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Different mutation?
I was just checking via my NHS app what had been sent to my GP, when I noticed on a letter from Guys this - it listed my mutations - CGN - normal karotype, NGS - CALR, L2AF1, ASXL2. (High risk markers) Previously I thought I was ASXL1, it could be a typo I suppose but does anyone know the difference
I was just checking via my NHS app what had been sent to my GP, when I noticed on a letter from Guys this - it listed my mutations - CGN - normal karotype, NGS - CALR, L2AF1, ASXL2. (High risk markers) Previously I thought I was ASXL1, it could be a typo I suppose but does anyone know the difference
lizzziep
in
MPN Voice
5 months ago
EXERCISE is our best med.
I wrote this in response to a post that seems to have disappeared This is one of the most important post topics on this board. [i] In another large, phase 3 clinical trial funded by Movember, Chan and epidemiologists Stacey Kenfield and Lorelei Mucci, with principal investigators Rob Newton and
I wrote this in response to a post that seems to have disappeared This is one of the most important post topics on this board. [i] In another large, phase 3 clinical trial funded by Movember, Chan and epidemiologists Stacey Kenfield and Lorelei Mucci, with principal investigators Rob Newton and
Scout4answers
in
Advanced Prostate Cancer
5 months ago
Recently diagnosed and trying to work out what to do! All advice gratefully received.
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
welshsky
in
Prostate Cancer Network
5 months ago
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Always hit pca hard especially in the beginning and follow your instincts, You are Your Own Best Advocate.
Update Husband fighting with Stage 4 pca 06/2022 3 lytic lesions Seen same Medical Oncologist since 07/2022 Received a call from PA after only in this fight for 1.8 years and my husband has liver metastaties We don’t know how many or how big, as MO has not released pet scan of course we are devastated
Update Husband fighting with Stage 4 pca 06/2022 3 lytic lesions Seen same Medical Oncologist since 07/2022 Received a call from PA after only in this fight for 1.8 years and my husband has liver metastaties We don’t know how many or how big, as MO has not released pet scan of course we are devastated
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
Today was a good day
My husband had his PSMA scan today and it was negative for mets!! I am so relieved! He also had his PSA tested today and no change since December. I feel like I can breathe for a moment. We also met with the radiation oncologist this morning to discuss brachytherapy boost and it was a very positive meeting
My husband had his PSMA scan today and it was negative for mets!! I am so relieved! He also had his PSA tested today and no change since December. I feel like I can breathe for a moment. We also met with the radiation oncologist this morning to discuss brachytherapy boost and it was a very positive meeting
EvFC
in
Advanced Prostate Cancer
5 months ago
better delivery for better results: nanolipid particles work well in vivo
”Mitchell and postdoctoral fellow Lulu Xue were able to achieve therapeutic mRNA delivery into the lungs, helping to eradicate metastatic lung cancer in preclinical mouse model studies. ” https://www.thedp.com/article/2024/04/penn-lipid-nanoparticles-michael-mitchell-research
”Mitchell and postdoctoral fellow Lulu Xue were able to achieve therapeutic mRNA delivery into the lungs, helping to eradicate metastatic lung cancer in preclinical mouse model studies. ” https://www.thedp.com/article/2024/04/penn-lipid-nanoparticles-michael-mitchell-research
Maxone73
in
Advanced Prostate Cancer
5 months ago
Surgery or radiotheraphy?
Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic neuroma in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment. My husband is
Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic neuroma in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment. My husband is
Zhad
in
Acoustic Neuroma Support
5 months ago
Does Immunotherapy cause Vasculitis?
Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor of the cecum which because of her age and frailty at 81 years old is suggested to be inoperable. Genetic testing reveals its a type of cancer
Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor of the cecum which because of her age and frailty at 81 years old is suggested to be inoperable. Genetic testing reveals its a type of cancer
luggsey
in
Vasculitis UK
5 months ago
What to expect with mets and no treatment
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
Nwdx
in
Advanced Prostate Cancer
5 months ago
Weightlifting (machines) during SBRT?
