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stem cell for et?
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Would stem cell transplant be an option for ET? I cannot take the Hydrea or Anagralide. Thanks for your feed back
Preacherswife
in
MPN Voice
5 months ago
Anybody left with servere virtigo after covid ?
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
Jillymo
in
Pernicious Anaemia Society
9 months ago
Megloblastic anemia again
Hi, all. I recently went through a severe sickness that lasted 4 weeks. It was really hard on my body. I got blood tests done every week. I usually do 2 injections of b12 per week for past 6 months. During my sickness I only did 2 out 8 shots. My last 2 blood tests showed megloblastic anemia. Could
Hi, all. I recently went through a severe sickness that lasted 4 weeks. It was really hard on my body. I got blood tests done every week. I usually do 2 injections of b12 per week for past 6 months. During my sickness I only did 2 out 8 shots. My last 2 blood tests showed megloblastic anemia. Could
Iheartb12
in
Pernicious Anaemia Society
1 year ago
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Help with test results - haemochromatosis with iron deficiency?
A few years ago I regularly had blood tests which showed high iron levels so my doc suspected Haemochromatosis. I had the genetic testing which showed I had the gene mutation. I used to get blood drawn to treat it and bring down my iron levels. However, recently I had blood tests which showed low ferritin
A few years ago I regularly had blood tests which showed high iron levels so my doc suspected Haemochromatosis. I had the genetic testing which showed I had the gene mutation. I used to get blood drawn to treat it and bring down my iron levels. However, recently I had blood tests which showed low ferritin
tnefeh
in
Pernicious Anaemia Society
7 months ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
5 months ago
blue fingers when in hot bath??
Has anyone else had this? It happen to my toes when I was in the shower the other day too. I don’t know if it’s Raynauds or my low ferritin/anemia or what. About to go for a colonoscopy this week for the anemia and a high positive FIT test but I can’t see it being linked to that.
Has anyone else had this? It happen to my toes when I was in the shower the other day too. I don’t know if it’s Raynauds or my low ferritin/anemia or what. About to go for a colonoscopy this week for the anemia and a high positive FIT test but I can’t see it being linked to that.
Newfylady
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
Advice needed on iron levels (plus an update on Targinact)
Hi everyone, I posted recently asking for advice about Targinact, which I started taking on 10 January. I had such an extreme and horrible reaction that I stopped taking it 15 days later. Given my dose was only 5/2.5mg daily, I haven't had any withdrawal issues other than feeling very tired and depressed
Hi everyone, I posted recently asking for advice about Targinact, which I started taking on 10 January. I had such an extreme and horrible reaction that I stopped taking it 15 days later. Given my dose was only 5/2.5mg daily, I haven't had any withdrawal issues other than feeling very tired and depressed
Claire_lc
in
Restless Legs Syndrome
7 months ago
Testing for Intrinsic Factor - borderline results
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Hello to you all on this precious platform, thank you for saving my sanity on many occasions. I was diagnosed with pernicious anemia 10 years ago. My elder sister, following a lengthy battle with her GP was diagnosed a couple of years ago and given loading doses followed by 8 week top-ups. We both
Discombobulated247
in
Pernicious Anaemia Society
9 months ago
SCT journey update No.2
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
LFCLove
in
MPN Voice
5 months ago
Blood results help please
After my recent GP visit and waiting for several months, I finally have my blood results. It wasn't an easy one though. After a terrible GP apt where I was constantly interrupted and made feel like I'm wasting her time, where she has told me that all hypothyroidism is Hashimotos and refusing to check
After my recent GP visit and waiting for several months, I finally have my blood results. It wasn't an easy one though. After a terrible GP apt where I was constantly interrupted and made feel like I'm wasting her time, where she has told me that all hypothyroidism is Hashimotos and refusing to check
bajmon
in
Thyroid UK
1 year ago
Ferritin levels
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
