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GP call
Well quite a good discussion with my GP just now! Reiterated my symptoms of B12 deficiency, Folate deficiency, Hypothyroidism, vegetarian and having a gastric band 12 years ago a lightbulb came on! Oh so yes probably good idea for B12 injections! She said she will write to gastroenterologists (I thought
Well quite a good discussion with my GP just now! Reiterated my symptoms of B12 deficiency, Folate deficiency, Hypothyroidism, vegetarian and having a gastric band 12 years ago a lightbulb came on! Oh so yes probably good idea for B12 injections! She said she will write to gastroenterologists (I thought
Doris11
in
Thyroid UK
5 months ago
Folate test prep
I’ve been asked to retest my folate as this was rejected from my latest batch of blood tests, earlier this month. I’ve not had just folate tested before (only as part of a wider set of tests) please can you advise on any prep I need to do for just folate? Assuming I should stop Thorne Basic B
I’ve been asked to retest my folate as this was rejected from my latest batch of blood tests, earlier this month. I’ve not had just folate tested before (only as part of a wider set of tests) please can you advise on any prep I need to do for just folate? Assuming I should stop Thorne Basic B
SleepingDisco
in
Thyroid UK
5 months ago
Iron plus zinc better for iron deficiency anemia
reading about zinc I came across the following article. I mean it focuses on chronic kidney desease but I found this gem of info stating that zinc combined with iron is better than iron alone. Now I'm not iron deficient. But I thought this might be interesting for those who are. Beware too much zinc
reading about zinc I came across the following article. I mean it focuses on chronic kidney desease but I found this gem of info stating that zinc combined with iron is better than iron alone. Now I'm not iron deficient. But I thought this might be interesting for those who are. Beware too much zinc
B12life
in
Pernicious Anaemia Society
5 months ago
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FBC Test results help please
Hi, I mainly hang around the thyroid forum and a bit on here as I've injected B12 in the past. I have a friend who has had his thyroid removed last year and is struggling with liver and kidney function and GP isnt helping much. I'm trying to get him to ask GP for B12, Ferritin, Folate and vit D to be
Hi, I mainly hang around the thyroid forum and a bit on here as I've injected B12 in the past. I have a friend who has had his thyroid removed last year and is struggling with liver and kidney function and GP isnt helping much. I'm trying to get him to ask GP for B12, Ferritin, Folate and vit D to be
tzracer
in
Pernicious Anaemia Society
5 months ago
haemoglobin values.
hello good souls. I have had PA for 40 years. My haemoglobin level is always around 103 and ferrous normal. it is always considered to be expected in view of my B12 deficiency. Therefore acceptable. Do others have this problem. I feel it causes me tiredness and lack of energy.
hello good souls. I have had PA for 40 years. My haemoglobin level is always around 103 and ferrous normal. it is always considered to be expected in view of my B12 deficiency. Therefore acceptable. Do others have this problem. I feel it causes me tiredness and lack of energy.
Yingtong22
in
Pernicious Anaemia Society
5 months ago
Elevated red blood cell count
Morning all I've had a couple of blood tests since Xmas and both show a slightly elevated red blood cell count. I don't smoke and the GP seemed concerned but hasn't offered any ideas. Now I wonder if its thyroid related and if when I'm properly medicated that might reduce? Also see elevated hemoglobin
Morning all I've had a couple of blood tests since Xmas and both show a slightly elevated red blood cell count. I don't smoke and the GP seemed concerned but hasn't offered any ideas. Now I wonder if its thyroid related and if when I'm properly medicated that might reduce? Also see elevated hemoglobin
Dahliasanddaisies
in
Thyroid UK
5 months ago
Blood work
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Hey I've been diagnosed with hypothyroidism for just over a year now, but recent bloods have been taken for blood count and iron etc my haemoglobin is 122 ( 122-165 ) Ferritin 18 (13-250 ) B12 - 437 ( 197-771 ) Folate 4.7 ( 3.9-26.8 ) although under blood work it says folate comment: folate maybe falsly
Jojomcc
in
Thyroid UK
5 months ago
Ferritin Questions
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Hi everyone. I self inject b12, 3x per week. I also take a daily dose of methylfolate. In the past both of these have been extremely low, along with very low ferritin. Of late I have wondered if my iron was dropping, so requested bloods a couple of weeks ago. Folate happily is pretty good at 19( at
Monkharris
in
Pernicious Anaemia Society
5 months ago
Help with latest test results please!
