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stabbing pain inProstate
Good morning to all I have been on Erleada and Degarelix for 15 months without much side effects ( except for hot flashes and tiredness) My PSA last month was 0.13 and my Test was 1.0 Gleason 4+3 Metastatic with diffused bone metastases. For the last few days I feel some stabbing pain in my prostate
Good morning to all I have been on Erleada and Degarelix for 15 months without much side effects ( except for hot flashes and tiredness) My PSA last month was 0.13 and my Test was 1.0 Gleason 4+3 Metastatic with diffused bone metastases. For the last few days I feel some stabbing pain in my prostate
Raminagrobis
in
Advanced Prostate Cancer
2 months ago
4 month ADT holiday
I’ve been given 4 months ADT holiday with no treatment Then more blood tests to see how things are going. I was finding it hard to concentrate when reading as I was so tired. I’m already feeling more awake after 2 days of stopping Abiraterone and my balance seems to be improving. Doing some gym work
I’ve been given 4 months ADT holiday with no treatment Then more blood tests to see how things are going. I was finding it hard to concentrate when reading as I was so tired. I’m already feeling more awake after 2 days of stopping Abiraterone and my balance seems to be improving. Doing some gym work
Rob11111
in
Advanced Prostate Cancer
2 months ago
To PET or not to PET
I have been on nubeqa and orgovyx for over six months now. Blood draw this week shows my PSA level at <.10 beginning 30 days of starting those two drugs. My MO suggested I have a regular PET scan. No need for a PSMA scan because my PSA is basically undetectable. I am having trouble rationalizing the
I have been on nubeqa and orgovyx for over six months now. Blood draw this week shows my PSA level at <.10 beginning 30 days of starting those two drugs. My MO suggested I have a regular PET scan. No need for a PSMA scan because my PSA is basically undetectable. I am having trouble rationalizing the
Jvaughan0
in
Advanced Prostate Cancer
2 months ago
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PSA 1.175 Down from 21, 6 weeks ago. Is this good ?
After 6 weeks only on orgovyx my PSA has dropped to 1.175 from 21 and testosterone to 25 from 400. Are these numbers ok ? I read many here say their testosterone numbers are much lower - in single digits. Hence I am wondering if I should switch to Firmagon and see if they drop more. Do testosterone
After 6 weeks only on orgovyx my PSA has dropped to 1.175 from 21 and testosterone to 25 from 400. Are these numbers ok ? I read many here say their testosterone numbers are much lower - in single digits. Hence I am wondering if I should switch to Firmagon and see if they drop more. Do testosterone
Simpson80
in
Advanced Prostate Cancer
2 months ago
Walk with Us - don't forget to sign up!
📢 Get ready for an unforgettable day out! Join Ovacome at Cannon Hill Park in Birmingham, on 28 September 2024 to “Walk With Us” 🚶🏻♀️✨ This free community walk is the grand finale to our Gynaecological Cancer Awareness Month campaign and will be an excellent opportunity to meet up with others affected
📢 Get ready for an unforgettable day out! Join Ovacome at Cannon Hill Park in Birmingham, on 28 September 2024 to “Walk With Us” 🚶🏻♀️✨ This free community walk is the grand finale to our Gynaecological Cancer Awareness Month campaign and will be an excellent opportunity to meet up with others affected
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 months ago
New guidelines to prevent skeletal events in metastatic prostate cancer
They are basically discussing denosumab and zoledronic acid in PCa with bone metastasis https://www.urotoday.com/video-lectures/nccn-2024/video/4222-2024-nccn-guidelines-preventing-skeletal-events-in-prostate-cancer-rashid-sayyid-zachary-klaassen.html
