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Please some help treating low b12
Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was then diagnosed with chronic fatigue syndrome for the following 10 years by this time I was almost bedbound after searching the Internet with my systems
Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was then diagnosed with chronic fatigue syndrome for the following 10 years by this time I was almost bedbound after searching the Internet with my systems
Tbob
in
Pernicious Anaemia Society
11 months ago
Iron and magnesium levels plus
Hi everyone. I recently had blood tests done as suggested and results have come back showing slightly low magnesium level at 0.68mmol/L and serum ferritin level of 60ng/ml. (Low?) I've been asked to go back for retest on the magnesium but no mention of the iron? Looking back on my test results I had
Hi everyone. I recently had blood tests done as suggested and results have come back showing slightly low magnesium level at 0.68mmol/L and serum ferritin level of 60ng/ml. (Low?) I've been asked to go back for retest on the magnesium but no mention of the iron? Looking back on my test results I had
GreyMaus
in
Restless Legs Syndrome
11 months ago
AXSL1 gene mutation
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
Hello Everyone, I have pmf-MF with JAK2 mutation and have been taking Rux since the end of 2018. Currently, Rux is took in combination with interferon. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although
merlisa
in
MPN Voice
4 months ago
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SCT journey update No.2
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
Hi all, following on from my last post, have just heard from my clinical nurse that they have found three very good donor matches on the registers!! Have been somewhat impatient waiting but as this situation is so new and different for everyone, has been difficult to gauge what is right or wrong. Anyway
LFCLove
in
MPN Voice
4 months ago
Is it reliable and trusty to measure homocystein after loading doses of b12 injections?
Hello everyoneone. I injected b12 shots last week. And wanted to test my homocystein level in order to make sure that i have really b12 deficiency. But i learned about homocystein after injections of b12. My lab results of vit b12 was 165pg/ml(160-944)I wondered whether homocystein level affeteed by
Hello everyoneone. I injected b12 shots last week. And wanted to test my homocystein level in order to make sure that i have really b12 deficiency. But i learned about homocystein after injections of b12. My lab results of vit b12 was 165pg/ml(160-944)I wondered whether homocystein level affeteed by
Emiroskui
in
Pernicious Anaemia Society
11 months ago
What ? and Watt !! š
Our power cells are called mitochondria (might oh con dria). We have trillions of them. Some cells just have one, other cells have hundreds. Special processes occur in the outer bit (or matrix) of our power cells where the food we eat and the oxygen we breathe is transformed into energy. In order for
Our power cells are called mitochondria (might oh con dria). We have trillions of them. Some cells just have one, other cells have hundreds. Special processes occur in the outer bit (or matrix) of our power cells where the food we eat and the oxygen we breathe is transformed into energy. In order for
Narwhal10
in
Pernicious Anaemia Society
11 months ago
Advice re purple lidded blood tubes.
Four times now I have had a failure with the purple lidded tube when trying to do the full health screen from Monitor my Health. It is for the anemia panel and I mainly get āclot detected ā and that I am not inverting the tube and rolling it between my hands for thirty seconds. Thing is that I am following
Four times now I have had a failure with the purple lidded tube when trying to do the full health screen from Monitor my Health. It is for the anemia panel and I mainly get āclot detected ā and that I am not inverting the tube and rolling it between my hands for thirty seconds. Thing is that I am following
Dadof5
in
Thyroid UK
9 months ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
4 months ago
Have I progressed to PV?
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
mbr8076
in
MPN Voice
11 months ago
accord brand of buprenorphine causing nausea???
hello - I started taking the accord brand of buprenorphine last night having moved from the morningside make because those tablets were small and difficult to cutā¦ā¦ after half a tablet I had panic / shakiness that I hadnāt experienced with the morningside tabletsā¦. After three x half tablets (0.6mg)
hello - I started taking the accord brand of buprenorphine last night having moved from the morningside make because those tablets were small and difficult to cutā¦ā¦ after half a tablet I had panic / shakiness that I hadnāt experienced with the morningside tabletsā¦. After three x half tablets (0.6mg)
Drls
in
Restless Legs Syndrome
11 months ago
Deadline 5pm 22nd August 2023 - Comments on NICE's new B12 deficiency guidelines (UK document)
Hi All, Just wanted to encourage UK forum members to submit comments on new B12 deficiency guidelines. Comments need to be submitted by 5pm Tues 22nd August. These new guidelines are due to be published in 2024 and could affect treatment and diagnosis in UK for years so please think about submitting
Hi All, Just wanted to encourage UK forum members to submit comments on new B12 deficiency guidelines. Comments need to be submitted by 5pm Tues 22nd August. These new guidelines are due to be published in 2024 and could affect treatment and diagnosis in UK for years so please think about submitting
Sleepybunny
in
Pernicious Anaemia Society
11 months ago
Anaemia
Well, seems that I am anaemic after all: blood tests at Marsden showef Hb of 114: low enough for me to feel lousy but not low enough for transfusion. Maybe one unit in s couple of weeks time if on retesting. Its dropprd below 110. Will then try starting EPO injections when I get back from holiday
Well, seems that I am anaemic after all: blood tests at Marsden showef Hb of 114: low enough for me to feel lousy but not low enough for transfusion. Maybe one unit in s couple of weeks time if on retesting. Its dropprd below 110. Will then try starting EPO injections when I get back from holiday
Rachelthepotter
in
MPN Voice
11 months ago
How quickly does homocysteine rise following cessation of B12 injections?
