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Parkinson’s and RLS
Hello, I’m new to the forum and have signed up on behalf of my mum, to try and get some advice based on her current medication and her RLS. Mum-has been diagnosed with Parkinson’s approximately 1 year ago , although was misdiagnosed twice by 2 x GP’s as not having it! Not great. Medication taking
Hello, I’m new to the forum and have signed up on behalf of my mum, to try and get some advice based on her current medication and her RLS. Mum-has been diagnosed with Parkinson’s approximately 1 year ago , although was misdiagnosed twice by 2 x GP’s as not having it! Not great. Medication taking
SR223
in
Restless Legs Syndrome
11 months ago
new bloods incl Rt3
hi everyone, I am having a lot of symptoms still but one of my main issues is my vision and extreme fatigue. Especially around my monthly cycle my vision is blurry and I am so dizzy with vertigo I can hardly see. I have been having this issue for 7 months or so. My bloods are the best they have been
hi everyone, I am having a lot of symptoms still but one of my main issues is my vision and extreme fatigue. Especially around my monthly cycle my vision is blurry and I am so dizzy with vertigo I can hardly see. I have been having this issue for 7 months or so. My bloods are the best they have been
Ajva
in
Thyroid UK
1 year ago
Anovultory cycle
[i]
I have been trying to get pregnant for last 11 years but so sad can’t achieve pregnancy…. I don’t have enough money to go to the fertility doctor .. now I’m 37 years old from last 2 months I m not ovulating…. I tested LH surge at home it was 0.. I don’t know what to do … very sad and disappointed
[i]
I have been trying to get pregnant for last 11 years but so sad can’t achieve pregnancy…. I don’t have enough money to go to the fertility doctor .. now I’m 37 years old from last 2 months I m not ovulating…. I tested LH surge at home it was 0.. I don’t know what to do … very sad and disappointed
Bilaaa
in
Fertility Network UK
1 year ago
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Advice on latest ferritin, VitD, vitB12 please
Latest results, TDL 5.7.23 (in image)
• Vitamin B12 256 nmol/L (25.1 - 165) 165.0% HIGH • Vitamin D 96 nmol/L (50 - 200) 30.7% • Ferritin 241 ug/L (13 - 150) 166.4% HIGH
NHS iron panel 3.7.23
• Ferritin 133.2 ug/L (10 - 291) 43.8% • Serum Iron 16.6 umol/L (9 - 30.4) 35.5%
Medichecks
Latest results, TDL 5.7.23 (in image)
• Vitamin B12 256 nmol/L (25.1 - 165) 165.0% HIGH • Vitamin D 96 nmol/L (50 - 200) 30.7% • Ferritin 241 ug/L (13 - 150) 166.4% HIGH
NHS iron panel 3.7.23
• Ferritin 133.2 ug/L (10 - 291) 43.8% • Serum Iron 16.6 umol/L (9 - 30.4) 35.5%
Medichecks
Insomania
in
Thyroid UK
1 year ago
rls and leg weakness
This is a response to another post asking about correlation of RLS and numb hands and feet. I think there is a connection. However there are so many other possible explanations. A search of "nerveguard MD" does list RLS. But more common comorbidity explanations are pinching nerve fibers from carpel
This is a response to another post asking about correlation of RLS and numb hands and feet. I think there is a connection. However there are so many other possible explanations. A search of "nerveguard MD" does list RLS. But more common comorbidity explanations are pinching nerve fibers from carpel
WelbyB
in
Restless Legs Syndrome
1 year ago
Key Vitamin test results and assistance with others...
