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Advice please
Hi there, my mum was diagnosed with HGSOC stage 4 in October 21. She had debulking surgery followed by 6 rounds of carbo/taxol. She recovered well and continued with Avastin infusions every 3 weeks until May this year when her CA125 started to gradually rise. Her CT scan at this time showed NED and they
Hi there, my mum was diagnosed with HGSOC stage 4 in October 21. She had debulking surgery followed by 6 rounds of carbo/taxol. She recovered well and continued with Avastin infusions every 3 weeks until May this year when her CA125 started to gradually rise. Her CT scan at this time showed NED and they
Pitchperfec
in
My Ovacome
8 months ago
Açai powder
Açai Has anyone taken Açai powder for a supplement I have PV and take 90 micrograms of peg interferon a week and a blood thinner . It's know has the Açai berry but is technically a drupe not a berry . It suppose to be really good for blood cancers ? I just wanted to know before I start using
Açai Has anyone taken Açai powder for a supplement I have PV and take 90 micrograms of peg interferon a week and a blood thinner . It's know has the Açai berry but is technically a drupe not a berry . It suppose to be really good for blood cancers ? I just wanted to know before I start using
Blonde25
in
MPN Voice
8 months ago
Great to be back in Westminster today!
Great to be back in Westminster today! 🧡💪 Today Skcin supported the launch of Sanofi’s new report about the Non-Melanoma Skin Cancer (NMSC) Patient Pathway and improving patient journeys and experience of care. Following on from our success in July 2019 when Skcin co-hosted the launch of Sanofi
Great to be back in Westminster today! 🧡💪 Today Skcin supported the launch of Sanofi’s new report about the Non-Melanoma Skin Cancer (NMSC) Patient Pathway and improving patient journeys and experience of care. Following on from our success in July 2019 when Skcin co-hosted the launch of Sanofi
SkcinHQ
Partner
in
Skin Cancer UK
1 year ago
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TBill
Hey guys. Glad to find this group. 81 years old- Diagnosed 7 years ago with a Gleason 9 The Onc's finally scared me into having a radical but I refused to let them take my nerves. They told me I would be gone in 5 yrs. In retrospect wish I hadn't had the radical. Info and options were very hard to come
Hey guys. Glad to find this group. 81 years old- Diagnosed 7 years ago with a Gleason 9 The Onc's finally scared me into having a radical but I refused to let them take my nerves. They told me I would be gone in 5 yrs. In retrospect wish I hadn't had the radical. Info and options were very hard to come
TBill
in
Advanced Prostate Cancer
8 months ago
has anyone had a lumpectomy with MBC?
Hi all- I love this site and the camaraderie that you all give me. Always feel less alone when I read your posts. And have learned so much! I was diagnosed in May 2020 , HER2 positive stage 4 found Mets in lymph nodes and trachea area. Treatment has worked great, Ibramce and exemastane (way better
Hi all- I love this site and the camaraderie that you all give me. Always feel less alone when I read your posts. And have learned so much! I was diagnosed in May 2020 , HER2 positive stage 4 found Mets in lymph nodes and trachea area. Treatment has worked great, Ibramce and exemastane (way better
Georgelila
in
SHARE Metastatic Breast Cancer
8 months ago
Inherited aggressive pc
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
pd63
in
Prostate Cancer Network
8 months ago
Antioxidants can help cancerous tumors grow new blood vessels, which helps the cancer to grow and spread.
They didn't expressly refer to prostate cancer. But this is an issue that has been on my mind for a while. Antioxidants can help cancerous tumors grow new blood vessels, which helps the cancer to grow and spread. Https://m.jpost.com/health-and-wellness/article-757233 While many people may take
They didn't expressly refer to prostate cancer. But this is an issue that has been on my mind for a while. Antioxidants can help cancerous tumors grow new blood vessels, which helps the cancer to grow and spread. Https://m.jpost.com/health-and-wellness/article-757233 While many people may take
cesanon
in
Advanced Prostate Cancer
8 months ago
Newly diagnosed
So I have had chronic lymphatic leukaemia for 6 years and recently diagnosed with prostate cancer.Father died from it and brother also has just had his prostate removed. .I’ve scored3/3 on Gleason, MRI showed a small area of shadow from which they took 17 and 2 active from that. Appointment on Tuesday
So I have had chronic lymphatic leukaemia for 6 years and recently diagnosed with prostate cancer.Father died from it and brother also has just had his prostate removed. .I’ve scored3/3 on Gleason, MRI showed a small area of shadow from which they took 17 and 2 active from that. Appointment on Tuesday
Stacky66
in
Prostate Cancer Network
8 months ago
Tooth extraction after receiving Zometa?
