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Another update saga continues /Update antivirals 🤬🤬🤬😵💫💩💩💩🤯🤯🤯
Ok …. Recieved a phone call at 12.30 please can you get here for infusion at 2.30. Clinic an hour away had to get hubby out of work to take me. Arrived in car park at 2.25 phone rang appointment cancelled come tomorrow at 11. Waste of time / petrol. I exhausted now and feeling shit . I’ve written this
Ok …. Recieved a phone call at 12.30 please can you get here for infusion at 2.30. Clinic an hour away had to get hubby out of work to take me. Arrived in car park at 2.25 phone rang appointment cancelled come tomorrow at 11. Waste of time / petrol. I exhausted now and feeling shit . I’ve written this
Hidden
in
NRAS
2 years ago
PVCs post cardioversion
Been in hospital since I left home after a cardioversion that put me in nsr but with multiple PVCs and going in and out of Afib which resulted in me being taken by ambulance with fluid overload on lungs and heart. Still in on a monitor and waiting on next move as don’t feel good like this. On dronederone
Been in hospital since I left home after a cardioversion that put me in nsr but with multiple PVCs and going in and out of Afib which resulted in me being taken by ambulance with fluid overload on lungs and heart. Still in on a monitor and waiting on next move as don’t feel good like this. On dronederone
Mollykin
in
AF Association
2 years ago
Nebivolol and verapamil
So, am feeling better overall on the Nebivolol, bp settling down, but still occasionally erratic (strange feeling). Excessive tiredness where I just couldn’t keep awake is a lot better. Keep getting funny flutters/racing pulse that makes me think af has started or about to start but Kardia shows NSR
So, am feeling better overall on the Nebivolol, bp settling down, but still occasionally erratic (strange feeling). Excessive tiredness where I just couldn’t keep awake is a lot better. Keep getting funny flutters/racing pulse that makes me think af has started or about to start but Kardia shows NSR
Tilly1957
in
AF Association
2 years ago
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Duloxetine
So my local nurse recommended I take duloxetine today to help with fibro pain I've been having lately, as well as treating my depression. I'm a bit on the fence with it though as my husband and I are wanting to try for a baby soon, so I don't want to start a medication to potentially stop taking it after
So my local nurse recommended I take duloxetine today to help with fibro pain I've been having lately, as well as treating my depression. I'm a bit on the fence with it though as my husband and I are wanting to try for a baby soon, so I don't want to start a medication to potentially stop taking it after
jarbnsnmelts
in
Fibromyalgia Action UK
2 years ago
Introduction
Sleep
hygiene
is no use at least for me. I wish I
sleep
naturally without a pill. Please advise.[/i] [i]LosingGame[/i]
Sleep
hygiene
is no use at least for me. I wish I
sleep
naturally without a pill. Please advise.[/i] [i]LosingGame[/i]
LosingGame
in
Sleep Matters
2 years ago
"This fruit could treat Parkinson's... even though it causes Parkinson's symptoms."
Soursop, also known as guanabana and other names. The fruit can cause Parkinson's-like symptoms but also contains chemicals that are potentially beneficial. "The chemicals are called tryptamine-derived alkaloids. They're similar in structure to melatonin, a hormone involved in sleep regulation that can
Soursop, also known as guanabana and other names. The fruit can cause Parkinson's-like symptoms but also contains chemicals that are potentially beneficial. "The chemicals are called tryptamine-derived alkaloids. They're similar in structure to melatonin, a hormone involved in sleep regulation that can
Zardoz
in
Cure Parkinson's
2 years ago
RLS - Mirapexin & Gabapentin
This is my first post so bear with me. I have had restless legs since early my teens. All through my life ( I am 72 ) doctors have basically said poor you and that was that. Five years ago I had a sleep apnea test which was fine but the consultant concluded that I had acute RLS (which I obviously already
This is my first post so bear with me. I have had restless legs since early my teens. All through my life ( I am 72 ) doctors have basically said poor you and that was that. Five years ago I had a sleep apnea test which was fine but the consultant concluded that I had acute RLS (which I obviously already
Finn2
in
Restless Legs Syndrome
2 years ago
Help!! Progynova and… pregnant?!
