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Hello, I have sub clinical hypothyroidism with positive tpo antibodies taken a long time ago . I did get in touch a while ago about starting on thyroxine and my dr was happy for me to start on a low dose as I also have many symptoms but not weight gain I must add .I also am on a immunosuppressant for
Hello, I have sub clinical hypothyroidism with positive tpo antibodies taken a long time ago . I did get in touch a while ago about starting on thyroxine and my dr was happy for me to start on a low dose as I also have many symptoms but not weight gain I must add .I also am on a immunosuppressant for
4youreyesonly
in
Thyroid UK
5 months ago
My Start Page - What I've learned and do now.
This is the Start Here paper, with clues & tips for RLS sufferers. Print it out and refer to it often. It may be your road map to possible relief. START HERE - and welcome. If you actually have Restless Legs (or Limbs) Syndrome - RLS/PLMD (now also known as Willis-Eckbom Disease) and do not know
This is the Start Here paper, with clues & tips for RLS sufferers. Print it out and refer to it often. It may be your road map to possible relief. START HERE - and welcome. If you actually have Restless Legs (or Limbs) Syndrome - RLS/PLMD (now also known as Willis-Eckbom Disease) and do not know
fritz34
in
Restless Legs Syndrome
5 months ago
Informative video on updated RLS guidelines
This video is a MUST see video by Dr. John Winkelman, M.D., PHD from Mass General in Boston. He explains the problems with dopamine agonists and RLS, talks at length about augmentation and how to get off the DA with the help of gabapentin, Lyrica and opioids and other pharmaceuticals. The presentation
This video is a MUST see video by Dr. John Winkelman, M.D., PHD from Mass General in Boston. He explains the problems with dopamine agonists and RLS, talks at length about augmentation and how to get off the DA with the help of gabapentin, Lyrica and opioids and other pharmaceuticals. The presentation
Deesee
in
Restless Legs Syndrome
5 months ago
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INVOLVEMENT OPPORTUNITY - Haemochromatosis Research Project (UK)
Do you have haemochromatosis and want to help make the way it is diagnosed and treated in the UK better for patients?
The British Liver Trust are facilitating several virtual focus groups on the NIHR Fellowship research of Dr Janice Atkins about enabling timely diagnosis of hereditary haemochromatosis
Do you have haemochromatosis and want to help make the way it is diagnosed and treated in the UK better for patients?
The British Liver Trust are facilitating several virtual focus groups on the NIHR Fellowship research of Dr Janice Atkins about enabling timely diagnosis of hereditary haemochromatosis
BritishLiverTrust1
Partner
in
British Liver Trust
5 months ago
Not posted for a while
since coming off Ropinirole in October 2023 a lot has happened. I saw Doctor Jose Thomas at the Spire hospital in Cardiff South Wales before Christmas and completed his standard forms relating to RLS, sleep patterns mental state and so on. He wrote to my GP suggesting i commence a course of Pregabalin
since coming off Ropinirole in October 2023 a lot has happened. I saw Doctor Jose Thomas at the Spire hospital in Cardiff South Wales before Christmas and completed his standard forms relating to RLS, sleep patterns mental state and so on. He wrote to my GP suggesting i commence a course of Pregabalin
HipHop1972
in
Restless Legs Syndrome
5 months ago
Fatigue, coma naps and pituitary
Hey everyone, Has anyone experienced such bouts of fatigue where you fall asleep and you just have to fall asleep that given moment and you are gone for an hour? This started happening to me in July last year, but got increasingly worse over time. I thought it was my iron, but I fixed that with iron
Hey everyone, Has anyone experienced such bouts of fatigue where you fall asleep and you just have to fall asleep that given moment and you are gone for an hour? This started happening to me in July last year, but got increasingly worse over time. I thought it was my iron, but I fixed that with iron
Incoguto
in
Thyroid UK
5 months ago
Blood results.
