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Guidelines
Hi I'm wondering if there are guidelines in the UK regarding TSH numbers by which a doctor is advised treatment should be an option? I did my first private blood test in 2017 and the doctors remarks were to see my GP regarding treatment for an underactive thyroid. I was so pleased to finally have clarification
Hi I'm wondering if there are guidelines in the UK regarding TSH numbers by which a doctor is advised treatment should be an option? I did my first private blood test in 2017 and the doctors remarks were to see my GP regarding treatment for an underactive thyroid. I was so pleased to finally have clarification
Linac
in
Thyroid UK
1 year ago
Periodic Limb Movement Disorder
Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram! Yayyyyyy!!!!! Since then, the RLS has almost completely gone, which is a lovely result. However, my night time PLMD is quite bad. Sleep deprivation
Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram! Yayyyyyy!!!!! Since then, the RLS has almost completely gone, which is a lovely result. However, my night time PLMD is quite bad. Sleep deprivation
Theonlypetied
in
Restless Legs Syndrome
1 year ago
Researchers discover a potential cause of Parkinson's disease
In 2021, Professor Per Saris's group published results demonstrating that bacteria of the Desulfovibrio bacterial genus correlate with Parkinson's disease, and that their higher number also correlates with the severity of the symptoms of the disease. Replicating the same study, Chinese researchers came
In 2021, Professor Per Saris's group published results demonstrating that bacteria of the Desulfovibrio bacterial genus correlate with Parkinson's disease, and that their higher number also correlates with the severity of the symptoms of the disease. Replicating the same study, Chinese researchers came
Farooqji
in
Cure Parkinson's
1 year ago
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Daily consumption of methylene blue reduces attentional deficits and dopamine reduction in a 6-OHDA model of Parkinson’s disease
https://www.mwhp.com/methylene-blue-and-red-light-therapy-for-dementia-parkinsons-and-alzheimers-disease/ -------------------------------------------- I never heard of "methylene blue" until 15 minutes ago while watching this Dr. Berg video. He says you can buy it over the counter! https://youtu.be
https://www.mwhp.com/methylene-blue-and-red-light-therapy-for-dementia-parkinsons-and-alzheimers-disease/ -------------------------------------------- I never heard of "methylene blue" until 15 minutes ago while watching this Dr. Berg video. He says you can buy it over the counter! https://youtu.be
PDWarrior1900
in
Cure Parkinson's
1 year ago
Sleep problems
I have been an insomniac for years but since being diagnosed with PD my problems with sleep have increased to the point I rarely get as much as 2 hours of sleep per night. I have tried so many alternative therapies as well as sleeping pills from the GP but found little aid. There is a possibility there
I have been an insomniac for years but since being diagnosed with PD my problems with sleep have increased to the point I rarely get as much as 2 hours of sleep per night. I have tried so many alternative therapies as well as sleeping pills from the GP but found little aid. There is a possibility there
b5p10
in
Cure Parkinson's
1 year ago
Ichthyosis
I found some odd looking skin and discovered it was likely ichthyosis which apparently can develop in CLL patents. Anyone had any experience with this condition? Any suggestions or cautions?
I found some odd looking skin and discovered it was likely ichthyosis which apparently can develop in CLL patents. Anyone had any experience with this condition? Any suggestions or cautions?
Rando21
in
CLL Support
1 year ago
Results please
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
1 year ago
heat or baclofen?
Bad day today. 85 f at noon. Was pulling electronet fence down by the river. Felt a little drained and mild dizzy. Dropped fencing and made it back to the shade of the tractor to sit on ground and stretch. I called my son inlaw and talked for 30 minutes or so. Ended call and put phone in pocket
Bad day today. 85 f at noon. Was pulling electronet fence down by the river. Felt a little drained and mild dizzy. Dropped fencing and made it back to the shade of the tractor to sit on ground and stretch. I called my son inlaw and talked for 30 minutes or so. Ended call and put phone in pocket
irhunter
in
My MSAA Community
1 year ago
20 hours of non-injecting
Sleep
hygiene
was designed by and for office dwellers. I followed that methodology for three years from 1966 to 1968 until I rejected it.
Sleep
hygiene
was designed by and for office dwellers. I followed that methodology for three years from 1966 to 1968 until I rejected it.
WIZARD6787
in
Pernicious Anaemia Society
7 months ago
Medscape article on RLS
Lifestyle advice includes good
sleep
hygiene
; reducing caffeine and alcohol consumption; stopping smoking; and undertaking regular, moderate-intensity exercise.