They are basically discussing denosumab and zoledronic acid in PCa with bone metastasis https://www.urotoday.com/video-lectures/nccn-2024/video/4222-2024-nccn-guidelines-preventing-skeletal-events-in-prostate-cancer-rashid-sayyid-zachary-klaassen.html
Maxone73
in
Advanced Prostate Cancer
2 months ago
new trial for mCRPCa: ²²⁵Ac-rhPSMA-10.1 actinium
"The trial will enrol male patients with metastatic castrate-resistant prostate cancer who have responded to prior lutetium 177 (¹⁷⁷Lu)-PSMA therapy." https://www.clinicaltrialsarena.com/news/blue-earth-prostate-cancer-trial/ it's phase 1/2 but actinium is very interesting especially against micro
"The trial will enrol male patients with metastatic castrate-resistant prostate cancer who have responded to prior lutetium 177 (¹⁷⁷Lu)-PSMA therapy." https://www.clinicaltrialsarena.com/news/blue-earth-prostate-cancer-trial/ it's phase 1/2 but actinium is very interesting especially against micro
Maxone73
in
Advanced Prostate Cancer
2 months ago
Xtandi advice
I have just been prescribed Xtandi as my APCa has progressed into a couple of lymph nodes and multiple skeletal areas. I am seeking advice about this drug such as when should I take it and things to be aware of. I am back on Eligard and just finished 4 weeks of biclutimide. Any advice or experience you
I have just been prescribed Xtandi as my APCa has progressed into a couple of lymph nodes and multiple skeletal areas. I am seeking advice about this drug such as when should I take it and things to be aware of. I am back on Eligard and just finished 4 weeks of biclutimide. Any advice or experience you
Doseydoe
in
Advanced Prostate Cancer
2 months ago
Success with PSMA-lutamide
Hi Everyone, I might get long winded in this, so the brief summary is: rechallenged with Pluvicto after a 4-year break while enhancing PSMA expression with darolutamide. PSA dropped from 44 to 3 after two treaments. I have lymph-node metastatic disease with neuroendocrine differentiation. I was on
Hi Everyone, I might get long winded in this, so the brief summary is: rechallenged with Pluvicto after a 4-year break while enhancing PSMA expression with darolutamide. PSA dropped from 44 to 3 after two treaments. I have lymph-node metastatic disease with neuroendocrine differentiation. I was on
TeleGuy
in
Advanced Prostate Cancer
2 months ago
First ADT holiday
25 July 2024. First ADT (hormone therapy) holiday since Dec22 ADT started 5Dec 2022 Leg weakness Started lifting weights etc Abiraterone started Aug 2023 + noticeable cognitive impairment
25 July 2024. First ADT (hormone therapy) holiday since Dec22 ADT started 5Dec 2022 Leg weakness Started lifting weights etc Abiraterone started Aug 2023 + noticeable cognitive impairment
Rob11111
in
Advanced Prostate Cancer
2 months ago
prostate cancer that does not produce psa
Hi everyone. My dad’s PSA has always been low, so when he was diagnosed, we were very shocked. His team checks his PSA, although PSMA have been more telling for him. His PSA today is the highest it has ever been at 17. His last PSMA was better than the one before. Is it possible for prostate cancer
Hi everyone. My dad’s PSA has always been low, so when he was diagnosed, we were very shocked. His team checks his PSA, although PSMA have been more telling for him. His PSA today is the highest it has ever been at 17. His last PSMA was better than the one before. Is it possible for prostate cancer
Concerneddaughter123
in
Advanced Prostate Cancer
2 months ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
dwolden
in
CLL Support
3 months ago
biopsy
Is there any advantage to a prostate biopsy after initial radiation and 3/4 year of ADT…..? Salvage high dose brachytherapy is being considered and a third prostate biopsy has just been done. What might they be looking for…..placement,grade,Gleason?
Is there any advantage to a prostate biopsy after initial radiation and 3/4 year of ADT…..? Salvage high dose brachytherapy is being considered and a third prostate biopsy has just been done. What might they be looking for…..placement,grade,Gleason?