After blood tests last week and receiving a "No action required "phone call from Gp surgery, I returned to surgery to see practice nurse for a foot ailment and asked for my actual results. She wrote them downSerum ferritin 759 Transferritin (not sure if she wrote 1.7 or17)couple of extra full stops
After blood tests last week and receiving a "No action required "phone call from Gp surgery, I returned to surgery to see practice nurse for a foot ailment and asked for my actual results. She wrote them downSerum ferritin 759 Transferritin (not sure if she wrote 1.7 or17)couple of extra full stops
Lambretta175
in
Restless Legs Syndrome
5 months ago
hoping to “Iron” things out!
Hello! Isn’t it ironic that I’ve been dealing with issues seemingly related to brain iron decencies for pretty much my whole life - yet it wasn’t until after decades of pharmaceutical treatments (Diagnosed conditions: ADHD, depression, anxiety, sleep, ED, hypothyroidism, IBS, RLS) that a doctor
Hello! Isn’t it ironic that I’ve been dealing with issues seemingly related to brain iron decencies for pretty much my whole life - yet it wasn’t until after decades of pharmaceutical treatments (Diagnosed conditions: ADHD, depression, anxiety, sleep, ED, hypothyroidism, IBS, RLS) that a doctor
AmazedAnt
in
Restless Legs Syndrome
5 months ago
Health factory liquid nano iron
Hi All, has anyone ever heard of, or taken, Health Factory liquid Nano Iron?I have problems with the standard iron tablets given by GPs, even if I take it with vitamin C. A dietician told me today that I ought to take liquid Nano iron. She said it has far higher absorption, no constipation etc. It is
Hi All, has anyone ever heard of, or taken, Health Factory liquid Nano Iron?I have problems with the standard iron tablets given by GPs, even if I take it with vitamin C. A dietician told me today that I ought to take liquid Nano iron. She said it has far higher absorption, no constipation etc. It is
Simkin
in
Restless Legs Syndrome
5 months ago
PV and hypertension
Hello lovely forum members. I hope you are all as well as can be and are staying safe in all the crazy weather currently blowing around the world! With my blood pressure increasing and meds on the horizon, I’m trying to research the subject of the best blood pressure medications for those with polycythaemia
Hello lovely forum members. I hope you are all as well as can be and are staying safe in all the crazy weather currently blowing around the world! With my blood pressure increasing and meds on the horizon, I’m trying to research the subject of the best blood pressure medications for those with polycythaemia
Skyehope
in
MPN Voice
5 months ago
My Labs are back- recommendations pretty please.
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Ddski5
in
Restless Legs Syndrome
5 months ago
Neutrphils
Hello there, Hoping you are all doing ok on such a rainy day! Thank goodness Spring isn’t too far away 😊 Just to ask if anyone has been able to increase their neutrophils naturally, via diet or iron supplements? Since being on Tocilizumab, my levels have dropped from around 5 to 1.85. I have read
Hello there, Hoping you are all doing ok on such a rainy day! Thank goodness Spring isn’t too far away 😊 Just to ask if anyone has been able to increase their neutrophils naturally, via diet or iron supplements? Since being on Tocilizumab, my levels have dropped from around 5 to 1.85. I have read
Inanotherlife
in
NRAS
5 months ago
Iron Infusion Side Effects?
I inherited thalassemia anemia and have ET JAK2+ for nearly two years so odd red blood cells and higher than normal platelets among other things are my norm. A week ago hematologist recommended iron infusion of a different blend than I had once before quite a while back. That infusion was difficult
I inherited thalassemia anemia and have ET JAK2+ for nearly two years so odd red blood cells and higher than normal platelets among other things are my norm. A week ago hematologist recommended iron infusion of a different blend than I had once before quite a while back. That infusion was difficult
Mishie14
in
MPN Voice
5 months ago
Endoscopy/Colonoscopy
Hi it's been awhile hope everyone is well, I have been in and out of the hospital it just seems endless. Appointment after appointment still struggling with my amenia that it's being monitored a few weeks ago it was 6.8 than suddenly about a week or dropped to 6.5. I have no real symptoms yet on the
Hi it's been awhile hope everyone is well, I have been in and out of the hospital it just seems endless. Appointment after appointment still struggling with my amenia that it's being monitored a few weeks ago it was 6.8 than suddenly about a week or dropped to 6.5. I have no real symptoms yet on the
bbeba103
in
Kidney Disease
5 months ago
How do I defeat extreme tiredness?
