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Sickle-cell anaemia
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Late covid
My health centre is the same one that my parents used and took me and my siblings to. I am 76 years old. The building and street locations have changed and of course the doctors too but we in our town have always considered the present building to be our local, first port of call when we or our own
My health centre is the same one that my parents used and took me and my siblings to. I am 76 years old. The building and street locations have changed and of course the doctors too but we in our town have always considered the present building to be our local, first port of call when we or our own
3rdNettydoon
in
Pernicious Anaemia Society
11 months ago
Blood Results
Hello, I am wondering if anyone can Help me to try and understand what is going on with my blood test results. I have always had low ferritin in single figures and after years of low B12 I was eventually in March 21 put on B12 injections every 3 months for life . The ferritin improved slowly but my
Hello, I am wondering if anyone can Help me to try and understand what is going on with my blood test results. I have always had low ferritin in single figures and after years of low B12 I was eventually in March 21 put on B12 injections every 3 months for life . The ferritin improved slowly but my
B52s
in
Pernicious Anaemia Society
1 year ago
Visit to Haematology Dept.
This morning I had a appointment to see the consultant haematologist at Scarborough Hospital, the first I have seen for about 3 years, the was because my total white blood count & Lymphocyte count had shot up from my April blood test, she examined me and took more blood, the results were a lot better
This morning I had a appointment to see the consultant haematologist at Scarborough Hospital, the first I have seen for about 3 years, the was because my total white blood count & Lymphocyte count had shot up from my April blood test, she examined me and took more blood, the results were a lot better
Ellim
in
CLL Support
1 year ago
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Brighton Marathon 2024
We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia Society. I'm not suggesting that anyone here struggling with PA or B12
We have secured three places for Brighton Marathon Sunday 7th April 2024 in the name of The Pernicious Anaemia Society. We are looking for runners who want to help us raise awareness and raise money for the Pernicious Anaemia Society. I'm not suggesting that anyone here struggling with PA or B12
PAScomms
in
Pernicious Anaemia Society
11 months ago
Some results, at last
I had some blood sent for Next Generation Sequencing back in March, I’ve been waiting for the results. Consultant phoned this afternoon, he says I am now post ET MF or words to that effect! My platelets are currently 559, I’m on one capsule of Anagrelide twice a day. I was extremely anaemic and after
I had some blood sent for Next Generation Sequencing back in March, I’ve been waiting for the results. Consultant phoned this afternoon, he says I am now post ET MF or words to that effect! My platelets are currently 559, I’m on one capsule of Anagrelide twice a day. I was extremely anaemic and after
lizzziep
in
MPN Voice
1 year ago
Lanzoprazole and low B12
Hi guys I am worried and I don’t know if I am worried about nothing. In a nutshell, in 2018 hubby starts heart meds and has done so ever since. One of which is landoprazole 15mg every day. Purpose to protect his stomach from the potential harm from taking 75mg asprin to thin his blood. A couple
Hi guys I am worried and I don’t know if I am worried about nothing. In a nutshell, in 2018 hubby starts heart meds and has done so ever since. One of which is landoprazole 15mg every day. Purpose to protect his stomach from the potential harm from taking 75mg asprin to thin his blood. A couple
Wwwdot
in
Pernicious Anaemia Society
1 year ago
Vitamins
Hi allI posted here last week my vitamin test results from medichecks. My active B12 and folate were low so as per advice on the forum I have held off supplementing until my GP tests for pernicious anaemia. My mother had PA and I certainly do have some symptoms of B12 deficiency. I'm due to get my bloods
Hi allI posted here last week my vitamin test results from medichecks. My active B12 and folate were low so as per advice on the forum I have held off supplementing until my GP tests for pernicious anaemia. My mother had PA and I certainly do have some symptoms of B12 deficiency. I'm due to get my bloods
Hollybushroad
in
Thyroid UK
1 year ago
Advice on blood test please
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Lincsangel1
in
Pernicious Anaemia Society
11 months ago
Pernicious Anaemia Society - communications team
We have set up this "user" as the communications team from the Pernicious Anaemia Society. We are not moderators on this forum and will not be answering any questions or commenting on specific circumstances or posts for individuals. This is a forum for discussion amongst users and a community for
We have set up this "user" as the communications team from the Pernicious Anaemia Society. We are not moderators on this forum and will not be answering any questions or commenting on specific circumstances or posts for individuals. This is a forum for discussion amongst users and a community for
PAScomms
in
Pernicious Anaemia Society
11 months ago
Transferrin Saturation
I have a GP appointment a week Monday. Recently had a Medichecks nutrition test and results: Ferritin : 44.2 ug/L (R. 13 - 150) Vit. B12: 67.6 pmol/L (R.37.5 - 150) Vit.D: 119/nmolL (R50 - 200) Medichecks GP said B12 on the low side, as is Ferritin. He recommended I have a serum MMA