Evening, Would people be so kind as to comment on my vitamin test results and help me understand others? B12: 616 ng/l - Range 145.00 - 914.00 Folate: 22.72 ug/l - 3.00 - 20.00 (just swapped over to methyl folate). Vit D: 80 nmol HbA1c level (DCCT aligned) 5.5 % HbA1c level 36 mnol/mol range
Evening, Would people be so kind as to comment on my vitamin test results and help me understand others? B12: 616 ng/l - Range 145.00 - 914.00 Folate: 22.72 ug/l - 3.00 - 20.00 (just swapped over to methyl folate). Vit D: 80 nmol HbA1c level (DCCT aligned) 5.5 % HbA1c level 36 mnol/mol range
joey82
in
Thyroid UK
1 year ago
blood tests
hello, can anyone help me figure out these tests? I had a private test in April. Results showed TSH 1 normal (0.55-4.8) Free thyroxine 9.2pmol/l (10.4-19.4) low Also showed low iron and vit d and folate. I’ve had iron infusion, vit d injection and b12 and b complex injections nhs gp wanted to retest
hello, can anyone help me figure out these tests? I had a private test in April. Results showed TSH 1 normal (0.55-4.8) Free thyroxine 9.2pmol/l (10.4-19.4) low Also showed low iron and vit d and folate. I’ve had iron infusion, vit d injection and b12 and b complex injections nhs gp wanted to retest
Laundry
in
Thyroid UK
1 year ago
help interpreting last test results
Hello Ive written here in the past with my issues on Thyroid-S and have decided to stick it out and go slow. I was wondering if I can get your thoughts on my last results: Im on 1.75 grains of ndt for 5 weeks and premenopausal. I did not have my period for 6 months (since August) I beleive due to low
Hello Ive written here in the past with my issues on Thyroid-S and have decided to stick it out and go slow. I was wondering if I can get your thoughts on my last results: Im on 1.75 grains of ndt for 5 weeks and premenopausal. I did not have my period for 6 months (since August) I beleive due to low
MiaMam
in
Thyroid UK
4 months ago
Beef Liver Capsules?
Has anyone tried a long term supplementation of Beef Liver Capsules, they are a good source of Heme Iron, and vitamins, as well as other minerals, and Amino acids?
Has anyone tried a long term supplementation of Beef Liver Capsules, they are a good source of Heme Iron, and vitamins, as well as other minerals, and Amino acids?
Wanman4
in
Restless Legs Syndrome
1 year ago
Altruist
My story won't apply to everyone, of course, but you may find a nugget worth considering. I've had mild RLS intermittently for forty years until it recently worsened. I'd always managed it with weighted heat, L-Tryptophan, magnesium glycinate, L-Theanine, and if necessary, a little pacing. At age 36,
My story won't apply to everyone, of course, but you may find a nugget worth considering. I've had mild RLS intermittently for forty years until it recently worsened. I'd always managed it with weighted heat, L-Tryptophan, magnesium glycinate, L-Theanine, and if necessary, a little pacing. At age 36,
Altruist
in
Restless Legs Syndrome
1 year ago
Desperate.
Hi,I've stopped Pramipexole in the last few months which I'm happy about but and this is a BIG but,I've been taking Pregabalin without any ease at all,I'm at my wit's end,what do I do now and what do I take.my RLS is never ending, every night and sometimes during the day,really not sure if I can continue
Hi,I've stopped Pramipexole in the last few months which I'm happy about but and this is a BIG but,I've been taking Pregabalin without any ease at all,I'm at my wit's end,what do I do now and what do I take.my RLS is never ending, every night and sometimes during the day,really not sure if I can continue
Whymelord
in
Restless Legs Syndrome
1 year ago
RSL - has anyone had severe side effects
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
Paul2905
in
Restless Legs Syndrome
10 months ago
augmentation pregabilin
Hi I have been taking pregabilin 150 mg early evening which has been very effective up until recently, for my RLS. I have complex medical issues and have recently had an iron infusion. I have a 12 hour abdominal surgery due on 26 th September. I would just like clarification that augmentation is
Hi I have been taking pregabilin 150 mg early evening which has been very effective up until recently, for my RLS. I have complex medical issues and have recently had an iron infusion. I have a 12 hour abdominal surgery due on 26 th September. I would just like clarification that augmentation is
Esme2007
in
Restless Legs Syndrome
1 year ago
chilblanes in summer? Help
hi everyone I have autoimmune thyroid disorder and receive t3 from my doc for it. It is well managed and I’m about 85% through the range for free t3. My t4 is none existent and so is tsh. I’ve been managing my levels well for a few years now. I’ve been getting bad chilblanes for the past few months
hi everyone I have autoimmune thyroid disorder and receive t3 from my doc for it. It is well managed and I’m about 85% through the range for free t3. My t4 is none existent and so is tsh. I’ve been managing my levels well for a few years now. I’ve been getting bad chilblanes for the past few months
Frances0008
in
Thyroid UK
1 year ago
pramixipole YOU MUST READ THIS!!!!
