Your T4 has improved a little but it is still low in range and think something ' thyroid ' must be going on.
Seeing you have recently had an iron infusion, B12 complex and vitamin D injections I can only imagine your core strength vitamins and minerals levels serious low and your health compromised.
Hopefully once these injections take full effect you may start to feel a bit better - I'm sorry but I don't know enough to say much more but hopefully I'll be able to bump you up the forum and other members will feel better able to help you.
Gp will not do any other tests. Private bloods done in April showed low in vit d, iron, folate. No other vitamin or mineral or thyroid tests done.
Gp is not interested. I eat a healthy diet and take iron and supplements. Have done for years but still low iron etc so I had the iron infusion and vit injections myself in the hope it would make me feel better. I’m still feeling…
Symptoms
Crushing fatigue for years (slept 15.5h still tired), cold all the time, ringing ears, memory issues that feel like dementia, dry skin, weight gain that I can’t loose, strange water retention in upper arms, face, tummy, thighs. Nerve pain, carpel tunnel, tennis elbow, back and neck pain, muscle pain, joint pain, dry itchy skin, pins abs needles, anxious, sad, low, heavy periods, look pale/tired, short of breath, eye sight deteriorated
Previously diagnosed with
Peri meno (on HRT), pmdd, anxiety/depression (on sertraline), adhd (on elvanse). Still feel like death
Is this thyroid? What tests should I be getting asap? I’ve seen 3 gps in the hope that one of them will take me seriously but they are not. I’ve been saying something is wrong for over 10 years🥹 I just want to feel better
Unfortunately when it comes to fatigue and associated issues many of us have to take things into our own hands. Vitamin supplements inparticular. The NHS will only treat a deficiency and not provide ongoing supplements.
I have previously recommended this B complex which would help your low folate. Having an infusion will only last you so long and you likely need ongoing supplements.
Has your iron level been rechecked since you had the infusion?
You really need your thyroid antibodies checked which are included in the many private thyroid panels. See link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost. thyroiduk.org/help-and-supp...
There is also a new company offering walk in & mail order blood tests in Crawley, Hove and Reigate areas. No charge for blood draw in clinic. Check to see if there is a blood test company near you. onedaytests.com/products/ul...
I see that your FT4 has been below range at one point which would definitely point to a thyroid condition, possible secondary hypothyroidism where the pituitary doesnt work well so the thyroid then doesnt put out enough hormone.
Your FT4 is now at 29% of range which is still not good enough for most people although your TSH only just above 2.
PLMD often linked to low iron/ferritin.
ADHD linked to Ehlers Danlos Syndrome/ Hypermobility Spectrum disorder.
Have you tried any dietary changes yet? Gluten & dairy would be top of the list to eliminate one by one.
thanks for this @jadee I’ve only been considering that this is Thyroid for the last few weeks. I just hoped the iron and vit d might do the trick but it hasn’t.
I’ve not cut anything out of my diet yet because I know that they’ll want me on gluten for celiac test. I’d like to find out exactly what is going on first and then come up with a plan.
I’ve ordered the supplements you suggested. I did have b complex, methyl folate etc but I’ve read you shouldn’t take when you are going to have a blood test so I want to arrange that asap and then sort out deficiencies
I’ve been looking back through nhs blood results on the app and there’s a few red flags
TSH is always normal
Iron been low/boarderline for years since I had my babies
Iga when they suspected celiac was v v v low (never looked into)
CRP is up at 4.8 (2023)and has been over 2 for years (drs have always said “bloods are all fine nothings wrong”)
Alkaline phosphatase low or just below range
mchc low
Mpv high
Hormones on the decline until started HRT
What is going on? ? !!
-What vitamins should I check for? Magnesium, selenium, zinc, copper anything else? Iodine?
- full thyroid tests inc antibodies
- prolactin, growth hormone for secondary hypothyroidism?
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