Experiences with

Skin surgery

Have any CLL patients had Mohs surgery at MD Anderson? How was your experience? TIA

My husband has untreated CLL and is now being treated for a second squamous cell carinmona (SCC) ie. skin cancer. I've just read a study published in the British Journal of Cancer (August 2024) that looked at the possible role of CLL in accelerating SCC development due to receptor tyrosine kinase AXL

On 6 January 2025, the journal [i]BJ Haem[/i] published a review article titled [i]Management strategies for patients with chronic lymphocytic leukaemia harbouring complex karyotype[/i] written by a team from Padua, Italy. The article summary explains its aims: [i]"Chronic lymphocytic leukaemia

I have ET (+ bone marrow fibrosis). I changed from Anagrelide then back to Hydroxycarbomide (which I don't get on with at all so they just tried it again) to eventually Pegasys Interferon Dec 2023. My platelets were very erratic but at my last blood test were finally down to just over 500 middle

Update from Doug Adv Pca St IV. Taking Abiraterone 250 mg and Pred 5mg daily since 2019. PSA still 0.2 to 0.3mg/ml last 3yrs.. Radiated my prostate IMRT 42x’s Sep-Dec 2005. Last 6 months 19yrs later I’m having Urethral issues. 1. I self Cath 7-8 X/day. Urinary retention since July 2005 2. neurogenic

Hi this follows problems with areas of skin on my face which I just wonder is a side effect of my RA medications as it’s due to sun damaged skin and I’ve always worn sun screen!! Am aware that some medications increase your sensitivity to the uv rays of the sun anybody else have this skin problem ?

I was referred for a skin biopsy on 19/7/24 and told it didn’t look worrying so the results might take some time. Ok, I thought, they know best. I called the consultant’s secretary last Thursday as the lesion is now much worse than when they biopsied it. She wasn’t there naturally but returned my call

I was referred for a skin biopsy on 19/7/24 and told it didn’t look worrying so the results might take some time. Ok, I thought, they know best. I called the consultant’s secretary last Thursday as the lesion is now much worse than when they biopsied it. She wasn’t there naturally but returned my call

I have severe facial pain and have to take daily painkillers anyone have any tips, I am still waiting to see someone at the Bell’s palsy clinic

It’s quite advanced, locally, and I am about to have a very long surgery to removed a large amount of bone, tissue, skin and teeth. All of my top jaw will be removed, along with my teeth, and replaced with titanium. I will get a skin graft on my cheek from my arm.

I have an actinic keratosis on the bridge of my nose and what looks like a BCC which has sprung up pretty quickly on the side of my forehead. I am white, freckly but don't burn easily. 53 yr old female. Live in UK in near darkness (!). Work indoors and cover up with a hat in the summer sun. I don't

I am currently not in my home country and would probably undergo surgery if the skin doesn't retract after a month or so of L-Arginine cream use. Thanks

I want to get facial feminization surgery, saggy skin removal, have my floating ribs removed and get breast and butt implants. I am so worried that if I get diagnosed with APS, I will not be able to undergo those surgeries.

Hello Everyone - It has been awhile again as I have felt reluctant to come to terms with the now clear FACT that my PMR/GCA have never really disappeared after 7 years. I am still on my lowest dose of 8.5mg of Pred which I have been unable to reduce any further - especially in the last few months with

Hi It has been a long time since I have posted anything as have been severely ill with my asthma for the past two and a half years so that has taken all my time.To cut a long story short I am now on biological therapy which has so far changed my life!. Anyway I am now doing the dead slow method or whatever

Hi I have a question looking back over all my blood tests I've gone back years lol my protein c and s have always been slightly elevated anyone found this?

Finally I can give you all an update.I've been to my Endocrinologist (1st time)and I am now on a 6 month waiting list for the Radioactive Iodine treatment. I then had my bone density scan. Then back to the doctor for bloods as the result showed Osteoporosis secondary to Hyperthyroidism (the latter diagnosed

It’s a week out from my MOHs surgery for the skin cancer on my scalp. It turned out much easier than I expected and I had almost no pain. I’m sure that part of that is because the spot was small. I just hope to never experience that again! I’ll be updating my neuro with my latest test results.

{added after reading this -trigger warnings for pretty much everything] hello everyone - don’t worry - this is hopefully a calm normal post rather than recent more difficult ones I am not looking for diagnosis or for professional help (this is trying to happen seperately) because this isn’t the purpose

🧡 Remembering our beautiful, courageous and devoted mum, wife and nana Karen Clifford (represented by the KC in SKCIN) today on what would have been her 80th birthday. Karen sadly lost her life to melanoma on New Year’s Eve 2005. The devastation caused by her loss, made us determined to ensure