Low iron levels

[heathermc]

Been on treatment for ET for some time now and I take 500mg HU and 1x4 of angralide..platelets around 350 to 480 . My haemoglobin levels are low and felt tired for several weeks .. I stressed this at my last meeting with the haemotology dept . Luckily they called me in and upshot is I'm anaemic and they've put me on ferrous sulphate tablets 3 a daySo hopefully this should work .. they told me this would be a roller coaster ride .

[jointpain]

I'm surprised you aren't getting an iron infusion, which is a damn site quicker at bringing up your iron reserves, three tablets a day will probably just make your faeces black. Depending on strength. How anemic are you? If you are below 90 g/L you should be having a blood transfusion of packed RBCells. I emailed my wife's consultant on Thursday saying she was getting more tired as each day passes, and I thought her Hgb was getting low, he sent blood forms and she had a blood test on Monday and her Hgb was down to 87g/L she's now booked in for three bags of packed RBCells on Saturday morning.

[Wyebird in reply to jointpain]

I’ve just read your reply. When I was having a haemoglobin level of 93 they said it’s not until you are in the 80’s that they consider a pint of blood. Glad your wife got it.

[jointpain in reply to Wyebird]

That's right, it's written in stone somewhere, if below 90 which includes in the 80s then you should be having blood transfusion. Earlier this year she was at 56, but that was during a massive bleed.

[Wyebird in reply to jointpain]

56!!!!!

Gosh.!!

[Smdg]

I hope you will be ok with the iron tablets. I had horrible side effects which left me with inflammatory bowel disease. It didn’t even work so I ended up having an infusion which was much better. Keep an eye on how you are feeling. I had cramps, excessive wind, nausea, fatigue etc

[swimswam]

I was found to be anaemic last year and was given 3 months worth of high dose ferrous sulphate. I didn’t look forward to taking them as I expected problems but fortunately I was ok, and on my last blood test my iron levels are now normal again. I also feel so much better. Its worth giving them a try.

[JOY2THEWORLD49]

Hi

Just saying that you can also be anaemic through B12 deficiency and low folc acid. Anoth odd bklood test away from norm. I was found and I take 1 under tongue nugget 2 days week to keep me at 400-500level. Solgar Gold Top but I'm running out and no one can get it! No injections please.

Our platelet test shows 400 as normal.?

Have a B12 test.

Iron tablets ugh. Are you on an anti-co.agulant? You could be bleeding internally. Get urine and BO checked for a start.

Iron is found in potatoes, greens, meat, fish etc. Healthy eating is best.

cheri JOY 73. (NZ)

[Scaredy_cat]

if you find the ferrous sulphate troublesome, yoou may find ferrous fumarate kinder which is what my haematologist prescribed

[Wyebird]

hi, what was your haemoglobin? My problem was I couldn’t take iron tablets because for some stupid reason I carry too much Ferritin!! My haemoglobin went down to 93. I felt awful. Yet others have to go through life with it lower.

I do hope the tablets help you.