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NICE: Teprotumumab for treating thyroid eye disease ID 6432 - being scoped
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
helvella
Thyroid UK
in
Thyroid UK
3 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
PV & Gene Editing for Sickle cell anemia
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
Has anyone been following the latest news on treatment for sickle cell anemia? Since many of us are treated with hydroxyurea which is approved for sickle cell anemia, I was wondering if this may be in our future? "The F.D.A. approved the first gene editing therapy ever, for sickle cell disease, a debilitating
ERei
in
MPN Voice
8 months ago
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Anyone’s thoughts on milk thistle?https://thyroidpatients.ca/2022/01/16/milk-thistle-thyroid-transport/amp/
I am on a hormone group someone has shared this I’ve been using milk thistle organic oil orally with vitamin e it doesn’t seem to have had any negative effects on myself thankyou in advance
I am on a hormone group someone has shared this I’ve been using milk thistle organic oil orally with vitamin e it doesn’t seem to have had any negative effects on myself thankyou in advance
Joannak
in
Thyroid UK
10 months ago
Should I switch SSRIs?
Hi all, I’ve been on sertraline for around 14 years on varying dosages. Most recently I was on 150mg, but over the past few weeks I’ve been coming down and I’m now on 50mg, in preparation for a switch to Paroxetine. I take sertraline as I was originally diagnosed with OCD and also had an eating disorder
Hi all, I’ve been on sertraline for around 14 years on varying dosages. Most recently I was on 150mg, but over the past few weeks I’ve been coming down and I’m now on 50mg, in preparation for a switch to Paroxetine. I take sertraline as I was originally diagnosed with OCD and also had an eating disorder
Griffo_
in
Thyroid UK
1 year ago
A case study post bariatric surgery
For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case. (Don't get too excited! It is just another case where the origination of the problem doesn't get blamed. As I see it, the cause was iatrogenic and
For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case. (Don't get too excited! It is just another case where the origination of the problem doesn't get blamed. As I see it, the cause was iatrogenic and
helvella
in
Pernicious Anaemia Society
1 year ago
The Railway Worker
Please DO NOT READ if you are a bit squeamish. On 13 September 1848, a young man called Phineas Gage was at work in Vermont. He was an ‘efficient and capable’ railroad construction foreman and on that day was making roadbeds. The process involved using explosive powder and compressing it with an iron
Please DO NOT READ if you are a bit squeamish. On 13 September 1848, a young man called Phineas Gage was at work in Vermont. He was an ‘efficient and capable’ railroad construction foreman and on that day was making roadbeds. The process involved using explosive powder and compressing it with an iron
Narwhal10
in
Pernicious Anaemia Society
3 hours ago
These are my Iron levels - have RLS but also Parkinson's
My original post was https://healthunlocked.com/rlsuk/posts/150970580/low-iron-rls-but-also-with-parkinsons If you remember I had had a test for iron done on 30th May (ferritin only) which came back as Serum ferritin level 15 ng/mL [10.0 - 180.0] So I requested and got another test for Iron, (this
My original post was https://healthunlocked.com/rlsuk/posts/150970580/low-iron-rls-but-also-with-parkinsons If you remember I had had a test for iron done on 30th May (ferritin only) which came back as Serum ferritin level 15 ng/mL [10.0 - 180.0] So I requested and got another test for Iron, (this
Jess123dog
in
Restless Legs Syndrome
4 hours ago
Does anyone have a weak heart and fast heartbeat, physical anxiety feeling, as their main low b12 symptom?
I sometimes get a feeling of weak heart and uncomfortable chest, too fast heartbeat, and a feeling like physical anxiety in my stomach/heart while mentally feeling completely calm so it's definitely a physically caused thing. My heart area feels uncomfortable and it makes sleep very difficult. I also
I sometimes get a feeling of weak heart and uncomfortable chest, too fast heartbeat, and a feeling like physical anxiety in my stomach/heart while mentally feeling completely calm so it's definitely a physically caused thing. My heart area feels uncomfortable and it makes sleep very difficult. I also
Carrie234
in
Pernicious Anaemia Society
2 days ago
Excess Folic Acid and Vitamin B12 Deficiency: Clinical Implications?
This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12 deficiency with folic acid. But, in the more speculative parts, I think it does raise questions over the prescribing of high dose (e.g. 5 milligrams a day) of folic acid in those who are currently low in
This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12 deficiency with folic acid. But, in the more speculative parts, I think it does raise questions over the prescribing of high dose (e.g. 5 milligrams a day) of folic acid in those who are currently low in
helvella
in
Pernicious Anaemia Society
2 days ago
vitamin dose timings?
Hello again, I posted recently about my Mum who has early dementia and lifelong RLS now augmented after about 12y of ropinerole. We are trying to get her an appointment with Prof W but earliest is late Sept. So in the meantime I want to get her to try Mg, B complex and gentle iron (9mth ago Ferritin
Hello again, I posted recently about my Mum who has early dementia and lifelong RLS now augmented after about 12y of ropinerole. We are trying to get her an appointment with Prof W but earliest is late Sept. So in the meantime I want to get her to try Mg, B complex and gentle iron (9mth ago Ferritin
SunnyJim100
in
Restless Legs Syndrome
3 days ago
Update.