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
PLEASE PLEASE be aware of the side effects of this drug. My husband had been taking it for approx 7 years and then the behavioural disorder started about 4 years ago (although we didn’t realise that this was due to the drug). Two weeks ago after gambling over £50000 in the past years he went to the
Paul2905
in
Restless Legs Syndrome
10 months ago
crying out loud for help..
I have deteriorated this 2023; YOPD, diagnosed 12 years ago, delivered a baby four years ago. Will be celebrating (hopefully) 40th birthday in Q4 this year. On Credanil®. (Levodopa/Carbidopa)- 125 mg since then along with dopamine agonists pramipexole 0.375 mg ER. This year tremendous fatigue, brain
I have deteriorated this 2023; YOPD, diagnosed 12 years ago, delivered a baby four years ago. Will be celebrating (hopefully) 40th birthday in Q4 this year. On Credanil®. (Levodopa/Carbidopa)- 125 mg since then along with dopamine agonists pramipexole 0.375 mg ER. This year tremendous fatigue, brain
Divii
in
Cure Parkinson's
1 year ago
22 year old Female, Low Oestrogen, PCOS? Low T4
Hi everyone, I would like your advice over my daughters blood tests please. She has an appointment with a Hormone Specialist in 10 days. Is there any specific information she needs to bring to show the specialist? She has very thin hair on the top of her head and still losing it. Excess hair
Hi everyone, I would like your advice over my daughters blood tests please. She has an appointment with a Hormone Specialist in 10 days. Is there any specific information she needs to bring to show the specialist? She has very thin hair on the top of her head and still losing it. Excess hair
Bubydizer
in
Thyroid UK
1 year ago
Low ferritin
Hello everyone , wondered if anybody could shed any light? I have had low ferritin levels for the last couple of blood tests and I'm due to speak to my GP on Wednesday next week. I am taking liquid iron as a supplement and have sle hypermobility and suffer with gastro issues... Has anyone been able
Hello everyone , wondered if anybody could shed any light? I have had low ferritin levels for the last couple of blood tests and I'm due to speak to my GP on Wednesday next week. I am taking liquid iron as a supplement and have sle hypermobility and suffer with gastro issues... Has anyone been able
sunshine16
in
LUPUS UK
1 year ago
Gentle iron
Hi everone,Following on from my recent posts regarding iron supplements, I would like to let you know that I have doubled my iron intake in the last couple of days and it has helped my RLS . It broke through at 5am, but from 9pm until the breakthrough at 5am, I was mostly free from symptoms. I know I
Hi everone,Following on from my recent posts regarding iron supplements, I would like to let you know that I have doubled my iron intake in the last couple of days and it has helped my RLS . It broke through at 5am, but from 9pm until the breakthrough at 5am, I was mostly free from symptoms. I know I
pennygates
in
Restless Legs Syndrome
1 year ago
Melatonin
I started taking melatonin a month ago to try and improve my sleep. At the time my rls symptoms had totally stopped following an iron infusion. However, prior to actually starting the melatonin, they came back mildly. Having been on the melatonin for a month, they seem worse and rls is listed as a
I started taking melatonin a month ago to try and improve my sleep. At the time my rls symptoms had totally stopped following an iron infusion. However, prior to actually starting the melatonin, they came back mildly. Having been on the melatonin for a month, they seem worse and rls is listed as a
Edengirl58
in
Restless Legs Syndrome
1 year ago
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