I have collected my blood test results and am looking for information before my g.p. follow up appointment tomorrow.I am under the impression that ferritin levels should be "optimum" in order for my B12 injections to work for pernicious anaemia. Although I've been told all of my blood results are "normal
Suesue246
in
Pernicious Anaemia Society
9 months ago
New PAS blog posts
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Hi, I noticed that there were recent blog posts on PAS (Pernicious Anaemia Society) website. From 8th Nov 2023 is "The Patient Experience in Diagnosis and Treatment of Autoimmune Gastritis and Pernicious Anaemia" https://pernicious-anaemia-society.org/blog/the-patient-experience-in-diagnosis-and-treatment-of-autoimmune-gastritis-and-pernicious-anaemia
Sleepybunny
in
Pernicious Anaemia Society
9 months ago
My low ferritin saga continues
Following on from my post a few weeks ago https://healthunlocked.com/thyroiduk/posts/150411438/low-ferritin-again - apologies for not posting results etc but ended up dealing with bit of a family crisis and then the GP surgery rang saying a doc wanted to discuss my blood results of mid-November! I've
Following on from my post a few weeks ago https://healthunlocked.com/thyroiduk/posts/150411438/low-ferritin-again - apologies for not posting results etc but ended up dealing with bit of a family crisis and then the GP surgery rang saying a doc wanted to discuss my blood results of mid-November! I've
Rollercoaster44
in
Thyroid UK
7 months ago
Low iron
I have an iron count of between 29 and 33 from 2021 to now on a range of 11-360. For the last six months I've been taking a supplement to boost the serum iron level and the level has dropped from 33 to 31. I think I'm anaemic for symptomatic reasons. I SI EOD and have done for a year. My health is beginning
I have an iron count of between 29 and 33 from 2021 to now on a range of 11-360. For the last six months I've been taking a supplement to boost the serum iron level and the level has dropped from 33 to 31. I think I'm anaemic for symptomatic reasons. I SI EOD and have done for a year. My health is beginning
Orchard33
in
Pernicious Anaemia Society
7 months ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
5 months ago
Starting B12 injections, how often?
Hello everybody, I will be receiving my first B12 injection next week. My blood test results were as follows folate 3.4ug/L, ferritin 19.9ug/L and B12 218ug/L before any medication. I started on iron and folate tablets a week ago. What I'm wondering is how often should I be getting the B12 injection
Hello everybody, I will be receiving my first B12 injection next week. My blood test results were as follows folate 3.4ug/L, ferritin 19.9ug/L and B12 218ug/L before any medication. I started on iron and folate tablets a week ago. What I'm wondering is how often should I be getting the B12 injection
Sotired3
in
Pernicious Anaemia Society
1 year ago
Folic Acid does not cause PA
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
MEguy
in
Thyroid UK
10 months ago
Hubby Update - B12D Lanzoprazole
Hi Guys Thank you all in advance. Update on hubby. To remind you of his background, two stents in 2018. He has heart disease due to genetics not lifestyle. He doesn’t drink excessively or smoke, has a bit more tum than in his youth but still does a physical job as a builder. He’s been on a low
Hi Guys Thank you all in advance. Update on hubby. To remind you of his background, two stents in 2018. He has heart disease due to genetics not lifestyle. He doesn’t drink excessively or smoke, has a bit more tum than in his youth but still does a physical job as a builder. He’s been on a low
Wwwdot
in
Pernicious Anaemia Society
1 year ago
B12 deficiency and gastrointestinal (GI) upset
Many people with B12 deficiency mention gastrointestinal (GI) upset. I came across a brief article that discusses some aspects of this relationship. https://pubmed.ncbi.nlm.nih.gov/34454714/ The article introduction includes the following statement: "To date, clinical guidance for best practices related
Many people with B12 deficiency mention gastrointestinal (GI) upset. I came across a brief article that discusses some aspects of this relationship. https://pubmed.ncbi.nlm.nih.gov/34454714/ The article introduction includes the following statement: "To date, clinical guidance for best practices related
WiscGuy
in
Pernicious Anaemia Society
10 months ago
Polyps found in Endoscopy
Hi, can anyone advise on polops found Endoscopy. Have Auto immune atrophic gastritis with metaplasia, thanks
Hi, can anyone advise on polops found Endoscopy. Have Auto immune atrophic gastritis with metaplasia, thanks
Bilbao
in
Pernicious Anaemia Society
10 months ago
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