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Sialic acid storage disorders
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Haz58
Hello Haz58, I’m sorry you are having such a rotten time in sorting out the medications which you can tolerate. I could not take Azapriothine or Methotrexate but have settled reasonably happily with a daily routine of Bisoprolol, Levothyroxine, Amlodipine, Prednisolone, Ursodeoxycholic Acid, Losartan
Hello Haz58, I’m sorry you are having such a rotten time in sorting out the medications which you can tolerate. I could not take Azapriothine or Methotrexate but have settled reasonably happily with a daily routine of Bisoprolol, Levothyroxine, Amlodipine, Prednisolone, Ursodeoxycholic Acid, Losartan
Katiecatweazel
in
NRAS
3 months ago
Alendronic acid and raised Potassium levels
Hi I have been on Alendronic acid for 4 mths now. I have - 3 lumbar spinal osteoporosis but also have chronic kidney deficiency. My past two blood tests are showing raised 5.7 mmols/l and I’m wondering if it’s linked to my Alendronic acid?
Hi I have been on Alendronic acid for 4 mths now. I have - 3 lumbar spinal osteoporosis but also have chronic kidney deficiency. My past two blood tests are showing raised 5.7 mmols/l and I’m wondering if it’s linked to my Alendronic acid?
Ukalady
in
Bone Health and Osteoporosis UK
3 months ago
Stopping Alendronic Acid
I've been taking Alendronic Acid along with pred (on the insistence of GPs and rheumy) for 2 years. At last I've managed to get a Dexa scan and they told me that my bones are good/normal and that there is no need to take the AA. Do I need to taper or can I just stop?Also wouldn't it make sense to do
I've been taking Alendronic Acid along with pred (on the insistence of GPs and rheumy) for 2 years. At last I've managed to get a Dexa scan and they told me that my bones are good/normal and that there is no need to take the AA. Do I need to taper or can I just stop?Also wouldn't it make sense to do
Sammo47
in
PMRGCAuk
3 months ago
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How To Make Melatonin Lotion : A More Efficient Way Of Getting Melatonin Compared To Oral Melatonin And A Surprise Finding
A major problem I see with oral melatonin is the very poor bioavailability of oral melatonin, thought to be around 3% in humans as discussed here : https://bmcpharmacoltoxicol.biomedcentral.com/articles/10.1186/s40360-016-0052-2#:~:text=Elimination%20half%2Dlives%20following%20oral,between%20the%20volunteers
A major problem I see with oral melatonin is the very poor bioavailability of oral melatonin, thought to be around 3% in humans as discussed here : https://bmcpharmacoltoxicol.biomedcentral.com/articles/10.1186/s40360-016-0052-2#:~:text=Elimination%20half%2Dlives%20following%20oral,between%20the%20volunteers
chartist
in
Cure Parkinson's
3 months ago
zoledronic acid infusion and calcium supplement
do people on here take a calcium supplement before and after the infusion,
do people on here take a calcium supplement before and after the infusion,
Radars
in
Bone Health and Osteoporosis UK
4 months ago
Alendronic acid and rls
I have osteoporosis, Dr's want me to go on either Alendronic acid , IV Zolendronic acid, or Subcutaneous Denosumab Does anyone know if they make RLS worse please
I have osteoporosis, Dr's want me to go on either Alendronic acid , IV Zolendronic acid, or Subcutaneous Denosumab Does anyone know if they make RLS worse please
antelope99
in
Restless Legs Syndrome
4 months ago
Alendronic Acid
Hi I've had PMR for over 4 years now and am on 3mg pred. as the last time I managed to reduce and come off pred. I had a flare up . I also take Alendronic Acid. I've had toothache in a lower back molar on and off for the past year and the dentist says I either need root canal work or have it extracted
Hi I've had PMR for over 4 years now and am on 3mg pred. as the last time I managed to reduce and come off pred. I had a flare up . I also take Alendronic Acid. I've had toothache in a lower back molar on and off for the past year and the dentist says I either need root canal work or have it extracted
Simplewish
in
PMRGCAuk
4 months ago
Gasoline?
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
VoxHope
in
Advanced Prostate Cancer
4 months ago
Alendronic Acid tablets
oncologist has started me on these tablets last 6 months for bone density 70mg once weekly 30 mins before food and to remain upright after taking them anyone else had problem with acid in stomach and very loose stool to a point of passing watered stool .had sample taken and no conclusion read on leaflet
oncologist has started me on these tablets last 6 months for bone density 70mg once weekly 30 mins before food and to remain upright after taking them anyone else had problem with acid in stomach and very loose stool to a point of passing watered stool .had sample taken and no conclusion read on leaflet
Chrisbaird
in
Advanced Prostate Cancer
4 months ago
Rheumatologist referral
Hi everyone I was diagnosed in October 2021 with PMR. I followed the doctors ‘normal’ reduction plan at first. I was able to get down to 5 mg with reasonable ease although I was never 100% free from some pain and stiffness but didn’t affect my qol . I then found this site and started to follow advice
Hi everyone I was diagnosed in October 2021 with PMR. I followed the doctors ‘normal’ reduction plan at first. I was able to get down to 5 mg with reasonable ease although I was never 100% free from some pain and stiffness but didn’t affect my qol . I then found this site and started to follow advice
MrsPractical
in
PMRGCAuk
4 months ago
Laparoscopy made everything 1000x times worse, anyone else?
