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RGA 314 gene therapy
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
my doctor asked me to participate in phase 3 RGA 314 gene therapy for macular degeneration. I received the reading material to decide if I want to enter the clinical trials. When I read the possible ricks of the procedure, this statement worried me “once RGA 314 is given to you, there may not be a way
Slattery
in
Macular Society
1 year ago
combination of NDT and t4?
Just reaching out to see if anyone else is on a NDT with an added t4. Unable to increase NDT due to t3 going over range. I ended up adding in t4 50mcg to 1 grain armour. I then switched to 125mcg (gradually increased to this over the past 7 months) plus a 5mcg of t3 compounded. well I feel dreadful
Just reaching out to see if anyone else is on a NDT with an added t4. Unable to increase NDT due to t3 going over range. I ended up adding in t4 50mcg to 1 grain armour. I then switched to 125mcg (gradually increased to this over the past 7 months) plus a 5mcg of t3 compounded. well I feel dreadful
Ajva
in
Thyroid UK
1 year ago
Drug interactions/conflicts
Hi everyone I am Coeliac and also have Essential Thrombocythemia for which I take Hydroxycarbamide. Amongst the many side effects from HC my regular blood tests have shown me to be borderline anaemic and my regular GP has monitored this for years - checking kidney & liver function, and also on Folate
Hi everyone I am Coeliac and also have Essential Thrombocythemia for which I take Hydroxycarbamide. Amongst the many side effects from HC my regular blood tests have shown me to be borderline anaemic and my regular GP has monitored this for years - checking kidney & liver function, and also on Folate
quanglewangle
in
MPN Voice
1 year ago
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17 hour flight
I have been invited to a wedding in Louisiana later this year. My RLS is still problematic but manageable at home with Buprenorphine and Pregabalin and walking around / standing up. I am doubtful about the 17 hours flights. I can't ever remember going that long without several attacks of RLS. I've
I have been invited to a wedding in Louisiana later this year. My RLS is still problematic but manageable at home with Buprenorphine and Pregabalin and walking around / standing up. I am doubtful about the 17 hours flights. I can't ever remember going that long without several attacks of RLS. I've
Biscuitface
in
Restless Legs Syndrome
1 year ago
Can I take T3 with tea and coffee?
Hi All,I am getting miss messages about what I can Take my T3 with. My GP says that I need to allow 4 hours for iron and 2 for food and other supplements. Is that correct? I hear also that the above applies to T4 but not T3. I just would like to know what is best. I am trying to do the latter, to be
Hi All,I am getting miss messages about what I can Take my T3 with. My GP says that I need to allow 4 hours for iron and 2 for food and other supplements. Is that correct? I hear also that the above applies to T4 but not T3. I just would like to know what is best. I am trying to do the latter, to be
Carlax
in
Thyroid UK
1 year ago
Loosing the will to live
I was diagnosed with Hashimoto's Disease in 1996. Luckily my GP screened for the antibodies as my T4 was borderline; purely because his daughter had been diagnosed with it. At the time I was passing out all the time, I had developed psoriasis, I had brain fog, depression and a host of other symptoms
I was diagnosed with Hashimoto's Disease in 1996. Luckily my GP screened for the antibodies as my T4 was borderline; purely because his daughter had been diagnosed with it. At the time I was passing out all the time, I had developed psoriasis, I had brain fog, depression and a host of other symptoms
HocusPocus
in
Thyroid UK
1 year ago
Solutions for Severe Anemia
Hubby thought he was finally seeing light at the end of the tunnel, but unfortunately had a duodenal bleed in December. Ever since he’s been severely anemic. If he exerts himself in any way he becomes dizzy, nauseous and needs to have a nap for an hour or so. He feels tired all the time. It’s been three
Hubby thought he was finally seeing light at the end of the tunnel, but unfortunately had a duodenal bleed in December. Ever since he’s been severely anemic. If he exerts himself in any way he becomes dizzy, nauseous and needs to have a nap for an hour or so. He feels tired all the time. It’s been three
MississaugaLiver
in
British Liver Trust
1 year ago
TCR Gene Therapy
the science to cure us is coming https://www.youtube.com/watch?v=LIvVMIcRTew
the science to cure us is coming https://www.youtube.com/watch?v=LIvVMIcRTew
Scout4answers
in
Advanced Prostate Cancer
1 year ago
Low Iron and Vitamin D
My daughter has just received her ferritin results back from her GP. She hasn’t been issued with any iron tablets the graph shows she’s within the normal range but it is down at the bottom end when it needs to be at an optimal level, so I've read, My question is, can anyone recommend a good Iron vitamin
My daughter has just received her ferritin results back from her GP. She hasn’t been issued with any iron tablets the graph shows she’s within the normal range but it is down at the bottom end when it needs to be at an optimal level, so I've read, My question is, can anyone recommend a good Iron vitamin
jupiterconjunct
in
Thyroid UK
1 year ago
Very low mood and weak.
