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Boosting Prostate Cancer Awareness with One Click: The Power of Your Anonymous Signature on YouTube
Subscribing to a YouTube channel is like signing a petition with an anonymous signature. You're not sent anything, but your subscription has as much power as you signed your name. So-called patient advocates and gurus complain that our community doesn't help to build prostate cancer awareness. The
Subscribing to a YouTube channel is like signing a petition with an anonymous signature. You're not sent anything, but your subscription has as much power as you signed your name. So-called patient advocates and gurus complain that our community doesn't help to build prostate cancer awareness. The
Darryl
Partner
in
Advanced Prostate Cancer
4 months ago
itch after rafiotherapy
hi I had treatment for DCIS 4 months ago . Had breast conserving surgery then radiotherapy , i had a very bad radiation burn under my breast which eventually healed. Now I have intense ibtching and discolouration of skin under my breast . I do have large breasts and this doesn’t help . Does anyone
hi I had treatment for DCIS 4 months ago . Had breast conserving surgery then radiotherapy , i had a very bad radiation burn under my breast which eventually healed. Now I have intense ibtching and discolouration of skin under my breast . I do have large breasts and this doesn’t help . Does anyone
Caradomben
in
SHARE Breast Cancer Support
4 months ago
Our Stories: being diagnosed with a rarer ovarian cancer - Monday 22 January, 3pm - 4pm
Good morning everyone We wanted to let you all know that next week, we will be hosting another session of the 'Our Stories' member-led series. In this new series, the Ovacome team will be joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis of
Good morning everyone We wanted to let you all know that next week, we will be hosting another session of the 'Our Stories' member-led series. In this new series, the Ovacome team will be joined by member speakers who will share their experiences of one specific aspect of living with a diagnosis of
OvacomeSupport
My Ovacome Team
in
My Ovacome
4 months ago
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Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
my 58 y/o partner diagnosed with non small cell lung cancer in mediastinum with lymph node involvement and bone mets
hi there. Not really sure what to ask as this is such a huge shock as it has been so quick. However, after much hassle and pushing for tests the above diagnosis was made. We were told they may not give chemo due to his deranged bloods and liver function tests. However, if they do decide it’s platinum
hi there. Not really sure what to ask as this is such a huge shock as it has been so quick. However, after much hassle and pushing for tests the above diagnosis was made. We were told they may not give chemo due to his deranged bloods and liver function tests. However, if they do decide it’s platinum
Ninjacat
in
The Roy Castle Lung Cancer Foundation
1 year ago
HELP WITH SIDE EFFECTS FROM ENZALUTAMIDE
In 2019 after a prolonged bout of diarrhea a blood test was ordered, the cause of the diarrhea was not discovered but the test indicated bone cancer. From there tests showed extensive bone mets and grade 9 Gleason APC. Chemotherapy radiation and firmagon followed. My psa went way down for about 18 months
In 2019 after a prolonged bout of diarrhea a blood test was ordered, the cause of the diarrhea was not discovered but the test indicated bone cancer. From there tests showed extensive bone mets and grade 9 Gleason APC. Chemotherapy radiation and firmagon followed. My psa went way down for about 18 months
Desrochers
in
Advanced Prostate Cancer
4 months ago
Treatment Options
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
Vortex12
in
Prostate Cancer Network
4 months ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
4 months ago
PSA Response From Broccoli Sprout Extract (Sulforaphane) May Due To Just Being Moderate ADT
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
I forgot I ran across this a 2 years ago as many with PCa diagnosis are very interested in Sulforaphane due to a lot of excitement from a few studies a few years ago. (This fueled an explosion of supplements on Amazon.) This however is one of the more expensive supplements and my jury is still out
jazj
in
Advanced Prostate Cancer
4 months ago
father psa 7 right after surgery
Hello! My father (61) was diagnosed with prostate cahcer in August with PSA 13 and Gleason 7.... - we are in Boston - he couldn't be seen for several months - had his prostate removed about 6 weeks ago - surgeon and pathologist thought they got it all, told us they took out an extra lymph to be safe
Hello! My father (61) was diagnosed with prostate cahcer in August with PSA 13 and Gleason 7.... - we are in Boston - he couldn't be seen for several months - had his prostate removed about 6 weeks ago - surgeon and pathologist thought they got it all, told us they took out an extra lymph to be safe
Ccullen91011
in
Advanced Prostate Cancer
4 months ago
Declining psa #9
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Gm folks, hope all are having a wonderful New Year. I’m following up n giving results on using ivermectin, cbd oil, turmeric Vit b3,6,12 Vit c And zinc solely after eliminating ADT after 7 months, post Rp n rad… Psa dropped another .29 points to .66 down from .95 n psa was hovering 7 when I first got
Nfler
in
Advanced Prostate Cancer
4 months ago
AMG 509 (Xaluritamig): update on this immunotherapy for mCRPC
They published the first findings on Cancer Discovery. "Efficacy as measured both by PSA and objective response by RECIST were encouraging in this heavily pretreated mCRPC population, and responses occurred with greater frequency in the higher-dose cohorts. PSA declines were seen starting with 0.1 mg
They published the first findings on Cancer Discovery. "Efficacy as measured both by PSA and objective response by RECIST were encouraging in this heavily pretreated mCRPC population, and responses occurred with greater frequency in the higher-dose cohorts. PSA declines were seen starting with 0.1 mg
Maxone73
in
Advanced Prostate Cancer
4 months ago
Been on Firmagon with Zytiga and Prednisone PSA rising, what can I do next?
