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12 weeks on Adalimumab, lots of pain and fatigue. Feeling depressed.
Hi everyone, can anyone offer any words or comfort or advice please?I was told at the beginning that this would change my life. A few weeks back I visited rheumatology and I said that I was dissatisfied with the drug, they told me to give it longer. I feel so down.
Hi everyone, can anyone offer any words or comfort or advice please?I was told at the beginning that this would change my life. A few weeks back I visited rheumatology and I said that I was dissatisfied with the drug, they told me to give it longer. I feel so down.
Comeonpeeps
in
NRAS
1 year ago
Sleep Aid
Anyone use children’s Benadryl or Unisom to help sleep? Or another remedy? My doctor actually suggested the children’s Benadryl but it was the first time I ever saw him, he is a family med doc and may not have been aware yet that I have controlled afib…
Anyone use children’s Benadryl or Unisom to help sleep? Or another remedy? My doctor actually suggested the children’s Benadryl but it was the first time I ever saw him, he is a family med doc and may not have been aware yet that I have controlled afib…
Jafib
in
Atrial Fibrillation Support
1 year ago
Thought of the day - B12 paradox
Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high
Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high
Pickle500
in
Pernicious Anaemia Society
1 year ago
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Sleep Study and Sleep Cycle app
I had mentioned earlier that I was having a sleep study last of December, the artic blast that hit the US made travel impossible. So I plan to reschedule once they are back in office. I didn't think I snored but the Sleep Cycle says I do lol. Wondered if anyone has used it, I find it helpful with
I had mentioned earlier that I was having a sleep study last of December, the artic blast that hit the US made travel impossible. So I plan to reschedule once they are back in office. I didn't think I snored but the Sleep Cycle says I do lol. Wondered if anyone has used it, I find it helpful with
Opie__
in
Restless Legs Syndrome
1 year ago
Buprenorphine - paired with sleeping tablets, UK
I feel my chronic fatigue is '
simply
' many years of lack of
sleep
. I am frustrated that when asking a GP for help with sleep before, I was refused. Can anyone advice. I am desperate to get back to work and to be able to go walking etc. Currently I rarely leave the house.
I feel my chronic fatigue is '
simply
' many years of lack of
sleep
. I am frustrated that when asking a GP for help with sleep before, I was refused. Can anyone advice. I am desperate to get back to work and to be able to go walking etc. Currently I rarely leave the house.
smilingjane
in
Restless Legs Syndrome
5 months ago
Are these symptoms common?
There is NO correlation to how active I was during the day, nor what time I lie down to
. It
simply
happens every night. I have mentioned this to multiple practioners and most just grunt "huh". One dismissed it with "it's neurological" but wouldn't elaborate.
There is NO correlation to how active I was during the day, nor what time I lie down to
. It
simply
happens every night. I have mentioned this to multiple practioners and most just grunt "huh". One dismissed it with "it's neurological" but wouldn't elaborate.
MaxPolokov
in
Restless Legs Syndrome
1 year ago
Recommendation
I need advice under standing how to take my meds and supplements. I take omeprazole, (for gerd) Losartan 12.5 mg.(Blood pressure) Allegra 180mg ((Allergy) Multi Vitamin, B12 1000mg, zinc 50mg, Gentle Iron 25 mg, 1200 mg of Gabapentin, I also take a sleep aid either Tylenol PM, Advil PM, or Trazodone
I need advice under standing how to take my meds and supplements. I take omeprazole, (for gerd) Losartan 12.5 mg.(Blood pressure) Allegra 180mg ((Allergy) Multi Vitamin, B12 1000mg, zinc 50mg, Gentle Iron 25 mg, 1200 mg of Gabapentin, I also take a sleep aid either Tylenol PM, Advil PM, or Trazodone
Courtroad
in
Restless Legs Syndrome
2 years ago
Amyloidosis
Has anyone been diagnosed with Amyloidosis of the heart which is causing Afib permanently? How are they being treated, etc?
Has anyone been diagnosed with Amyloidosis of the heart which is causing Afib permanently? How are they being treated, etc?
