Search
Search
About
Log in
Join
Experiences with
Small cell lung cancer
Posts
Communities
31,860 public posts
Filter results
Blood biopsy
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
sevoia
in
SHARE Metastatic Breast Cancer
3 months ago
Question for my father
I haven’t posted in a couple of years but have been following along daily with this forum’s wealth of information. I had my prostate removed 2 years ago at MSK and have recovered well with a still undetectable PSA. I’m writing for advice on my 91 yo father. He was recently found to have bone metastases
I haven’t posted in a couple of years but have been following along daily with this forum’s wealth of information. I had my prostate removed 2 years ago at MSK and have recovered well with a still undetectable PSA. I’m writing for advice on my 91 yo father. He was recently found to have bone metastases
SpecialName
in
Prostate Cancer Network
7 months ago
My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
3 months ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
7 months ago
Risk vs reward in clinical trials
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Pmann
in
Advanced Prostate Cancer
3 months ago
What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
3 months ago
RA and live flu vaccine
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
HiMy daughter has rung to say my 2 year old grandson has just had a live flu vaccine. She said the GP has said to avoid people with very compromised immune systems, eg. they said, having bone marrow transplants, for a week. She asked if it was safe for them to see me and was told they had no guidance
Julia31
in
NRAS
7 months ago
Heterogeneity and genomic evolution of metastatic prostate cancer, bioRxiv Preprint, Posted September 04, 2023.
A fine example of evolutionary principles applied to metastatic PCa with the development of a method (Mscore) for risk assessment based on key gene mutations. (U of Texas and Chinese U collaboration.) * * * [i]
Abstract
[/i] [i]
Background
[/i][i] Metastasis is the primary cause of prostate
A fine example of evolutionary principles applied to metastatic PCa with the development of a method (Mscore) for risk assessment based on key gene mutations. (U of Texas and Chinese U collaboration.) * * * [i]
Abstract
[/i] [i]
Background
[/i][i] Metastasis is the primary cause of prostate
CaptnMojoe
in
Fight Prostate Cancer
6 months ago
treatment side effects vs cancer side effects
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
alysona828
in
Advanced Prostate Cancer
3 months ago
Abiraterone side effect
After 12 doses of abirateron/prednisone I developed a rather severe cough. Even though this is one of the listed side effects of abiraterone my oncologist says that she has never heard of it happening before. Has anyone here ever had this experience and, if so, was there a remedy for the cough or an
After 12 doses of abirateron/prednisone I developed a rather severe cough. Even though this is one of the listed side effects of abiraterone my oncologist says that she has never heard of it happening before. Has anyone here ever had this experience and, if so, was there a remedy for the cough or an
GrantB47
in
Advanced Prostate Cancer
7 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
3 months ago
Chronic pain after prostatectomy
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
My friend had robotic prostatectomy in May 2019. In the almost 5 years since he has experienced daily abdominal pain. He has seen numerous doctors but none of them have been able to diagnose the source of the pain. He is an invalid due to this problem. Does anyone else know of a similar case? Any
Sineah
in
Advanced Prostate Cancer
3 months ago
TruQap progress-lower TM
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
I posted about beginning this newly approved FDA drug in December. My blood tests last week showed that my TM dropped by 135 points. This is added to the Fulvestrant jabs I started around spring 2023. The combination seems to be going well so far. I was previously on Ibrance for several years until
Yikes123
in
SHARE Metastatic Breast Cancer
3 months ago
Changing the name of cancer...would speed up research
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
I thought it wasn't something that had an impact, but thanks to the patience of an acquaintance of mine who works in clinical research, I finally understood the significance of what some newspapers (Italian and European, but maybe in the USA as well) are saying about the need to change the names of various
Maxone73
in
Advanced Prostate Cancer
3 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
3 months ago
Single positive lymph node - experiences?
Hi, first post here. I had prostatectomy 2008, G3+4, ,pT2c, now updated to pT2cN1M0. Have postponed HT with rising PSA (now 8.9). Had SRT 2011 to prostate bed. Have had Axumin scan and then had 3rd PSMA PET scan recently (this month). All so far were negative until most recent, found single inguinal
Hi, first post here. I had prostatectomy 2008, G3+4, ,pT2c, now updated to pT2cN1M0. Have postponed HT with rising PSA (now 8.9). Had SRT 2011 to prostate bed. Have had Axumin scan and then had 3rd PSMA PET scan recently (this month). All so far were negative until most recent, found single inguinal
Jeff_Piano_Man
in
Advanced Prostate Cancer
7 months ago
Patricia
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
Hi I'm a 3rd timer with BC. This time diagnosed June with stage 3 HER2+. Had surgery and chemo now on 3 weekly injections of Herceptin & 6monthly bone infusions and letrozole daily. Side effects fluctuate from day to day, fatigue, achey fluey, fuzzy head, indigestion, dizziness. In between I'm fine,
ruskin10
in
My Breast Cancer Community
3 months ago
Chemotherapy or Pluvicto
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
I just completed Radium 223 treatment. PSA has been doubling since I failed Zytiga. Last scans show progression. I am offered chemo or a trial with Pluvicto. The cancer is throughout my bones. What should I do. I have had chemo at the beginning of this journey and it worked then.
Islandboy2021
in
Advanced Prostate Cancer
7 months ago
What Treatment - Or No Treatment Advice?
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
Nordman
in
Advanced Prostate Cancer
5 months ago
1
...
79
80
81
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
11899 results
My Ovacome
3506 results
SHARE Metastatic Breast Cancer
2148 results
View top 10 communities
Sort by
Most Relevant
Newest