation.
Loco99
in
PMRGCAuk
10 years ago
Happy Easter/Happy Passover, Surviving the holiday !
Hi Everyone, wanted to say Happy Easter, Happy Passover to all of us. Hope everyone had a good day and felt ok. Mine was good. feeling a little dizzy, small headache, took 2 extra grams of medrol and an extra aspirin. Feel ok. Nice day on the Hudson River. Wanted also to say thank you to everyone
Hi Everyone, wanted to say Happy Easter, Happy Passover to all of us. Hope everyone had a good day and felt ok. Mine was good. feeling a little dizzy, small headache, took 2 extra grams of medrol and an extra aspirin. Feel ok. Nice day on the Hudson River. Wanted also to say thank you to everyone
Whittlesey
in
PMRGCAuk
10 years ago
Intern who prescribed azithr will be at the hosp./Thursday.Will call then
Hi, I called the hospital to speak with the treating intern from last night and she will not be working again, until Thursday. Will be on the phone, tomorrow, with my doctor. medrol and macrolides are not a good mix. The intern apparently believed I had "rheumatoid artheritis" not "temporal arteritis
Hi, I called the hospital to speak with the treating intern from last night and she will not be working again, until Thursday. Will be on the phone, tomorrow, with my doctor. medrol and macrolides are not a good mix. The intern apparently believed I had "rheumatoid artheritis" not "temporal arteritis
Whittlesey
in
PMRGCAuk
10 years ago
Emer. Room/Last Night/Pneumonia/prescribed azirothmycin
Hi Everyone, Thanks for the good information on quilones and medrol. I am taking methylpredisolone and I don't have as bad a reaction, as happens with prednisone. They gave it to me during a flare, by injection. Last night at the ER, I was diagnosed with pneumonia. The doctor prescribed azirothmycin
Hi Everyone, Thanks for the good information on quilones and medrol. I am taking methylpredisolone and I don't have as bad a reaction, as happens with prednisone. They gave it to me during a flare, by injection. Last night at the ER, I was diagnosed with pneumonia. The doctor prescribed azirothmycin
Whittlesey
in
PMRGCAuk
10 years ago
Is my immune system on the blink?
I've had PMR for four years, I started on 20mg of Medrol and am now down to 4mg ( there have a few flares along the way) I want to reduce the dose even further if possible. I'm feeling good as regards muscle pain but in the last few months have been plagued by minor infections. A bad sinus attack, oral
I've had PMR for four years, I started on 20mg of Medrol and am now down to 4mg ( there have a few flares along the way) I want to reduce the dose even further if possible. I'm feeling good as regards muscle pain but in the last few months have been plagued by minor infections. A bad sinus attack, oral
Loco99
in
PMRGCAuk
10 years ago
Found link to Christine Northrup and information on adrenal dysfunction
Hi Everyone, I found the link from Christine Northrup on adrenal dysfunction. Her advice is good and I find it helps.A major difference is that we are not dealing with stress related Adrenal dysfunction, it is medicine related, but the advice is good, it seems. Another bad storm here and I missed
Hi Everyone, I found the link from Christine Northrup on adrenal dysfunction. Her advice is good and I find it helps.A major difference is that we are not dealing with stress related Adrenal dysfunction, it is medicine related, but the advice is good, it seems. Another bad storm here and I missed
Whittlesey
in
PMRGCAuk
11 years ago
Recovering adrenal function study, posting
Hi All, Received shot of methotextrate today, 2mgs for the week. Have been feeling better. Doctor is ok with my taking 3mgs per day of medrol. Did some research and found this study on recovering adrenal function. This testing seems to show positive results. If I am reading it correctly, it can take
Hi All, Received shot of methotextrate today, 2mgs for the week. Have been feeling better. Doctor is ok with my taking 3mgs per day of medrol. Did some research and found this study on recovering adrenal function. This testing seems to show positive results. If I am reading it correctly, it can take
Whittlesey
in
PMRGCAuk
11 years ago
Hi.thank everyone for their support last weekend.
