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Dad actively dying , can't breathe. Horrifying. Need support after today if anyone available to reach out.
Seven year aggressive fight against stage four cancer from the start which after treatment turned to cll. His pca never changed but very slightly until of all meds and five weeks of hospice..chronic lymphocytic leukemia presumably from treatment is what's taking his life . "Gene's laughter and positive
Seven year aggressive fight against stage four cancer from the start which after treatment turned to cll. His pca never changed but very slightly until of all meds and five weeks of hospice..chronic lymphocytic leukemia presumably from treatment is what's taking his life . "Gene's laughter and positive
Daddyishealing
in
Advanced Prostate Cancer
1 year ago
Bells Palsy that never was
Hi all, I mentioned a few weeks ago that I was diagnosed with Bells Palsy', and put on prednisolone for 10 days, it didn't work, and I was sent to an ENT man, who did an MRI which confirmed that I did not have the Bells Palsy, but they found a small tumour active and moving in my left facial area. I
Hi all, I mentioned a few weeks ago that I was diagnosed with Bells Palsy', and put on prednisolone for 10 days, it didn't work, and I was sent to an ENT man, who did an MRI which confirmed that I did not have the Bells Palsy, but they found a small tumour active and moving in my left facial area. I
Vindicatrix
in
CLL Support
1 year ago
Pet scan vs CT scan
Hi fellow warriors, I've just had a phone appointment with my Oncologist my PSA is 0.7 and started to go up but not high enough to warrant having a Scan at the moment.My problem is she doesn't think she will be able to put me forward for a Pet scan as I have already had a couple in the past and with
Hi fellow warriors, I've just had a phone appointment with my Oncologist my PSA is 0.7 and started to go up but not high enough to warrant having a Scan at the moment.My problem is she doesn't think she will be able to put me forward for a Pet scan as I have already had a couple in the past and with
Chubby42
in
Advanced Prostate Cancer
1 year ago
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excuse me asking. Brain fog.
Just a quickie, and excuse me for treading over old ground. Re starting Tapering , from 10 . My Dr called me whilst I was away, for an update on my Cancer Op, how was I feeling etc……. Mentioned to him about going back onto Pred, due to my fingers & hands . Long story short, wanted me to try and taper
Just a quickie, and excuse me for treading over old ground. Re starting Tapering , from 10 . My Dr called me whilst I was away, for an update on my Cancer Op, how was I feeling etc……. Mentioned to him about going back onto Pred, due to my fingers & hands . Long story short, wanted me to try and taper
Stifffingers
in
PMRGCAuk
1 year ago
A update on treatment/ and more.
I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into bladder from a huge syringe into a catheter. A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now
I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into bladder from a huge syringe into a catheter. A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now
Ern007
in
Lung Conditions Community Forum
1 year ago
Biopsy results
I received my biopsy results today. Last week the doctor took out a 2cm polyp in my sigmoid colon. My symptoms were blood in stool and rectal pressure. It came back as having some high grade dysplasia (precancerous) so I will need to repeat a colonoscopy in three years. If anyone is concerned about
I received my biopsy results today. Last week the doctor took out a 2cm polyp in my sigmoid colon. My symptoms were blood in stool and rectal pressure. It came back as having some high grade dysplasia (precancerous) so I will need to repeat a colonoscopy in three years. If anyone is concerned about
Hidden
in
Colon Cancer Connected
1 year ago
Clinical Trial with Abemaciclib and Olaparib
Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for me. I’d love to get some type of feedback from an actual patient. It’s fairly new, so any findings seem impossible to come by. Also, I’
Hey Queens! I am reaching out to see if anyone is participating in this clinical trial. I am having a hard time deciding if this is a “favorable” option for me. I’d love to get some type of feedback from an actual patient. It’s fairly new, so any findings seem impossible to come by. Also, I’
TealBlooms
in
My Ovacome
1 year ago
Reaction when first diagnosed with APCa
When I heard I had APCa I was not happy of course, but also not surprised too much since it runs heavy in my family. It took a while to realize it was the first day of the rest of my life, And if I didn't make some changes it could be a short one. I went mostly vegetarian, committed to daily exercise
