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Sickle-cell anaemia
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Ferritin levels decreased despite iron supplement
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Hello In November I did a Monitor My Health Anaemia test, which showed: HB133g/L (normal) Ferritin 27ug/L (normal) TSAT 18% (normal) Active B12 47pmmol/L (normal) Folate 20ug/L (normal) In December my TSH at the GP was 1.01 (0.27 -4.2) Monitor My Health was TSH 1.19 (0.27-4.2) FT4 17 )12 -
Amtired
in
Thyroid UK
6 months ago
Iron study results help please
HiI had a ferritin test in November and posted my results here and got some help. My result then was low at 10.2ug/l I have since persuaded the doctor to do further tests for iron. Unfortunately she did not repeat ferritin but did an iron study results as follows Serum iron level 19 umol/L [9.0 - 30.4
HiI had a ferritin test in November and posted my results here and got some help. My result then was low at 10.2ug/l I have since persuaded the doctor to do further tests for iron. Unfortunately she did not repeat ferritin but did an iron study results as follows Serum iron level 19 umol/L [9.0 - 30.4
Cn13
in
Thyroid UK
6 months ago
HSCT early in MS
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
BettysMom
in
My MSAA Community
5 months ago
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Stem Cell transplant register search goes on…
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
LFCLove
in
MPN Voice
5 months ago
Serum Ferritin levels
I had a blood test last week and my serum ferritin level is 24 ug/L. It says the normal range is 10 to 291. As I have restless legs is this level ok or should I be taking iron tablets? It doesn’t mention my transferrin saturation numbers. Maybe if I call in at the doctors I could ask if they have
I had a blood test last week and my serum ferritin level is 24 ug/L. It says the normal range is 10 to 291. As I have restless legs is this level ok or should I be taking iron tablets? It doesn’t mention my transferrin saturation numbers. Maybe if I call in at the doctors I could ask if they have
Dibbydog
in
Restless Legs Syndrome
7 months ago
"Subacute" "Combined" spinal cord degeneration, decoded?
An ongoing question is the meaning of the initial terms of Subacute Combined Spinal Cord Degeneration. Jade recently posted a link to the article, "A Case of Subacute Combined Degeneration of Spinal Cord Diagnosed by Vitamin B12 Administration Lowering Methylmalonic Acid" I was grazing through the references
An ongoing question is the meaning of the initial terms of Subacute Combined Spinal Cord Degeneration. Jade recently posted a link to the article, "A Case of Subacute Combined Degeneration of Spinal Cord Diagnosed by Vitamin B12 Administration Lowering Methylmalonic Acid" I was grazing through the references
WiscGuy
in
Pernicious Anaemia Society
11 months ago
Update re: Total Confusion about Ferritin (Medichecks) Results!
As promised to Seaside Susie, and 6 months later, please see below response I've had from Medichecks. I'm just sad it didn't come in time for Seaside Susie to see that they had eventually listened to us! It is an improvement on the previous reference range for over 60yrs females but it raises more questions
As promised to Seaside Susie, and 6 months later, please see below response I've had from Medichecks. I'm just sad it didn't come in time for Seaside Susie to see that they had eventually listened to us! It is an improvement on the previous reference range for over 60yrs females but it raises more questions
Jazz80
in
Thyroid UK
7 months ago
Milk thistle - anything to be aware of?
A recent blood panel came back with slightly raised liver enzymes (marginally above the range), for reasons I am looking into. I have read about the benefits of milk thistle supplementation with respect to helping with both liver and thyroid matters. On the whole, the consensus seems to be that it
A recent blood panel came back with slightly raised liver enzymes (marginally above the range), for reasons I am looking into. I have read about the benefits of milk thistle supplementation with respect to helping with both liver and thyroid matters. On the whole, the consensus seems to be that it
JonnyA
in
Thyroid UK
2 years ago
Glad to see more and more players are jumping into the stem cell therapy
A Phase 1/2a clinical trial evaluating TED-A9, a human stem cell-based therapy, in people with Parkinson’s disease has finished dosing with no safety concerns identified to date. Embryonic stem cell transplant showing safety in 12 patients The therapy, delivered as a cell transplant directly into
A Phase 1/2a clinical trial evaluating TED-A9, a human stem cell-based therapy, in people with Parkinson’s disease has finished dosing with no safety concerns identified to date. Embryonic stem cell transplant showing safety in 12 patients The therapy, delivered as a cell transplant directly into
Farooqji
in
Cure Parkinson's
5 months ago
Stem cell transplant
Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable treatment option?
