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Sickle-cell anaemia
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bloods walloped by severe gastrointestinal infection, anyone?
Hi lovelies, I was hospitalised for severe infection last week, which with antibiotics is now better. But my white blood cell count has plummeted to the point hospital has put me under lockdown, and went even lower after 3 filgrastim injections although haematology say sometimes their effect is delayed
Hi lovelies, I was hospitalised for severe infection last week, which with antibiotics is now better. But my white blood cell count has plummeted to the point hospital has put me under lockdown, and went even lower after 3 filgrastim injections although haematology say sometimes their effect is delayed
Trickysite
in
My Ovacome
2 years ago
Low serum folate = folic acid supplement?
Hello, My youngest daughter (she's 21) has recently been diagnosed with hypothyroidism. She's been started on 50 mg Levothyroxine Her other low result was: Serum folate 2.2 (2.8-20 ug/L) For this she's been prescribed folic acid - 5mg daily I'm a little surprised that it's folic acid especially after
Hello, My youngest daughter (she's 21) has recently been diagnosed with hypothyroidism. She's been started on 50 mg Levothyroxine Her other low result was: Serum folate 2.2 (2.8-20 ug/L) For this she's been prescribed folic acid - 5mg daily I'm a little surprised that it's folic acid especially after
RexandBoone
in
Thyroid UK
2 years ago
Anaemia test results
Hi all, I recently did the 'Full health screen' from Monitor My Health and all the vitamin results have come back without proper ranges. Only the graphs. Which is irritating. BUT Would you supplement iron with these results? I can't afford to do a full iron panel, and I had assumed this test would
Hi all, I recently did the 'Full health screen' from Monitor My Health and all the vitamin results have come back without proper ranges. Only the graphs. Which is irritating. BUT Would you supplement iron with these results? I can't afford to do a full iron panel, and I had assumed this test would
Hidden
in
Thyroid UK
2 years ago
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chemo tablets capox
hi I’m have treatment for reacurring cancer ..with infusion every 21 days of xelox..then capecitabine tablets..180 mg In the morning and same again at night ..I started treatment Monday and felt ill most of the time ..dexmethasone stopped yesterday and slept quite well but after tablets this morning
hi I’m have treatment for reacurring cancer ..with infusion every 21 days of xelox..then capecitabine tablets..180 mg In the morning and same again at night ..I started treatment Monday and felt ill most of the time ..dexmethasone stopped yesterday and slept quite well but after tablets this morning
telford-hiker
in
Oesophageal & Gastric Cancer
2 years ago
Medichecks ferritin range 30-650 ug/L
I have been having trouble for years with low ferritin, despite eating black pudding 3 times a week and taking ferrous fumarate. This last week got full thyroid blood tests back and thought ‘oh good , ferritin had gone up a bit to a decent 77’, but no, the range had been changed to a huge 30-650 ug/L
I have been having trouble for years with low ferritin, despite eating black pudding 3 times a week and taking ferrous fumarate. This last week got full thyroid blood tests back and thought ‘oh good , ferritin had gone up a bit to a decent 77’, but no, the range had been changed to a huge 30-650 ug/L
Judithdalston
in
Thyroid UK
2 years ago
Hydroxocobalamin injection frequency
Hi, I've messed up and forgotten to book my B12 Jab (8 weekly) and now they can't do it until three weeks after my due date. I will be on my knees by then! (Why i never twig at around 6 weeks I don't know as i get symptoms from at least then :dizzy: ). Anyway, I have found a private means of getting
Hi, I've messed up and forgotten to book my B12 Jab (8 weekly) and now they can't do it until three weeks after my due date. I will be on my knees by then! (Why i never twig at around 6 weeks I don't know as i get symptoms from at least then :dizzy: ). Anyway, I have found a private means of getting
Lettie_WP
in
Pernicious Anaemia Society
2 years ago
Low iron levels
Been on treatment for ET for some time now and I take 500mg HU and 1x4 of angralide..platelets around 350 to 480 . My haemoglobin levels are low and felt tired for several weeks .. I stressed this at my last meeting with the haemotology dept . Luckily they called me in and upshot is I'm anaemic and
Been on treatment for ET for some time now and I take 500mg HU and 1x4 of angralide..platelets around 350 to 480 . My haemoglobin levels are low and felt tired for several weeks .. I stressed this at my last meeting with the haemotology dept . Luckily they called me in and upshot is I'm anaemic and
heathermc
in
MPN Voice
2 years ago
Low B12 raised CRP - new to this
hi all. I was recently diagnosed with B12 deficiency (level of 67), and am about to have my last of 5 loading doses today. I can’t say I’ve felt too much of an improvement and still have brain fog, dizziness and tingling in my hands and feet amongst other things. Will this improve as the b12 gets to
hi all. I was recently diagnosed with B12 deficiency (level of 67), and am about to have my last of 5 loading doses today. I can’t say I’ve felt too much of an improvement and still have brain fog, dizziness and tingling in my hands and feet amongst other things. Will this improve as the b12 gets to
Sparkleprincess
in
Pernicious Anaemia Society
2 years ago
Iron results-any advice?
