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Sjogren-Larsson syndrome
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Trazodone, RLS, and pregnancy
Hi all! Hope everyone is well. I posted about my pregnancy and rls struggles a couple of days ago and just wanted to update and ask some questions and hear any experiences from you all. I went to see my OB and she prescribed me Trazodone 100mg to take as needed for sleep. Last night I took it for the
Hi all! Hope everyone is well. I posted about my pregnancy and rls struggles a couple of days ago and just wanted to update and ask some questions and hear any experiences from you all. I went to see my OB and she prescribed me Trazodone 100mg to take as needed for sleep. Last night I took it for the
Emmarielee
in
Restless Legs Syndrome
5 years ago
80 ice cold baths - UPDATE
Two months ago I started and tomorrow I will grit my teeth for the last time. I have managed one a day, occasionally two but not often 😳. They have become considerably colder as the weather gets frostier and so does my water tank in the attic!! I've made it, even though halfway I felt I couldn't go
Two months ago I started and tomorrow I will grit my teeth for the last time. I have managed one a day, occasionally two but not often 😳. They have become considerably colder as the weather gets frostier and so does my water tank in the attic!! I've made it, even though halfway I felt I couldn't go
Tuccatoo
in
Restless Legs Syndrome
5 years ago
Not the most pleasant of questions
I have cirrhosis and along with a multitude of other medication I take lactulose daily. Now as you may be aware one of the nice side effects of lactulose is flatulence, and I mean pretty much none stop. This is both embarrassing to me and irritating to my family, is there anything I can do? is it ok
I have cirrhosis and along with a multitude of other medication I take lactulose daily. Now as you may be aware one of the nice side effects of lactulose is flatulence, and I mean pretty much none stop. This is both embarrassing to me and irritating to my family, is there anything I can do? is it ok
Chris-harris
in
British Liver Trust
5 years ago
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Gabapentin with Ropinirole
I have been through 2 different neurologists over the last 10 years, as they keep moving elsewhere. I ended up seeing a PA, who of all things, recommended that I continue with Ropinirole and drink more tonic water! You'd think that she would have read my charts and see that I've been through all the
I have been through 2 different neurologists over the last 10 years, as they keep moving elsewhere. I ended up seeing a PA, who of all things, recommended that I continue with Ropinirole and drink more tonic water! You'd think that she would have read my charts and see that I've been through all the
wcp2008
in
Restless Legs Syndrome
5 years ago
Friend took my story to his doctor
Friend of mine went to the doctors today he has struggled with RSL but never taken any meds , just all the natural alternatives hot water bottles , magnesium etc . Cutting a long story short he told the doctor my story and he was prescribed temgesic which is .2 or 200 micrograms of Buprenorphine straight
Friend of mine went to the doctors today he has struggled with RSL but never taken any meds , just all the natural alternatives hot water bottles , magnesium etc . Cutting a long story short he told the doctor my story and he was prescribed temgesic which is .2 or 200 micrograms of Buprenorphine straight
Shumbah
in
Restless Legs Syndrome
5 years ago
Pramipexole
I am in a war with pramipexole it really is a battle and I feel I'm being tortured. I was on .78mg per day but now I have knocked off the .26mg pramipexole I'm down to .52mg extended release formula per day but my neurologist put me on Gabapentin 100mg capsules taken three times per day morning,afternoon
I am in a war with pramipexole it really is a battle and I feel I'm being tortured. I was on .78mg per day but now I have knocked off the .26mg pramipexole I'm down to .52mg extended release formula per day but my neurologist put me on Gabapentin 100mg capsules taken three times per day morning,afternoon
Hoochybaby
in
Restless Legs Syndrome
5 years ago
Hey all looking like I have Eds
Please can you tell me if you can have brain lesions with eds xx
Please can you tell me if you can have brain lesions with eds xx
Buckley123
in
Ehlers-Danlos Support UK
5 years ago
Is a combination of drugs the answer?
Having been on Prami for years, I tried Ropinerole which did not work for me so the Rotigotine (3mg) Neupropatch was great for a while until this summer when clearly augmentation set in again. I had a lot of sleepless nights until I discovered it worked well with 2 co-dydramol (plus one Senekot to help
Having been on Prami for years, I tried Ropinerole which did not work for me so the Rotigotine (3mg) Neupropatch was great for a while until this summer when clearly augmentation set in again. I had a lot of sleepless nights until I discovered it worked well with 2 co-dydramol (plus one Senekot to help
Felicity21
in
Restless Legs Syndrome
5 years ago
Sclerederma versus scleredema?
Hello I am new to this site and hope to hear from others with my condition. I have an Autoimmune disease that mimics scleroderma and was originally diagnosed with deep morphea. A biopsy has shown that I actually have a rare condition called Scleredema Buschke. *Note the missing r. There is not much data
Hello I am new to this site and hope to hear from others with my condition. I have an Autoimmune disease that mimics scleroderma and was originally diagnosed with deep morphea. A biopsy has shown that I actually have a rare condition called Scleredema Buschke. *Note the missing r. There is not much data
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Ubiquinol (pure form)
Hi Ladies I read it starts with the egg in June so I bought one of the recommended brands (Jarrow Formula) and took 400mg per day for just under 3 months before ivf egg collection. In that cycle, 8 eggs were collected and 5 fertilised. All fertilised eggs made it to day 5 but just one blastocyst, which
Hi Ladies I read it starts with the egg in June so I bought one of the recommended brands (Jarrow Formula) and took 400mg per day for just under 3 months before ivf egg collection. In that cycle, 8 eggs were collected and 5 fertilised. All fertilised eggs made it to day 5 but just one blastocyst, which
LadyM2019
in
Fertility Network UK
5 years ago
Vitex and Myo inositol
Hi I have SLE over the past 9 years. I have PCOD and hormonal imbalance. I am trying to conceive for the past 3 years. But all the treatments failed. I tried IUI also. Now I am planning to take vitex and Myo Inositol supplements to cure hormonal imbalance. Is it good or bad to try them with lupus?