Apologies for the silence. I have had quite an eventful few months. My former partner served me with a court order to sell the house which threw me somewhat. That on top of trying to deal with the loss of my mother and stepfather in quick succession sent me down a dark path. I have had counselling and
Apologies for the silence. I have had quite an eventful few months. My former partner served me with a court order to sell the house which threw me somewhat. That on top of trying to deal with the loss of my mother and stepfather in quick succession sent me down a dark path. I have had counselling and
Jacksc06
in
CLL Support
3 days ago
Help Please! How Do I Fit 2 Doses Of NDT & Vitamin Supplements + Iron In My Day Without Negative Interactions?
Advice would be greatly appreciated in how I can fit all this in without one thing affecting another. I take NDT am and pm (afternoon), Vitamins with dinner and Iron/C before bed, but taking Iron this late is affecting my sleep and stomach. I have difficulty enough sleeping properly. I don't know the
Advice would be greatly appreciated in how I can fit all this in without one thing affecting another. I take NDT am and pm (afternoon), Vitamins with dinner and Iron/C before bed, but taking Iron this late is affecting my sleep and stomach. I have difficulty enough sleeping properly. I don't know the
MindfulMoments
in
Thyroid UK
4 days ago
another iron infusion? and low ALT level
Hello, dear RLS friends! I would really appreciate your advice regarding my mother's ferritin levels. So she is currently on 0.375 mg (some days up to 0.5 mg) and 900 mg neurontin. I know DAs are not optimal, but at this point it would really be a problem to withdraw, especially that mom did start with
Hello, dear RLS friends! I would really appreciate your advice regarding my mother's ferritin levels. So she is currently on 0.375 mg (some days up to 0.5 mg) and 900 mg neurontin. I know DAs are not optimal, but at this point it would really be a problem to withdraw, especially that mom did start with
daisydaisy26
in
Restless Legs Syndrome
5 days ago
Intrinsic Factor (IF) Antibodies testing while on B12
Hello folks - If someone has IF Antibodies and is taking b12 ...would that affect an IF and IF Antibodies blood test..? I dont think it should - as if you have errosive gastritis / malabsorbtion issues etc, you got them...and the B12 wont improve that in any way...? Thanks lovely PA folks
Hello folks - If someone has IF Antibodies and is taking b12 ...would that affect an IF and IF Antibodies blood test..? I dont think it should - as if you have errosive gastritis / malabsorbtion issues etc, you got them...and the B12 wont improve that in any way...? Thanks lovely PA folks
Treesong2023
in
Pernicious Anaemia Society
5 days ago
Cofactors - B complex?
should I be starting on a B complex? I had iron infusion end of May and have been on EOD B12 injections since then. I am also taking folic acid 5mg every day and a spray vitamin D & K. I have been reading that some people take a B complex, but the one I saw also has folate in it and don’t want to
should I be starting on a B complex? I had iron infusion end of May and have been on EOD B12 injections since then. I am also taking folic acid 5mg every day and a spray vitamin D & K. I have been reading that some people take a B complex, but the one I saw also has folate in it and don’t want to
Chickens44
in
Pernicious Anaemia Society
6 days ago
Diet and B vitamins
Hello, I take a daily supplement dose of plant based vitamin B12 Complex and try to eat a range of foods that are healthy. I drink alcohol - maybe 5 units four/five times a week and I read that maybe I should take additional B vitamins to cover myself against there being insufficient to counteract this
Hello, I take a daily supplement dose of plant based vitamin B12 Complex and try to eat a range of foods that are healthy. I drink alcohol - maybe 5 units four/five times a week and I read that maybe I should take additional B vitamins to cover myself against there being insufficient to counteract this
Fishing_fred
in
Healthy Eating
7 days ago
After some B12 advice following results
Hi everyone, thanks in advance for reading. These sites and forums have been so useful since having found out I was deficient in a few things a few months ago. Following a blood test, it showed I had low B12, deficient in Folate and Vit D and low iron, but not deficient. This topic was not one I knew
Hi everyone, thanks in advance for reading. These sites and forums have been so useful since having found out I was deficient in a few things a few months ago. Following a blood test, it showed I had low B12, deficient in Folate and Vit D and low iron, but not deficient. This topic was not one I knew
BlackberryJam
in
Pernicious Anaemia Society
8 days ago
Help with self-injecting
Hi everyone. As scared as I am to think of self-injecting, I finally placed an order for B12 ampoules today. (Thanks, Wedgewood for the info!) I have injections every eight weeks but like clockwork at four weeks in, I always have trouble while out on walks, feel like I am going to fall over
Hi everyone. As scared as I am to think of self-injecting, I finally placed an order for B12 ampoules today. (Thanks, Wedgewood for the info!) I have injections every eight weeks but like clockwork at four weeks in, I always have trouble while out on walks, feel like I am going to fall over
rubyone
in
Pernicious Anaemia Society
10 days ago
Tolterodine.
Have recently had prostate surgery and on follow up with surgeon,been told I have Overactive Bladder (OAB)and been prescribed Tolterodine.Checked on HealthUnlocked Bladder site but they only discuss whether it works for bladder problem.Will it have any affect on my RLS?
Have recently had prostate surgery and on follow up with surgeon,been told I have Overactive Bladder (OAB)and been prescribed Tolterodine.Checked on HealthUnlocked Bladder site but they only discuss whether it works for bladder problem.Will it have any affect on my RLS?
Lambretta175
in
Restless Legs Syndrome
11 days ago
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