So new results.: So been a while and just want... - Thyroid UK

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So new results.

Dshadzz07 profile image
9 Replies

So been a while and just want the lasts posts forgot about and just treat this as now and what to do next. So I’ve been taking 100mcg Levo for two months and got my bloods done only available slot was around 11am so it is what it is. I hadn’t been taking supplements in this period to see how my levels of them would be affected too. It was a test.

My results:

TSH: 4.1 (0.3-4.4)

T4 15.1(11-22)

T3 wasn’t tested but is usually in a good range for thyroid.

Vitamin D 24nmol/L (50-300)

Folate 0.8mg/dl (4-22)

Vitamin B12 311nmol/L (150-800)

IRON panel

Iron 13.4 umol/L (10-30)

TIBC 81umol/L (35-81)

UIBC 68umol/L ( 13-45)

Transferritin saturation 17% (25-45%)

Ferritin 80ug/l (40-300)

see a few of these point to anemia if red blood cells are normal apart from width which has always been abnormal mum is same.

So where to go from here, obviously I had the issue when I went 125mcg I went hyperthyroid but I don’t think that was the reason because my levels shot down to 0.01 TSH. So I still think I need a dose increase to get between 1-2 and as we can tell my vitamin levels are just dreadful, like my low folate must be causing me a lot of my symptoms rn.

anyways appreciate any help

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SlowDragon profile image
SlowDragonAdministrator

You have Hashimoto’s

This invariably results in low vitamin levels unless supplement continuously

Vitamin is deficient

See GP. They should prescribe LOADING dose

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

Make sure you retest vitamin D at end of GP prescription

You will need ongoing daily vitamin D going forward

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly when supplementing

Can test via NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

SlowDragon profile image
SlowDragonAdministrator

only add one vitamin supplement at a time

Then wait 10-14 days to assess before adding another

Starting with vitamin D, then magnesium

Low B12 and folate

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement

A week later add a separate vitamin B Complex 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

Highly effective B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

Post discussing different B complex

healthunlocked.com/thyroidu...

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 until over 500

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

Dshadzz07 profile image
Dshadzz07 in reply to SlowDragon

Thank you for the advice I currently take this b-complex. Is this good I know it says folic acid ( but as methylfolate) and decent pricing good ratings on Amazon

Vitamin
SlowDragon profile image
SlowDragonAdministrator in reply to Dshadzz07

Yes

Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

How long before test did you stop taking it

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

with B12 below 500

You need a separate B12 as well as a vitamin B complex. once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

Dshadzz07 profile image
Dshadzz07 in reply to SlowDragon

hey I know I’m replying late. I’ve been taking the folic acid from doctors but honestly just want to be on methylfolate can I buy a separate supplement for that I found a couple at 1000ug do I need more?

Like the way I’m seeing it so I’m nearly done with loading dose vitamin D.

I want to start methylfolate.

So do I go methylfolate

Then vitamin D supplement with K2 a week later.

Then magnesium glycinate a week later.

Then vitamin b complex a week after that.

Then a b12 supplement.

Is that right?

SlowDragon profile image
SlowDragonAdministrator in reply to Dshadzz07

you should/could have started separate B12 BEFORE starting folic acid

Never mind …..start B12 now

You won’t need a separate methyl folate as well as vitamin B complex

Once you finish prescription folic acid, start a good quality vitamin B complex

once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

Highly effective B12 drops

natureprovides.com/products...

B vitamins best taken after breakfast

Vitamin B complex

Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

Post discussing different B complex

healthunlocked.com/thyroidu...

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 until over 500 (or active B12 over 70)

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

SlowDragon profile image
SlowDragonAdministrator in reply to Dshadzz07

I’m seeing it so I’m nearly done with loading dose vitamin D.

So retest vitamin D at end of loading dose

Test twice yearly when supplementing

Can test via NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

SlowDragon profile image
SlowDragonAdministrator

Request increase in Levo

Perhaps initially just 12.5mcg extra per day (cutting 25mcg tablet in half)

Which brand are you using for 100mcg

SlowDragon profile image
SlowDragonAdministrator

Have you managed to get small increase in levothyroxine yet?

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