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Sjogren-Larsson syndrome
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Do I have Sjogrens ??
Symptoms so many !! Multiple positive ANA'S, severe paraesthesia (skin), extreme dry eyes, mouth, skin...Been going on now since January. Saw a Rheumatologist, blood work... She's uncertain ! Saw Neurologist...Had EME'S for Peripheral Neuropathy... results are negative ‼️Now back to Rheumatologist on
Symptoms so many !! Multiple positive ANA'S, severe paraesthesia (skin), extreme dry eyes, mouth, skin...Been going on now since January. Saw a Rheumatologist, blood work... She's uncertain ! Saw Neurologist...Had EME'S for Peripheral Neuropathy... results are negative ‼️Now back to Rheumatologist on
Bettyboop71345
in
The Australian Sjögren's Syndrome Association
6 years ago
Semen analysis translator plz?
Anyone speak sperm analysis lingo? GP said results “normal” ... that tells us nothing I said. Requested report. We shall take this with us to IVF referral but would love to know what any of this means? Errmm the word abnormal with 95% next to it isn’t exactly giving me “normal” vibes?!
Anyone speak sperm analysis lingo? GP said results “normal” ... that tells us nothing I said. Requested report. We shall take this with us to IVF referral but would love to know what any of this means? Errmm the word abnormal with 95% next to it isn’t exactly giving me “normal” vibes?!
Emmyeve
in
Fertility Network UK
6 years ago
5 wks out of 2wk induced coma, possible anoxia during open heart & fighting histoplasmosis. Minimally conscious. Not enough for drs?
Russ is now nodding yes, giving kisses EVERY time asked and even makes the smacking noise if kisses your cheek, hes starting to initiate kisses, he smiles a lot and consistently when appropriate, he will lift his head for a pillow or help roll when nurses ask him to when time to reposition. He is tracking
Russ is now nodding yes, giving kisses EVERY time asked and even makes the smacking noise if kisses your cheek, hes starting to initiate kisses, he smiles a lot and consistently when appropriate, he will lift his head for a pillow or help roll when nurses ask him to when time to reposition. He is tracking
Angelia1234
in
Headway
6 years ago
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I am fairly new to this post and I find it heartbreaking to read these letters. I understand what it is like to suffer from this horrible disorder. I had 8-9 years of utter misery. One of the many, many drugs I had which actually helped was Neupro, which was the 3rd dopamine I had tried. I was on
I am fairly new to this post and I find it heartbreaking to read these letters. I understand what it is like to suffer from this horrible disorder. I had 8-9 years of utter misery. One of the many, many drugs I had which actually helped was Neupro, which was the 3rd dopamine I had tried. I was on
darena
in
Restless Legs Syndrome
6 years ago
Going Crazy!!!!!!!!!!!
I feel like I am going crazy..... nothing helps my RLS.........nothing. I have tried everything, cold/hot packs, tens machine, heat creams and sprays, GABA, magnesium, pramipexole, tramadol, muscle relaxer......and the list goes on. It shifts from one arm to the other, one leg to the other.... then
I feel like I am going crazy..... nothing helps my RLS.........nothing. I have tried everything, cold/hot packs, tens machine, heat creams and sprays, GABA, magnesium, pramipexole, tramadol, muscle relaxer......and the list goes on. It shifts from one arm to the other, one leg to the other.... then
lalake
in
Restless Legs Syndrome
6 years ago
Supplement breakthrough but now what??