I have a GP appointment a week Monday. Recently had a Medichecks nutrition test and results: Ferritin : 44.2 ug/L (R. 13 - 150) Vit. B12: 67.6 pmol/L (R.37.5 - 150) Vit.D: 119/nmolL (R50 - 200) Medichecks GP said B12 on the low side, as is Ferritin. He recommended I have a serum MMA
notpink
in
Thyroid UK
1 year ago
UK person wanting injectable methylcobalamin
Hello everyone, I'm based in the UK and have Pernicious Anaemia. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in Germany back in 2019/2020 and had it shipped to the UK. But a year ago, in 2022, when I messaged to purchase more, they said they were no longer able
Hello everyone, I'm based in the UK and have Pernicious Anaemia. I was able to buy methylcobalamin 1mg for self-injection online from Arnika Apotheke in Germany back in 2019/2020 and had it shipped to the UK. But a year ago, in 2022, when I messaged to purchase more, they said they were no longer able
Seasidesunshine1979
in
Pernicious Anaemia Society
1 year ago
Blood Test results
Hi Having finally got broadband working again I was able to check my blood test results. They included: Serum Iron: 25.2 umol/L [range 10.6 - 28.3] Serum transferrin: 2.42 g/L [range 2.02 - 3.63] Serum ferritin level: 70 ng/ml [range 30 - 400] Transferrin saturation index : 42% Blood tests for
Hi Having finally got broadband working again I was able to check my blood test results. They included: Serum Iron: 25.2 umol/L [range 10.6 - 28.3] Serum transferrin: 2.42 g/L [range 2.02 - 3.63] Serum ferritin level: 70 ng/ml [range 30 - 400] Transferrin saturation index : 42% Blood tests for
Rameau
in
Restless Legs Syndrome
1 year ago
High Folate, Low Normal B12
Regarding folate masking a B12 defciency…my folate was 24 ng/mL and my B12 was 252 pg/mL when I asked to be tested for deficiency in January. I was having neurological symptoms such as anxiety, pulsatile tinnitus, tingling in legs and feet. Other symptoms include digestive issues (I believe I have low
Regarding folate masking a B12 defciency…my folate was 24 ng/mL and my B12 was 252 pg/mL when I asked to be tested for deficiency in January. I was having neurological symptoms such as anxiety, pulsatile tinnitus, tingling in legs and feet. Other symptoms include digestive issues (I believe I have low
JHEW0836
in
Pernicious Anaemia Society
1 year ago
Erfa swap update
my ferritin has just come back as 28 (5-204) I think this is my iron store so it’s clearly deficient. I’ve struggled with anaemia since I was about 18 (maybe before but no cause before then for a blood test it was discovered when I became a donor) No one has ever given me a reason for this! And I
my ferritin has just come back as 28 (5-204) I think this is my iron store so it’s clearly deficient. I’ve struggled with anaemia since I was about 18 (maybe before but no cause before then for a blood test it was discovered when I became a donor) No one has ever given me a reason for this! And I
Starseed56
in
Thyroid UK
9 months ago
Iron blood test results
Please see below results. Would appreciate some advice. I have changed the brand of iron supplement I am taking, as I was struggling to raise my levels previously. Now take 2x Thorne Gentle Iron on alternate days.
[u]Inflammation[/u]
CRP HS 4.21 mg/L (Range: 0 - 5) *see note below
[u]Iron
Please see below results. Would appreciate some advice. I have changed the brand of iron supplement I am taking, as I was struggling to raise my levels previously. Now take 2x Thorne Gentle Iron on alternate days.
[u]Inflammation[/u]
CRP HS 4.21 mg/L (Range: 0 - 5) *see note below
[u]Iron
Molly161018
in
Thyroid UK
1 year ago
Benefits of knowing your illness/condition/disease to help others as well as yourself
It’s about time I posted that a couple of months ago my husband was diagnosed with Giant Cell Arteritis. I was somewhat overwhelmed by the diagnosis having had PMR, GCA/LVV myself over the past 5 and a half years and haven’t, until now, felt ready to share his story on the forum.
It’s about time I posted that a couple of months ago my husband was diagnosed with Giant Cell Arteritis. I was somewhat overwhelmed by the diagnosis having had PMR, GCA/LVV myself over the past 5 and a half years and haven’t, until now, felt ready to share his story on the forum.
123-go
in
PMRGCAuk
9 months ago
Does the pill have the same effect as the injection?
I am from Argentina. My son has been struggling with depression and anxiety for years. 2 years ago we found out he had high homocysteine, low B12 and he has MTHFR. He is being treated with B12 pills (Jarrow) his values have improved but his symptoms persist. I saw your information in PERNICIOUS
I am from Argentina. My son has been struggling with depression and anxiety for years. 2 years ago we found out he had high homocysteine, low B12 and he has MTHFR. He is being treated with B12 pills (Jarrow) his values have improved but his symptoms persist. I saw your information in PERNICIOUS
MarianaCD
in
Pernicious Anaemia Society
1 year ago
Wake up very cold around 230 to 330 am . Any suggestions?
Wake up very cold and was wondering if any supplements might help this. Taking iron pills and b12 injections currently.
Wake up very cold and was wondering if any supplements might help this. Taking iron pills and b12 injections currently.
84withb12d
in
Pernicious Anaemia Society
1 year ago
Iron Infusion Attempt
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
This week I saw Dr Robin Fackrell privately at Bath Sulis Hospital to discuss whether an iron infusion would be an appropriate way forward for me and if so how I could progress this. The outcome of the session is that Dr Fackrell will write back to my GP recommending this course of action for my RLS
Munroist
in
Restless Legs Syndrome
1 year ago
Successfully treated my Multiple Myeloma and now in remission from both MM and PCA
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
swwags
in
Advanced Prostate Cancer
8 months ago
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