Hey everyone, I’m just starting my third round of IVF after a BFN and faint BFP followed by miscarriage. After starting Progynova on Weds, I felt some weird cramping yday so decided to do an early pregnancy test (first response). I got a faint positive (still in shock) - period is due on Tues. I’m worried
Hey everyone, I’m just starting my third round of IVF after a BFN and faint BFP followed by miscarriage. After starting Progynova on Weds, I felt some weird cramping yday so decided to do an early pregnancy test (first response). I got a faint positive (still in shock) - period is due on Tues. I’m worried
Lolalules
in
Fertility Network UK
2 years ago
Bolt's Methylene Blue Update 6/24
As of 6/21 I am taking a break from MB. I started at 5 mg 4/29, went to 10 mg 5/8, and my REM Sleep Behavior Disorder has been way worse as of 6/16. I had also started Betaine 6/12 so I stopped that also on 6/20. I don't know if MB is the issue. I was a bit hesitant to start MB only because I was doing
As of 6/21 I am taking a break from MB. I started at 5 mg 4/29, went to 10 mg 5/8, and my REM Sleep Behavior Disorder has been way worse as of 6/16. I had also started Betaine 6/12 so I stopped that also on 6/20. I don't know if MB is the issue. I was a bit hesitant to start MB only because I was doing
Bolt_Upright
in
Cure Parkinson's
2 years ago
Vagus Nerve Stimulation VNS for FND?
If there is something wrong with your vagus nerve it affects heart rate, irregular movement, dizziness and nausea. Doctors have told me that sometimes what I described is like a vasovagal response. So I wondered if the vagus nerve was treated maybe it will help my FND symptoms. Has anyone had that Vagus
If there is something wrong with your vagus nerve it affects heart rate, irregular movement, dizziness and nausea. Doctors have told me that sometimes what I described is like a vasovagal response. So I wondered if the vagus nerve was treated maybe it will help my FND symptoms. Has anyone had that Vagus
AjaStar
in
Functional Neurological Disorder - FND Hope
2 years ago
Flare....how long will this last
I am currently having one of the worst flares of fibromyalgia I have ever had. The pain and fatigue are unbearable. My GP has suggested that I try taking Duloxetine. But the problem is that I have to wean my current SSRI first and I know that is going to be awful as I have done it before. How long will
I am currently having one of the worst flares of fibromyalgia I have ever had. The pain and fatigue are unbearable. My GP has suggested that I try taking Duloxetine. But the problem is that I have to wean my current SSRI first and I know that is going to be awful as I have done it before. How long will
nellie_deany
in
Fibromyalgia Action UK
2 years ago
Multaq
Hi everyone, I started Multaq (dronederone) on Wednesday with the intention of being cardioverted Friday. Cardioversion was cancelled as staff off unwell but been told to continue with new meds. I’m very worried as it says in leaflet only to take if being cardioverted and if u can go into NSR. I’ve
Hi everyone, I started Multaq (dronederone) on Wednesday with the intention of being cardioverted Friday. Cardioversion was cancelled as staff off unwell but been told to continue with new meds. I’m very worried as it says in leaflet only to take if being cardioverted and if u can go into NSR. I’ve
Mollykin
in
AF Association
2 years ago
In search of support, and community
These include ongoing work with a competent psychiatrist, psychologist, CBT, TMS, daily exercise, proper
sleep
hygiene
, proper nutrition, and a number of other things.
These include ongoing work with a competent psychiatrist, psychologist, CBT, TMS, daily exercise, proper
sleep
hygiene
, proper nutrition, and a number of other things.
NAVARRAC
in
Anxiety and Depression Support
2 years ago
Life changes
So, I quit my job last week. I lasted one week past a year. Unfortunately it got to be a toxic workplace which was causing enough stress to trigger my MS symptoms. I was waking up with tremors and numb legs. Basically the bookstore I was working at was struggling and I was being made the scapegoat.
So, I quit my job last week. I lasted one week past a year. Unfortunately it got to be a toxic workplace which was causing enough stress to trigger my MS symptoms. I was waking up with tremors and numb legs. Basically the bookstore I was working at was struggling and I was being made the scapegoat.