Hi all, I wondered if anyone else had, had a bad experience with their laparoscopy? I have suffered with endometriosis for 18 years ((I am 34 yes old)) (constantly misdiagnosed, gas lighted, not listened to, told it was normal period pains and to "just get on with it" - you know the usual story for
Hi all, I wondered if anyone else had, had a bad experience with their laparoscopy? I have suffered with endometriosis for 18 years ((I am 34 yes old)) (constantly misdiagnosed, gas lighted, not listened to, told it was normal period pains and to "just get on with it" - you know the usual story for
Mia843
in
Endometriosis UK
4 months ago
PMR flare advice needed
I have messed up with dealing with a recent flare and would love your advice on where to go from here. I was stuck at 11mg Prednisolone for many months and then one day I felt a change. From then I have been able to taper at 0.5mg every 3 weeks. All was good until I got to 8.5mg. I did my usual - add
I have messed up with dealing with a recent flare and would love your advice on where to go from here. I was stuck at 11mg Prednisolone for many months and then one day I felt a change. From then I have been able to taper at 0.5mg every 3 weeks. All was good until I got to 8.5mg. I did my usual - add
Oh-my
in
PMRGCAuk
4 months ago
unsuccessful Laparoscopy
Hello, this is my first time posting so please bear with me! I have been struggling with symptoms of endometriosis since I could remember. I started my period at around 9 and I would say from 13+ my periods had been extremely painful, heavy, putting pressure on my bowels, mood swings etc (the list really
Hello, this is my first time posting so please bear with me! I have been struggling with symptoms of endometriosis since I could remember. I started my period at around 9 and I would say from 13+ my periods had been extremely painful, heavy, putting pressure on my bowels, mood swings etc (the list really
BitterSweet09
in
Endometriosis UK
4 months ago
Extreme fatigue. Any solution?
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
This is wiping me out. Honestly. It tends to start at about 5 pm and lasts for about 2/3 hours. I used to take Whey protein to counter it but this appears to not hit the spot. I’m utterly exhausted when this phenomenon strikes and am wondering if anyone has any ideas? I take B1 daily (Superior Source
jeeves19
in
Cure Parkinson's
4 months ago
What’s wrong with me?
I’m a fit, good looking dude with a nice dick…and I can’t get hard for the life of me. It’s disappointing, I feel like a huge failure, plus I don’t get to enjoy the things I want to enjoy and have worked hard to enjoy. Even taking cialis last night it just didn’t happen. I’m so nervous and have no confidence
I’m a fit, good looking dude with a nice dick…and I can’t get hard for the life of me. It’s disappointing, I feel like a huge failure, plus I don’t get to enjoy the things I want to enjoy and have worked hard to enjoy. Even taking cialis last night it just didn’t happen. I’m so nervous and have no confidence
Surewhynot
in
Erectile Dysfunction Support
7 months ago
do I need a calcium supplement after having zoledronic acid infusion.
do I need a calcium supplement after having my zoledronic acid infusion.
do I need a calcium supplement after having my zoledronic acid infusion.
Radars
in
British Heart Foundation
4 months ago
ppi before zoledronic acid infusion
Best time to take my ppi before my zoledronic acid infusion.
Best time to take my ppi before my zoledronic acid infusion.
Radars
in
Bone Health and Osteoporosis UK
4 months ago
calcium supplement
do you have to take a calcium supplement before a zoledronic acid infusion,because I am having my second infusion tomorrow, I can't take a calcium supplement because they give me constipation.
do you have to take a calcium supplement before a zoledronic acid infusion,because I am having my second infusion tomorrow, I can't take a calcium supplement because they give me constipation.
Radars
in
Bone Health and Osteoporosis UK
4 months ago
Trying to follow a healthy lifestyle while on long term drug therapy
So finding my lump and realising I had Breast Cancer has taken me on a strange journey. I'm a healthy active 75 year old carer for my darling hubby. I am starting month 6 of Letrozole, have had 1 Ibandronic acid treatment and have just been taken off my Abemeciclib tablets after almost 8 weeks as
So finding my lump and realising I had Breast Cancer has taken me on a strange journey. I'm a healthy active 75 year old carer for my darling hubby. I am starting month 6 of Letrozole, have had 1 Ibandronic acid treatment and have just been taken off my Abemeciclib tablets after almost 8 weeks as
wackier
in
SHARE Breast Cancer Support
4 months ago
calcium supplements before zoledronic acid infusion
does everyone take calcium supplement before the infusion, I am due my second infusion tomorrow, I have had a blood test and they said calcium levels ok,they said ok after my first infusion but ended up peeing blood, a blood test doesn't show how much calcium in your bones, and with zoledronic acid infusions
does everyone take calcium supplement before the infusion, I am due my second infusion tomorrow, I have had a blood test and they said calcium levels ok,they said ok after my first infusion but ended up peeing blood, a blood test doesn't show how much calcium in your bones, and with zoledronic acid infusions
Radars
in
British Heart Foundation
4 months ago
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