Hi I have SLE over the past 9 years. I have PCOD and hormonal imbalance. I am trying to conceive for the past 3 years. But all the treatments failed. I tried IUI also. Now I am planning to take vitex and Myo Inositol supplements to cure hormonal imbalance. Is it good or bad to try them with lupus?
Vinodha
in
LUPUS UK
5 years ago
Help :(
So I applied this lidocaine gel that I got prescribed to see if it would help my vaginal Itching. Well I woke up an hour later with the worst itching and sensitivity of my life. Then it turned into my vagina burning. But the part thats bothering me the most is I'm having bad clitoral discomfort, its
So I applied this lidocaine gel that I got prescribed to see if it would help my vaginal Itching. Well I woke up an hour later with the worst itching and sensitivity of my life. Then it turned into my vagina burning. But the part thats bothering me the most is I'm having bad clitoral discomfort, its
Ambernicole
in
Pelvic Pain Support Network
5 years ago
What next on this awful rollercoaster
Interesting to read the post just put up on Levodopa (Co-Careldopa) I have just been prescribed 1to 2 nightly12.5 mg. I argumented on ropinerole almost a year ago and have been on pregabalin but there is a good chance that this has caused me to lose my peripheral vision. I have just weened of that
Interesting to read the post just put up on Levodopa (Co-Careldopa) I have just been prescribed 1to 2 nightly12.5 mg. I argumented on ropinerole almost a year ago and have been on pregabalin but there is a good chance that this has caused me to lose my peripheral vision. I have just weened of that
Operabab
in
Restless Legs Syndrome
5 years ago
BP meds interference?
I'm taking Losartan Potasium, Lerconidipine and Atenolol for very high blood pressure, and cannot have the surgery I need until it's normal. I've been taking Dihydrocodeine for severe, full body RLS for nearly 20 years, but recently, the bed-time dose I take around 12.30am is only lasting for about two
I'm taking Losartan Potasium, Lerconidipine and Atenolol for very high blood pressure, and cannot have the surgery I need until it's normal. I've been taking Dihydrocodeine for severe, full body RLS for nearly 20 years, but recently, the bed-time dose I take around 12.30am is only lasting for about two
lorrinet
in
Restless Legs Syndrome
5 years ago
Levodopa
Hi I have just been given via tel message a prescription for levodopa 25mg but not told if I should take it along with my pramipexole. I have just been told to take 1 tablets at night hopefully it will help my insomnia
Hi I have just been given via tel message a prescription for levodopa 25mg but not told if I should take it along with my pramipexole. I have just been told to take 1 tablets at night hopefully it will help my insomnia
Hoochybaby
in
Restless Legs Syndrome
5 years ago
Does L-Tyrosine also cause augmentation
I have recently come off an OTC L-Dopa supplement because it was causing augmentation. I'm trying to get my dopamine levels to restore naturally and am wondering whether I should take L-Tyrosine (which is the amino acid building block for L-Dopa, found in eggs, cheese, meat, etc). I would be doing so
I have recently come off an OTC L-Dopa supplement because it was causing augmentation. I'm trying to get my dopamine levels to restore naturally and am wondering whether I should take L-Tyrosine (which is the amino acid building block for L-Dopa, found in eggs, cheese, meat, etc). I would be doing so
RoDomHarr
in
Restless Legs Syndrome
5 years ago
Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good, Neupro, good leaves bu
Carbidopa Levodopa Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good,
Carbidopa Levodopa Hello I have had RLS for a long time, pretty severe, have been on ropinirole worked good ,Gabepentin, not very good,
Elijah5
in
Restless Legs Syndrome
5 years ago
Sjogrens and weather-related fatigue
For those diagnosed with Sjogrens, do anyone of you experience extreme fatigue before it rains; the barometer falls? And if so, how do you deal with it? In my part of Canada this year it is getting to be almost tropical at least rainwise (summer temps were OK too, but we are now into fall).
For those diagnosed with Sjogrens, do anyone of you experience extreme fatigue before it rains; the barometer falls? And if so, how do you deal with it? In my part of Canada this year it is getting to be almost tropical at least rainwise (summer temps were OK too, but we are now into fall).
SamTheTurtle
in
The Australian Sjögren's Syndrome Association
5 years ago
Opiate use and sleep.
This is a link to a study/ warning of the dangers of opiate use. Related to sleep quality and breathing problems. It is not a major problem for the low doses used for refractory rls. It is really interesting that it recognises the use of opiates for rls and the distinction between that and the much higher
This is a link to a study/ warning of the dangers of opiate use. Related to sleep quality and breathing problems. It is not a major problem for the low doses used for refractory rls. It is really interesting that it recognises the use of opiates for rls and the distinction between that and the much higher
Madlegs1
in
Restless Legs Syndrome
5 years ago
Neurology update
Good morning all. Yesterday I saw a very nice neurologist who gave me a full neurological exam (including sticking pins into me) . His conclusion was that a) I'm not a witch, and, b) I have no discernable neurological problems. He was somewhat surprised to hear that the rheum had diagnosed fibromyalgia
Good morning all. Yesterday I saw a very nice neurologist who gave me a full neurological exam (including sticking pins into me) . His conclusion was that a) I'm not a witch, and, b) I have no discernable neurological problems. He was somewhat surprised to hear that the rheum had diagnosed fibromyalgia
Linda3009
in
PMRGCAuk
5 years ago
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