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Pregnancy and epilepsy
Looking for anyone with a similar experience! I have a son who is turning 4 next week - I had pre eclampsia which turned to eclampsia in the end stages of my pregnancy and ended up taking a seizure mid labour. 7 weeks on from his birth I had a seizure (tonic clonic) and was put onto epilim. I was then
Looking for anyone with a similar experience! I have a son who is turning 4 next week - I had pre eclampsia which turned to eclampsia in the end stages of my pregnancy and ended up taking a seizure mid labour. 7 weeks on from his birth I had a seizure (tonic clonic) and was put onto epilim. I was then
Mango401
in
Pregnancy and Parenting Support
7 years ago
Second Bacterial Meningitis Septicaemia - Advice needed
Dear all, I am hoping you can help advise me on the best way to help my mum. MENINGITUS ROUND 1 - MAY 2014 – GROUP A STREP In May 2014 she contracted Meningococcal Septicaemia (group A). She was treated quickly with antibiotics and steroids, was in ITU for a week and then on a ward for a following
Dear all, I am hoping you can help advise me on the best way to help my mum. MENINGITUS ROUND 1 - MAY 2014 – GROUP A STREP In May 2014 she contracted Meningococcal Septicaemia (group A). She was treated quickly with antibiotics and steroids, was in ITU for a week and then on a ward for a following
SHS7
in
Meningitis Now
7 years ago
Good Morning all
Just thought I would give a quick update on Bethany (14). Touch wood she hasn’t had a seizure for 2 weeks. We have applied to a charity for an anti suffocation pillow and I filled in the dla for children form , we are also waiting to hear about a bed alarm from another charity. I have read the book from
Just thought I would give a quick update on Bethany (14). Touch wood she hasn’t had a seizure for 2 weeks. We have applied to a charity for an anti suffocation pillow and I filled in the dla for children form , we are also waiting to hear about a bed alarm from another charity. I have read the book from
gillyhan68
in
Epilepsy Research Institute
7 years ago
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Headache symptom of pending seizure?
My 20 year old son who has temporal lobe or frontal lobe (TBD) epilepsy with nocturnal seizures is on highest dose Keppra 4,000 mg / day and Vimpat 400 mg day. His V had to be inc. twice the last 2 months. He woke me up an hour ago to say he woke up with stabbing headache on left side of his head.
My 20 year old son who has temporal lobe or frontal lobe (TBD) epilepsy with nocturnal seizures is on highest dose Keppra 4,000 mg / day and Vimpat 400 mg day. His V had to be inc. twice the last 2 months. He woke me up an hour ago to say he woke up with stabbing headache on left side of his head.
Dfpsocc
in
Epilepsy Research Institute
7 years ago
Help.
Hello guys. Last time I posted something here it was about frequent seizures and what they could be. I then was diagnosed with Epilepsy very quickly as my doctor witnessed my seizure right in front of his eyes. I was personally never sure if it was epilepsy I just felt like it was something else. Maybe
Hello guys. Last time I posted something here it was about frequent seizures and what they could be. I then was diagnosed with Epilepsy very quickly as my doctor witnessed my seizure right in front of his eyes. I was personally never sure if it was epilepsy I just felt like it was something else. Maybe
maoaaam
in
Anxiety Support
7 years ago
Advice re support in nottinghamshire and with full body spasms
I was diagnosed with FND 3 months ago after 2yrs of test. I was advised to have physio and psychological therapy, but my Dr s do not know where to refer me in Ashfield Nottinghamshire uk area. Does anyone have any ideas? Also I have tried various med to help with full body spasms /seizures, including
I was diagnosed with FND 3 months ago after 2yrs of test. I was advised to have physio and psychological therapy, but my Dr s do not know where to refer me in Ashfield Nottinghamshire uk area. Does anyone have any ideas? Also I have tried various med to help with full body spasms /seizures, including
Sunshine111
in
Functional Neurological Disorder - FND Hope
7 years ago
We're new here....