When I heard I had APCa I was not happy of course, but also not surprised too much since it runs heavy in my family. It took a while to realize it was the first day of the rest of my life, And if I didn't make some changes it could be a short one. I went mostly vegetarian, committed to daily exercise
Derf4223
in
Advanced Prostate Cancer
1 year ago
Acoustic Neuroma - MRI Report After 1.5y of Surgery
Hi All. My wife(28y) was diagnosed with 1.3cm large Acoustic Neuroma and it's surgically removed in 2022 March. after surgery she is having deafness in right side and weakness of facial movement on right side. but those are manageable and now she is working as usual. only few symptoms are noticed
Hi All. My wife(28y) was diagnosed with 1.3cm large Acoustic Neuroma and it's surgically removed in 2022 March. after surgery she is having deafness in right side and weakness of facial movement on right side. but those are manageable and now she is working as usual. only few symptoms are noticed
siva_s
in
Acoustic Neuroma Support
1 year ago
Orserdu
After almost 6 years of being stable on Ibrance and letrozole I now have some very small progression into both my hips. My initial metastatic disease was in my lungs. I also tested positive for a mutation that frequently happens. That being said I am eligible to take the brand new drug Orserdu/elacestrant
After almost 6 years of being stable on Ibrance and letrozole I now have some very small progression into both my hips. My initial metastatic disease was in my lungs. I also tested positive for a mutation that frequently happens. That being said I am eligible to take the brand new drug Orserdu/elacestrant
HopeinNJ
in
SHARE Metastatic Breast Cancer
1 year ago
Newly Diagnosed and shocked
50 yrs old. Just got diagnosed with prostate cancer. Gleason 9. Spread to pelvic and vertebrae Took first casadex pill today. Will do injection (turpa I think) within 2 weeks Pretty down as you can imagine because of words like incurable!! Just saying Hi and will start checking out the site and
50 yrs old. Just got diagnosed with prostate cancer. Gleason 9. Spread to pelvic and vertebrae Took first casadex pill today. Will do injection (turpa I think) within 2 weeks Pretty down as you can imagine because of words like incurable!! Just saying Hi and will start checking out the site and
Yzinger
in
Advanced Prostate Cancer
1 year ago
PSMA PET 2 weeks after EBRT
So my MO scheduled a PSMA PET 2 weeks after the end of my EBRT. I didn't argue and did it. Im seeing her tomorrow and will ask why. Maybe she forgot I did radiation?? Ill ask for another in 3 months. Meanwhile, the report shows the lymph node is now mild uptake SUV 2.5 MAX. It was intensely radiotracer
So my MO scheduled a PSMA PET 2 weeks after the end of my EBRT. I didn't argue and did it. Im seeing her tomorrow and will ask why. Maybe she forgot I did radiation?? Ill ask for another in 3 months. Meanwhile, the report shows the lymph node is now mild uptake SUV 2.5 MAX. It was intensely radiotracer
Hidden
in
Advanced Prostate Cancer
1 year ago
caught prostate cancer?
I have heard Dr. Schloz of you tube fame and one of our colleagues refer to PCA as “being caught”? Did we catch prostate cancer from a virus? I have a family history my father, his brother, my grandfather. But by far mine is the most aggressive? On my mothers side brca is present but she has had
I have heard Dr. Schloz of you tube fame and one of our colleagues refer to PCA as “being caught”? Did we catch prostate cancer from a virus? I have a family history my father, his brother, my grandfather. But by far mine is the most aggressive? On my mothers side brca is present but she has had
Nowhereman9
in
Advanced Prostate Cancer
1 year ago
IBrance Vacation?
I’ve been on IBrance 100 and Anastrozole for three years and my scans so far have shown stable disease. I’ve tried to stay active with golf and walking. We took a trip to Texas and it was go go go for a week, one can say I have nothing to complain about…however, my tumor markers have been rising for
I’ve been on IBrance 100 and Anastrozole for three years and my scans so far have shown stable disease. I’ve tried to stay active with golf and walking. We took a trip to Texas and it was go go go for a week, one can say I have nothing to complain about…however, my tumor markers have been rising for
Dragonfly2
in
SHARE Metastatic Breast Cancer
1 year ago
Results from trans rectal bipsy
I had spent a week in the hospital from the sepsis from the transrectal biopsy. Back home with a midline for an afternoon IV for the next week. Strike one against my Dr. who poo-pooed the transperineal. The results were that there was cancer but still within the prostate capsule - stage 2. The doc.