StacyHayward
in
My MSAA Community
2 years ago
Weaning off ropinirol
Hi! I have been told before but can’t remember how to wean myself off ropinirol, I’m currently down to 0.50mg at night but if I go lower than that I don’t sleep at all! Which isn’t helpful when I work full time, I’m in the uk so my doc won’t prescribe opioids, I’m already taking Gabapentin and that’s
Hi! I have been told before but can’t remember how to wean myself off ropinirol, I’m currently down to 0.50mg at night but if I go lower than that I don’t sleep at all! Which isn’t helpful when I work full time, I’m in the uk so my doc won’t prescribe opioids, I’m already taking Gabapentin and that’s
jaime77
in
Restless Legs Syndrome
2 years ago
***SENSITIVE*** OTD
Hellooooo, hope you are all well and happy 💕💕💕💕💕 It's finally OTD and the TWW is finally over. I was in Prague for my treatment and had to travel back home on 7dp5dt. I was really scared as I had lost one of my natural pregnancies after air travel, so was anxious and tensed to say the least. 8dp5dt
Hellooooo, hope you are all well and happy 💕💕💕💕💕 It's finally OTD and the TWW is finally over. I was in Prague for my treatment and had to travel back home on 7dp5dt. I was really scared as I had lost one of my natural pregnancies after air travel, so was anxious and tensed to say the least. 8dp5dt
Babyrainbow
in
Fertility Network UK
2 years ago
Jolting from sleep.
Hello everyone, I'm writing to see if anybody has any episodes of being suddenly jolted from their sleep, especially if you have FND and Fibromyalgia? I've experienced it once, several years ago and had an episode today, which is quite scary if you're on your own.
Hello everyone, I'm writing to see if anybody has any episodes of being suddenly jolted from their sleep, especially if you have FND and Fibromyalgia? I've experienced it once, several years ago and had an episode today, which is quite scary if you're on your own.
LEEJUNFAN
in
Functional Neurological Disorder - FND Hope
2 years ago
Pulmonary Fibrosis/Pulmonary Hypertension how long?
I know that we have very different experiences with our ILD. I had a look on an American PH news site and see that they have been testing an oral spray which has given quite favourable results for PF sufferers. Wonder how long it will take for UK to get it! Here is an extract from the article. It would
I know that we have very different experiences with our ILD. I had a look on an American PH news site and see that they have been testing an oral spray which has given quite favourable results for PF sufferers. Wonder how long it will take for UK to get it! Here is an extract from the article. It would
Little-Lung-Lulu
in
Lung Conditions Community Forum
2 years ago
Long term use of Duloxetine
Hi, I have been taking Duloxetine continuously since 2003. I did try Sertraline but I couldn't function. Seeing my GP at the moment is a nightmare. I am just aware that my anxiety episodes are getting more frequent with no rhyme or reason for them. Have they stopped working? and is it dangerous to be
Hi, I have been taking Duloxetine continuously since 2003. I did try Sertraline but I couldn't function. Seeing my GP at the moment is a nightmare. I am just aware that my anxiety episodes are getting more frequent with no rhyme or reason for them. Have they stopped working? and is it dangerous to be
Shaz8465
in
Anxiety Support
2 years ago
PGE1, PGA1, Amodiaquine (AQ), Chloroquine (CQ), 5,6-Dihydroxyindole (DHI), Nurr1 and slowing progression
(This started as a post on PGE1 and PGA2, but then I found AQ, CQ, and DHI might do the same thing so I have changed the title) It has been 2 years since this was posted in HU: https://healthunlocked.com/cure-parkinsons/posts/143562876/2-compounds-show-ability-to-protect-neurons-raise-dopamine-levels
(This started as a post on PGE1 and PGA2, but then I found AQ, CQ, and DHI might do the same thing so I have changed the title) It has been 2 years since this was posted in HU: https://healthunlocked.com/cure-parkinsons/posts/143562876/2-compounds-show-ability-to-protect-neurons-raise-dopamine-levels
Bolt_Upright
in
Cure Parkinson's
2 years ago
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