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Success with GP - for now
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Jingley
in
Thyroid UK
2 months ago
Heavy bleeding Mirena
Hello I have the mirena IUD coil for about 3 years now. My bleeding used to be lighter but still there and constant. But over the last couple of money with academic stress and financial pressure. I've been bleeding so heavily with blood clots the size of my palm. I bleed like 3 weeks a month and I spend
Hello I have the mirena IUD coil for about 3 years now. My bleeding used to be lighter but still there and constant. But over the last couple of money with academic stress and financial pressure. I've been bleeding so heavily with blood clots the size of my palm. I bleed like 3 weeks a month and I spend
Littlebug77
in
Endometriosis UK
2 months ago
Full iron panel results
I've persuaded my doctor to do a blood test to determine my iron levels but I need help knowing what my levels should be. I've tried searching the site but no luck. Could someone help please?
I've persuaded my doctor to do a blood test to determine my iron levels but I need help knowing what my levels should be. I've tried searching the site but no luck. Could someone help please?
gobojo
in
Restless Legs Syndrome
2 months ago
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Vitamin timings
Morning from not at all sunny Wales. I don’t know why I struggle with a vitamin routine and I wonder if I’m alone on this? Is it okay to take all of these at the same time after breakfast: Vit D/K, B12, Folate, and DHEA? If I take them then they aren’t near any thyroid medication but wanted
Morning from not at all sunny Wales. I don’t know why I struggle with a vitamin routine and I wonder if I’m alone on this? Is it okay to take all of these at the same time after breakfast: Vit D/K, B12, Folate, and DHEA? If I take them then they aren’t near any thyroid medication but wanted
Joant24
in
Thyroid UK
2 months ago
ferratin blood level
Hi, I’ve got a ferritin level of 40.5 (30 - 169) To me this is low isn’t it? Also I have been taking spatone iron sachets for 6 months so would you say I’d need a higher iron supplement? If so could anymore please advise on a decent one ?
Hi, I’ve got a ferritin level of 40.5 (30 - 169) To me this is low isn’t it? Also I have been taking spatone iron sachets for 6 months so would you say I’d need a higher iron supplement? If so could anymore please advise on a decent one ?
Lilymayjean
in
Thyroid UK
2 months ago
Recent visit with my RLS Neurologist
Hello RLS community, I had a recent session with my neurologist who is part of the Oregon Health Science University here in Portland. This is my go to doctor for conditions related to RLS. In my most recent visit with him he said he wanted to confirm some thoughts he had about my condition and ordered
Hello RLS community, I had a recent session with my neurologist who is part of the Oregon Health Science University here in Portland. This is my go to doctor for conditions related to RLS. In my most recent visit with him he said he wanted to confirm some thoughts he had about my condition and ordered
jinolke
in
Restless Legs Syndrome
2 months ago
Any suggestions for Pregabalin side effects?
I have weaned myself off ropinirole. It was the perfect drug for me before augmentation set in. Slept all night and had no after-effects the next day. I am now on 75 mg pregablin which I take 2 to 3 hours before bedtime. I fall asleep easily but wake up after two hours with RLS, strong enough urges to
I have weaned myself off ropinirole. It was the perfect drug for me before augmentation set in. Slept all night and had no after-effects the next day. I am now on 75 mg pregablin which I take 2 to 3 hours before bedtime. I fall asleep easily but wake up after two hours with RLS, strong enough urges to
Brufax
in
Restless Legs Syndrome
2 months ago
Massive hairloss & anxiety -blood results help
Hi, over the past 6 weeks my hair has been falling out in clumps and I feel very anxious. Is there anything in my blood that could explain? I feel overmedicated. Sweaty hands, very frequent bowel movement Tsh 1.7 (0.27-4.2) ft4 17.6 (12-22) ft3 4.59 (3.10-6.8) iron 112 (40-150) ferritine 50
Hi, over the past 6 weeks my hair has been falling out in clumps and I feel very anxious. Is there anything in my blood that could explain? I feel overmedicated. Sweaty hands, very frequent bowel movement Tsh 1.7 (0.27-4.2) ft4 17.6 (12-22) ft3 4.59 (3.10-6.8) iron 112 (40-150) ferritine 50
Sofie007
in
Thyroid UK
2 months ago
Fluttering and shaking
Hello my well informed PA society, I am recently experiencing fluttering in my body along with shaking. I have pernicious anemia and hypothyroid, gastritis. Recently I stopped taking my iron pills because they were making me so extremely hungry and gaining weight. I've tried several brands to see
Hello my well informed PA society, I am recently experiencing fluttering in my body along with shaking. I have pernicious anemia and hypothyroid, gastritis. Recently I stopped taking my iron pills because they were making me so extremely hungry and gaining weight. I've tried several brands to see
25092
in
Pernicious Anaemia Society
2 months ago
Risk of reversing out for A'levels
Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L and now self-injecting) and her grandmother (hospitalised on intravenous B12 for several months in the '50s). She has quite low folate at 5.5.
Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L and now self-injecting) and her grandmother (hospitalised on intravenous B12 for several months in the '50s). She has quite low folate at 5.5.