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Penicookie
in
Thyroid UK
2 years ago
Pernicious Anemia and Endicrine
I was diagnosed with B12 deficiency in the spring of 2021. I was initially placed on a regimen of B12 injections appropriate for patients with blood symptoms. Eventually I read enough to discover the difference in treatment for patients with blood symptoms vs nerve symptoms, and since August of 2021
I was diagnosed with B12 deficiency in the spring of 2021. I was initially placed on a regimen of B12 injections appropriate for patients with blood symptoms. Eventually I read enough to discover the difference in treatment for patients with blood symptoms vs nerve symptoms, and since August of 2021
WiscGuy
in
Pernicious Anaemia Society
2 years ago
Low MCHC
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
Hello all. I have a new aspect of my cbc report that has just become Low. It is MCHC. Normal is 31.0 gm/dL to 36.5. I am now 30.7. I would love comments from any others who have had low MCHC. Did you eventually need oxygen. Did they start treatment due to this? How low can it go before you physically
davidgrush
in
CLL Support
2 years ago
Neuropsychiatric lupus?
Hi there **If the following doesn't make sense, please let me know** Feeling poorly for a while. I posted a while ago about a muscle spasm within my hand, which turned out to be a swan-neck deformity but have experienced subsequent hand spasms, weakness, tremors, eye to hand coordination is off,
Hi there **If the following doesn't make sense, please let me know** Feeling poorly for a while. I posted a while ago about a muscle spasm within my hand, which turned out to be a swan-neck deformity but have experienced subsequent hand spasms, weakness, tremors, eye to hand coordination is off,
Amakura
in
LUPUS UK
2 years ago
RLS and Medication
Madlegs, Sue Johnson, Joolsg,Ladies, first I wish to thank you for all the help you give us. You are heaven sent angels I have been having RLS every night. I have to keep walking all night. It lasts till 7 AM. It was recommended that I discuss my medications with you ladies. The following are all
Madlegs, Sue Johnson, Joolsg,Ladies, first I wish to thank you for all the help you give us. You are heaven sent angels I have been having RLS every night. I have to keep walking all night. It lasts till 7 AM. It was recommended that I discuss my medications with you ladies. The following are all
Josana13
in
Restless Legs Syndrome
2 years ago
Hello
Just got back out of the psychiatric hospital for the 3rd time in 2 years. Take 4mg ropinorole at night. Had RLS since the age of 12, I am 46. I am new to this forum but have been a member of the old Nightwalker board in the early 2000's . Don't know if still exists. Weaning down again, but doing
Just got back out of the psychiatric hospital for the 3rd time in 2 years. Take 4mg ropinorole at night. Had RLS since the age of 12, I am 46. I am new to this forum but have been a member of the old Nightwalker board in the early 2000's . Don't know if still exists. Weaning down again, but doing
discgolfrules
in
Restless Legs Syndrome
2 years ago
Not sure about next steps
Hi, I've recently been diagnosed with a Vitamin D and folate deficiency and have been given supplements by my GP. I don't know the exact results though. My cousin has just been diagnosed with Pernicious Anaemia and our shared Great Grandfather also had it. She has all the typical symptoms, including
Hi, I've recently been diagnosed with a Vitamin D and folate deficiency and have been given supplements by my GP. I don't know the exact results though. My cousin has just been diagnosed with Pernicious Anaemia and our shared Great Grandfather also had it. She has all the typical symptoms, including
MyrtleTurtle
in
Pernicious Anaemia Society
2 years ago
Side effects of B12 injections
Hi. I had loading doses of B12 about 10 years ago after several years of fatigue and neuro symptoms. I felt amazing afterwards and when I went onto 3 monthly injections I found that my symptoms would come back long before my next injection was due so I started self injecting. I found I needed it once
Hi. I had loading doses of B12 about 10 years ago after several years of fatigue and neuro symptoms. I felt amazing afterwards and when I went onto 3 monthly injections I found that my symptoms would come back long before my next injection was due so I started self injecting. I found I needed it once
Hayley31
in
Pernicious Anaemia Society
2 years ago
Who else has Myelodysplastic Syndromes (MDS) in addition to their PCa?
Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewhere between low and intermediate. Described as bone marrow cancers and a bone marrow biopsy is required for dx. It morphs into Acute Myloid Leukemia in 30-40% of the cases. Know that my shit is weak and am searching for
Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewhere between low and intermediate. Described as bone marrow cancers and a bone marrow biopsy is required for dx. It morphs into Acute Myloid Leukemia in 30-40% of the cases. Know that my shit is weak and am searching for
SpencerBoy11
in
Advanced Prostate Cancer
1 year ago
ALC is still going up
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Moonmyst
in
CLL Support
2 years ago
Can anyone recommend a good private pernicious anemia doctor anywhere in Scotland? Two NHS GPs ignored my symptoms they don't listen
Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell antibodies, my B12 levels are 444 (should be between 200-883) so nobody takes me seriously because it's not low. GPs won't even consider injections
Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell antibodies, my B12 levels are 444 (should be between 200-883) so nobody takes me seriously because it's not low. GPs won't even consider injections
Patient300
in
Pernicious Anaemia Society
2 years ago
Expiration date
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
EiCa
in
Pernicious Anaemia Society
2 years ago
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