Hi everyone. Fairly new to the site. I have had RLS for about 12 years now. It has been well controlled through Mirapex/Ropinirole but a couple of months ago it seemed to not be working as well. Started feeling symptoms in my arms and onset was earlier in the day. Even would wake up some days with symptoms
Hi everyone. Fairly new to the site. I have had RLS for about 12 years now. It has been well controlled through Mirapex/Ropinirole but a couple of months ago it seemed to not be working as well. Started feeling symptoms in my arms and onset was earlier in the day. Even would wake up some days with symptoms
cnote1213
in
Restless Legs Syndrome
6 years ago
Tramadol efficiency
Hello I augmented on Ropinirole 2 years ago and used Tramadol to help the withdrawal symptons. Once over the withdrawal my legs were so much better (I hadn't realised how awful they had become while on Ropinirole). At the same time I increased my ferritin levels to over 100 (currently 128). I took 50mg
Hello I augmented on Ropinirole 2 years ago and used Tramadol to help the withdrawal symptons. Once over the withdrawal my legs were so much better (I hadn't realised how awful they had become while on Ropinirole). At the same time I increased my ferritin levels to over 100 (currently 128). I took 50mg
Pam34
in
Restless Legs Syndrome
6 years ago
Throat issues
Hi all, I have Raynauld's and scleroderma having all the symptoms of CREST with muscle involvement of the oesophagus. I have had manometry tests which show the muscles of the oesophagus are affected Recently I have been experiencing a feeling of having lump in my throat around the Adams apple area making
Hi all, I have Raynauld's and scleroderma having all the symptoms of CREST with muscle involvement of the oesophagus. I have had manometry tests which show the muscles of the oesophagus are affected Recently I have been experiencing a feeling of having lump in my throat around the Adams apple area making
newton
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Question about RLS and meds.
I am new to the forum and have learned a lot from reading the many entries. I am curious to see if anyone has done the following: I just eliminated the antidepressant Cymbalta and hope to soon eliminate Ropinirole from my system. Why? I am convinced both have contributed to my restless leg issues
I am new to the forum and have learned a lot from reading the many entries. I am curious to see if anyone has done the following: I just eliminated the antidepressant Cymbalta and hope to soon eliminate Ropinirole from my system. Why? I am convinced both have contributed to my restless leg issues
tuckbo
in
Restless Legs Syndrome
6 years ago
Constant thirst, dry mouth, glug glug
Hi there. I had neg biopsy for Sjogren's this time last year, diagnosis of SLE. Not sure if sun affect, but the last couple of weeks my usual constant thirst and dry mouth is much worse. I take a drink of water and it's as if nothing happened, so I'm constantly drinking now.. Sores in mouth too. Any
Hi there. I had neg biopsy for Sjogren's this time last year, diagnosis of SLE. Not sure if sun affect, but the last couple of weeks my usual constant thirst and dry mouth is much worse. I take a drink of water and it's as if nothing happened, so I'm constantly drinking now.. Sores in mouth too. Any
DJK99
in
LUPUS UK
6 years ago
SO MUCH BETTER!!
Hi everyone, Over the last 2 months I have cut out all biscuits, cookies and crisps and the desired result is that I have lost 4 kgs or roughly 8 lbs of weight! I am also more careful about wine (I have the odd glass), caffeine and chocolate and the result is I am more tired in the evening and sleep
Hi everyone, Over the last 2 months I have cut out all biscuits, cookies and crisps and the desired result is that I have lost 4 kgs or roughly 8 lbs of weight! I am also more careful about wine (I have the odd glass), caffeine and chocolate and the result is I am more tired in the evening and sleep
Hidden
in
Restless Legs Syndrome
6 years ago
Recovery Update on Fathers Day
During the date of my RTI, 04/08/14 I was a Semi-pro footballer, with my Wife Married since 2006. When I was discharged from Hospital in 2016 we carried out a vowel renewal as we were married for 10 years at the aforementioned date, I can not mention how happy & proud of her support that I’ve received
During the date of my RTI, 04/08/14 I was a Semi-pro footballer, with my Wife Married since 2006. When I was discharged from Hospital in 2016 we carried out a vowel renewal as we were married for 10 years at the aforementioned date, I can not mention how happy & proud of her support that I’ve received
United99
in
Headway
6 years ago
Restless leg relief
Please anyone with restless leg try potassium citrate and vitamin B1 you’re symptoms will be gone within a few days. I had restless leg so bad I wore holes in my bottom sheet. This is safe and my belief it’s a vitamins deficiency. Worth a try
