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Issues with elevated blood markers
Anyone else having issues after kidney transplant and with their Creatine being elevated and blood work off. Had vaccine plus booster. 4 months post op
Anyone else having issues after kidney transplant and with their Creatine being elevated and blood work off. Had vaccine plus booster. 4 months post op
Lm371260
in
Kidney Transplant
3 years ago
Bowel cancer now spot in liver
My now 38 year old son was diagnosed with bowel / colon cancer last year. He had Radiotherapy and Chemotherapy then had an operation to remove all his colon and now has a permanent stoma. He had quite a few infections but seems to be stronger and fitter now. But he had an MRI then blood tests and was
My now 38 year old son was diagnosed with bowel / colon cancer last year. He had Radiotherapy and Chemotherapy then had an operation to remove all his colon and now has a permanent stoma. He had quite a few infections but seems to be stronger and fitter now. But he had an MRI then blood tests and was
Mandie4711
in
Colon Cancer Connected
3 years ago
After being told last night they have concerns re my heart which needs sorting before lung transplant this has cheered me up…🤪
Smart landlord!
Smart landlord!
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
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Well, I have sarcoidosis folks
I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.
I had my biopsy surgery and just got the results. It is pulmonary sarcoidosis. I have been told that my pulmonologist will be calling me to start treatment. Most likely - steroids :( Steroids and organ transplants are the only treatment options I am 90% certain I will have my breast implants removed.
Missbrenda21
in
Lung Conditions Community Forum
3 years ago
Lung transplant assessment
I am on the lung transplant list. One of the tests to get on the list was the 6 minute walk test. This I could do. However now I wouldn’t be able to, as despite 24 hour oxygen, just walking a few steps and I have to stop as my oxygen levels plummet to between 60 & 70%. After 30 seconds, they recover
I am on the lung transplant list. One of the tests to get on the list was the 6 minute walk test. This I could do. However now I wouldn’t be able to, as despite 24 hour oxygen, just walking a few steps and I have to stop as my oxygen levels plummet to between 60 & 70%. After 30 seconds, they recover
mary1956
in
Lung Conditions Community Forum
3 years ago
Hepatic Encephalopathy
What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has
What more can they do for hepatic encephalopathy. My relative is on rifaxim twice a day and lactose 3 times a day but still has symptoms. Some days are better than others. Sadly he can’t have a liver transplant as he has cancer and has been told he has months there for want to make sure that he has
Albw
in
British Liver Trust
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
elevated ALP ALT AST
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
azzurra
in
PBC Foundation
3 years ago
New to this
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Highwaywomble
in
Kidney Cancer Support
3 years ago
New To this site
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Hi, Sorry If this reply to this post is too long First I would just like to say that my wife had a chronic needle phobia and would be the first to say she that she didn't help herself and others when trying to have blood taken, but after many attempts over some years no one seemed to listen to her
Highwaywomble
in
British Liver Trust
3 years ago
Kidney Donation Difficulty
What are your stories regarding finding a kidney donor? Are you guys having difficulty finding a kidney donor ? I'm doing my research on kidney transplant donation rate. Thank you.
What are your stories regarding finding a kidney donor? Are you guys having difficulty finding a kidney donor ? I'm doing my research on kidney transplant donation rate. Thank you.
DrKeptiocal
in
Kidney Disease
3 years ago
Join us for our next online supporter event, celebrating 60 years of BHF-funded research
Join us on Wednesday 22 September at 4pm for the last of our 60th birthday special editions - Live & Ticking – The Heart Transplant Story Professor Sir Nilesh Samani, BHF Medical Director, will be celebrating 60 years of BHF-funded research and shining a light on some of our achievements over the last
Join us on Wednesday 22 September at 4pm for the last of our 60th birthday special editions - Live & Ticking – The Heart Transplant Story Professor Sir Nilesh Samani, BHF Medical Director, will be celebrating 60 years of BHF-funded research and shining a light on some of our achievements over the last
Helen_BHF
Partner
in
British Heart Foundation
3 years ago
Anxiety about Colon Cancer
Hello all, I am new here. I have been experiencing bowel issues over the past 2 months. My bowel movements have always been inconsistent, but now that I'm older and more aware of symptoms (and have a lot more anxiety), I'm a little more concerned. I'm 32 years old, mother of 3, Type 1 diabetic. I had
Hello all, I am new here. I have been experiencing bowel issues over the past 2 months. My bowel movements have always been inconsistent, but now that I'm older and more aware of symptoms (and have a lot more anxiety), I'm a little more concerned. I'm 32 years old, mother of 3, Type 1 diabetic. I had
Amilton14
in
Colon Cancer Connected
3 years ago
Kidney transplant caregiver
Kidney transplant caregiver
Kidney transplant caregiver
Dogdaysummer
in
Kidney Transplant
3 years ago
A Measure of Health with SLE Lupus
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
Am a 64 year old female diagnosed with SLE Lupus in the June 2000 at age 43, after 2 years of marriage. It affected my left lung (pulmonary fibrosis--doctors were preparing me for a lung transplant but refused it). At this time I was being treated with cyclosporine in preparation for the transplant
UKMoss
in
LUPUS UK
3 years ago
It is a gift to be who you truly are
As divine timing would have it, earlier this year, a 3 part course on ‘Building Sangha’ popped into my inbox. The call of my inner knowing found me signing up without hesitation via ‘Alternatives’ for this trio of 90 minute virtual sessions with Malcom Stern. Malcolm is a psycho-therapist of 30 years
As divine timing would have it, earlier this year, a 3 part course on ‘Building Sangha’ popped into my inbox. The call of my inner knowing found me signing up without hesitation via ‘Alternatives’ for this trio of 90 minute virtual sessions with Malcom Stern. Malcolm is a psycho-therapist of 30 years
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
3 years ago
Hyperreflexia
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
Bellmore2089
in
Pernicious Anaemia Society
3 years ago
Colon cancer signs x
Regarding signs of colon cancer. Is night sweat and peculiar body and stool smell a sign to be aware of? UC sufferer with high calprotectin level too Thank you
Regarding signs of colon cancer. Is night sweat and peculiar body and stool smell a sign to be aware of? UC sufferer with high calprotectin level too Thank you
Soogle
in
Colon Cancer Connected
3 years ago
Azacitidine side effect
I have MF and have been on Jakafi for over 2 years. During this time my spleen has enlarged to fill my stomach. It is not reducing, so my Haematologist recommended a chemo drug named Azacitidine. I have had the first cycle of 7 days and finished just over a week ago. However, I am experiencing Insomnia
I have MF and have been on Jakafi for over 2 years. During this time my spleen has enlarged to fill my stomach. It is not reducing, so my Haematologist recommended a chemo drug named Azacitidine. I have had the first cycle of 7 days and finished just over a week ago. However, I am experiencing Insomnia
billybrock
in
MPN Voice
3 years ago
BK virus and Low WBC
Hi - my dad received a kidney transplant about 4 months ago and at first everything looked great. But recently it showed he had the BK virus. First they lowered his CellCept dose and two weeks later the virus had increased. So they removed CellCept completely and his virus levels were coming down. However
Hi - my dad received a kidney transplant about 4 months ago and at first everything looked great. But recently it showed he had the BK virus. First they lowered his CellCept dose and two weeks later the virus had increased. So they removed CellCept completely and his virus levels were coming down. However
Nyc147
in
Kidney Transplant
3 years ago
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