Cotswolds23
in
Pernicious Anaemia Society
2 months ago
Constipation help
Hello lovely people, I suffered from pretty bad bowel movement before but now that I have been prescribed strong iron it is much worse. I knew this would happen as my stomach doesn't tolerate iron very well so my GP also prescribed me Laxido. I have been taking two sachets a day and whilst I'm not completely
Hello lovely people, I suffered from pretty bad bowel movement before but now that I have been prescribed strong iron it is much worse. I knew this would happen as my stomach doesn't tolerate iron very well so my GP also prescribed me Laxido. I have been taking two sachets a day and whilst I'm not completely
flohal
in
Thyroid UK
2 months ago
How I reduced my RLS symptoms to Zero.
I have got my RLS completely under control and write this because I understand the pain and suffering. I empathize and I hope I can help. I STOPPED my rls not eating SUGAR. With in the first week my rls went down by 50%. Buy then end of the month down to ZERO! When I eat sugar it starts back up again
I have got my RLS completely under control and write this because I understand the pain and suffering. I empathize and I hope I can help. I STOPPED my rls not eating SUGAR. With in the first week my rls went down by 50%. Buy then end of the month down to ZERO! When I eat sugar it starts back up again
1kma
in
Restless Legs Syndrome
2 months ago
dry eyes and mouth?
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
Lhood08
in
Pernicious Anaemia Society
2 months ago
Accessing Iron Infusion
hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid 20s and it has slowly gotten worse. I am now 35 and have tried a number of different medications one being ropinirole which I have successfully
hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid 20s and it has slowly gotten worse. I am now 35 and have tried a number of different medications one being ropinirole which I have successfully
Xicara
in
Restless Legs Syndrome
2 months ago
Haemachromatosis and iron in RLS
Husband with chronic and often terrible restless leg symptoms- but also (like others in his family line) has the Haemachromatosis gene. Cant see how he could ever use an iron based therapy. Wonder if there are other people with experience of this ?
Husband with chronic and often terrible restless leg symptoms- but also (like others in his family line) has the Haemachromatosis gene. Cant see how he could ever use an iron based therapy. Wonder if there are other people with experience of this ?
RSL-RIP
in
Restless Legs Syndrome
2 months ago
Dry Skin & Combined Pill
hello I am wondering if I am experiencing severe dry skin (only on the face) due to my contraceptive pill. I take femodene and have done for years. Over the last 5 my skin has gotten significantly drier and flares up badly, red, itchy, intense dryness. I am otherwise healthy (optimal thyroid, but
hello I am wondering if I am experiencing severe dry skin (only on the face) due to my contraceptive pill. I take femodene and have done for years. Over the last 5 my skin has gotten significantly drier and flares up badly, red, itchy, intense dryness. I am otherwise healthy (optimal thyroid, but
Littlerhodes
in
MY SKIN
2 months ago
will it ever get better
Would love some advice/reassurance. I have had RLS for many years and took pramipexole for 14 years with mostly good control until a few months ago, when augmentation set in. I have weaned the pramipexole and started gabapentin. I am currently taking 2200mg. I have followed all of the advice and
Would love some advice/reassurance. I have had RLS for many years and took pramipexole for 14 years with mostly good control until a few months ago, when augmentation set in. I have weaned the pramipexole and started gabapentin. I am currently taking 2200mg. I have followed all of the advice and
ehr1968
in
Restless Legs Syndrome
2 months ago
tiredness
I’m post quad bypass 5 years now and have been struggling with tiredness Been to the doctors one said it’s my age get used to it another said some people just get tired I’m on bisoprolol small dose rosuvastatin min dose I take b12 iron and coq10 all tests put me in the normal range So it appears
I’m post quad bypass 5 years now and have been struggling with tiredness Been to the doctors one said it’s my age get used to it another said some people just get tired I’m on bisoprolol small dose rosuvastatin min dose I take b12 iron and coq10 all tests put me in the normal range So it appears
Dogchasers
in
British Heart Foundation
2 months ago
Weeping eye
Hi folks.. 2 months ago, I discovered a huge enlarged nodule 2.6 cm on my thyroid. The week leading up to finding this I felt very sick, one side of my face was puffy and filled with fluid. My eye kept weeping. It was the same side I had my nodule. Fast forward 2mths,the nodule is benign tg and endo
Hi folks.. 2 months ago, I discovered a huge enlarged nodule 2.6 cm on my thyroid. The week leading up to finding this I felt very sick, one side of my face was puffy and filled with fluid. My eye kept weeping. It was the same side I had my nodule. Fast forward 2mths,the nodule is benign tg and endo
madeline05
in
Thyroid UK
2 months ago
Gabapentin
hi looking for some advice, I was diagnosed with RLS several years back. Was put on pramaproxile initially and it didn’t agree with me. Have since moved to Gabapentin which started in September last year at 100mg which seemed to help a little but went back in December and doctor moved up to 300mg a
hi looking for some advice, I was diagnosed with RLS several years back. Was put on pramaproxile initially and it didn’t agree with me. Have since moved to Gabapentin which started in September last year at 100mg which seemed to help a little but went back in December and doctor moved up to 300mg a
LeeP1000
in
Restless Legs Syndrome
2 months ago
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