Search
Search
About
Log in
Join
Experiences with
Sickle-cell anaemia
Posts
Communities
8,357 public posts
Filter results
Brain iron vs Blood iron
Has anyone read that in RLS patients brain iron can be lower than indicated by blood measurements? I read a study out of Quebec about the gene we carry causing a malformation in the brain that makes it harder to uptake the iron.... So blood levels are not accurate in showing brain anemia. My RLS totally
Has anyone read that in RLS patients brain iron can be lower than indicated by blood measurements? I read a study out of Quebec about the gene we carry causing a malformation in the brain that makes it harder to uptake the iron.... So blood levels are not accurate in showing brain anemia. My RLS totally
SkyCop
in
Restless Legs Syndrome
2 years ago
Bone Marrow Transplant
A wonderful uplifting post to read first thing in the morning. You've made my day!
A wonderful uplifting post to read first thing in the morning. You've made my day!
Sivasi
in
MPN Voice
1 year ago
Vit B and Ferritin levels
So had my FBC, Vit B and "iron" tests yesterday. Turns out they only tested Ferritin for iron, but I've got a full anaemia panel with MMH to complete this morning for a full picture. Now to play the waiting game and see what the GP decides to tell me 🙄 Edit: had a text from my surgery to let me know
So had my FBC, Vit B and "iron" tests yesterday. Turns out they only tested Ferritin for iron, but I've got a full anaemia panel with MMH to complete this morning for a full picture. Now to play the waiting game and see what the GP decides to tell me 🙄 Edit: had a text from my surgery to let me know
dizzyarmadillo
in
Thyroid UK
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
BONE MARROW TRANSPLANT
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
kevinbros
in
MPN Voice
1 year ago
Recent test results related to current Covid-19
If anyone is interested, posting recent experience Had 3 Pfizer and two Moderna Vaccines, made zero antibodies. Was on ibrutinib during all vaccines Had full dose Evusheld March 1st, seven weeks later had 740 antibodies Infected with covid July 21, got Bebtelovimab July 22nd. Took 80 days to rapid
If anyone is interested, posting recent experience Had 3 Pfizer and two Moderna Vaccines, made zero antibodies. Was on ibrutinib during all vaccines Had full dose Evusheld March 1st, seven weeks later had 740 antibodies Infected with covid July 21, got Bebtelovimab July 22nd. Took 80 days to rapid
Davidcara
in
CLL Support
2 years ago
High Vitamin B12 level
In the last year, the level of vitamin B12 in my blood has risen to 651.0 pg/ml; (ref. 183.3 - 505.0 pg/ml). Other parameters are basically fine FT-3 4.15 pmol/l; (ref. 3.5-6.5) Ferritin 6.96 μg/l; (ref <300) Folic acid 5.02 ng/ml; (ref. 2.0-20.0) Vitamin D3 18.76 ng/ml. (ref. 10-75) Iron 4 µmol
In the last year, the level of vitamin B12 in my blood has risen to 651.0 pg/ml; (ref. 183.3 - 505.0 pg/ml). Other parameters are basically fine FT-3 4.15 pmol/l; (ref. 3.5-6.5) Ferritin 6.96 μg/l; (ref <300) Folic acid 5.02 ng/ml; (ref. 2.0-20.0) Vitamin D3 18.76 ng/ml. (ref. 10-75) Iron 4 µmol
megim71
in
Thyroid UK
2 years ago
Which Covid booster should I be given? (Ended up being rushed into hospital 2 1/2 hours after last Pfizer one as I couldn't walk)
I am diabetic type 2, asthmatic, suffer Uti's , and a distended stomach and been in hospital 4 times in the last year with suspected heart problems and had heart monitor implanted, so most concerned about Covid booster. Have written to surgery but no reply as yet. Is there more than 1 booster
I am diabetic type 2, asthmatic, suffer Uti's , and a distended stomach and been in hospital 4 times in the last year with suspected heart problems and had heart monitor implanted, so most concerned about Covid booster. Have written to surgery but no reply as yet. Is there more than 1 booster
DancingBonny
in
PMRGCAuk
2 years ago
test interpretation
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
DianeSH
in
CLL Support
2 years ago
Slightly raised ferritin, any advice please
Iron 31.0 (5.8-34.5)TIBC 51.3 (45-81) UIBC 20.6 (24.2-70.1) Transferring saturation 60.6 (20-50) Ferritin 203 (13-150) Crp 4.15 (0-5) Can I ask your advice please? As advised on here a few months ago I rechecked my iron levels in December, hoping to have some reason for continuing ectopic heartbeats.
Iron 31.0 (5.8-34.5)TIBC 51.3 (45-81) UIBC 20.6 (24.2-70.1) Transferring saturation 60.6 (20-50) Ferritin 203 (13-150) Crp 4.15 (0-5) Can I ask your advice please? As advised on here a few months ago I rechecked my iron levels in December, hoping to have some reason for continuing ectopic heartbeats.
Baggiesfan
in
Thyroid UK
2 years ago
iron related help
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
Racheeeel78
in
Thyroid UK
2 years ago
blood test results help! Haemoglobin, RBC low but iron in range?