I feel very weak and anxious feeling recently. I was 56-57 kg before tinnitus now i’m 45 kg. I want to try some vitamins. which one is vest multivitamins any advice please. I feel scared to take any medicine or any vitamins. I want to try Floradix formula iron and vitamins. Is it good? please any
I feel very weak and anxious feeling recently. I was 56-57 kg before tinnitus now i’m 45 kg. I want to try some vitamins. which one is vest multivitamins any advice please. I feel scared to take any medicine or any vitamins. I want to try Floradix formula iron and vitamins. Is it good? please any
sun_1234
in
Tinnitus UK
1 year ago
Help with results please.
Hi, I have recently been struggling with severe fatigue, weight gain and a puffy face. My GP has prescribed me 125mg Levothyroxine but wasn’t happy about it because my TSH was very low and therefore she wanted to reduce me to 100mg. I was adamant that I don’t want to go any lower so she kept me at
Hi, I have recently been struggling with severe fatigue, weight gain and a puffy face. My GP has prescribed me 125mg Levothyroxine but wasn’t happy about it because my TSH was very low and therefore she wanted to reduce me to 100mg. I was adamant that I don’t want to go any lower so she kept me at
2hope
in
Thyroid UK
1 year ago
Possible Hemochromatosis?
Hi all Been experiencing lots of symptoms since 2018 that have got progressively worse.. did a couple of fasting iron panel tests on Thriva, first one Sept 2019 which showed high iron, ferritin and creeping tsat 47. the next one in Sept 2020 also showed high iron, 450 ferritin, tsat 52%. Fast forward
Hi all Been experiencing lots of symptoms since 2018 that have got progressively worse.. did a couple of fasting iron panel tests on Thriva, first one Sept 2019 which showed high iron, ferritin and creeping tsat 47. the next one in Sept 2020 also showed high iron, 450 ferritin, tsat 52%. Fast forward
ktan49
in
Haemochromatosis Society UK
1 year ago
Intestinal upset (diarrhea, tiredness, slight nausea) from ferrous sulfate?
I suffer from PLM and had low ferritin. I've taken oral iron for some years to keep my ferritin above 100. I've read that one of the adverse effects of iron sulfate can be stomach/intestinal upset. I'm experiencing my 4th episode of intestinal upset in a month. At first I thought it might be food poisoning
I suffer from PLM and had low ferritin. I've taken oral iron for some years to keep my ferritin above 100. I've read that one of the adverse effects of iron sulfate can be stomach/intestinal upset. I'm experiencing my 4th episode of intestinal upset in a month. At first I thought it might be food poisoning
Tanker1
in
Restless Legs Syndrome
1 year ago
Exhaustion
Is exhaustion just something we have to put up with if you have PA? I’m SI Hydroxocobalamin twice a week with folate supplements , in between getting it from my GP every 2 months. I’m taking a B complex with 5 mg of B6. Potassium is fine, ferritin on the up 65 but I’m still taking gentle iron supplements
Is exhaustion just something we have to put up with if you have PA? I’m SI Hydroxocobalamin twice a week with folate supplements , in between getting it from my GP every 2 months. I’m taking a B complex with 5 mg of B6. Potassium is fine, ferritin on the up 65 but I’m still taking gentle iron supplements
Sea-blue
in
Pernicious Anaemia Society
1 year ago
latest results please can you advise
Hello all please can you advise me on my latest results and your thoughts before I see my new Doc on the 24/4. I started new dose of Levothyroxine 100mcg on the 9/3 up from 75mcg. T3-4.40pmol/l ( 2.63-5.70) T4-16.20pmol/l (9.01-19.05) TSH-1.36miu/l (0.35-4.94) Vit B12- 236pg/ml (187-883) stopped