Please anyone with restless leg try potassium citrate and vitamin B1 you’re symptoms will be gone within a few days. I had restless leg so bad I wore holes in my bottom sheet. This is safe and my belief it’s a vitamins deficiency. Worth a try
Karenfried
in
Restless Legs Syndrome
6 years ago
Clonazepam and lyrica
I am on 100mg of lyrica and one drop of clonazepam liquid at night for the last 5 days and works very well.No side effects.I am also opiod free since staring this combination.Furthermore i am on 100 mg of lyrica at noon but it doesnt help much and rls is hard.I ll talk with my doctor on Monday.He will
I am on 100mg of lyrica and one drop of clonazepam liquid at night for the last 5 days and works very well.No side effects.I am also opiod free since staring this combination.Furthermore i am on 100 mg of lyrica at noon but it doesnt help much and rls is hard.I ll talk with my doctor on Monday.He will
Katerina22
in
Restless Legs Syndrome
6 years ago
Specialist recommendations
Specialist referral. Goidfairy here. My husband saw specialist who was excellent. Diagnosis.severe RLS. Subtle non motor symptomology and possible Parkinsons disease. Recommendations. Dat scan. Continue Ropinirole and add low dose Targinact 2.5/5mg.prolonged release 3 times a day.increasing evg.dose
Specialist referral. Goidfairy here. My husband saw specialist who was excellent. Diagnosis.severe RLS. Subtle non motor symptomology and possible Parkinsons disease. Recommendations. Dat scan. Continue Ropinirole and add low dose Targinact 2.5/5mg.prolonged release 3 times a day.increasing evg.dose
Goodfairy
in
Restless Legs Syndrome
6 years ago
All about cannabis
The first series called 'The Sacred Plant', about the history and use of cannabis, was extremely informative. The second series is now airing free for the next few hours. If you hop on quick you can view the episode on pain. It might help. Please watch it if you can. It will stop any fear you may have
The first series called 'The Sacred Plant', about the history and use of cannabis, was extremely informative. The second series is now airing free for the next few hours. If you hop on quick you can view the episode on pain. It might help. Please watch it if you can. It will stop any fear you may have
Parminter
in
Restless Legs Syndrome
6 years ago
Second cycle of Clomid
Hi, I don’t want to bore you with my life story so I’ll try and keep to the present. I’m in the middle of treatment with clomid. Given three months worth and I have taken the first two with no success. I am now on cycle day 85 and have my hospital appointment in 15 days. I didn’t track my cycles before
Hi, I don’t want to bore you with my life story so I’ll try and keep to the present. I’m in the middle of treatment with clomid. Given three months worth and I have taken the first two with no success. I am now on cycle day 85 and have my hospital appointment in 15 days. I didn’t track my cycles before
Smithy14
in
Fertility Network UK
6 years ago
Amniocentesis
Hi so I currently 21 weeks and had my 20 week scan last week and they discovered an abnormality with babys heart and i have been through various professionals and hospitals and they have finally concluded that babys stomach is on the wrong side and the ventricles that pump the blood around the heart
Hi so I currently 21 weeks and had my 20 week scan last week and they discovered an abnormality with babys heart and i have been through various professionals and hospitals and they have finally concluded that babys stomach is on the wrong side and the ventricles that pump the blood around the heart
Ceden273
in
Pregnancy and Parenting Support
6 years ago
Restless legs
Hi I find that only when I take Tylenol for my headache I have the restless legs at night ... I took 3 around 12:30 pm and now it's almost 2 am and I can't sleep did any one notice the same ?
Hi I find that only when I take Tylenol for my headache I have the restless legs at night ... I took 3 around 12:30 pm and now it's almost 2 am and I can't sleep did any one notice the same ?
Ty77
in
Restless Legs Syndrome
6 years ago
Tried most everything
. I have had RLS for over 12 years. In the beginning, I could walk around the house or elevate my legs on the couch and the movements would stop and I could sleep. Now I take Ropinirole (Requip),Carbidopa levodopa, and clonazepam. I suffer beyond belief but have found some relief in the Relaxis
. I have had RLS for over 12 years. In the beginning, I could walk around the house or elevate my legs on the couch and the movements would stop and I could sleep. Now I take Ropinirole (Requip),Carbidopa levodopa, and clonazepam. I suffer beyond belief but have found some relief in the Relaxis
tac2014
in
Restless Legs Syndrome
6 years ago
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