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My recent journey in decreasing prednisone
Hello Everyone This is my 8th year having pmr. I have used the slow method many times and have used 2 different meds. to help me. Methotrexate and plaquenil. and have not been able,(until now) to decrease my pred. amount. Last June I was given 25mg pred. because I had major surgery and it was felt
Hello Everyone This is my 8th year having pmr. I have used the slow method many times and have used 2 different meds. to help me. Methotrexate and plaquenil. and have not been able,(until now) to decrease my pred. amount. Last June I was given 25mg pred. because I had major surgery and it was felt
Linny3
in
PMRGCAuk
4 months ago
Naproxen before Laparoscopy
Hi, I have my laparoscopy booked in for Tuesday (9th) I had my pre-op back in October. When I had this I wasn't taking naproxen, but have been since December. I've not been told to stop any of my medication beforehand but am getting anxious as I've read you shouldn't be taking naproxen before. Has anyone
Hi, I have my laparoscopy booked in for Tuesday (9th) I had my pre-op back in October. When I had this I wasn't taking naproxen, but have been since December. I've not been told to stop any of my medication beforehand but am getting anxious as I've read you shouldn't be taking naproxen before. Has anyone
Spirit_in_the_night
in
Endometriosis UK
4 months ago
Not PCa but related. Imuno therapies keeps getting better.
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
Scout4answers
in
Advanced Prostate Cancer
4 months ago
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How did you feel after excision?
Hi everyone ❤️ I had excision surgery about 6 months ago for fairly severe and widespread endometriosis. The surgeon was happy with how it went and felt confident he’d removed the endo. Before the op I suffered with pretty much daily pain (pelvic, lower back and tops of legs mainly). I haven’t really
Hi everyone ❤️ I had excision surgery about 6 months ago for fairly severe and widespread endometriosis. The surgeon was happy with how it went and felt confident he’d removed the endo. Before the op I suffered with pretty much daily pain (pelvic, lower back and tops of legs mainly). I haven’t really
Banders93
in
Endometriosis UK
4 months ago
pregnancy and spotting
Hi everyone I am writing now because I am just panicking. I had my stage4 endometriosis removed in march 2023 and was placed on zoladex for 6 months after. Completed my zoladex and went for IVF. We tested positive last week with 2 embryo transfer and this is our 3rd week in the pregnancy. I spotted
Hi everyone I am writing now because I am just panicking. I had my stage4 endometriosis removed in march 2023 and was placed on zoladex for 6 months after. Completed my zoladex and went for IVF. We tested positive last week with 2 embryo transfer and this is our 3rd week in the pregnancy. I spotted
Angelsalt1
in
Endometriosis UK
4 months ago
Struggling after surgery
Hi guys, hope you are all managing as well as you can be. I had surgery last week, and man, it is kicking my butt. The surgeon repaired a massive hernia (12cm - the biggest he’d ever seen!) and did a partial fundoplication as well. I woke up delirious and disoriented, and they kept me in hospital 3 days
Hi guys, hope you are all managing as well as you can be. I had surgery last week, and man, it is kicking my butt. The surgeon repaired a massive hernia (12cm - the biggest he’d ever seen!) and did a partial fundoplication as well. I woke up delirious and disoriented, and they kept me in hospital 3 days
MusicalFurbaby
in
LUPUS UK
4 months ago
Private Consult
Hi all, At my wits end waiting for the NHS. Much like everyone else I suspect. I’ve subject access requested all my records and copies of recent ultrasound and MRI scans and have now booked a private consult with a BGSE specialist (whilst waiting for my NHS BSGE referral MDT meeting to take place)
Hi all, At my wits end waiting for the NHS. Much like everyone else I suspect. I’ve subject access requested all my records and copies of recent ultrasound and MRI scans and have now booked a private consult with a BGSE specialist (whilst waiting for my NHS BSGE referral MDT meeting to take place)
Tangoandmax
in
Endometriosis UK
4 months ago
Blood test timing
Hi all you clever folks out there, I’ve upped my medication of liquid thyroxine in the last few months from 50 to 75mcg. I did it without GP’s consent but I was feeling so hypo and tired and although my last blood test results were within range (TSH 2.35), I knew an increase would help. I was going to
Hi all you clever folks out there, I’ve upped my medication of liquid thyroxine in the last few months from 50 to 75mcg. I did it without GP’s consent but I was feeling so hypo and tired and although my last blood test results were within range (TSH 2.35), I knew an increase would help. I was going to
Bookworm63
in
Thyroid UK
4 months ago
RLS since I was a teen
Hi all I've had leg pain since I was a teenager and was diagnosed with rls in my 20s I struggle so bad after exercise and walking but have to try and deal with it.It doesn't help I've had spine surgery which causes more pain.
Hi all I've had leg pain since I was a teenager and was diagnosed with rls in my 20s I struggle so bad after exercise and walking but have to try and deal with it.It doesn't help I've had spine surgery which causes more pain.
Ozzette76
in
Restless Legs Syndrome
4 months ago
High Gleason score + .2 PSA
Want to share this link about when to start salvage radiation after surgery. Only a few years ago, the cutoff PSA for starting radiation was .5 Now, my doc and others want to start before it gets to .2 (I'm at .11, and I have a "risk factor" due to Gleason 9 score) https://www.cancernetwork.com/view
Want to share this link about when to start salvage radiation after surgery. Only a few years ago, the cutoff PSA for starting radiation was .5 Now, my doc and others want to start before it gets to .2 (I'm at .11, and I have a "risk factor" due to Gleason 9 score) https://www.cancernetwork.com/view
SarcoPenyaJr
in
Prostate Cancer And Gay Men
4 months ago
high hemoglobin levels
hi just had my annual review at my surgery which identified raised haemoglobin levels, anyone had this? What was the treatment? Taking several drugs for heart failure.
hi just had my annual review at my surgery which identified raised haemoglobin levels, anyone had this? What was the treatment? Taking several drugs for heart failure.
