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Starting Enhertu
was on Xeloda. Mets to liver and pleural cavity. Liver tumor increased slightly in size. Changing to Enhertu. More on my progress soon.
was on Xeloda. Mets to liver and pleural cavity. Liver tumor increased slightly in size. Changing to Enhertu. More on my progress soon.
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
1 year ago
PSMA scan costs part 3
So in two prior posts, I wrote about what I was told a PSMA scan would cost. Then I wrote about what the hospital charged for the procedure.Now I have the EOB from insurance. So this is in the USA, for those international patients. So hospital billed $29,610 for the scan plus $7,305.70 for the facility
So in two prior posts, I wrote about what I was told a PSMA scan would cost. Then I wrote about what the hospital charged for the procedure.Now I have the EOB from insurance. So this is in the USA, for those international patients. So hospital billed $29,610 for the scan plus $7,305.70 for the facility
TJGuy
in
Advanced Prostate Cancer
1 year ago
Stopping Letrozole
Good afternoon. My wife had breast cancer 5 years ago. Lorraine was treated in Newcastle with surgery/radiotherapy. Happily all is good. Lorraine has been on Letrozole for nearly five years and here in Scotland the practice is to stop the Letrozole at the five year mark. My wife is nervous about
Good afternoon. My wife had breast cancer 5 years ago. Lorraine was treated in Newcastle with surgery/radiotherapy. Happily all is good. Lorraine has been on Letrozole for nearly five years and here in Scotland the practice is to stop the Letrozole at the five year mark. My wife is nervous about
7164
in
Cancer Support Scotland
1 year ago
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Acalabrutinib/COVID/swollen lymph nodes under arm
Hi, I’ve been on Acalabrutinib for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal. I recently noticed, however, that
Hi, I’ve been on Acalabrutinib for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal. I recently noticed, however, that
Tofa80
in
CLL Support
1 year ago
Palliative care survey for less survivable cancer patients & loved ones (UK)
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
📣 The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
from today’s NYT article
Not Everything We Call Cancer Should Be Called Cancer By Laura Esserman and Scott Eggener Dr. Esserman is a surgeon and breast cancer oncologist at the University of California, San Francisco. Dr. Eggener is a surgeon and urologic oncologist at the University of Chicago. “…..Let’s look at two examples
Not Everything We Call Cancer Should Be Called Cancer By Laura Esserman and Scott Eggener Dr. Esserman is a surgeon and breast cancer oncologist at the University of California, San Francisco. Dr. Eggener is a surgeon and urologic oncologist at the University of Chicago. “…..Let’s look at two examples
Dont08759
in
Advanced Prostate Cancer
1 year ago
If it’s not one thing, it's another! Update
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Gulfstream_Maggie
in
Fibromyalgia Action UK
1 year ago
Ibrance and supplements
I belong to those who are very careful in taking food supplements. My oncologist recommended not to take calcium and vitamin D because I have a high level of calcium in my blood. I mainly use vitamin C, and I try to compensate everything else from food. I am 69 years old and use Ibrance 100 + fulvestrant
I belong to those who are very careful in taking food supplements. My oncologist recommended not to take calcium and vitamin D because I have a high level of calcium in my blood. I mainly use vitamin C, and I try to compensate everything else from food. I am 69 years old and use Ibrance 100 + fulvestrant
hopehope67
in
SHARE Metastatic Breast Cancer
1 year ago
Update: Carbo/Etoposide for Dad’s Liver Mets
My dad has his 6th round of Carbo/Etoposide next week. The last 2 rounds have been very difficult on my dad. We thought he was lucky in the beginning as the side effects were manageable and attributed it to my dad being young and previously very active. It’s definitely true that chemo is cumulative.
My dad has his 6th round of Carbo/Etoposide next week. The last 2 rounds have been very difficult on my dad. We thought he was lucky in the beginning as the side effects were manageable and attributed it to my dad being young and previously very active. It’s definitely true that chemo is cumulative.
antisocialsocialwrkr
in
Advanced Prostate Cancer
1 year ago
fatigue
i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start next week on Apalutamide. I am wondering it is a good combination . Also if my fatigue will get worse . Does anyone knows Thank you
i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start next week on Apalutamide. I am wondering it is a good combination . Also if my fatigue will get worse . Does anyone knows Thank you
Raminagrobis
in
Advanced Prostate Cancer
1 year ago
mCRPC- What is double negative prostate cancer along with the other 4 subtypes.
In research trying to understand my PSMA-negative FDG-positive current scenario I've come across some interesting articles that I thought I'd share with the group. I'm consulting with a new MO on Wednesday and I'm hoping she can shed some light on my progression. This paper came out 2 weeks ago- it's
In research trying to understand my PSMA-negative FDG-positive current scenario I've come across some interesting articles that I thought I'd share with the group. I'm consulting with a new MO on Wednesday and I'm hoping she can shed some light on my progression. This paper came out 2 weeks ago- it's
V10fanatic
in
Advanced Prostate Cancer
1 year ago
Epstein lab question
Does anyone know if the Epstein Lab at Johns Hopkins has expertise in gynecological cancers comparable to it expertise in prostate cancer?