Tommyj2
in
Advanced Prostate Cancer
2 months ago
Dramatic change to palliative from treatable after 6 and a half years
Back at the start of the yhis year my PSA continued to rise: 670 > 900 > 1167> 1600 so we stopped the trial. I was anaemic and had low haemaglobin. I felt awful, weak, nautious and had 4 days in hospital for pain management. I hadn't had this before the trial but they said I have a fractured 4th lumbar
Back at the start of the yhis year my PSA continued to rise: 670 > 900 > 1167> 1600 so we stopped the trial. I was anaemic and had low haemaglobin. I felt awful, weak, nautious and had 4 days in hospital for pain management. I hadn't had this before the trial but they said I have a fractured 4th lumbar
konichiwa12
in
Advanced Prostate Cancer
2 months ago
USPSTF Update 2024
Over 6 years later the USPSTF has yet to update the screening guidelines and we're seeing more and more men show up with mets and distant mets. The USPSTF is such a sham group of "experts in disease prevention" mitigating the financial exposure and demand on the Industrialized Healthcare Complex. Since
Over 6 years later the USPSTF has yet to update the screening guidelines and we're seeing more and more men show up with mets and distant mets. The USPSTF is such a sham group of "experts in disease prevention" mitigating the financial exposure and demand on the Industrialized Healthcare Complex. Since
Cyclingrealtor
in
Advanced Prostate Cancer
2 months ago
rising PSA
My PSA started rising after 6 years of being undetectable. July 2023 , PSA 0.10 and July 2024 PSA 0.70 . I had a PSMA pet scan when my PSA hit 0.30 in November 2023 , scan did not show any cancer. I have another PSA test scheduled for early October; my doctor wants to wait until my PSA hits 1 before
My PSA started rising after 6 years of being undetectable. July 2023 , PSA 0.10 and July 2024 PSA 0.70 . I had a PSMA pet scan when my PSA hit 0.30 in November 2023 , scan did not show any cancer. I have another PSA test scheduled for early October; my doctor wants to wait until my PSA hits 1 before
Rfs1975
in
Advanced Prostate Cancer
2 months ago
PSMA PET Scan results
For those that asked, we received my dad's PSMA PET Scan results (full resultsin bio). We were devastated to see some bone metastasis was uncovered but knew this was likely due to his high PSA score (150) and Gleason score of 9. If anyone could provide any advice and or encouragement, that would be much
For those that asked, we received my dad's PSMA PET Scan results (full resultsin bio). We were devastated to see some bone metastasis was uncovered but knew this was likely due to his high PSA score (150) and Gleason score of 9. If anyone could provide any advice and or encouragement, that would be much
SKKALH528
in
Advanced Prostate Cancer
2 months ago
Liquid biopsy that can monitor prostate cancer evolution
It's not a cure, but it seems to be able to predict the evolution of the disease, allowing for a more targeted approach... https://www.medicaldevice-network.com/news/new-liquid-biopsy-technique-detects-prostate-cancer-disease-evolution/
It's not a cure, but it seems to be able to predict the evolution of the disease, allowing for a more targeted approach... https://www.medicaldevice-network.com/news/new-liquid-biopsy-technique-detects-prostate-cancer-disease-evolution/
Maxone73
in
Advanced Prostate Cancer
2 months ago
Zanda after Zytiga
Orgovyx and Zytiga brought my Gleason 9 cancer to a PSA of 0.67, but after 5 months my PSA has slowly risen to 1.59. Would it help to switch from Zytiga to Zanda? Poollover
Orgovyx and Zytiga brought my Gleason 9 cancer to a PSA of 0.67, but after 5 months my PSA has slowly risen to 1.59. Would it help to switch from Zytiga to Zanda? Poollover
Poollover
in
Advanced Prostate Cancer
2 months ago
Next treatment?
We just left the Oncologist office and not good news. PSA is still climbing. It went from 64 to 74 in 6 weeks. Hubby has been through XTANDI, Chemo, targeted radiation, RADIUM 223. Been on Eligard for 7 years. Oncologist would like him to go in a clinical trial at Princess Margaret hospital in Toronto
We just left the Oncologist office and not good news. PSA is still climbing. It went from 64 to 74 in 6 weeks. Hubby has been through XTANDI, Chemo, targeted radiation, RADIUM 223. Been on Eligard for 7 years. Oncologist would like him to go in a clinical trial at Princess Margaret hospital in Toronto
Docker53
in
Advanced Prostate Cancer
2 months ago
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