Has anyone had a tooth extraction after receiving a Zometa infusion? My tooth extraction is scheduled for 9/18 but it’s not related to my metastatic breast cancer or any drugs I have received. It’s due to internal resorption and is being removed 8 weeks after my first Zometa infusion. My oncologist thinks
Has anyone had a tooth extraction after receiving a Zometa infusion? My tooth extraction is scheduled for 9/18 but it’s not related to my metastatic breast cancer or any drugs I have received. It’s due to internal resorption and is being removed 8 weeks after my first Zometa infusion. My oncologist thinks
B17865
in
SHARE Metastatic Breast Cancer
8 months ago
Radiation
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
sillyoyster
in
Advanced Prostate Cancer
8 months ago
immunotherapy
hi there Very low. My midway scans are showing my lymph nodes that grew after my huge debulking surgery in March have not shrunk with the chemotherapy and I have some nodules on peritoneum ( nothing in any organs) So he can’t say that the chemo hasn’t worked in other type cancer but it’s not doing
hi there Very low. My midway scans are showing my lymph nodes that grew after my huge debulking surgery in March have not shrunk with the chemotherapy and I have some nodules on peritoneum ( nothing in any organs) So he can’t say that the chemo hasn’t worked in other type cancer but it’s not doing
Le-gra143
in
My Ovacome
8 months ago
Glaucoma, OCT showing deterioration since starting Pred for PMR
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
Sillydogsmum
in
PMRGCAuk
8 months ago
Thyroid cancer
I have a close friend who’s just been diagnosed with thyroid cancer so is waiting for surgery. She has been told this is not the worst cancer to get and it will not kill her. So she is trying to be upbeat about it. Can you live normally without a thyroid please? I’d really like to give her some optimistic
I have a close friend who’s just been diagnosed with thyroid cancer so is waiting for surgery. She has been told this is not the worst cancer to get and it will not kill her. So she is trying to be upbeat about it. Can you live normally without a thyroid please? I’d really like to give her some optimistic
sidneymark70
in
Thyroid UK
8 months ago
Needing to hear some encouraging stories about stage 4 inoperable OC
Hello, everyone, This is my first post here although I’ve been reading everyone’s experiences for a few months. I have HG epithelial serous carcinoma OC stage IVa and had pleural effusion in the lungs and ascites which have both been drained and haven’t so far returned. I was diagnosed in January and
Hello, everyone, This is my first post here although I’ve been reading everyone’s experiences for a few months. I have HG epithelial serous carcinoma OC stage IVa and had pleural effusion in the lungs and ascites which have both been drained and haven’t so far returned. I was diagnosed in January and
Littlefluffycloud
in
My Ovacome
8 months ago
ctDNA - signatera
has anyone had the signatera bloodwork test? It is somewhat new science and compares a current blood draw to original tumor biopsy tissue. It then look for a match and works to to detect circulating tumor dna (ctDNA) in blood. It assigns a numbers as to how much ctDNA is found. My Mets are bone only
has anyone had the signatera bloodwork test? It is somewhat new science and compares a current blood draw to original tumor biopsy tissue. It then look for a match and works to to detect circulating tumor dna (ctDNA) in blood. It assigns a numbers as to how much ctDNA is found. My Mets are bone only
Gardengirl345
in
SHARE Metastatic Breast Cancer
8 months ago
Going in for a radical Cystectomy, stopping Biologic.
Hello lovely people. My first six monthly Cystoscopy after getting the all clear from bladder cancer in January showed that the cancer was back with a vengeance. So on Monday I'll be undergoing a Radical Cystectomy. I'm OK and positive with the outlook of living without a bladder and lots of other bits
Hello lovely people. My first six monthly Cystoscopy after getting the all clear from bladder cancer in January showed that the cancer was back with a vengeance. So on Monday I'll be undergoing a Radical Cystectomy. I'm OK and positive with the outlook of living without a bladder and lots of other bits
stbernhard
in
NRAS
8 months ago
Starting Enhertu
was on Xeloda. Mets to liver and pleural cavity. Liver tumor increased slightly in size. Changing to Enhertu. More on my progress soon.
was on Xeloda. Mets to liver and pleural cavity. Liver tumor increased slightly in size. Changing to Enhertu. More on my progress soon.
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
8 months ago
PSMA scan costs part 3
So in two prior posts, I wrote about what I was told a PSMA scan would cost. Then I wrote about what the hospital charged for the procedure.Now I have the EOB from insurance. So this is in the USA, for those international patients. So hospital billed $29,610 for the scan plus $7,305.70 for the facility
So in two prior posts, I wrote about what I was told a PSMA scan would cost. Then I wrote about what the hospital charged for the procedure.Now I have the EOB from insurance. So this is in the USA, for those international patients. So hospital billed $29,610 for the scan plus $7,305.70 for the facility
TJGuy
in
Advanced Prostate Cancer
8 months ago
Stopping Letrozole
Good afternoon. My wife had breast cancer 5 years ago. Lorraine was treated in Newcastle with surgery/radiotherapy. Happily all is good. Lorraine has been on Letrozole for nearly five years and here in Scotland the practice is to stop the Letrozole at the five year mark. My wife is nervous about
Good afternoon. My wife had breast cancer 5 years ago. Lorraine was treated in Newcastle with surgery/radiotherapy. Happily all is good. Lorraine has been on Letrozole for nearly five years and here in Scotland the practice is to stop the Letrozole at the five year mark. My wife is nervous about
7164
in
Cancer Support Scotland
8 months ago
Acalabrutinib/COVID/swollen lymph nodes under arm
Hi, I’ve been on Acalabrutinib for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal. I recently noticed, however, that
Hi, I’ve been on Acalabrutinib for almost a year now. I have SLL. Everything had been going wonderfully, my lymph nodes significantly decreased in size, my 3-months follow up scan showed great results, my blood work looked normal, and the side effects were minimal. I recently noticed, however, that
Tofa80
in
CLL Support
8 months ago
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