(duplicate post) I am starting my five SBRT sessions tomorrow, April 29, 2024. I was not supposed to lift over ten pounds between my MRI/CT scan to locate my fiducials and my SBRT. I miss my workouts. Can I return to the gym with workouts on machines that isolate my muscle groups and avoid stress
(duplicate post) I am starting my five SBRT sessions tomorrow, April 29, 2024. I was not supposed to lift over ten pounds between my MRI/CT scan to locate my fiducials and my SBRT. I miss my workouts. Can I return to the gym with workouts on machines that isolate my muscle groups and avoid stress
Worked_the_World
in
Advanced Prostate Cancer
5 months ago
first recurrence
hi peeps , I started new rounds of chemo for floating cluster cells , detected after they drained 2.5 L of fluid from my belly. CA 125 820 I’m on Carboplatin / gemcitabine Did anyone had the same?
hi peeps , I started new rounds of chemo for floating cluster cells , detected after they drained 2.5 L of fluid from my belly. CA 125 820 I’m on Carboplatin / gemcitabine Did anyone had the same?
Vegana
in
My Ovacome
5 months ago
Alimta - Fevers
My mum has been fighting this disease since 2016. At diagnosis she was high grade OC stage 3c. After initial surgery and chemo she was in remission for 5 years but unfortunately the beast returned in 2021 and since then she has been under constant treatment. Her last scan a few months back showed
My mum has been fighting this disease since 2016. At diagnosis she was high grade OC stage 3c. After initial surgery and chemo she was in remission for 5 years but unfortunately the beast returned in 2021 and since then she has been under constant treatment. Her last scan a few months back showed
ShamilaS
in
SHARE Ovarian Cancer Support
5 months ago
Fevers
My mum has been fighting this disease since 2016. At diagnosis she was high grade OC stage 3c. After initial surgery and chemo she was in remission for 5 years but unfortunately the beast returned in 2021 and since then she has been under constant treatment. Her last scan a few months back showed
My mum has been fighting this disease since 2016. At diagnosis she was high grade OC stage 3c. After initial surgery and chemo she was in remission for 5 years but unfortunately the beast returned in 2021 and since then she has been under constant treatment. Her last scan a few months back showed
ShamilaS
in
My Ovacome
5 months ago
Starting Chemo in May via trial
Thanks to everyone for all of their great questions and converstions on this site. Check my bio for background. 2 months into ADT therapy after diagnosis in January. I am starting docetaxyl chemo via an NIH trial in May. M9241 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230972/. We are hopeful
Thanks to everyone for all of their great questions and converstions on this site. Check my bio for background. 2 months into ADT therapy after diagnosis in January. I am starting docetaxyl chemo via an NIH trial in May. M9241 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230972/. We are hopeful
4tunate1
in
Advanced Prostate Cancer
5 months ago
2 questions
I haven't recd a notice fr the Health Unhlocked PMR forum in months. I see I am still registered tho and my preferences recorded. Any idea why? Has something changed? Opps Guess its 3 questions. LOL In the dept. of stressors that can lead to flares, I learned last summer that death of a loved
I haven't recd a notice fr the Health Unhlocked PMR forum in months. I see I am still registered tho and my preferences recorded. Any idea why? Has something changed? Opps Guess its 3 questions. LOL In the dept. of stressors that can lead to flares, I learned last summer that death of a loved
bonmaine
in
PMRGCAuk
5 months ago
Prostate Cancer Diet and Re-purposed Meds
I was just reading a post about Jane Mcclelland's protocol regarding her book, "How to starve cancer." She also added a second portion on a book re-released, with a Ferroptosis (death by iron) protocol. I thought the criticism to be amazing. Cancer is a baffling mystery, top scientist and great minds
I was just reading a post about Jane Mcclelland's protocol regarding her book, "How to starve cancer." She also added a second portion on a book re-released, with a Ferroptosis (death by iron) protocol. I thought the criticism to be amazing. Cancer is a baffling mystery, top scientist and great minds
PlantrichyRich
in
Advanced Prostate Cancer
5 months ago
GemCarbo and picc line advice please!
Hi ladies, I've seen my oncologist today (well, one of his minions anyway) to find out about my treatment plan for my first recurrence. They've told me that I'll have gemcitabine with carboplatin this time round, so I was just wondering if anyone had any advice about this regime please? Even though carbotaxol
Hi ladies, I've seen my oncologist today (well, one of his minions anyway) to find out about my treatment plan for my first recurrence. They've told me that I'll have gemcitabine with carboplatin this time round, so I was just wondering if anyone had any advice about this regime please? Even though carbotaxol
Kjpip
in
My Ovacome
5 months ago
Surviving cancer: some options for you to consider
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
Artiquety
in
Oesophageal & Gastric Cancer
5 months ago
Newly Diagnosed
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Tulile
in
Prostate Cancer Network
5 months ago
HGS stage 3b
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
0151tmac69
in
My Ovacome
5 months ago
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