Does anyone know if the Epstein Lab at Johns Hopkins has expertise in gynecological cancers comparable to it expertise in prostate cancer?
Papa1
in
Advanced Prostate Cancer
1 year ago
Cancer Center Keeps Making Errors that make my application for a Medical Marijuana card get denied
I am so frustrated! My second application for a MMC was denied as the Physicians License # was in error. The first one was denied because their phone number was not included. This is just crazy! I've written a letter about that to them and will be giving it to either my onc or the NP that I see
I am so frustrated! My second application for a MMC was denied as the Physicians License # was in error. The first one was denied because their phone number was not included. This is just crazy! I've written a letter about that to them and will be giving it to either my onc or the NP that I see
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
Treatment wait length- Public Health System Ireland
Hi all, I'm waiting on a scan appointment for suspected Ovarian Cyst and I'm in a lot of pain. I'm paying for it myself as I don't have health insurance and my consultant said I could be waiting 3 months on the Public Health waiting list. My mom had a 1kg cyst removed a few years ago and full hysterectomy
Hi all, I'm waiting on a scan appointment for suspected Ovarian Cyst and I'm in a lot of pain. I'm paying for it myself as I don't have health insurance and my consultant said I could be waiting 3 months on the Public Health waiting list. My mom had a 1kg cyst removed a few years ago and full hysterectomy
MadMadam
in
OvaCare
1 year ago
Just took my first Pirtobrutinib pill today
I can’t thank my doctor and Upenn enough for acting so quickly in getting pirto approved by insurance company and getting me co-pay assistance. The drug arrived yesterday and this morning I took my first dose! Just in time because my lymph nodes in my neck and abdomen have gotten so much bigger and
I can’t thank my doctor and Upenn enough for acting so quickly in getting pirto approved by insurance company and getting me co-pay assistance. The drug arrived yesterday and this morning I took my first dose! Just in time because my lymph nodes in my neck and abdomen have gotten so much bigger and
ReneeSusan
in
CLL Support
1 year ago
Update on carbolatin-etoposide
Hope everyone is doing well and enjoying what’s left of the summer sunshine. Just a brief update. My husband whose advanced prostate cancer has now become neuroendocrine has just completed 3 cycles of carbolatin - etoposide for liver mets. He did a Ct scan and we just got the good news that his
Hope everyone is doing well and enjoying what’s left of the summer sunshine. Just a brief update. My husband whose advanced prostate cancer has now become neuroendocrine has just completed 3 cycles of carbolatin - etoposide for liver mets. He did a Ct scan and we just got the good news that his
Believeit
in
Advanced Prostate Cancer
1 year ago
pre-op advice please
I have just been diagnosed with bowel cancel. Small tumour and they don’t believe it has spread. In 4 weeks I will have an operation to remove the tumour and part of the bowel. I would appreciate advice on how to prepare for the operation. What food to eat / avoid. For those that have been through this
I have just been diagnosed with bowel cancel. Small tumour and they don’t believe it has spread. In 4 weeks I will have an operation to remove the tumour and part of the bowel. I would appreciate advice on how to prepare for the operation. What food to eat / avoid. For those that have been through this
Mantras131
in
Colon Cancer Connected
1 year ago
Hand surgery went well
The scheduler phoned me Monday to offer me an earlier procedure on Tuesday and I jumped at the chance to be the first patient of the day for the hand surgeon! When he's not running late, and is likely at his best. But that meant we had to get up at 4 am! Itold every body that I probably didn't need
The scheduler phoned me Monday to offer me an earlier procedure on Tuesday and I jumped at the chance to be the first patient of the day for the hand surgeon! When he's not running late, and is likely at his best. But that meant we had to get up at 4 am! Itold every body that I probably didn't need
PJBinMI
in
SHARE Metastatic Breast Cancer
1 year ago
ovarian mass
Has anyone had any experience of a complex cyst going away on MRI?
Has anyone had any experience of a complex cyst going away on MRI?
Ova104
in
Endometriosis UK
1 year ago
Diclofenac for neuropathy/HFS caused by Xeloda
hello everyone I suffer from hand and foot syndrome and neuropathy so I have been looking for ways to ease the pain. I have been on Doxil (IV chemo every 4 weeks, Doxorubicin) since June 2023 and the pain has been hard physically and emotionally. Yesterday my oncologist’s nurse practitioner mentioned
hello everyone I suffer from hand and foot syndrome and neuropathy so I have been looking for ways to ease the pain. I have been on Doxil (IV chemo every 4 weeks, Doxorubicin) since June 2023 and the pain has been hard physically and emotionally. Yesterday my oncologist’s nurse practitioner mentioned
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
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