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25 public communities
Skin Cancer UK
443 members
WE ARE SKCIN.· The UK’s national melanoma and skin cancer charity dedicated to raising awareness through education to promote the prevention and early detection of skin cancer, to improve prognosis and save lives. With 86% of all skin cancers preventable and early diagnosis vital, education is key to combating the soaring rates of skin cancer in the UK. We focus on pioneering, proactive intervention on a national scale with targeted, bespoke, educational accreditation programmes that are accessible, impactful and measurable. Our work supports the call from public health as to who is most effective to help improve the nation’s health, addresses concerns raised in the Government’s 2020 Skin Cancer Vision and helps combat the huge financial burden that is estimated, by 2020, to cost the NHS over £180 million annually. Together, we can make a difference and save lives.
MY SKIN
8,472 members
Welcome to the MY SKIN Community, a peer support community for those experiencing issues with their skin. Join us to share your story and experiences, ask questions, and support others. Connect with others like you today and get real opinions from others who have experienced similar conditions. Anyone needing help or support from a patient organisation can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
Weight Loss Surgery Info
1,110 members
WLSinfo is a registered charity (no 1103151) set up and run entirely by volunteers and maintained by donations from members. Aims and Objectives of the Charity To become the premier UK source for information on Weight Loss Surgery. To provide an unbiased, clear presentation of facts on treatment choices. To inform the community of obesity and WLS related items in the popular media and professional publicationsquality weight loss surgery information To facilitate a user led support network, where users can provide mutual support and share information To empower people and allow them to become informed consumers of health care. To enable users to track other users' progress, through the use of journals, forums and chat. To make some of the web content available in other accessible formats Achieve high presence in search engine results.
Living with a Stoma
1,014 members
We are a peer support community for people who experienced stoma or are affected by stoma surgery on their bowel or bladder. Join us to discuss your condition, ask questions and get quick advice from others like you!
Melanoma Wellness Canada
87 members
Melanoma Wellness Canada is a group created and maintained by the Canadian melanoma patient group Save Your Skin Foundation. It exists as a place for patients and caregivers touched by melanoma skin cancer to connect and share resources. We strive to support overall wellness for melanoma. Wellness is about more than just the absence of physical illness. Working towards wellness encourages us to work towards complete health. We believe that emotional wellness fosters physical wellness and physical wellness increases our emotional wellness. Team members of Save Your Skin Foundation will facilitate the page, but this is your space; please feel free to share, as long as it is relevant to the group and respectful. This may include your experience with melanoma, or any other articles or resources you feel the rest of the group could benefit from.
Prostate Cancer Network
4,900 members
Newly diagnosed? On Active Surveillance? You've got brothers here! What's next after surgery or radiation? Impotent? Difficulty with Urine Control? Caregiver or Spouse? You are not alone, here. A friendly, safe, informal atmosphere where we can pick each other's brains. Your 24 hour online support group. Our community is run by Malecare Cancer Support. We are men, fighting prostate cancer, together.
Hidradenitis Suppurativa Support
660 members
The Hidradenitis Suppurativa Trust is a UK Registered Charity dedicated to the raising of awareness, understanding and support for the chronic, debilitating skin disorder Hidradenitis Suppurativa (HS). Hidradenitis Suppurativa is estimated to affect only 1% of the UK population, however these figures could in effect be higher due to mis-diagnosis, and those who suffer alone in silence, as the disease dominates the most intimate areas of the sufferer, thus leaving some people too ashamed or embarrassed to go to their doctor. Our aim is to increase public knowledge and educate the medical profession on the symptoms, treatments and severities of Hidradenitis Suppurativa, and to provide vital funds for the purpose of research into causes, prevention and treatment.
My OCD Community
8,947 members
Welcome to My OCD Community! We’re glad you’ve chosen to join us! My OCD Community is a safe, supportive, informative, and friendly community for all people affected by OCD. It also supports all people affected by OCD related disorders such as Hoarding Disorder (HD), Body Dysmorphic Disorder (BDD) and the BFRB’s (body-focused repetitive behaviors, such as skin picking and hair pulling). The group is moderated by the International OCD Foundation (IOCDF) and HealthUnlocked (HU). The members of this group are vulnerable in sharing their triumphs and struggles and receive immense support from one another. In that same spirit, we welcome you to share your story and encourage others. Lastly, we urge you to get familiar with our Community Guidelines: https://healthunlocked.com/my-ocd/posts/138741516/community-guidelines. Once again, a huge welcome to your OCD Community :)
Wessex Cancer Trust
70 members
Welcome to Wessex Cancer Trust online community. Here you can openly talk to other people affected by cancer – whether you are going through your own cancer journey or supporting a family member or friend. We will support you through the highs and lows, help you prepare for surgery or treatment, and give you the confidence to talk to your loved ones about cancer. We can empower you to feel strong enough to make your own choices, whether you are moving on from cancer or making difficult decisions about a terminal diagnosis. We offer practical, emotional and physical support at a time when nothing seems to be in your control. All of our Support Centres will welcome you into a calm and non-clinical space in your local community, somewhere familiar and safe.
SHARE Breast Cancer Support
2,367 members
SHARE Breast Cancer Support is a space where you can feel safe, supported, and empowered to tell your story and discuss your issues. SHARE peer volunteers, as well as other women just like you, are here to answer your questions and provide encouragement. Please visit our website to learn more: www.sharecancersupport.org. Many of our community members have questions about experience with specific breast cancer treatments like Tamoxifen, Xeloda, Letrozole, Fulvestrant, etc. You can type the name of the treatment you're looking for into the post search box to find all posts that reference these treatments. There is a lot of good information here from other patients, survivors, and caregivers on topics like DCIS, mastectomy/double mastectomy surgery, inflammatory breast cancer, taxol, breast lumps, breast cancer stages, and more. If you don't find what you're looking for, feel free to message an admin who will get back to you. As a community we have rules. Inappropriate, abusive, or irrelevant posts, advertisements, and sexual photographs will be removed, as will disrespectful or offensive comments on threads. Please respect the diversity of political, spiritual and nonspiritual beliefs of our users, and please note, we DO NOT permit messaging with a bias against any group of people. Any content on this site is NOT to be construed as medical advice! Members should always consult their doctors regarding a medical condition or treatment. Organizations must post events and services as individual users and must avoid direct advertising. The views presented on this site do not represent the views of SHARE. This community is monitored Mon-Fri, 9:30 am - 5:30 pm ET. Any content reported outside of this timeframe may not be reviewed until the following business day.
Anticoagulation Support
3,779 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk
Changing Faces
3,120 members
This community is for the 1.3 million people in the UK with a visible difference, from a mark, scar or condition that makes them look different. We provide advice, support and psycho-social services to children, young people and adults. We challenge discrimination and we campaign for Face Equality: a world that truly values and respects people who look different We want a future where everyone with a visible difference on their face or body has the confidence, support and opportunity to lead the lives they want. If you would like to talk to someone, Changing Faces offers the Support and Information Line in the UK, for people affected by any visible difference caused by a mark, scar or condition, whether on the face or body, and families and friends. To get in touch with us, please follow this link: https://www.changingfaces.org.uk/services-support/support-information-line/
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