Hello all please can you advise me on my latest results and your thoughts before I see my new Doc on the 24/4. I started new dose of Levothyroxine 100mcg on the 9/3 up from 75mcg. T3-4.40pmol/l ( 2.63-5.70) T4-16.20pmol/l (9.01-19.05) TSH-1.36miu/l (0.35-4.94) Vit B12- 236pg/ml (187-883) stopped
Pooty
in
Thyroid UK
1 year ago
New Blood tests results - Thyroid, Iron Panel, Full Blood Count
Have new blood test results that my GP did - according to them they are all normal but thyroid slightly overactive. Serum free T4 26.2 pmol/L (12-22) Serum TSH 0.01 mU/L (0.27-4.20) Serum Ferritin 18.8 ug/l (13-150) Serum Transferrin 2.76 g/L (2.0-3.6) Serum Iron 12.9 umol/L (10-30) Transferrin
Have new blood test results that my GP did - according to them they are all normal but thyroid slightly overactive. Serum free T4 26.2 pmol/L (12-22) Serum TSH 0.01 mU/L (0.27-4.20) Serum Ferritin 18.8 ug/l (13-150) Serum Transferrin 2.76 g/L (2.0-3.6) Serum Iron 12.9 umol/L (10-30) Transferrin
jenny876
in
Thyroid UK
9 months ago
Test results
Hi Everyone, I had a Full blood count and Thyroid tests last week. I did the blood test following the guidance of SlowDragon and did not had supplements for over a week and no Levo for 24hrs and Lio for 8hrs. Time for the test 8 am and fasting. My tests results are as follow: Serum TSH: <0.01 mU/L
Hi Everyone, I had a Full blood count and Thyroid tests last week. I did the blood test following the guidance of SlowDragon and did not had supplements for over a week and no Levo for 24hrs and Lio for 8hrs. Time for the test 8 am and fasting. My tests results are as follow: Serum TSH: <0.01 mU/L
Carlax
in
Thyroid UK
1 year ago
I am getting there but…
Back here again… so helpful in the past, and need your help again! I have been slowly coming off pramipexole over 4 months, reducing tablets by a half every month. I am now on one and a half tablets. I have been taking gentle iron, 40 mg at night, with Vit c. My bloods tested in Dec when I started
Back here again… so helpful in the past, and need your help again! I have been slowly coming off pramipexole over 4 months, reducing tablets by a half every month. I am now on one and a half tablets. I have been taking gentle iron, 40 mg at night, with Vit c. My bloods tested in Dec when I started
Jukebox55
in
Restless Legs Syndrome
1 year ago
low Ferritin
recently had blood tests at GP’s and would be grateful for comments from other hypothyroid patients. FBC TWCc 5.1 (4.0-11) Hb 132g/L (115-165) Platelet count 228 (150-400) RBC 4.18 (3.80-5.50) Haematocrit (0.37-0.47) MCV 94fL (80-100) MCH 31.7 pg (27.0-33.0) Red blood cell distribution width
recently had blood tests at GP’s and would be grateful for comments from other hypothyroid patients. FBC TWCc 5.1 (4.0-11) Hb 132g/L (115-165) Platelet count 228 (150-400) RBC 4.18 (3.80-5.50) Haematocrit (0.37-0.47) MCV 94fL (80-100) MCH 31.7 pg (27.0-33.0) Red blood cell distribution width
Beardies2
in
Thyroid UK
1 year ago
Advice please so confused
I was on longterm PPI for 14 years.In 2016 I had course of antibiotics for a sinus infection. A few days later I couldn't walk in straight line,terrible headaches,burning sensation in skin.Thought I was going to collapse.My GP ordered blood tests and my B12 was 50!!! I had 6 loading injections then
I was on longterm PPI for 14 years.In 2016 I had course of antibiotics for a sinus infection. A few days later I couldn't walk in straight line,terrible headaches,burning sensation in skin.Thought I was going to collapse.My GP ordered blood tests and my B12 was 50!!! I had 6 loading injections then
Paula1710
in
Pernicious Anaemia Society
1 year ago
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