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Platelets dropped after obinituzumab and won't rise even after transfusion 🚨
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
BMFCDRW
in
CLL Support
3 months ago
Any help? My doctors are useless
Had a blood test done two days ago and my hematocrit is 55% my hematocrit of 44% is classed as high my haemoglobin is 168 and the optimal range is 155 (high end)alongside my liver and calcium levels and my ferritin has dropped again to 26. My TSH was 2.90 optimal range of 0.25-4.90. My white blood cells
Had a blood test done two days ago and my hematocrit is 55% my hematocrit of 44% is classed as high my haemoglobin is 168 and the optimal range is 155 (high end)alongside my liver and calcium levels and my ferritin has dropped again to 26. My TSH was 2.90 optimal range of 0.25-4.90. My white blood cells
Soxakita
in
Thyroid UK
6 months ago
Anyone have hypercalcemia?
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related to pernicious anemia. Anyway, the other day I ended up in the ER with kidney stones and hyponephrosis (urine backing up into kidney, swollen
Iheartb12
in
Pernicious Anaemia Society
11 months ago
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Polyps found in Endoscopy
Hi, can anyone advise on polops found Endoscopy. Have Auto immune atrophic gastritis with metaplasia, thanks
Hi, can anyone advise on polops found Endoscopy. Have Auto immune atrophic gastritis with metaplasia, thanks
Bilbao
in
Pernicious Anaemia Society
9 months ago
Exhaustion
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Hello, my husband has 'early child a chirrosis' he has previously had bleeding varices and he has a clot on his portal vein. This is all due to complications following a splenectomy, which caused the clot, which is turn affected the liver. He is currently working stretches of 7 days in a row, with a
Lili6
in
British Liver Trust
11 months ago
Help with test results - haemochromatosis with iron deficiency?
A few years ago I regularly had blood tests which showed high iron levels so my doc suspected Haemochromatosis. I had the genetic testing which showed I had the gene mutation. I used to get blood drawn to treat it and bring down my iron levels. However, recently I had blood tests which showed low ferritin
A few years ago I regularly had blood tests which showed high iron levels so my doc suspected Haemochromatosis. I had the genetic testing which showed I had the gene mutation. I used to get blood drawn to treat it and bring down my iron levels. However, recently I had blood tests which showed low ferritin
tnefeh
in
Pernicious Anaemia Society
6 months ago
What does this mean?
Hi. Me = male, ET, 80 year old. I am off to see the Haematologist on Tuesday so I asked the GP surgery for a copy of my latest Blood count - and I would appreciate any comments. All levels refer to 'normal' reference ranges My White Blood Cell count, MCV, MCH, Neutrophil and Basophil are all above
Hi. Me = male, ET, 80 year old. I am off to see the Haematologist on Tuesday so I asked the GP surgery for a copy of my latest Blood count - and I would appreciate any comments. All levels refer to 'normal' reference ranges My White Blood Cell count, MCV, MCH, Neutrophil and Basophil are all above
quanglewangle
in
MPN Voice
11 months ago
blue fingers when in hot bath??
Has anyone else had this? It happen to my toes when I was in the shower the other day too. I don’t know if it’s Raynauds or my low ferritin/anemia or what. About to go for a colonoscopy this week for the anemia and a high positive FIT test but I can’t see it being linked to that.
Has anyone else had this? It happen to my toes when I was in the shower the other day too. I don’t know if it’s Raynauds or my low ferritin/anemia or what. About to go for a colonoscopy this week for the anemia and a high positive FIT test but I can’t see it being linked to that.
Newfylady
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Advice needed on iron levels (plus an update on Targinact)
Hi everyone, I posted recently asking for advice about Targinact, which I started taking on 10 January. I had such an extreme and horrible reaction that I stopped taking it 15 days later. Given my dose was only 5/2.5mg daily, I haven't had any withdrawal issues other than feeling very tired and depressed
Hi everyone, I posted recently asking for advice about Targinact, which I started taking on 10 January. I had such an extreme and horrible reaction that I stopped taking it 15 days later. Given my dose was only 5/2.5mg daily, I haven't had any withdrawal issues other than feeling very tired and depressed
Claire_lc
in
Restless Legs Syndrome
6 months ago
B12 217ng/L low folate/serum ferritin
Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum ferritin 19.9ug/L and B12 is within range at 218ng/L(but low end). I'm wondering did anyone take B12 shots with these levels and did it help? Or
Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum ferritin 19.9ug/L and B12 is within range at 218ng/L(but low end). I'm wondering did anyone take B12 shots with these levels and did it help? Or
Sotired3
in
Pernicious Anaemia Society
11 months ago
Human stem cell transplantation for Parkinson’s disease: A systematic review
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Farooqji
in
Cure Parkinson's
4 months ago
Un knowledgable Neurologist aahhh!!