Flimmeri
in
AF Association
2 years ago
Trelstar Mixject
I received an insurance denial today for Trelstar Mixject. I was to have an Eligard shot in early December, but Dr office called the day before to reschedule for January 3rd. I was never told that they wanted to take me off Eligard, and why would they change if it is working? Mainly, I have never
I received an insurance denial today for Trelstar Mixject. I was to have an Eligard shot in early December, but Dr office called the day before to reschedule for January 3rd. I was never told that they wanted to take me off Eligard, and why would they change if it is working? Mainly, I have never
280scout
in
Advanced Prostate Cancer
2 years ago
A 2nd and Final Christmas Ditty (I have messaged Katrina)
A second and last offering to the alternative Christmas carols. This one is chirped along to The Calypso Carol, one if my favourites. See me lying on the bedroom floor, Palpitations I can feel once more. All kicked off by an apnoea snore, The joy called AF is to blame. Oh now carry me to A&E, By ambulance
A second and last offering to the alternative Christmas carols. This one is chirped along to The Calypso Carol, one if my favourites. See me lying on the bedroom floor, Palpitations I can feel once more. All kicked off by an apnoea snore, The joy called AF is to blame. Oh now carry me to A&E, By ambulance
Ducky2003
in
AF Association
2 years ago
Intralipid infussion
Good morning Lovely Girls, I am having my second transfer in Spain next Tuesday and yesterday I had my first intralipid infussion to treat for recurrent miscarriage. The Clinic told me that I would need to have the second one in 3 weeks time if I am pregnant. Please could you let me know if the
Good morning Lovely Girls, I am having my second transfer in Spain next Tuesday and yesterday I had my first intralipid infussion to treat for recurrent miscarriage. The Clinic told me that I would need to have the second one in 3 weeks time if I am pregnant. Please could you let me know if the
Strawberryice
in
Fertility Network UK
2 years ago
Ritalin (Methylphenidate)
I've saw a few post and some discussion about this, but my Oncologist suggested a low dose of Ritalin to ward off some of the fatigue and brain fog I was having from Firmagon and Zytiga. I had been reluctant to take "another pill" that comes with more side effects...so I said not for me. I know the
I've saw a few post and some discussion about this, but my Oncologist suggested a low dose of Ritalin to ward off some of the fatigue and brain fog I was having from Firmagon and Zytiga. I had been reluctant to take "another pill" that comes with more side effects...so I said not for me. I know the
Ron53
in
Advanced Prostate Cancer
2 years ago
RLS study
just completed phase 1 of an RLS study of a wearable e-stim device for RLS. For me, redults were mixed. Worked well on Right leg which has much milder symptoms than the left. The left did not respond well to the continuous stim. When I’ve used TNS in the past, a modulated wave form was more effective
just completed phase 1 of an RLS study of a wearable e-stim device for RLS. For me, redults were mixed. Worked well on Right leg which has much milder symptoms than the left. The left did not respond well to the continuous stim. When I’ve used TNS in the past, a modulated wave form was more effective
Hidden
in
Restless Legs Syndrome
2 years ago
How do you know your circadian rhythm?
This week I will be starting methadone, which may be the answer for me. If effective, it would give me a chance to change my sleeping pattern from 4am to noon to something more normal. My question is this: How do I determine what my current circadian rhythm is? It might be that I actually am still
This week I will be starting methadone, which may be the answer for me. If effective, it would give me a chance to change my sleeping pattern from 4am to noon to something more normal. My question is this: How do I determine what my current circadian rhythm is? It might be that I actually am still
ratfancy
in
Restless Legs Syndrome
2 years ago
Hypothyroidism and sleep apnoea ...
I've received a letter from Guy's and St Thomas' about the home sleep study I did on 24th October. The letter says I have severe obstructive sleep apnoea. I have a provisional/suspected diagnosis of central hypothyroidism, and also have growth hormone deficiency. I have been titrating up on Levo, starting
I've received a letter from Guy's and St Thomas' about the home sleep study I did on 24th October. The letter says I have severe obstructive sleep apnoea. I have a provisional/suspected diagnosis of central hypothyroidism, and also have growth hormone deficiency. I have been titrating up on Levo, starting
UKmale_hypo
in
Thyroid UK
2 years ago
Quinidine Sulphate
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
LeeLowry1
in
Arrhythmia Alliance
2 years ago
Duloxetine for pain and anxiety.
I have been prescribed Duloxetine for pain, anxiety and depression. I have fibromyalgia and FND. I was taking 20mg twice a day, morning and evening but it was no longer effective. About a month ago the doctor raised it to 60mg, but said I must take 40 mg at night and 20mg in the morning. I am feeling
I have been prescribed Duloxetine for pain, anxiety and depression. I have fibromyalgia and FND. I was taking 20mg twice a day, morning and evening but it was no longer effective. About a month ago the doctor raised it to 60mg, but said I must take 40 mg at night and 20mg in the morning. I am feeling
Rebel1961
in
Fibromyalgia Action UK
2 years ago
Trial if rasagiline can reduce the progression from idiopathic REM sleep behavior disorder (RBD) to Parkinsons
https://clinicaltrials.gov/ct2/show/NCT05611372 To investigate whether a year of rasagiline may reduce the progression from idiopathic REM sleep behavior disorder (RBD) to Parkinson's disease (PD). https://twitter.com/ScienceofPD/status/1594676840001867779
https://clinicaltrials.gov/ct2/show/NCT05611372 To investigate whether a year of rasagiline may reduce the progression from idiopathic REM sleep behavior disorder (RBD) to Parkinson's disease (PD). https://twitter.com/ScienceofPD/status/1594676840001867779
Hidden
in
Cure Parkinson's
2 years ago
Finally makes sense
I started Firmagon about a year ago with great results for 5 months and then added Xtandi....Side effects from both were minimal due to weight training in gym 3x a week and aerobic running off days. I began researching the relatively newly FDA approved Orgovyx and it made sense to me to ask my MO to
I started Firmagon about a year ago with great results for 5 months and then added Xtandi....Side effects from both were minimal due to weight training in gym 3x a week and aerobic running off days. I began researching the relatively newly FDA approved Orgovyx and it made sense to me to ask my MO to
GSDF
in
Advanced Prostate Cancer
2 years ago
Insomnia
Sometimes I find myself staying up almost 24 hours. Some days I have to force myself to go too sleep or I have to take a sleep aid: melatonin or a muscle relaxer for my back or a gabapentin. I don't get much rest when I have a lot on my mind sometimes u have to shut your thoughts off especially if your
Sometimes I find myself staying up almost 24 hours. Some days I have to force myself to go too sleep or I have to take a sleep aid: melatonin or a muscle relaxer for my back or a gabapentin. I don't get much rest when I have a lot on my mind sometimes u have to shut your thoughts off especially if your
Hidden
in
Anxiety and Depression Support
2 years ago
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