Search
Search
About
Log in
Join
Experiences with
Salvage therapy
Posts
Communities
15,980 public posts
Filter results
My Small PCa Cells Don't Produce PSA
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Bandit99
in
Advanced Prostate Cancer
9 months ago
Help with bloods
I have an appointment today with my doctor to look at changing my HRT from Evrol Conti 50 and testosterone. I have started having bleeds (mostly dark/blood clots). They have done a scan and i've had a biopsy which is ok so they want to change my HRT. I wanted to see my levels so asked for bloods to
I have an appointment today with my doctor to look at changing my HRT from Evrol Conti 50 and testosterone. I have started having bleeds (mostly dark/blood clots). They have done a scan and i've had a biopsy which is ok so they want to change my HRT. I wanted to see my levels so asked for bloods to
WendyW1964
in
Menopause and Perimenopause Support
9 months ago
Regulolix [Orgovyx]
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
podsart
in
Advanced Prostate Cancer
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Tamoxifen
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
galgo
in
My Breast Cancer Community
9 months ago
I want to try SARM's-Yes or No?
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
AllenMarco
in
Advanced Prostate Cancer
9 months ago
Can orchidectomy substitute ADT/HT?
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
FMOH_N
in
Prostate Cancer Network
9 months ago
Dodged Another Bullet
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
TottenhamMan
in
Advanced Prostate Cancer
9 months ago
Morphea treatment - PUVA or triamcinolone injections?
hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left arm, part of my rib cage and some of my right arm. The worst area is around my left wrist where the skin is particularly tight around the joint
hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left arm, part of my rib cage and some of my right arm. The worst area is around my left wrist where the skin is particularly tight around the joint
Katie46
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
eGFR down 14% since starting ADT
I just noticed that my estimated GFR which measures kidney health is down from 89 in October to 77 in June 2023. In October I started Lupron. Does Lupron impact kidney health? This is something I want to keep track off. Mark
I just noticed that my estimated GFR which measures kidney health is down from 89 in October to 77 in June 2023. In October I started Lupron. Does Lupron impact kidney health? This is something I want to keep track off. Mark
SierraSix
in
Advanced Prostate Cancer
9 months ago
Far Infrared Heat Mat with Bone Mets
Has anyone used a Far Infrared Heat Mat that is filled with crystals? I have MBC with bone mets in spine. A friend let me use her mat and I found it really soothing and felt great afterwards. I would like to buy one myself but wonder if it would be OK for regular use with the bone mets, I don't want
Has anyone used a Far Infrared Heat Mat that is filled with crystals? I have MBC with bone mets in spine. A friend let me use her mat and I found it really soothing and felt great afterwards. I would like to buy one myself but wonder if it would be OK for regular use with the bone mets, I don't want
Hidden
in
SHARE Metastatic Breast Cancer
1 year ago
Advice on Thyroid results?
Hi all, my first post. I've had symptoms of hypothyroidism for several (6-7) years including extreme fatigue, weight gain (now 2 stone heavier), depression, achy muscles - I used to be so fit and healthy and now everything feels like a huge effort. Had several tests over the years for TSH and T4
Hi all, my first post. I've had symptoms of hypothyroidism for several (6-7) years including extreme fatigue, weight gain (now 2 stone heavier), depression, achy muscles - I used to be so fit and healthy and now everything feels like a huge effort. Had several tests over the years for TSH and T4
Thyroid16
in
Thyroid UK
9 months ago
Can Endo cause leukocytes to appear in your urine?
Hi you lovely lot! I’m 35 and was diagnosed with endometriosis last year. It’s nice to meet you. I had emergency surgery last year to remove an endometrioma that was discovered in hospital as I was unwell. During the laparoscopy it was found that all my pelvic organs were very inflamed and swollen
Hi you lovely lot! I’m 35 and was diagnosed with endometriosis last year. It’s nice to meet you. I had emergency surgery last year to remove an endometrioma that was discovered in hospital as I was unwell. During the laparoscopy it was found that all my pelvic organs were very inflamed and swollen
Yellowpanda
in
Endometriosis UK
9 months ago
New here !!