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
brenanddave
in
Pernicious Anaemia Society
11 months ago
b12 deficiency - when to have Pernicious anaemia test?
hi, I am rather new to all this and would be very grateful for some advice. I recently had a blood test as I had moved GP surgeries and it came back with low B12 (70). I am on a course of 6 injections over 2 weeks, just had my 5th today. I have been given a blood form for ‘pernicious anaemia
hi, I am rather new to all this and would be very grateful for some advice. I recently had a blood test as I had moved GP surgeries and it came back with low B12 (70). I am on a course of 6 injections over 2 weeks, just had my 5th today. I have been given a blood form for ‘pernicious anaemia
Digbydog123
in
Pernicious Anaemia Society
11 months ago
Advice on best treatment
I have had CLL since 2013 watch and wait. Recently hemoglobin levels dropped and a bit anemic so been advised 3 types of treatment. However left to make own choice. Guess would like to know what other people have tried and how effective treatment was.
I have had CLL since 2013 watch and wait. Recently hemoglobin levels dropped and a bit anemic so been advised 3 types of treatment. However left to make own choice. Guess would like to know what other people have tried and how effective treatment was.
Guinness4822
in
CLL Support
11 months ago
Momelotinib for Myelofibrosis
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Cazbolac
in
MPN Voice
4 months ago
Atrophic Gastritis
Hi everyone, I have deen trying slippery elm to no avail for general stomach discomfort. I sometimes feel as if I have a 'fist' moving around in my stomach. The 'fist'feeling then just stays perfectly still, I then feel like I need to stretch to accomodate the 'fist' and then it feels a little better
Hi everyone, I have deen trying slippery elm to no avail for general stomach discomfort. I sometimes feel as if I have a 'fist' moving around in my stomach. The 'fist'feeling then just stays perfectly still, I then feel like I need to stretch to accomodate the 'fist' and then it feels a little better
Helliborous
in
Pernicious Anaemia Society
9 months ago
My low ferritin saga continues
Following on from my post a few weeks ago https://healthunlocked.com/thyroiduk/posts/150411438/low-ferritin-again - apologies for not posting results etc but ended up dealing with bit of a family crisis and then the GP surgery rang saying a doc wanted to discuss my blood results of mid-November! I've
Following on from my post a few weeks ago https://healthunlocked.com/thyroiduk/posts/150411438/low-ferritin-again - apologies for not posting results etc but ended up dealing with bit of a family crisis and then the GP surgery rang saying a doc wanted to discuss my blood results of mid-November! I've
Rollercoaster44
in
Thyroid UK
6 months ago
Low iron
I have an iron count of between 29 and 33 from 2021 to now on a range of 11-360. For the last six months I've been taking a supplement to boost the serum iron level and the level has dropped from 33 to 31. I think I'm anaemic for symptomatic reasons. I SI EOD and have done for a year. My health is beginning
I have an iron count of between 29 and 33 from 2021 to now on a range of 11-360. For the last six months I've been taking a supplement to boost the serum iron level and the level has dropped from 33 to 31. I think I'm anaemic for symptomatic reasons. I SI EOD and have done for a year. My health is beginning
Orchard33
in
Pernicious Anaemia Society
6 months ago
Please some help treating low b12
Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was then diagnosed with chronic fatigue syndrome for the following 10 years by this time I was almost bedbound after searching the Internet with my systems
Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was then diagnosed with chronic fatigue syndrome for the following 10 years by this time I was almost bedbound after searching the Internet with my systems
Tbob
in
Pernicious Anaemia Society
11 months ago
Iron and magnesium levels plus
Hi everyone. I recently had blood tests done as suggested and results have come back showing slightly low magnesium level at 0.68mmol/L and serum ferritin level of 60ng/ml. (Low?) I've been asked to go back for retest on the magnesium but no mention of the iron? Looking back on my test results I had
Hi everyone. I recently had blood tests done as suggested and results have come back showing slightly low magnesium level at 0.68mmol/L and serum ferritin level of 60ng/ml. (Low?) I've been asked to go back for retest on the magnesium but no mention of the iron? Looking back on my test results I had
GreyMaus
in
Restless Legs Syndrome
11 months ago
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