Barre01
in
British Heart Foundation
4 months ago
Baclofen pump
Hello my dear friends, My spasticity has gotten worse in my legs. I did a baclofen pump trial about 20 years ago. Made my legs too weak. Now I have much tone, especially my right leg. I don't think much had changed. I am still ambulatory, some days use nothing, trekking pole(s) or a rolator, depending
Hello my dear friends, My spasticity has gotten worse in my legs. I did a baclofen pump trial about 20 years ago. Made my legs too weak. Now I have much tone, especially my right leg. I don't think much had changed. I am still ambulatory, some days use nothing, trekking pole(s) or a rolator, depending
TonyiaR7
in
My MSAA Community
4 months ago
Holiday cancelled
Well yesterday we cancelled our holiday to Somerset, then in the post comes an appointment to see the cardiologist about my heart next Wednesday afternoon. So here is hoping it goes well and i soon get the surgery i so badly need. Been to Tesco this morning and i feel like i have ran a marathon
Well yesterday we cancelled our holiday to Somerset, then in the post comes an appointment to see the cardiologist about my heart next Wednesday afternoon. So here is hoping it goes well and i soon get the surgery i so badly need. Been to Tesco this morning and i feel like i have ran a marathon
sylvi
in
NRAS
4 months ago
Tips for dealing with GP
Morning everyone. I have discussed my journey with you before and issues I have had, which most of us have had, in getting a diagnosis.However, even though I have a diagnosis of MCTD - primarily Sjogren's, with secondary Fybromyalgia I am still having problems with my GP and would be glad of any advice
Morning everyone. I have discussed my journey with you before and issues I have had, which most of us have had, in getting a diagnosis.However, even though I have a diagnosis of MCTD - primarily Sjogren's, with secondary Fybromyalgia I am still having problems with my GP and would be glad of any advice
Mctd
in
LUPUS UK
4 months ago
Holiday
Been on holiday to Summerset, stayed longer than expected, brother has big C cancer. So needed extra tablets. Chemist rang my surgery, he came back saying I was a foreigner, at first said no, but when said would pay changed his mind. £50 paid had tablets. Was humiliated when he said there was a lot
Been on holiday to Summerset, stayed longer than expected, brother has big C cancer. So needed extra tablets. Chemist rang my surgery, he came back saying I was a foreigner, at first said no, but when said would pay changed his mind. £50 paid had tablets. Was humiliated when he said there was a lot
mag123ben
in
MPN Voice
4 months ago
Gastric balloon surgery
Hi all I'm having a balloon inserted next week and wanted to find support and talk to people undergoing similar weightloss surgery.
Hi all I'm having a balloon inserted next week and wanted to find support and talk to people undergoing similar weightloss surgery.
Flowerpot99
in
Weight Loss Surgery Info
4 months ago
excision surgery recovery time
hi all, hope you’re well. I know this will be different for everyone, but how long after excision surgery did you take recover? How severe was your endo? And how long off work did you take? Thanks so much xx
hi all, hope you’re well. I know this will be different for everyone, but how long after excision surgery did you take recover? How severe was your endo? And how long off work did you take? Thanks so much xx
Hidden
in
Endometriosis UK
4 months ago
prolapse in bowel
I was diagnosed with IBS nearly twenty years I am 68 now. 3 years ago it flared up nausea pain constipation. Hospital run all the tests cameras, scans etc. found nothing significant. As I have not improved saw the gastro doctor at hospital this week see if he has any more answers. He said I need further
I was diagnosed with IBS nearly twenty years I am 68 now. 3 years ago it flared up nausea pain constipation. Hospital run all the tests cameras, scans etc. found nothing significant. As I have not improved saw the gastro doctor at hospital this week see if he has any more answers. He said I need further
Merlinjardin
in
IBS Network
4 months ago
Wife of Newly Diagnosed Husband - PSMA questions
Hi Everyone, We found out two weeks ago that my husband has high grade prostate cancer. He is 59. PSA 5.9. Gleason 4+5, 4+3 and 3+4. There was perineural invasion in one sample and intraductal in another. He has had an MRI and a CT scan, as well. He is scheduled for a bone scan next week. No prostate
Hi Everyone, We found out two weeks ago that my husband has high grade prostate cancer. He is 59. PSA 5.9. Gleason 4+5, 4+3 and 3+4. There was perineural invasion in one sample and intraductal in another. He has had an MRI and a CT scan, as well. He is scheduled for a bone scan next week. No prostate
EvFC
in
Advanced Prostate Cancer
4 months ago
Laparoscopy clear - what now?
Hi everyone. Thanks for the pre- surgery advice on my previous post. I had my laparoscopy around 2 weeks ago on the 20th March. It was an uncomplicated procedure and I was found to have a normal pelvis with no evidence of endometriosis. Obviously I am so relieved to be told this. However, they said
Hi everyone. Thanks for the pre- surgery advice on my previous post. I had my laparoscopy around 2 weeks ago on the 20th March. It was an uncomplicated procedure and I was found to have a normal pelvis with no evidence of endometriosis. Obviously I am so relieved to be told this. However, they said
Endo_warrior01
in
Endometriosis UK
4 months ago
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