Hello Not sure where to start. I had some blood tests done through Blue Horizon because of many symptoms I thought were hyperthyroidism. I had, two years ago, finally managed to get my weight just above 9 stone. Then over the course of a month went down to 8 stone 4. Drenching night sweats were awful
Hello Not sure where to start. I had some blood tests done through Blue Horizon because of many symptoms I thought were hyperthyroidism. I had, two years ago, finally managed to get my weight just above 9 stone. Then over the course of a month went down to 8 stone 4. Drenching night sweats were awful
Wilderflower
in
Thyroid UK
9 months ago
ideal biochemistry monitoring
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
SimMartin
in
Advanced Prostate Cancer
9 months ago
Update after RALP ---- Need advice
[u]Dx in May 23:[/u] Biopsy results: PSA day before biopsy: 6.2 3 out of 10 confirmed cancer in peripheral zone right side GS: 2 x 3+3 and 1 x 3+4 (GP4 - 40%) . MRI in April 23 detected malignity tumor of size 1.2 cm, PI-RADS 4. No sign on pelvis area and neighboring lymph nodes. Clinical stage:
[u]Dx in May 23:[/u] Biopsy results: PSA day before biopsy: 6.2 3 out of 10 confirmed cancer in peripheral zone right side GS: 2 x 3+3 and 1 x 3+4 (GP4 - 40%) . MRI in April 23 detected malignity tumor of size 1.2 cm, PI-RADS 4. No sign on pelvis area and neighboring lymph nodes. Clinical stage:
FMOH_N
in
Prostate Cancer Network
9 months ago
1st post-IMRT PSA = 2.1
I completed IMRT on 5/22/23. My last recorded PSA from 1/23 was 4.31. My 1st PSA draw on 8/22/23 came back 2.12. I've read and have been told that PSA doesn't go down immediately with radiation, unlike surgery, and can take up to 2 years to hit its nadir. The RO NP was happy and pretty much said that
I completed IMRT on 5/22/23. My last recorded PSA from 1/23 was 4.31. My 1st PSA draw on 8/22/23 came back 2.12. I've read and have been told that PSA doesn't go down immediately with radiation, unlike surgery, and can take up to 2 years to hit its nadir. The RO NP was happy and pretty much said that
EJC61
in
Prostate Cancer Network
8 months ago
Endo and Mental health
Hello all, Just wondering if anyone diagnosed or suffering with Endo has a similar problem with thier Mental health around the time of a cycle ? Aswell as the physical pain side it feels like Just before I am due it feels like my mind goes into overdrive I think all the horrid things about myself that
Hello all, Just wondering if anyone diagnosed or suffering with Endo has a similar problem with thier Mental health around the time of a cycle ? Aswell as the physical pain side it feels like Just before I am due it feels like my mind goes into overdrive I think all the horrid things about myself that
Jajo1987
in
Endometriosis UK
11 months ago
Any informed opinions on NMN or NAMPT for advanced Pca - on ADT, no mets yet? Thanks! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4537380/
This question arose based on the advocacy of NMN by Harvard longevity doctor David Sinclair. He's the author of Lifespan: Why We Age - and Why We Don't Have To" Any known or postulated contraindications in taking NMN for advanced PCa? https://www.google.com/search?q=david+sinc%3Bair+youtube&oq=david
This question arose based on the advocacy of NMN by Harvard longevity doctor David Sinclair. He's the author of Lifespan: Why We Age - and Why We Don't Have To" Any known or postulated contraindications in taking NMN for advanced PCa? https://www.google.com/search?q=david+sinc%3Bair+youtube&oq=david
longrungo2
in
Advanced Prostate Cancer
9 months ago
GUIDANCE trial
Hi All, I'm about to start treatment with SBRT in about 3 weeks after getting SpaceOAR placed, and I've been enrolled in the GUIDANCE trial designed to attempt vessel sparing and avoid nerve bundles. I'm in the low Decipher score group (0.34), but there is still a 50% chance that I'll have to do ADT
Hi All, I'm about to start treatment with SBRT in about 3 weeks after getting SpaceOAR placed, and I've been enrolled in the GUIDANCE trial designed to attempt vessel sparing and avoid nerve bundles. I'm in the low Decipher score group (0.34), but there is still a 50% chance that I'll have to do ADT
LiveLongAndPropser
in
Prostate Cancer Under 60
9 months ago
Time to come off Ropinerole 4 years after being on Pramepexole 7 years. What else can I try????
I've been on these and both caused augmentation and with both was increased to maximum dose yet still had restless legs causing sleepless nights, anxiety and depression.Before I went onto medication I found out I was severely anaemic, I don't know how it happened to me as I was previously fit and healthy
I've been on these and both caused augmentation and with both was increased to maximum dose yet still had restless legs causing sleepless nights, anxiety and depression.Before I went onto medication I found out I was severely anaemic, I don't know how it happened to me as I was previously fit and healthy
Maddie1000
in
Restless Legs Syndrome
10 months ago
1
...
79
80
81
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4323 results
Thyroid UK
2335 results
Endometriosis UK
1835 results
View top 10 communities
Sort by
Most Relevant
Newest