Lifestyle advice includes good
sleep
hygiene
; reducing caffeine and alcohol consumption; stopping smoking; and undertaking regular, moderate-intensity exercise.
thorp
in
Restless Legs Syndrome
2 months ago
Weight Gain, Duloxetine & Fibromyalgia
Morning my fellow warriors,I have fibromyalgia and because i was struggling with on going pain my GP changed my mental health meds from sertraline to duloxetine. Since being on duloxetine I have gained approx. 2 st and it is making me miserable. Does anyone have any experinece with coming off Duloxetine
Morning my fellow warriors,I have fibromyalgia and because i was struggling with on going pain my GP changed my mental health meds from sertraline to duloxetine. Since being on duloxetine I have gained approx. 2 st and it is making me miserable. Does anyone have any experinece with coming off Duloxetine
nellie_deany
in
Fibromyalgia Action UK
1 year ago
Chorea and PV
Hi - I don't post very often but I thought that this might be worthy of sharing. It is second hand experience as it is my mother who suffers with Polycythaemia vera (PV). She is 86 and is taking Hydroxycarbamide for PV (amongst other medications). Around a couple of years ago my mother started to experience
Hi - I don't post very often but I thought that this might be worthy of sharing. It is second hand experience as it is my mother who suffers with Polycythaemia vera (PV). She is 86 and is taking Hydroxycarbamide for PV (amongst other medications). Around a couple of years ago my mother started to experience
PFR1937
in
MPN Voice
1 year ago
Dipyridamole for RLS
Dipyridamole is a drug used primarily to prevent the formation of blood clots. A study titled "A Randomized, Placebo-Controlled Crossover Study with Dipyridamole for Restless Leg Syndrome" was published in 2021 (https://doi.org/10.1002/mds.28668). The conclusion published by the authors states "Dipyridamole
Dipyridamole is a drug used primarily to prevent the formation of blood clots. A study titled "A Randomized, Placebo-Controlled Crossover Study with Dipyridamole for Restless Leg Syndrome" was published in 2021 (https://doi.org/10.1002/mds.28668). The conclusion published by the authors states "Dipyridamole
robertff3401
in
Restless Legs Syndrome
1 year ago
bystolic vs metropolol
has anyone had wheezing and shortness of breath on metropolol? Pulmonary dr just switched to bystolic?!
has anyone had wheezing and shortness of breath on metropolol? Pulmonary dr just switched to bystolic?!
Jancam1943
in
AF Association
1 year ago
paradoxical dalfampridine/Ampyra effects?
so I took my first doses yesterday, felt like I was moving faster, my balance was significantly affected but I slept really well 👍 and then today, I was very lethargic and my balance and spasticity were horrible. (Not likely a relapse because I haven’t had a relapse x the 1980s and after skipping 1
so I took my first doses yesterday, felt like I was moving faster, my balance was significantly affected but I slept really well 👍 and then today, I was very lethargic and my balance and spasticity were horrible. (Not likely a relapse because I haven’t had a relapse x the 1980s and after skipping 1
erash
in
My MSAA Community
1 year ago
Need help please to manage one more sympton
Thank you collogues, for your sharings, that have helped me physically, emotionally and mentally. I am a 70-year-old male diagnosed with PD last Nov 22. After trial and error with some medicines, I settled, from early Jan 23, on Sifrol with 6 tablets per day (0.18mg). This produced the magic I was praying
Thank you collogues, for your sharings, that have helped me physically, emotionally and mentally. I am a 70-year-old male diagnosed with PD last Nov 22. After trial and error with some medicines, I settled, from early Jan 23, on Sifrol with 6 tablets per day (0.18mg). This produced the magic I was praying
michelbekhazi
in
Cure Parkinson's
1 year ago
Subacute thyroiditis and sub clinical hypothyroidism
Hello, just asking for your opinion on whether I should start treatment or not for sub clinical hypothyroidism after subacute thyroiditis. I'm now it seems in the hypothyroid phase of this horrible illness ( subacute thyroiditis is like the gift that keeps on giving!) after becoming ill in October with
Hello, just asking for your opinion on whether I should start treatment or not for sub clinical hypothyroidism after subacute thyroiditis. I'm now it seems in the hypothyroid phase of this horrible illness ( subacute thyroiditis is like the gift that keeps on giving!) after becoming ill in October with
Julietilly22
in
Thyroid UK
1 year ago
???s @ dalfampridine/Ampyra
saw Neuro yesterday. She’s prescribing Ampyra. I’m hopeful 🤞 but wondered what others experiences were? What benefits, side effects? Insomnia? Thanks! 😊
saw Neuro yesterday. She’s prescribing Ampyra. I’m hopeful 🤞 but wondered what others experiences were? What benefits, side effects? Insomnia? Thanks! 😊
erash
in
My MSAA Community
1 year ago
Self-care with Chronic illness
Getting enough
sleep
and maintaining good
sleep
hygiene
.
Sleep
is essential for healing and recovery, and poor sleep can worsen symptoms of chronic health conditions. Finding ways to stay positive and engaged in life.
Getting enough
sleep
and maintaining good
sleep
hygiene
.
Sleep
is essential for healing and recovery, and poor sleep can worsen symptoms of chronic health conditions. Finding ways to stay positive and engaged in life.
endokicker1
Administrator
in
Not Defined By Endometriosis
1 year ago
Insomnia and sleep clinics
Has anyone been to a sleep clinic for Insomnia? What happens? What kind of tests do they do? What kind of treatment can be offered? Does it work? I'm 45 and have struggled to sleep for most of my life, certainly from adolescence onwards but every now and then it gets worse. I typically run on 4
Has anyone been to a sleep clinic for Insomnia? What happens? What kind of tests do they do? What kind of treatment can be offered? Does it work? I'm 45 and have struggled to sleep for most of my life, certainly from adolescence onwards but every now and then it gets worse. I typically run on 4
Mistee
in
Pain Concern
1 year ago
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