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
hi there I just received my blood test results and my Haemoglobin, RBC and HCT were slightly lower than guidelines but my full iron panel came back in range. Spoke to GP who said she isn’t worried and to eat iron rich food and a multivitamin & to test again in 3 months. My ferritin is 49 but rest of
Racheeeel78
in
Pernicious Anaemia Society
2 years ago
Help with iron panel results please
Hi, I had an iron panel done in July following years of trying to get iron levels up with Ferrous Fumarate, without any luck. Results attached. On consultation with my GP we agreed for me to try a Mirena coil. However leading up to the date for inserting this I freaked about the actual procedure and
Hi, I had an iron panel done in July following years of trying to get iron levels up with Ferrous Fumarate, without any luck. Results attached. On consultation with my GP we agreed for me to try a Mirena coil. However leading up to the date for inserting this I freaked about the actual procedure and
Northlondonmummy
in
Thyroid UK
2 years ago
List of all types of injectable vitamin B12 available from German online pharmacies
Admin Edit: Please note that the PAS (who sponsor this forum) does not promote self-injection but it does recognise that some people feel forced to go down this route to avoid the risks from undertreatment. Exchange of information on where to obtain save injections is allowed on the forum to prevent
Admin Edit: Please note that the PAS (who sponsor this forum) does not promote self-injection but it does recognise that some people feel forced to go down this route to avoid the risks from undertreatment. Exchange of information on where to obtain save injections is allowed on the forum to prevent
Lunario
in
Pernicious Anaemia Society
2 years ago
High Dose Niacin (Nicotinic Acid) and Hashimoto's?
Update 01/22/2023: I just learned there is an increased risk of diabetes on niacin therapy: https://heart.bmj.com/content/102/3/198 This study was based on people taking Niacin for cardiovascular reasons, which I think would be dosed at 500 to 6000 mg a day: https://www.mayoclinic.org/drugs-supplements
Update 01/22/2023: I just learned there is an increased risk of diabetes on niacin therapy: https://heart.bmj.com/content/102/3/198 This study was based on people taking Niacin for cardiovascular reasons, which I think would be dosed at 500 to 6000 mg a day: https://www.mayoclinic.org/drugs-supplements
Bolt_Upright
in
Thyroid UK
2 years ago
Back to Square One.
So my ESR has gone from 8 to52 and CRP has gone from 6 to 20 since August last blood test. I'm back on 30 mg pred and due more tests. GP hopes that the symptoms I am suffering from including collapsing legs, pain in lower ribs and back plus loss of balance might now improve. Amen to that because I have
So my ESR has gone from 8 to52 and CRP has gone from 6 to 20 since August last blood test. I'm back on 30 mg pred and due more tests. GP hopes that the symptoms I am suffering from including collapsing legs, pain in lower ribs and back plus loss of balance might now improve. Amen to that because I have
cycli
in
PMRGCAuk
2 years ago
Intrinsic Factor Test
Hi Community :) For the last 3 years, I've had increasing numbness and burning pins and needles, headaches, fatigue, brain fog, and have been shedding weight. My GP has had me tested for MS (MRI scan says "no") and Neurology have diagnosed "funtional neurological disorder - FND". I then researched
Hi Community :) For the last 3 years, I've had increasing numbness and burning pins and needles, headaches, fatigue, brain fog, and have been shedding weight. My GP has had me tested for MS (MRI scan says "no") and Neurology have diagnosed "funtional neurological disorder - FND". I then researched
Sean2310
in
Pernicious Anaemia Society
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
lankisterguy
Volunteer
in
CLL Support
2 years ago
Low B12/Folate Symptoms
I had just started taking B12 drops to help with low B12 levels - 249 when my consultant decieded to take another test - I requested a print out of this latest B12 test - this was taken ten days after I had started the B12 drops when the level was 249 - and is now - 18/10/22 B12 Vitamin B12 - 567
I had just started taking B12 drops to help with low B12 levels - 249 when my consultant decieded to take another test - I requested a print out of this latest B12 test - this was taken ten days after I had started the B12 drops when the level was 249 - and is now - 18/10/22 B12 Vitamin B12 - 567
Lemondrizz1
in
Pernicious Anaemia Society
2 years ago
Another COVID Monoclonal to watch - especially in the UK and EU
https://www.prnewswire.co.uk/news-releases/exevir-bio-forges-ahead-with-unique-next-generation-covid-19-therapy-and-appoints-dr-jeanne-bolger-as-chair-of-the-board-of-directors-301654011.html [i]
ExeVir Bio Forges Ahead with Unique Next Generation COVID-19 Therapy and Appoints Dr. Jeanne Bolger as
https://www.prnewswire.co.uk/news-releases/exevir-bio-forges-ahead-with-unique-next-generation-covid-19-therapy-and-appoints-dr-jeanne-bolger-as-chair-of-the-board-of-directors-301654011.html [i]
ExeVir Bio Forges Ahead with Unique Next Generation COVID-19 Therapy and Appoints Dr. Jeanne Bolger as
SeymourB
in
CLL Support
2 years ago
FAINTS/COLLAPSES WITH HYPOTHYROIDISM?
I have been on levothyroxine since the 1980s, and last year I experienced various fainting issues in 2021 (see bio). I would be grateful for any advice anyone can offer. In August 2022, on the Saturday of the long extreme heatwave I got up at 6.30 much earlier than normal to open all windows and
I have been on levothyroxine since the 1980s, and last year I experienced various fainting issues in 2021 (see bio). I would be grateful for any advice anyone can offer. In August 2022, on the Saturday of the long extreme heatwave I got up at 6.30 much earlier than normal to open all windows and
JigsawJill
in
Thyroid UK
2 years ago
1
...
64
65
66
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
3540 results
Thyroid UK
2438 results
MPN Voice
363 results
View top 10 communities
Sort by
Most Relevant
Newest