Waking up tired and most days feeling exhausted. My brilliant haematologist checked bloods and has given me an infusion of iron plus daily folic acid. But still tired. Is this a symptom of CLL and/or Avalabrutinib?
Waking up tired and most days feeling exhausted. My brilliant haematologist checked bloods and has given me an infusion of iron plus daily folic acid. But still tired. Is this a symptom of CLL and/or Avalabrutinib?
Nucleusman
in
CLL Support
5 months ago
iron test results
Hello. This is my first post, although I’ve been lurking here for a while and have been gradually increasing my Levo dose by following the advice on this forum. I’m not quite where I want to be yet, but definitely getting there. I’ve also been struggling with my vitamin and ferritin levels, so have started
Hello. This is my first post, although I’ve been lurking here for a while and have been gradually increasing my Levo dose by following the advice on this forum. I’m not quite where I want to be yet, but definitely getting there. I’ve also been struggling with my vitamin and ferritin levels, so have started
BethBeezle
in
Thyroid UK
5 months ago
Another update - salivary cortisol and more thoughts on what's going on
Hey everyone, My salivary cortisol came back few days ago, much improved. I wanted to check what impact additional 7.5 mcg t3 had on my saliva cortisol levels. My morning cortisol increased from 7 to 58% My afternoon cortisol went from 9 to 57%. My evening cortisol went from 59% to 115%. Concerned
Hey everyone, My salivary cortisol came back few days ago, much improved. I wanted to check what impact additional 7.5 mcg t3 had on my saliva cortisol levels. My morning cortisol increased from 7 to 58% My afternoon cortisol went from 9 to 57%. My evening cortisol went from 59% to 115%. Concerned
Incoguto
in
Thyroid UK
5 months ago
results
tsh 0.005. (0.27-4.2) These were done 31 January T4 17.1. (12-22) T3 4.5 (3.1-6.8) Vit d 89 (50-250) Vit b12 76 (37.5-188) Folate 30.2 (7-35) Ferritin 247 (30-640) Crp 86 (3) That’s medichecks Nhs done 7 December Vit b12 937 (197-771) Ferritin 124 no range Folate 20. (3-26) Vit d
tsh 0.005. (0.27-4.2) These were done 31 January T4 17.1. (12-22) T3 4.5 (3.1-6.8) Vit d 89 (50-250) Vit b12 76 (37.5-188) Folate 30.2 (7-35) Ferritin 247 (30-640) Crp 86 (3) That’s medichecks Nhs done 7 December Vit b12 937 (197-771) Ferritin 124 no range Folate 20. (3-26) Vit d
Kowbie
in
Thyroid UK
5 months ago
update
hello everyone hope you’re all keeping as well as possible, this is an update test done 31 January at 8/15 taking 150 thyroxine and 25 t3 thyroxine taken 24 hours before test t3 split in 3 last taken about 10 hours before,also taking vit d vit b12 folate ,not been feeling great , had a bad infection
hello everyone hope you’re all keeping as well as possible, this is an update test done 31 January at 8/15 taking 150 thyroxine and 25 t3 thyroxine taken 24 hours before test t3 split in 3 last taken about 10 hours before,also taking vit d vit b12 folate ,not been feeling great , had a bad infection
Kowbie
in
Thyroid UK
5 months ago
hEDS and B12 comorbidity?
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
MindfulSquirrel
in
Pernicious Anaemia Society
5 months ago
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