Have been to the rheumatologist this week and had the methetextrate injection on Monday and the Cushing's type symptoms don't seem so evident, nor as bad. Very bad weekend. and I have had a couple of bad days this week. The advice is best, if you feel this -- give yourself "leave" to relax. This
Have been to the rheumatologist this week and had the methetextrate injection on Monday and the Cushing's type symptoms don't seem so evident, nor as bad. Very bad weekend. and I have had a couple of bad days this week. The advice is best, if you feel this -- give yourself "leave" to relax. This
Whittlesey
in
PMRGCAuk
11 years ago
Is it possible to have methetextrate withdrawal, which includes heavy fatigue? Or is it the adrenals not highly functioning?
Missed the appt. w/Dr. this Wed. for injection of methetextrate and slowly since Wed. have been feeling more and more fatigued. today it's very bad. I took the 3 mgs of medrol. I called the Dr. and asked about taking 2 more mgs of medrol. She said, "Yes" to do it. I did, felt better for a few hours
Missed the appt. w/Dr. this Wed. for injection of methetextrate and slowly since Wed. have been feeling more and more fatigued. today it's very bad. I took the 3 mgs of medrol. I called the Dr. and asked about taking 2 more mgs of medrol. She said, "Yes" to do it. I did, felt better for a few hours
Whittlesey
in
PMRGCAuk
11 years ago
Scan rescheduled for Tues due to heavy snow and extreme cold in Manhattan.
Hi everyone, I missed my appointment with my rheumatologist, last Wed due to this weather. So I did not get the 10 mgs of methetextrate by muscular injection. It is Saturday, 5:30pm, our time, Jan 25, and I am exhausted. all day. Am making chicken soup now, but extreme fatigue, exhaustion, muscle
Hi everyone, I missed my appointment with my rheumatologist, last Wed due to this weather. So I did not get the 10 mgs of methetextrate by muscular injection. It is Saturday, 5:30pm, our time, Jan 25, and I am exhausted. all day. Am making chicken soup now, but extreme fatigue, exhaustion, muscle
Whittlesey
in
PMRGCAuk
11 years ago
Appointment with thoracic surgeon today re: aneurysm vertebral artery
Hi everyone. Today I have an appointment with my thoracic surgeon to discuss the aneurysm found on the vertebral artery. I have to go for imaging later in the week. I am hoping that it has not enlarged. They will also discuss the condition of the arteries dissecting: has it lessened, increased or
Hi everyone. Today I have an appointment with my thoracic surgeon to discuss the aneurysm found on the vertebral artery. I have to go for imaging later in the week. I am hoping that it has not enlarged. They will also discuss the condition of the arteries dissecting: has it lessened, increased or
Whittlesey
in
PMRGCAuk
11 years ago
Acute Bacterial Meningitis - post Pontine Cavernoma back out surgery
It’s been almost a week. Initially my father (age-56) was admitted due to some abnormality in cavernoma. Went through a surgery as suggested by the Doc. Due to the criticality of the position of this Pontine Cavernoma, they opted for a back out. Post surgery the patient was in somewhat stable state.
It’s been almost a week. Initially my father (age-56) was admitted due to some abnormality in cavernoma. Went through a surgery as suggested by the Doc. Due to the criticality of the position of this Pontine Cavernoma, they opted for a back out. Post surgery the patient was in somewhat stable state.
sabyasachi88
in
Meningitis Now
11 years ago
Starting depo medrol monthly injections soon.any side effects apart from bone thinning known by anyone?
Diagnosed 2005 lupus sufferer
Diagnosed 2005 lupus sufferer
Hidden
in
LUPUS UK
11 years ago
antiphospholipid syndrome attacks lungs need help
I want to ask for your help, It's about my sister whose condition progressively worse. Doctors suspect on pulmonary fibroma as the result of the antiphospholipid syndrome. If you are to look and give me your valued opinion. Yesterday is connected to the NIV . Please help me. Any advice is welcome. Believe
I want to ask for your help, It's about my sister whose condition progressively worse. Doctors suspect on pulmonary fibroma as the result of the antiphospholipid syndrome. If you are to look and give me your valued opinion. Yesterday is connected to the NIV . Please help me. Any advice is welcome. Believe
helpmysister
in
Hughes Syndrome APS Forum
11 years ago
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