I had spent a week in the hospital from the sepsis from the transrectal biopsy. Back home with a midline for an afternoon IV for the next week. Strike one against my Dr. who poo-pooed the transperineal. The results were that there was cancer but still within the prostate capsule - stage 2. The doc.
Eadgbe
in
Prostate Cancer Network
1 year ago
Various Issues last three years.
2020 dark blood in stool 3 times followed by 6 mths occasional yellow, pale, mucus and stomach upsets. Seemed to clear but stool colour lighter now. I'm 77 so I hope the NHS does not see me as a done case! Three weeks ago strong left lower pain down to leg then light blood in stools and continues.
2020 dark blood in stool 3 times followed by 6 mths occasional yellow, pale, mucus and stomach upsets. Seemed to clear but stool colour lighter now. I'm 77 so I hope the NHS does not see me as a done case! Three weeks ago strong left lower pain down to leg then light blood in stools and continues.
omits
in
Colon Cancer Connected
1 year ago
recurrence or not? (Liver & stomach wall)
Hi folks just home after a liver biopsy after a CT scan following raised CA125 of 21 (mine usually sits @ 6-7 & never went higher than 80s) raised CEA @ 57 (apparently normal is 5 or under?). Originally in 2016 I was diagnosed with stage 1C endometroid and mucinous OC - Ned since then. I had naively
Hi folks just home after a liver biopsy after a CT scan following raised CA125 of 21 (mine usually sits @ 6-7 & never went higher than 80s) raised CEA @ 57 (apparently normal is 5 or under?). Originally in 2016 I was diagnosed with stage 1C endometroid and mucinous OC - Ned since then. I had naively
Alibee2
in
My Ovacome
1 year ago
Michelle shares her Melanoma story!
Another melanoma diagnosed super-early due to our MASCED training programme! Thank you Michelle Weaving @bellavidamua for sharing your melanoma journey… “In June 2019 I was studying beauty therapy at college and came across the Skcin charity on Instagram with their MASCED (Melanoma and Skin Cancer
Another melanoma diagnosed super-early due to our MASCED training programme! Thank you Michelle Weaving @bellavidamua for sharing your melanoma journey… “In June 2019 I was studying beauty therapy at college and came across the Skcin charity on Instagram with their MASCED (Melanoma and Skin Cancer
SkcinHQ
Partner
in
Skin Cancer UK
2 years ago
CEA Fluctuations
My husband has just completed his 3rd cycle of Carboplatin and Etoposide for prostate cancer liver mets. Before the first cycle his CEA was 38 (should be <5) This number is being used as baseline. After 1st cycle it was 30.3 but after his 2nd cycle it rose to 32.7. Is it normal for CEA to fluctuate
My husband has just completed his 3rd cycle of Carboplatin and Etoposide for prostate cancer liver mets. Before the first cycle his CEA was 38 (should be <5) This number is being used as baseline. After 1st cycle it was 30.3 but after his 2nd cycle it rose to 32.7. Is it normal for CEA to fluctuate
Believeit
in
Advanced Prostate Cancer
1 year ago
Has anyone tried Berberine (supplement) for Afib?
In researching what supplements will help my 93 yr old mom's heart (afib has returned after two ablations that kept her afib-free for 14 months), I found a study on Berberine. She's currently on Tykosin and would stay on Tykosin, but that eventually becomes ineffective (sometimes as soon as 6 to 12
In researching what supplements will help my 93 yr old mom's heart (afib has returned after two ablations that kept her afib-free for 14 months), I found a study on Berberine. She's currently on Tykosin and would stay on Tykosin, but that eventually becomes ineffective (sometimes as soon as 6 to 12
GooseEggs
in
AF Association
1 year ago
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