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Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
AJackson21
in
Pernicious Anaemia Society
5 months ago
are my labs showing anything?
Hi all, wondered if anyone could offer some advice, i started B12 injections a couple weeks ago i only did a few days as i started to get symptoms of severe neuropathy n breathing & this cold sensation all over my body, ended up in A&E 🙄 I didnt know if it was because of injections or an advancement
Hi all, wondered if anyone could offer some advice, i started B12 injections a couple weeks ago i only did a few days as i started to get symptoms of severe neuropathy n breathing & this cold sensation all over my body, ended up in A&E 🙄 I didnt know if it was because of injections or an advancement
M-usher
in
Pernicious Anaemia Society
5 months ago
need advice
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Tiredycake
in
Pernicious Anaemia Society
5 months ago
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Retacrit Shots
I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered
I’m posting this in hopes it may help other MPN sufferers. In early December, 2023, I saw my longstanding oncologist of 20 years. My labs showed 7.2 hemoglobin I was weak and tired. He sent me to a hematologist at Emory Hospital in Atlanta. The new doctor tested me for my EPO level. Mine barely registered
Bippers
in
MPN Voice
5 months ago
Recent blood tests
Hi everyone I’m bluenose 69 and I’m new to this community I’m asking any advice on my blood test results please have had symptoms for a long time don’t seem to be getting anywhere so frustrated and depressed at times.Had a full panel of blood tests privately in February 2023 some were red flagged MCH
Hi everyone I’m bluenose 69 and I’m new to this community I’m asking any advice on my blood test results please have had symptoms for a long time don’t seem to be getting anywhere so frustrated and depressed at times.Had a full panel of blood tests privately in February 2023 some were red flagged MCH
Bluenose69
in
Thyroid UK
6 months ago
looking for advice
hi all, I’ve had a couple of blood tests over the last month or so.. one related to my ongoing surveillance, and one via my GP related to fertility… both highlighted increased monocytes borderline high 0.81 and 0.86 respectively and 10.8 - 11.2% of total white blood count Everything else apart from
hi all, I’ve had a couple of blood tests over the last month or so.. one related to my ongoing surveillance, and one via my GP related to fertility… both highlighted increased monocytes borderline high 0.81 and 0.86 respectively and 10.8 - 11.2% of total white blood count Everything else apart from
Steve_Essex
in
MPN Voice
6 months ago
My Labs are back- recommendations pretty please.
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Quick summary- RLS for last 20yrs but self endured with no meds until Covid hit and exacerbated symptoms x100. Went to sleep MD and he just started with scripting meds….Gabapentin, Pregabalin, Busibar, Doxepin, Requip, Lunesta. None of these really worked…Requip kinda did but then it did not. So
Ddski5
in
Restless Legs Syndrome
6 months ago
Confused
So I had an active b12 test done in August and it showed borderline normal at the low end. I was told to do am MMA blood test and supplement. The MMA blood test came back normal so assumed I was OK and that the supplement would raise my levels. I was taking cyanocobalamin. I took this for 4 months and
So I had an active b12 test done in August and it showed borderline normal at the low end. I was told to do am MMA blood test and supplement. The MMA blood test came back normal so assumed I was OK and that the supplement would raise my levels. I was taking cyanocobalamin. I took this for 4 months and
Popcorn12345
in
Pernicious Anaemia Society
6 months ago
labs results that contraindicate one another
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Hi all, I’ve been having pretty constant parasthesias on both sides of my body usually worse from shoulders down to fingers, initial B12 level was 190 (was 845 four years ago). New doctor had me test for IF antibodies immediately after giving me a B12 injection which was negative and she stated
Katep66875
in
Pernicious Anaemia Society
2 months ago
Venetoclax and low Neutrophils
Ok, so now been on highest dose of Venetoclax with Ibrutinib and Neutrophils count down to 0.61. Only started going down since taking higher dose. Had one stomach injection of something but still high so now been given 4 weekly injections to do myself.Been told it's probably due to ramp up and may lower
Ok, so now been on highest dose of Venetoclax with Ibrutinib and Neutrophils count down to 0.61. Only started going down since taking higher dose. Had one stomach injection of something but still high so now been given 4 weekly injections to do myself.Been told it's probably due to ramp up and may lower
Guinness4822
in
CLL Support
6 months ago
Son tested positive for gastric parietal cell antibodies
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
My son has history with h pylori, which he was treated for, but the symptoms haven't gone away completely. Last week I was talking about my own b12 deficiency and he informed me he has the same symptoms. I know he has been more tried than normal, but I put it due to the h pylori, after effects. As that
fatfatfat
in
Pernicious Anaemia Society
2 months ago
So new results.