Hello, Has anyone woth AMN here ever had a stem cell transplant as a result of a diagnoses involving cerebral involvement? Please tell all! Is it a viable treatment option?
A7x1823eb
in
AMN EASIER
5 months ago
low iron and folate
My hypo daughter is clearly feeling tired. She leads a very busy life but from own hypo past experience I can see she is going downhill. Here are some of the results she received back in August when she was advised to take Spatone. At that time she had been taking iron tablets but had stopped because
My hypo daughter is clearly feeling tired. She leads a very busy life but from own hypo past experience I can see she is going downhill. Here are some of the results she received back in August when she was advised to take Spatone. At that time she had been taking iron tablets but had stopped because
mstp
in
Thyroid UK
7 months ago
Loosing the weight/Blood Results
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
Btsfan
in
Thyroid UK
1 year ago
Has anyone navigated Medicare while trying to get the TPIAT?
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Skye_MC
Administrator
in
Chronic Pancreatitis Support
10 months ago
Can Divine Intervention Change Your Genotype?
Reports of sickle cell cures/genotype change by divine intervention have become too many to ignore. _SICKLE CELL NEWS_ ventured to investigate: and it turned out easier to pass a camel through the eye of a needle than find anyone cured of sickle cell by Faith! https://selar.co/lor8 We interviewed
Reports of sickle cell cures/genotype change by divine intervention have become too many to ignore. _SICKLE CELL NEWS_ ventured to investigate: and it turned out easier to pass a camel through the eye of a needle than find anyone cured of sickle cell by Faith! https://selar.co/lor8 We interviewed
sicklecellnews
in
Sickle Cell Society
2 years ago
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis.
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
The prognostic impact of non-driver gene mutations and variant allele frequency in primary myelofibrosis. To the Editor: Myelofibrosis is a Philadelphia-negative chronic myelo-proliferative-neoplasm (MPN) characterized by alteration of the JAK–STAT path-way, primarily through activating mutations in
PhysAssist
in
MPN Voice
5 months ago
Eligibility for autumn 2023 COVID-19 booster jabs
We have updated our page on COVID-19 vaccinations to include information about who will be eligible for the autumn 2023 boosters. This will be a wider group than those who were eligible for the spring boosters. Read more here: https://www.lupusuk.org.uk/covid19-vaccination/
We have updated our page on COVID-19 vaccinations to include information about who will be eligible for the autumn 2023 boosters. This will be a wider group than those who were eligible for the spring boosters. Read more here: https://www.lupusuk.org.uk/covid19-vaccination/
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Where do I go to?
I am a 60 year old male, I don’t know if I have PA, B12 deficiency or other. I have a number of symptoms which lead me to believe it is at least a B12 deficiency. Having asked my GP for an “active” B12 test I received a full serum test which came with normal levels and apparently that was me cured, my
I am a 60 year old male, I don’t know if I have PA, B12 deficiency or other. I have a number of symptoms which lead me to believe it is at least a B12 deficiency. Having asked my GP for an “active” B12 test I received a full serum test which came with normal levels and apparently that was me cured, my
Isok
in
Pernicious Anaemia Society
1 year ago
Vitamin b12 deficiency
I posted recently about my mum stopping her pregabalin and iron tablets and how she was having a few symptoms which we werent sure were withdrawal effects of pregabalin or just pred side effects.Anyway we seemed to get over that and she was feeling better until last week when she started getting quite
I posted recently about my mum stopping her pregabalin and iron tablets and how she was having a few symptoms which we werent sure were withdrawal effects of pregabalin or just pred side effects.Anyway we seemed to get over that and she was feeling better until last week when she started getting quite
Buchanan16
in
PMRGCAuk
1 year ago
Just wanted to share my Primary Myelofibrosis journey so far…….
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
Hi all, My diagnosis is Primary Myelofibrosis +Jak-2 &V617F mutation which was in August 2022. This was found after several visits to GP for chest infections and ultrasound scans which found an enlarged spleen. Also had bloods and bone marrow biopsy sent to Bart’s hospital for confirmation. Initial
LFCLove
in
MPN Voice
5 months ago
hot flushes
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got worse. Nothing like when they were at their worst when I was younger, but boy do they wake me up, when my sleep is pretty poor anyway, since the
Freshairfiend
in
PMRGCAuk
7 months ago
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