Previous post for context: @https://healthunlocked.com/pasoc/posts/149711971/antibody-to-transcobalamin-ii-causing-functional-b12-deficiency?responses=149728666 I have been trying to convince doctors that I need daily injections to prevent B12 deficiency symptoms from returning. They simply do not believe
Previous post for context: @https://healthunlocked.com/pasoc/posts/149711971/antibody-to-transcobalamin-ii-causing-functional-b12-deficiency?responses=149728666 I have been trying to convince doctors that I need daily injections to prevent B12 deficiency symptoms from returning. They simply do not believe
jeremycat_
in
Pernicious Anaemia Society
11 months ago
any advice šš½
Report Mybirthday1975 profile imageMybirthday1975Sheila_G 1 hour ago Hi Iām new here I have RA Iām (stero positive)Iām having flare after flare in so sick of feeling poorly with it and so tired.I feel like itās stole my life away from me,I canāt plan as I donāt know how I will feel Iām so fed up.I
Report Mybirthday1975 profile imageMybirthday1975Sheila_G 1 hour ago Hi Iām new here I have RA Iām (stero positive)Iām having flare after flare in so sick of feeling poorly with it and so tired.I feel like itās stole my life away from me,I canāt plan as I donāt know how I will feel Iām so fed up.I
Mybirthday1975
in
NRAS
6 months ago
Adenosylcobalamin
I am trying to find out how to administer Adenosylcobalamin in the most efficient way. I am aware that Adenosylcobalamin is water soluble at .097 mcg/ml which with my limited chemistry knowledge means the most I could inject is .097 mcg/ml. However water solubility of hydroxocobalamin is 0.0273 mg
I am trying to find out how to administer Adenosylcobalamin in the most efficient way. I am aware that Adenosylcobalamin is water soluble at .097 mcg/ml which with my limited chemistry knowledge means the most I could inject is .097 mcg/ml. However water solubility of hydroxocobalamin is 0.0273 mg
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Liquid Iron
Has anyone with atrophic gastritis had any success with taking and tolerating liquid iron please ?I have iron deficiency finally accepted by my doctor after many visits and blood tests !
Has anyone with atrophic gastritis had any success with taking and tolerating liquid iron please ?I have iron deficiency finally accepted by my doctor after many visits and blood tests !
davina70
in
Pernicious Anaemia Society
11 months ago
Low ferritin again
Unsurprisingly my ferritin has fallen back to the very bottom of the range yet again after i ceased iron supplements back in march. Raised a call with the surgery this morning and within 6 minutes of raising the call online it had been closed by the enhanced care practitioner as saying no action required
Unsurprisingly my ferritin has fallen back to the very bottom of the range yet again after i ceased iron supplements back in march. Raised a call with the surgery this morning and within 6 minutes of raising the call online it had been closed by the enhanced care practitioner as saying no action required
Rollercoaster44
in
Thyroid UK
6 months ago
What vitamin supplements to take alongside B12 injections?
Hi all - I'm currently on monthly injections for PA but still feel tired every morning even after a good nights sleep; low energy days; trouble focusing etc - sure you'll all be familiar with the symptoms! I've had several further blood tests and vitamin D and iron deficiencies have been identified
Hi all - I'm currently on monthly injections for PA but still feel tired every morning even after a good nights sleep; low energy days; trouble focusing etc - sure you'll all be familiar with the symptoms! I've had several further blood tests and vitamin D and iron deficiencies have been identified
TheSunshineSanctuary
in
Pernicious Anaemia Society
9 months ago
My baby girl.
Good morning all. I've been writing my updates as anonymous as possible but trying to give relevant information and updates to the condition. In reality I've been writing on my wife's behalf. She was diagnosed in February this year and was taking tremendous strides in getting better. She looked fantastic
Good morning all. I've been writing my updates as anonymous as possible but trying to give relevant information and updates to the condition. In reality I've been writing on my wife's behalf. She was diagnosed in February this year and was taking tremendous strides in getting better. She looked fantastic
Hidden
in
British Liver Trust
11 months ago
HSCT early in MS
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
This is an interesting story about two women who went to Mexico and got Hematopoietic Stem Cell Transplantation early in their disease. One, who was diagnosed with PPMS, received her transplant in the third year after diagnosis. The other, who was diagnosed with RRMS, got her transplant just twelve
BettysMom
in
My MSAA Community
5 months ago
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