Constant thirst, dry mouth, glug glug: Hi there. I... - LUPUS UK

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Constant thirst, dry mouth, glug glug

DJK99 profile image
10 Replies

Hi there. I had neg biopsy for Sjogren's this time last year, diagnosis of SLE. Not sure if sun affect, but the last couple of weeks my usual constant thirst and dry mouth is much worse. I take a drink of water and it's as if nothing happened, so I'm constantly drinking now.. Sores in mouth too. Any advice on what might help with the thirst? And teeth friendly lozenges? Or prescription products I could discuss with Rheumy at next week's review? Worried about my 55yr old teeth as gums obviously not happy. Thanks all. A song keeps going through my head for us all in this lovely weather - "you can keep your hat on!!".. D

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DJK99
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PMRpro profile image
PMRpro

I think it is Xylitol chewing gum that is recommended for dry mouth in Sjogren's not too much, it can have a laxative effects!). I'm also fairly sure there is a product that you just hold between gum and cheek that helps - I'm sure someone here mentioned it.

This has suggestions for help:

mayoclinic.org/diseases-con...

baba profile image
baba

I find Xylimelts from

mouthulcers.co.uk

are good for nights, placed between cheek and gum. I chew sugar free gum during the day.

DJK99 profile image
DJK99 in reply tobaba

Thanks Baba. I also saw a good response from professional oral bod in response to lupusuk focus earlier. Gum it is! Thanks

AgedCrone profile image
AgedCrone

As the thirst has only got worse in the last two weeks have you thought of getting your blood sugar tested?

DJK99 profile image
DJK99

Hey there. I have bloods with FBC done every two weeks as on methotrexate. That wld have blood sugar test in it, yes? Ir no? It's been bad for couple of years now and they say it's sicca and sailadenitis. Perhaps it's just due to hotter weather? Thanks for yr reply, D

Cas70 profile image
Cas70

mouth ulcers.co.uk - Xylimelts! Really help. Plus they have other remedies for sore mouth.

DJK99 profile image
DJK99

I go some pastilles today - yes the xylimelts... howmany boes will I bet getting through??? ;) Thanks all!

DJK99 profile image
DJK99

boxes.. sorry tyring to type with a very large cat on my lap (as per).... bless im

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi DJK99 ,

Please take a look at our article here - lupusuk.org.uk/dry-eyes-and...

It has quite a bit of information and advice for coping with dry mouth.

DJK99 profile image
DJK99

Thanks Paul. I did later that day and was v helpful. I have Salivix now.

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