Hi, Alan and his 12 year old daughter here. She has congenital JME inherited from her mother and which I discovered a full 2 years before the onset of fits, which I would have expected at about 13. We're on Keppra 1000mg daily. We just reached the full dosage last Wednesday. I discovered the diagnosis
Hi, Alan and his 12 year old daughter here. She has congenital JME inherited from her mother and which I discovered a full 2 years before the onset of fits, which I would have expected at about 13. We're on Keppra 1000mg daily. We just reached the full dosage last Wednesday. I discovered the diagnosis
SirAlan
in
Epilepsy Research Institute
7 years ago
This is a great site
My daughter (14) has been on keppra since June , she was diagnosed after 3 years of worry after she was hit by a car. I feel helpless most of the time my baby girl is tired all the time ( she would sleep all day) and has trouble at school with remembering things and keeping up with the rest of her class
My daughter (14) has been on keppra since June , she was diagnosed after 3 years of worry after she was hit by a car. I feel helpless most of the time my baby girl is tired all the time ( she would sleep all day) and has trouble at school with remembering things and keeping up with the rest of her class
gillyhan68
in
Epilepsy Research Institute
7 years ago
Tingling with Keppra
Hi everyone I have recently upped my dose of keppra from 2500mg per day to 3000mg per day. I am getting regular tingling sensations in my chest and left arm, and sometimes round my shoulders and back of my neck and head. has anybody else experienced this? This is generally when I am tired but would
Hi everyone I have recently upped my dose of keppra from 2500mg per day to 3000mg per day. I am getting regular tingling sensations in my chest and left arm, and sometimes round my shoulders and back of my neck and head. has anybody else experienced this? This is generally when I am tired but would
JDEN
in
Epilepsy Action
7 years ago
Sleep
Just want share a positive thought ,I am now on 2mg of Dexamethasone daily and slept last night for a whole 51/2hours .Feeling like a human being at last .Sleep is so important when you are unwell and steroids that supposedly make you better do not allow you access to sleep, how you are meant to feel
Just want share a positive thought ,I am now on 2mg of Dexamethasone daily and slept last night for a whole 51/2hours .Feeling like a human being at last .Sleep is so important when you are unwell and steroids that supposedly make you better do not allow you access to sleep, how you are meant to feel
Hidden
in
The Roy Castle Lung Cancer Foundation
7 years ago
Drugs
Well here is a daft thing I did yesterday ,I have not been sleeping at all well since on dexamethasone and yesterday I was falling asleep at 7.30pm so decided to just go to bed early something I generally resist and when I woke up I thought oh brilliant slept all night at last felt really good ,so started
Well here is a daft thing I did yesterday ,I have not been sleeping at all well since on dexamethasone and yesterday I was falling asleep at 7.30pm so decided to just go to bed early something I generally resist and when I woke up I thought oh brilliant slept all night at last felt really good ,so started
Hidden
in
The Roy Castle Lung Cancer Foundation
7 years ago
Anxiety or Aura?
Hi there, I have recently upped my dose of Keppra from 2500mg per day to 3000mg per day due to an increase in Auras. I was totally exhausted and doing to much so have calmed down and increased my meds following advise from my epilepsy specialist. The auras have settled down however I still experience
Hi there, I have recently upped my dose of Keppra from 2500mg per day to 3000mg per day due to an increase in Auras. I was totally exhausted and doing to much so have calmed down and increased my meds following advise from my epilepsy specialist. The auras have settled down however I still experience
JDEN
in
Epilepsy Action
7 years ago
Brain fog, Trimethoprin and asthma?