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Information in Bio Hoping to try a PARP inhibitor or Provenge perhaps, I don’t know much about this, but my medical oncologist keeps mentioning pluvicto, I’m not interested in doing that yet. Information from Bio below: Diagnosed 07/01/2022 Diagnosed By PSA Score 942.40 06/24-2022-07/06/2022
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
Piqray/Alpelisib (plus Fulvestrant injections) Trial so far
Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here in Melbourne) After having a terrible, terrible slump when I came off 5 1/2 years of Ibrance and Anastrozole, due to new mets in my liver, after
Hello everyone. From Stevie and me. Just popping in to let you all know that I am nearly 2 months into my Piqray journey. (The trial is called CAPTURE here in Melbourne) After having a terrible, terrible slump when I came off 5 1/2 years of Ibrance and Anastrozole, due to new mets in my liver, after
Timtam56
in
SHARE Metastatic Breast Cancer
4 months ago
Anti-Androgen Therapy and Bone Tumors in Prostate Cancer
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
Sorry guys, but I found this and all I can say is it scared the hell out of me. Now I don't know what to think. Maybe someone can sort it out. https://journals.lww.com/oncology-times/fulltext/2021/08050/anti_androgen_therapy_can_fuel_spread_of_bone.16.aspx Jeff Dunn AO, Professor and CEO of the Prostate
85745
in
Advanced Prostate Cancer
4 months ago
SRBT and EXTEND trial
Does anybody have the full text of EXTEND trial results from June 2023? (my payment attempt is rejected and the tips on how to get a study without cost doesn´t work) https://pubmed.ncbi.nlm.nih.gov/37022702/ Addition of Metastasis-Directed Therapy to Intermittent Hormone Therapy for Oligometastatic
Does anybody have the full text of EXTEND trial results from June 2023? (my payment attempt is rejected and the tips on how to get a study without cost doesn´t work) https://pubmed.ncbi.nlm.nih.gov/37022702/ Addition of Metastasis-Directed Therapy to Intermittent Hormone Therapy for Oligometastatic
Purple-Bike
in
Advanced Prostate Cancer
4 months ago
Thyroid s supplier
forgot to mention in previous note any supplier detail needs to be DM’d!!! After 6 years of myxedema coma I’ve got brain of a muddled toddler. wee bit scary.
forgot to mention in previous note any supplier detail needs to be DM’d!!! After 6 years of myxedema coma I’ve got brain of a muddled toddler. wee bit scary.
joydot
in
Thyroid UK
4 months ago
Immunotherapy
Having had a lobectomy a few years ago on right lung, I now have 2 opacities on lower left lung. As there had only been one lesion seen on lower left lung I was offered radiotherapy. After last scan which showed another lesion adjacent to the first, I am told that 'radiotherapy is off the table'. At
Having had a lobectomy a few years ago on right lung, I now have 2 opacities on lower left lung. As there had only been one lesion seen on lower left lung I was offered radiotherapy. After last scan which showed another lesion adjacent to the first, I am told that 'radiotherapy is off the table'. At
ferntreegully
in
The Roy Castle Lung Cancer Foundation
1 year ago
Is there any order to when new medications or PARP inhibitor are tried?
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
My medical oncologist is hell bent on me doing Lu 177 pluvicto next, I was hoping to try other things first… Medical Oncologist suggested waiting for the next two months to see if PSA is still rising…and to do a pet scan Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved
Shorehousejam
in
Fight Prostate Cancer
4 months ago
Question, each month with rising PSA, when do I do a pet scan
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Medical Oncologist suggested waiting for the next two months to see if it’s still rising… Diagnosed 06/2022 Gleason 8/9 Oligo metastatic 3 lytic lesions two resolved Started Firmagon 7/6/2022 Zytiga with Prednisone 7/20/2022 currently still on these meds Docetaxel Chemotherapy on 08/11/2022
Shorehousejam
in
Advanced Prostate Cancer
4 months ago
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