hi everyone Please could I have some advice on my latest results? I had some from the GP which prompted me to get full panels done privately, which are as follows: FT3 5.8 - 3.1 to 6.8 FT4 15.9 - 12 to 22 T4 114 - 59 to 154 TSH 2.88 - 0.27 to 4.2 TPO’s 131 - 0 to 34 I’m currently on 50mcg of
hi everyone Please could I have some advice on my latest results? I had some from the GP which prompted me to get full panels done privately, which are as follows: FT3 5.8 - 3.1 to 6.8 FT4 15.9 - 12 to 22 T4 114 - 59 to 154 TSH 2.88 - 0.27 to 4.2 TPO’s 131 - 0 to 34 I’m currently on 50mcg of
Smartypants1
in
Thyroid UK
5 months ago
B12 how much and how often
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
Jeep13
in
Pernicious Anaemia Society
1 day ago
Low B12 but Negative Parietal Cell Autoantibodies
Hi! I had some blood tests done last week (a brief history - I haven’t been 100% since I had Covid 14 months ago and been suffering with extreme tiredness and fatigue.. I was found to have iron deficiency anaemia and was successfully treated last year), it has shown I have low B12 (173 - range 197-771
Hi! I had some blood tests done last week (a brief history - I haven’t been 100% since I had Covid 14 months ago and been suffering with extreme tiredness and fatigue.. I was found to have iron deficiency anaemia and was successfully treated last year), it has shown I have low B12 (173 - range 197-771
Hidden
in
Pernicious Anaemia Society
5 months ago
Gastric Parietal Cell Antibody
Just wondering whether any members have had this test? I'm not really thinking about those who have had a B12 deficiency (or suspected Pernicious Anaemia) followed up by this test. Rather has anyone had done spontaneously as the link below [i]appears[/i] to imply. As I read it, the words say GPC should
Just wondering whether any members have had this test? I'm not really thinking about those who have had a B12 deficiency (or suspected Pernicious Anaemia) followed up by this test. Rather has anyone had done spontaneously as the link below [i]appears[/i] to imply. As I read it, the words say GPC should
helvella
Thyroid UK
in
Thyroid UK
23 days ago
Advice moving forward?
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
Dan444
in
Pernicious Anaemia Society
5 months ago
B12 deficiency v. Ferritin deficiency
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
MLJ2024
in
Pernicious Anaemia Society
5 months ago
Inflammation and RLS
I have always believed that inflammation was part of my RLS. I believe this because my RLS responds well to ibuprofen. A recent blog was using this study http://www.smj.org.sg/sites/default/files/SMJ-57-514.pdf The study is from 2016. The study proposes to use the neutrophil-to-lymphocyte ratio
I have always believed that inflammation was part of my RLS. I believe this because my RLS responds well to ibuprofen. A recent blog was using this study http://www.smj.org.sg/sites/default/files/SMJ-57-514.pdf The study is from 2016. The study proposes to use the neutrophil-to-lymphocyte ratio
WideBody
in
Restless Legs Syndrome
5 months ago
Confused again 😕
How do you know if your intrinsic factor antibody blood test is good or bad?
How do you know if your intrinsic factor antibody blood test is good or bad?
Popcorn12345
in
Pernicious Anaemia Society
5 months ago
Oral B12
So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in
So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in
FatThumbs
in
Pernicious Anaemia Society
5 months ago
Vitamin Results
Hi, I’ve just had some private test results following a low ferritin result from the GP: TIBC - 64umol/L - 45-81 Transferrin saturation - 18.3% - 25-45 Ferritin - 49ug/L - 44-150 Iron - 11.7umol/L - 10-30 Unsaturated iron binding capacity- 52.3umol/L Vitamin D - 43.6umol/L - normal 50-75, optimal
Hi, I’ve just had some private test results following a low ferritin result from the GP: TIBC - 64umol/L - 45-81 Transferrin saturation - 18.3% - 25-45 Ferritin - 49ug/L - 44-150 Iron - 11.7umol/L - 10-30 Unsaturated iron binding capacity- 52.3umol/L Vitamin D - 43.6umol/L - normal 50-75, optimal
Smartypants1
in
Thyroid UK
5 months ago
GP requests blood tests after injections
My daughter has asked her GP for B12 injections (I won't always be around to do them) she has been called in for a blood test, however stating NICE guidelines didn't help. She has previously been misdiagnosed with MS and even her neurologist wrote in a letter last summer that nothing abnormal was found
My daughter has asked her GP for B12 injections (I won't always be around to do them) she has been called in for a blood test, however stating NICE guidelines didn't help. She has previously been misdiagnosed with MS and even her neurologist wrote in a letter last summer that nothing abnormal was found
pinkpaddleboarder
in
Pernicious Anaemia Society
5 months ago
Hydroxocobalamin injections
hi, I’m in Washington, USA, and I can’t get my prescription of Hydroxocobalamin injections anywhere. I was diagnosed with pernicious anaemia in 1992 (inherited it through maternal line). Does anyone know where I can order it from? I am highly allergic to Cyanocobalamin.
hi, I’m in Washington, USA, and I can’t get my prescription of Hydroxocobalamin injections anywhere. I was diagnosed with pernicious anaemia in 1992 (inherited it through maternal line). Does anyone know where I can order it from? I am highly allergic to Cyanocobalamin.
Dawn1015
in
Pernicious Anaemia Society
5 months ago
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