My mother is 69 and has been diagnosed Parkinson in 2009 and last year the doctors changed their diagnose to PSP. First she has lost her balance started to walk with the help then she lost her speaking then started to swallow so we started to give the liquids with tickener. These all happened in 5 months 😳 on august she had uriner infection and she has been hospitilised due to electrlyte imbalance. After this visit to the hospital she is not able to walk at all and she is tied to the bed since august.On October she was back to hospital due to thyroid coma and she totally lost to gulp. So she had PEG operation.
Now she is not speaking , not able to mover her body parts she was only looking with eyes when I call her. Yesterday she slept so long and at night she had seizure I was terrified because I did not know that this could happen. Doctors are not so experienced on this terrible desease in Turkey. I learn so much more info feom curepsp and this site. So I would like to ask you if some of you faced seizure or not ? And if somebody is able to say if we are very close to the end or not ?
I am desperate... Exhausted ... İt is so bad to see that she is becoming weaker and weaker... And it's very sad not to have mom to talk to ....