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Blood mixed sputum not going away, have bronchiectasis
Rest of the medicines are inhalers,
septra
ds antibiotic, etc Despite of taking tranexamic the sputum is still red or rusty and the bleeding isnt going away. It is not in a significant amount but whatever it is freaking me out.
Rest of the medicines are inhalers,
septra
ds antibiotic, etc Despite of taking tranexamic the sputum is still red or rusty and the bleeding isnt going away. It is not in a significant amount but whatever it is freaking me out.
Warrior4104
in
Lung Conditions Community Forum
1 year ago
New drug
Hello, My son has recently been prescribed Zonisamide. His epilepsy has not been controlled with other drugs although both Lamotrigine and Oxcarbazepine kerbed tonic clonic seizures. Introduced to Keppra and tonic clonic returned...so now suggested to stop Keppra and introduce Zonisamide. On low dose
Hello, My son has recently been prescribed Zonisamide. His epilepsy has not been controlled with other drugs although both Lamotrigine and Oxcarbazepine kerbed tonic clonic seizures. Introduced to Keppra and tonic clonic returned...so now suggested to stop Keppra and introduce Zonisamide. On low dose
LakeshoreDriveKing
in
Epilepsy Action
26 days ago
A Search for Underlying Causes
Hello, How many of you have taken the journey for underlying causes via blood tests and hormones and nutrition? We refuse to live with medicating the seizures as the only solution and are looking for people who have taken this journey and what they have discovered. We are considering a Functional MD
Hello, How many of you have taken the journey for underlying causes via blood tests and hormones and nutrition? We refuse to live with medicating the seizures as the only solution and are looking for people who have taken this journey and what they have discovered. We are considering a Functional MD
apache31
in
Epilepsy Action
2 months ago
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New mum with epilepsy
hi everyone. I was diagnosed with epilepsy in 2006 and had treatment for a brain AVM in 2007. I started with tonic clonic seizures in 2006 but was put on carbamazepine and ever since then I only had focal aware seizures. I changed medication to keppra about 2 years ago to be safer for pregnancy and I
hi everyone. I was diagnosed with epilepsy in 2006 and had treatment for a brain AVM in 2007. I started with tonic clonic seizures in 2006 but was put on carbamazepine and ever since then I only had focal aware seizures. I changed medication to keppra about 2 years ago to be safer for pregnancy and I
Lily123456
in
Epilepsy Action
2 months ago
Confused about clobozam
Hi I’m new to the forum I’ve had epilepsy for 10 years, for the first couple of years it was fairly well controlled with various doses of Keppra, im now on 3000mg. My epilepsy is tonic clonic with a couple of seizures per year (always when I’m over tired or travelling abroad) I always end up in
Hi I’m new to the forum I’ve had epilepsy for 10 years, for the first couple of years it was fairly well controlled with various doses of Keppra, im now on 3000mg. My epilepsy is tonic clonic with a couple of seizures per year (always when I’m over tired or travelling abroad) I always end up in
Mindymork
in
Epilepsy Action
3 months ago
Possible relapse, trouble seeing Rheumatologist.
Hi, I have not posted in quite some time. Read other's mostly, and since I have been in remission for 7-8 years I have not had much I could add to conversation. I was diagnosed with GPA in 2015. Put on pred and mycophenolate initially, then two rounds of rituximab. I have been med free since 2016
Hi, I have not posted in quite some time. Read other's mostly, and since I have been in remission for 7-8 years I have not had much I could add to conversation. I was diagnosed with GPA in 2015. Put on pred and mycophenolate initially, then two rounds of rituximab. I have been med free since 2016
lollypocket
in
Vasculitis UK
4 months ago
TLE and weakness
I have temporal lobe epilepsy, shrunken hippocampus and mesial temporal sclerosis, all on the right side of my brain. Would this the cause of weakness in my right leg?Also I've noticed lately, that this bitterly cold weather seems to affect my right side. Awaiting a report from a recent mri (19th Nov
I have temporal lobe epilepsy, shrunken hippocampus and mesial temporal sclerosis, all on the right side of my brain. Would this the cause of weakness in my right leg?Also I've noticed lately, that this bitterly cold weather seems to affect my right side. Awaiting a report from a recent mri (19th Nov
Dawn43
in
Epilepsy Action
5 months ago
Lacosamide
Hi, have recently had this medication prescribed to stop focal episodes. (50mg twice a day).This is my fifth day on it and since the third day I have had headaches, mainly forehead area. Im also finding that since keppra increase to 750mg twice a day after a seizure on 1st september lasting around 10
Hi, have recently had this medication prescribed to stop focal episodes. (50mg twice a day).This is my fifth day on it and since the third day I have had headaches, mainly forehead area. Im also finding that since keppra increase to 750mg twice a day after a seizure on 1st september lasting around 10
Dawn43
in
Epilepsy Action
6 months ago
Parkinson’s and RLS
Hello, I’m new to the forum and have signed up on behalf of my mum, to try and get some advice based on her current medication and her RLS. Mum-has been diagnosed with Parkinson’s approximately 1 year ago , although was misdiagnosed twice by 2 x GP’s as not having it! Not great. Medication taking
Hello, I’m new to the forum and have signed up on behalf of my mum, to try and get some advice based on her current medication and her RLS. Mum-has been diagnosed with Parkinson’s approximately 1 year ago , although was misdiagnosed twice by 2 x GP’s as not having it! Not great. Medication taking
SR223
in
Restless Legs Syndrome
8 months ago
Brain fog, weakness meds or tumour?