So been a while and just want the lasts posts forgot about and just treat this as now and what to do next. So I’ve been taking 100mcg Levo for two months and got my bloods done only available slot was around 11am so it is what it is. I hadn’t been taking supplements in this period to see how my levels
So been a while and just want the lasts posts forgot about and just treat this as now and what to do next. So I’ve been taking 100mcg Levo for two months and got my bloods done only available slot was around 11am so it is what it is. I hadn’t been taking supplements in this period to see how my levels
Dshadzz07
in
Thyroid UK
6 months ago
short term memory
hello everyone!!! Hope everyone is well Has anyone here experienced some memory issues while on ibruvica and venetoclax treatments Unfortunately my mother can only handle 100mg of venetoclax a day for a couple months now and I see she’s forgetting more easily or she seems a little off I had taken
hello everyone!!! Hope everyone is well Has anyone here experienced some memory issues while on ibruvica and venetoclax treatments Unfortunately my mother can only handle 100mg of venetoclax a day for a couple months now and I see she’s forgetting more easily or she seems a little off I had taken
Eirinik
in
CLL Support
6 months ago
vitamin results and advice on tweaking or changing supplements
Advice on supplements please and please tell me if I’m over thinking or worrying about this. I currently take: Better You Vit D with K2 / Thorne Basic B / Vegavero folate / Omega 3 fish oil / Magnesium / Zinc I’ve had my results back from Medichecks and would like some advice on what I can do to further
Advice on supplements please and please tell me if I’m over thinking or worrying about this. I currently take: Better You Vit D with K2 / Thorne Basic B / Vegavero folate / Omega 3 fish oil / Magnesium / Zinc I’ve had my results back from Medichecks and would like some advice on what I can do to further
Slowrunner1208
in
Thyroid UK
6 months ago
Query on changing brands and types
Hello all, I am desperately waiting for my usual Panpharma hydroxycobalamin acetate to come back onto the usual German shelves so I can get it ordered. I am on my last box now and bought some different to tide me over but it’s the 2ml product and I am not looking forward to having to use it. 2 questions
Hello all, I am desperately waiting for my usual Panpharma hydroxycobalamin acetate to come back onto the usual German shelves so I can get it ordered. I am on my last box now and bought some different to tide me over but it’s the 2ml product and I am not looking forward to having to use it. 2 questions
Rosydawn
in
Pernicious Anaemia Society
6 months ago
my bloods can anyone tell me what’s going off please
Eosinophil count - observation (42K..) 0.43 10^9/L [0.04 - 0.4] - Outside reference range Coded entry - Monocyte count - observation (42N..) 0.99 10^9/L [0.2 - 0.8] - Outside reference range Coded entry - Nucleated red blood cell count (4266.) 0 10^9/L [< 0] Coded entry - Mean cell haemoglobin level
Eosinophil count - observation (42K..) 0.43 10^9/L [0.04 - 0.4] - Outside reference range Coded entry - Monocyte count - observation (42N..) 0.99 10^9/L [0.2 - 0.8] - Outside reference range Coded entry - Nucleated red blood cell count (4266.) 0 10^9/L [< 0] Coded entry - Mean cell haemoglobin level
The16
in
Thyroid UK
6 months ago
Latest Blood Test Help
Hi brilliant minds, I hope you’re all well. Please could you have a quick look at my latest blood results and advise on anything you think isn’t as it should be... 🙏 I’m on 125mcg Levo but feel really tired most days and would sleep if I let myself! I think my iron is low (always is). I take Terra
Hi brilliant minds, I hope you’re all well. Please could you have a quick look at my latest blood results and advise on anything you think isn’t as it should be... 🙏 I’m on 125mcg Levo but feel really tired most days and would sleep if I let myself! I think my iron is low (always is). I take Terra
SleepingDisco
in
Thyroid UK
6 months ago
PALVE
I’m about to start b12 injections alternate days for two weeks then every 3 months. I appreciate this isn’t enough for neurological problems which I have. Should I ask for blood tests for folic acid before I start and then take every day .. and for how long? I’m not going down the path of SI for lots
I’m about to start b12 injections alternate days for two weeks then every 3 months. I appreciate this isn’t enough for neurological problems which I have. Should I ask for blood tests for folic acid before I start and then take every day .. and for how long? I’m not going down the path of SI for lots
Palum
in
Pernicious Anaemia Society
6 months ago
Coming Off Calquence (
I was put on Calquence (acalabrutinibam) 2 years ago due to Hemolytic Anemia. We tried prednisone for 3 years but every time they took me off my hemoglobin would drop and eventually it was determined I needed treatment. As of now my numbers are looking really good and I'm considering going off of it
I was put on Calquence (acalabrutinibam) 2 years ago due to Hemolytic Anemia. We tried prednisone for 3 years but every time they took me off my hemoglobin would drop and eventually it was determined I needed treatment. As of now my numbers are looking really good and I'm considering going off of it
susq9948
in
CLL Support
6 months ago
Swap?
Admin edit: Please note that it is illegal to supply injectible B12 for medical purposes without a prescription in the UK - this post has been closed to further responses. Hi Would anyone like to swap a box of hydroxocobalamin 1mg/1ml 10 ampoules in exchange for Cyanocobalamin 1mg/1ml 10 ampoules for
Admin edit: Please note that it is illegal to supply injectible B12 for medical purposes without a prescription in the UK - this post has been closed to further responses. Hi Would anyone like to swap a box of hydroxocobalamin 1mg/1ml 10 ampoules in exchange for Cyanocobalamin 1mg/1ml 10 ampoules for
Davy28
in
Pernicious Anaemia Society
6 months ago
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