I have had fibro for some years, but for the past 3 weeks been struggling with bad brain fog, anxiety, dizziness and nausea following an adverse reaction to Timethoprin given in error for a UTI. I'm allergic to Septrin, which contains Trimethoprin, but this info had mysteriously disappeared from my
I have had fibro for some years, but for the past 3 weeks been struggling with bad brain fog, anxiety, dizziness and nausea following an adverse reaction to Timethoprin given in error for a UTI. I'm allergic to Septrin, which contains Trimethoprin, but this info had mysteriously disappeared from my
RestlessOwl
in
Pain Concern
7 years ago
When CLL Goes Awry
Hi, All -- I've written before, at first when I lost eyesight in May and again in June after seizures began, both of which stemmed from my relapsing CLL. It infiltrated my spinal fluid, brain lining, and eyes and caused extensive lesions. It's an extremely rare condition -- one specialist told me cases
Hi, All -- I've written before, at first when I lost eyesight in May and again in June after seizures began, both of which stemmed from my relapsing CLL. It infiltrated my spinal fluid, brain lining, and eyes and caused extensive lesions. It's an extremely rare condition -- one specialist told me cases
Eagle5327
in
CLL Support
7 years ago
Keep safe in the Sun
Some non-chemotherapy medications that could have an additive effect in causing sun sensitivity include: •Antibiotics, such as Cipro (ciprofloxacin), Levaquin (levofloxacin), tetracycline, doxycycline, and
Septra
or Bactrim (sulfamethoxazole-trimethoprim) •Diuretics, such as Lasix (furosemide) and Hydrodiuril
Some non-chemotherapy medications that could have an additive effect in causing sun sensitivity include: •Antibiotics, such as Cipro (ciprofloxacin), Levaquin (levofloxacin), tetracycline, doxycycline, and
Septra
or Bactrim (sulfamethoxazole-trimethoprim) •Diuretics, such as Lasix (furosemide) and Hydrodiuril
LCNurse
in
Leukaemia Support
7 years ago
Diagnosis after 3rd seizure
My daughter Beth (14) is in hospital after her 3 rd seizure in 9 months. Previous tests all in conclusive but they have decided after this daytime seizure and having todds paresis she is epileptic. Thank god they are going to start keppra tonight , and if all ok we can go home tomorrow afternoon
My daughter Beth (14) is in hospital after her 3 rd seizure in 9 months. Previous tests all in conclusive but they have decided after this daytime seizure and having todds paresis she is epileptic. Thank god they are going to start keppra tonight , and if all ok we can go home tomorrow afternoon
gillyhan68
in
Epilepsy Research Institute
7 years ago
MTHFR treatment
Hi all, i know you are not all doctors, but to be honest here in the UK the doctors don't have a clue what im talking about, so hoping someone on here does and i has an opinion. all my symptoms started when i was given Septrin which wiped out all my folic acid and caused a long un-diagnosed deficiency
Hi all, i know you are not all doctors, but to be honest here in the UK the doctors don't have a clue what im talking about, so hoping someone on here does and i has an opinion. all my symptoms started when i was given Septrin which wiped out all my folic acid and caused a long un-diagnosed deficiency
br74649
in
Pernicious Anaemia Society
7 years ago
Unknown fits ..??
My son who is 15 was born with trisomy 21was a happy and lovely child, Untill his age 14. I had to leave him with a care taker for 6months due to my work. after he starts suffering from non epilepsy or un known like a seizure condition when he sleeps at nite multiple times and during day time naps.also
My son who is 15 was born with trisomy 21was a happy and lovely child, Untill his age 14. I had to leave him with a care taker for 6months due to my work. after he starts suffering from non epilepsy or un known like a seizure condition when he sleeps at nite multiple times and during day time naps.also
swarna-25
in
Epilepsy South Africa
7 years ago
Keppra 3,000 daily
Hi, just joined site. I was diagnosed with Juvenile Myoclonic Epilepsy. I have been on almost every medication. I am currently on 3,000 mgs of keppra daily. I feel like I have changed ever since I started on AED's. Very irritable and angry, depressed, always sick and just want to be alone. Does anyone
Hi, just joined site. I was diagnosed with Juvenile Myoclonic Epilepsy. I have been on almost every medication. I am currently on 3,000 mgs of keppra daily. I feel like I have changed ever since I started on AED's. Very irritable and angry, depressed, always sick and just want to be alone. Does anyone
bethankful7
in
Epilepsy Action
7 years ago
Seizures
Hi everyone Following brain surgery my partner suffered seizures. 2 Tonic clonics then multiple Focal Seizures. He is on 1000mg Keppra and 300mg Epilium twice a day. We are now starting to wean him off Epilium and will do this over the next 6 weeks. My partner hasn't had a seizure since he was in hospital
Hi everyone Following brain surgery my partner suffered seizures. 2 Tonic clonics then multiple Focal Seizures. He is on 1000mg Keppra and 300mg Epilium twice a day. We are now starting to wean him off Epilium and will do this over the next 6 weeks. My partner hasn't had a seizure since he was in hospital
Dondags07
in
Headway
7 years ago
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