New to this thank you. I am looking for information. I have a newly diagnosed grade 4 gliobastoma which has been recently debulked. I am currently awaiting radiotherapy. I take steroids in the morning and Keppra at night and experience a constant brain fog and weakness to limbs which I am unsure as to
New to this thank you. I am looking for information. I have a newly diagnosed grade 4 gliobastoma which has been recently debulked. I am currently awaiting radiotherapy. I take steroids in the morning and Keppra at night and experience a constant brain fog and weakness to limbs which I am unsure as to
Lin32
in
Glioblastoma Support
8 months ago
Epilim and folate / change to lamotrigine ?
I was put on Epilim in my teens. Some years later, I became symptom free, and I was unmedicated for 10 years. I had to go back on Epilim Chrono five years ago - which may have been triggered by my thyroid problems. I’ve been on the thyroid forum, where it transpires that I am short on folate. A quick
I was put on Epilim in my teens. Some years later, I became symptom free, and I was unmedicated for 10 years. I had to go back on Epilim Chrono five years ago - which may have been triggered by my thyroid problems. I’ve been on the thyroid forum, where it transpires that I am short on folate. A quick
Applethorpe
in
Epilepsy Action
9 months ago
Cenobamate experience
After an increase in seizure frequency my consultant is talking about changing me from keppra + lamotragine to Keppra + Cenobamate. The only review I can find of Cenobamate are on drugs.com. It does tend to attract negative reviews. The consensus seems to be that it works for epilepsy, but the side
After an increase in seizure frequency my consultant is talking about changing me from keppra + lamotragine to Keppra + Cenobamate. The only review I can find of Cenobamate are on drugs.com. It does tend to attract negative reviews. The consensus seems to be that it works for epilepsy, but the side
GillyA
in
Epilepsy Action
9 months ago
Topamax insomnia?
Keppra made me sick and kept Me up till 4AM So I started topamax. It also seems to Be alerting. Anyone had this side effect go away? Getting Pretty bummed...
Keppra made me sick and kept Me up till 4AM So I started topamax. It also seems to Be alerting. Anyone had this side effect go away? Getting Pretty bummed...
wantokporo
in
Restless Legs Syndrome
9 months ago
Chemical names for medication/new oxygen tank & prescription
1.Last week i was hosputalised for the 14th time over the dropping of my oxygen levels If theres one thing everytime ive noticed is the doctors nurses always call the medication by their chemical names instead of the brand name. For example one of my epilepsy tablets ive always called Keppra But
1.Last week i was hosputalised for the 14th time over the dropping of my oxygen levels If theres one thing everytime ive noticed is the doctors nurses always call the medication by their chemical names instead of the brand name. For example one of my epilepsy tablets ive always called Keppra But
Sara_2611
in
Lung Conditions Community Forum
9 months ago
Keppra increases
Started on 250mg. keppra tonight after failing clonodine quickly (leg cramps and increased blood pressure did in that one). 250mg isn't enough, at least tonight, and I am wondering how quickly I should increase. Doc says I can go up to 750mg. and I have a terrible time with tolerating medicines. Any
Started on 250mg. keppra tonight after failing clonodine quickly (leg cramps and increased blood pressure did in that one). 250mg isn't enough, at least tonight, and I am wondering how quickly I should increase. Doc says I can go up to 750mg. and I have a terrible time with tolerating medicines. Any
wantokporo
in
Restless Legs Syndrome
9 months ago
Advice required
I had I seizure in 2010 and my MRI was clear, and I’m pretty sure I didn’t have an EEG. I was put on Epilim chrono 1200 mg and have been seizure free since. I went privately so looks like they just signed me off and I never got any NHS follow ups. About a year ago I went back to my GP and asked due
I had I seizure in 2010 and my MRI was clear, and I’m pretty sure I didn’t have an EEG. I was put on Epilim chrono 1200 mg and have been seizure free since. I went privately so looks like they just signed me off and I never got any NHS follow ups. About a year ago I went back to my GP and asked due
Halloumilover
in
Epilepsy Action
10 months ago
Help with blood test interpretation for my daughter
Hello Everyone, I'm new here and asking for my 18 year old daughter. I've come over from the Thyroid UK forum at their suggestion. She's been quite unwell for about 3-4 years slowly getting worse. We've been stuck with unhelpful medics both private and NHS who have not got anywhere with her symptoms
Hello Everyone, I'm new here and asking for my 18 year old daughter. I've come over from the Thyroid UK forum at their suggestion. She's been quite unwell for about 3-4 years slowly getting worse. We've been stuck with unhelpful medics both private and NHS who have not got anywhere with her symptoms
Sneedle
in
Pernicious Anaemia Society
10 months ago
Claiming PIP again!
Hi I had bilateral chronic subdural haematoma and burr hole drainage in Feb 2022. I had a fall and broke my leg the previous summer which led to the brain bleeds. I applied for PIP last year after coming out of hospital and even though I went to tribunal I scored 0 points. I've just made the phone call
Hi I had bilateral chronic subdural haematoma and burr hole drainage in Feb 2022. I had a fall and broke my leg the previous summer which led to the brain bleeds. I applied for PIP last year after coming out of hospital and even though I went to tribunal I scored 0 points. I've just made the phone call
Alfie2022
in
Headway
11 months ago
Rheumatoid Meningitis
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
ChiChiCo
in
FieryBones - RA Community
11 months ago
Rheumatoid Meningitis Recovery
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
ChiChiCo
in
Meningitis Now
11 months ago
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