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Sickle-cell anaemia
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Five weeks on increased dose of levo. Not sure if dipping again already
Morning😀 So after three months on 50mg levo, I was put up to 75mg and have been on that for five weeks. I started to feel better again after a week or so, got my energy back… and now, the last two days I’ve felt so tired again. Bit headachey, have been suffering a bit of shortness of breath which never
Morning😀 So after three months on 50mg levo, I was put up to 75mg and have been on that for five weeks. I started to feel better again after a week or so, got my energy back… and now, the last two days I’ve felt so tired again. Bit headachey, have been suffering a bit of shortness of breath which never
Loopnova
in
Thyroid UK
3 years ago
Has anyone tried methyl cobalamin for injection from India, japan and Malaysia?
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
In these countries methylcobalamine is sold in supermarket. Indian methylcobalamine is so cheap and look like they have proper certificates for quality assurance. In the meantime there are some facilitators for continuous delivery of hydroxocobalamin which are so cheap and work like insulin pump work
Hamayeshguy
in
Pernicious Anaemia Society
2 years ago
ALT & ALK exceptionally HIGH. Feeling very very anxious.
Hi, New here - this is my first post - hope all is OK. My ALT & Alk. Phos blood test have, ‘gone thru the roof’! I have been having monthly blood checks on the liver since April last year – numbers slowly reducing. My last monthly LFT was end of October, 2021 results being at the high end of normal -
Hi, New here - this is my first post - hope all is OK. My ALT & Alk. Phos blood test have, ‘gone thru the roof’! I have been having monthly blood checks on the liver since April last year – numbers slowly reducing. My last monthly LFT was end of October, 2021 results being at the high end of normal -
blaisepascal
in
British Liver Trust
3 years ago
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Low iron and ferritin levels?
I have low iron. My HB is 9 and my ferritin levels are just 4. I also have many vitamin b12 and folate deficiency symptoms but my GP says my levels are fine and within the normal range. Vit b12 is 319 (range on the report was 197-771) and Folate is 5.9. Does anyone know if these deficiencies all go hand
I have low iron. My HB is 9 and my ferritin levels are just 4. I also have many vitamin b12 and folate deficiency symptoms but my GP says my levels are fine and within the normal range. Vit b12 is 319 (range on the report was 197-771) and Folate is 5.9. Does anyone know if these deficiencies all go hand
rustydog
in
Pernicious Anaemia Society
2 years ago
How soon to have B12 injections?
Hello, I have just been told I likely have pernicious anaemia and need to have B12 injections. I’ve booked in my first B12 jabs in a few weeks time. I was told waiting a couple of weeks should be fine and it doesn’t need to be any sooner as I dont have neurological symptoms yet. However i thinks I
Hello, I have just been told I likely have pernicious anaemia and need to have B12 injections. I’ve booked in my first B12 jabs in a few weeks time. I was told waiting a couple of weeks should be fine and it doesn’t need to be any sooner as I dont have neurological symptoms yet. However i thinks I
sandiuy
in
Pernicious Anaemia Society
2 years ago
B12 level
Hi I’ve posted on here the other day to say I had left it 6 weeks in between my B12 jab instead of 4 weeks and have had a horrible week of symptoms, I went yesterday to have my B12 administered and asked my practitioner ( I have to have them done privately ) would she do a blood test before my Jab to
Hi I’ve posted on here the other day to say I had left it 6 weeks in between my B12 jab instead of 4 weeks and have had a horrible week of symptoms, I went yesterday to have my B12 administered and asked my practitioner ( I have to have them done privately ) would she do a blood test before my Jab to
Hidden
in
Pernicious Anaemia Society
3 years ago
IFab or MMA
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Hello I am trying to investigate low active b12 results (at the low end of the reference range). Am I better to organise a private iFab test or an MMA test? Medichecks suggested MMA but is iFab better? My mum didn’t get diagnosed with PA with low intrinsic factor until she was very severely disabled
Sparklyjenson
in
Pernicious Anaemia Society
3 years ago
Why in Dutch guideline for PA and B12 deficiency emphasis is just on IM injection and SC injection not mentioned?
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
Should I have been tested for PA before starting loading doses?
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
Hi everyone, I'm currently on my loading doses and have a sneaking worry that my treatment/investigatons into PA aren't as efficient as I'd previously thought - I'd appreciate some advice as I sometimes find the clinical information online very complicated/contradicting. Firstly they will only give me
franrose
in
Pernicious Anaemia Society
2 years ago
Low Folate - Pernicious Anemia?
Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my b12 is 877ng/L. My Serum Folate was 6.5 back in october and in the following 3 months dropped to 2.7mg/mL and wasnt treat in october it was considered
Hi, I was diagnosed with pernicious anemia in October and had the B12 loading doses - i also took 1000mcg a day sublingual following that and 3 month later my b12 is 877ng/L. My Serum Folate was 6.5 back in october and in the following 3 months dropped to 2.7mg/mL and wasnt treat in october it was considered
Minimanic
in
Pernicious Anaemia Society
3 years ago
Questions re B12 injections and long term use of prescribed folic acid
Have been advised by members in the thyroid community to ask this question of yourselves. I have been fighting for years with GP's re my Hashimoto's and my pernicious anaemia. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at
Have been advised by members in the thyroid community to ask this question of yourselves. I have been fighting for years with GP's re my Hashimoto's and my pernicious anaemia. I have been taking 5mg folic acid and have done for many years along with 3 monthly B12 injections. I continually ask for at
mill44
in
Pernicious Anaemia Society
3 years ago
Transdermal patch with microneedle technology related article
I found an article regarding transdermal patch with microneedle technology. https://link.springer.com/article/10.1007/s40005-021-00512-4 A promising technology to deliver medication in most effective, continuous and bioavailability fashion but there are some hurdles which must be eradicated first. I
I found an article regarding transdermal patch with microneedle technology. https://link.springer.com/article/10.1007/s40005-021-00512-4 A promising technology to deliver medication in most effective, continuous and bioavailability fashion but there are some hurdles which must be eradicated first. I
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
Can you help me interpret?
This was on a CDC handout that an immunologist friend gave me regarding vaccines. Does this mean we have to stop our ibrutinib, for example, two weeks before the vaccine ? or two weeks before and two weeks after we get the vaccine or booster? Quote: “Whenever possible, COVID-19 vaccines should be
This was on a CDC handout that an immunologist friend gave me regarding vaccines. Does this mean we have to stop our ibrutinib, for example, two weeks before the vaccine ? or two weeks before and two weeks after we get the vaccine or booster? Quote: “Whenever possible, COVID-19 vaccines should be
ElMaga
in
CLL Support
3 years ago
Migraine Medication and Blood Pressure Medication
Hello Everyone. I have been having neck pain along with dizziness. I was referred to a neurologist who thinks that I'm suffering from migraines. He gave me ubrelvy Medication to take while in the office and prescription for Ubrelvy 100 mg. It took away the neck pain but it also knocked me out for
Hello Everyone. I have been having neck pain along with dizziness. I was referred to a neurologist who thinks that I'm suffering from migraines. He gave me ubrelvy Medication to take while in the office and prescription for Ubrelvy 100 mg. It took away the neck pain but it also knocked me out for
MightyMay
in
Thyroid UK
2 years ago
Venetoclax and calquence combo for Cll
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
smirnof
in
CLL Support
3 years ago
Hello everyone and thank you for allowing me to join today and help me in my journey being newly diagnosed with pernicious anemia
Are the injections painful ? How long till I feel better? Thanks Loveslife123
Are the injections painful ? How long till I feel better? Thanks Loveslife123
Loveslife123
in
Pernicious Anaemia Society
2 years ago
Numbness in hands and in face.
Does anyone know if the numbness,I have in my hands and in my face near my mouth could be a,symptom of folate deficiency or pernicious anaemia. Any advice strongly welcomed as it's really starting to worry me now and my heart rate was at 150bpm last night.
Does anyone know if the numbness,I have in my hands and in my face near my mouth could be a,symptom of folate deficiency or pernicious anaemia. Any advice strongly welcomed as it's really starting to worry me now and my heart rate was at 150bpm last night.
sobs1962
in
Thyroid UK
3 years ago
Assistance with Potential misdiagnosis.
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
Hi All, I was unsure where to turn and you guys are my last hope! In July 2020 I was diagnosed with MS ( Multiple Sclerosis ) due to having some numbness and tingling in legs and foot and cognitive problems ( forgetful and thinking issues ) and extreme fatigue. I then had an MRI which revealed lesions
smileysammi
in
Pernicious Anaemia Society
3 years ago
What will 2022 bring?
I wanted to be able to feel more positive for 2022 and wish people a happy new year. But after watching the news last night (never do this before bed!) I can feel the fear and anxiety building again after having my family safely at home for the past couple of weeks. Lack of availability on LFD and PCR
I wanted to be able to feel more positive for 2022 and wish people a happy new year. But after watching the news last night (never do this before bed!) I can feel the fear and anxiety building again after having my family safely at home for the past couple of weeks. Lack of availability on LFD and PCR
MWxxxx
in
MPN Voice
3 years ago
Iron question
Hi all. I was reading a recently cited Mayo Clinic paper, and it stated that "A common oral iron regimen [for RLS] is 325 mg of ferrous sulfate (65 mg elemental iron) ..." I've been taking two 25-mg capsules (every two days) of Ferrous Bisglycinate Chelate (the Ferrochel trademarked brand, marketed
Hi all. I was reading a recently cited Mayo Clinic paper, and it stated that "A common oral iron regimen [for RLS] is 325 mg of ferrous sulfate (65 mg elemental iron) ..." I've been taking two 25-mg capsules (every two days) of Ferrous Bisglycinate Chelate (the Ferrochel trademarked brand, marketed
Dougg
in
Restless Legs Syndrome
3 years ago
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