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Speech and Language team in the UK
Just an update on my wife (Jackie, diagnosed since 29th Jan 23) and her PSP path, she had a visit from the Speech and Language therapy team yesterday and it's not good. She's struggling with food, she'd said that food wasn't going down. So they tried her with a sandwich and she couldn't clear it after
Just an update on my wife (Jackie, diagnosed since 29th Jan 23) and her PSP path, she had a visit from the Speech and Language therapy team yesterday and it's not good. She's struggling with food, she'd said that food wasn't going down. So they tried her with a sandwich and she couldn't clear it after
Derek1uk
in
PSP Association
1 year ago
Stopped Orgovyx two weeks ago and still having hot flashes? why is that? Also it is now 3 months since end of IMRT -still peeing 7 x a nite?
Stopped Orgovyx two weeks ago and still having hot flashes? why is that? Also it is now 3 months since end of IMRT -still peeing 7 x a nite? when does the "nocturia" settle down to baseline of 2 x per night?Thanking you in advance for comments and thoughts..62 -psa 10- imrt -20tx- 4 months orgovyx-Gleason
Stopped Orgovyx two weeks ago and still having hot flashes? why is that? Also it is now 3 months since end of IMRT -still peeing 7 x a nite? when does the "nocturia" settle down to baseline of 2 x per night?Thanking you in advance for comments and thoughts..62 -psa 10- imrt -20tx- 4 months orgovyx-Gleason
JWS13
in
Advanced Prostate Cancer
11 months ago
Rising PSA...again..
In December 2017 I was diagnosed with prostate cancer after a biopsy. I ignored the symptoms for many years and it cost me. In February 2018 I had surgery to remove my prostate hoping that would cure me, PSA never went to 0. By December 2019 I was alarmed enough to start ADT with Elegard and in February
In December 2017 I was diagnosed with prostate cancer after a biopsy. I ignored the symptoms for many years and it cost me. In February 2018 I had surgery to remove my prostate hoping that would cure me, PSA never went to 0. By December 2019 I was alarmed enough to start ADT with Elegard and in February
Skidooerr
in
Advanced Prostate Cancer
1 year ago
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Osteoporosis and HRT
I was diagnosed 3 years ago with osteopenia which has now progressed to osteoporosis, though frankly my recent DEXA report is so unclear that I'm waiting for word from my doctor to interpret it. My question is about hormone replacement and osteoporosis. I've been listening to podcasts with Dr. Felice
I was diagnosed 3 years ago with osteopenia which has now progressed to osteoporosis, though frankly my recent DEXA report is so unclear that I'm waiting for word from my doctor to interpret it. My question is about hormone replacement and osteoporosis. I've been listening to podcasts with Dr. Felice
mskathyny
in
Osteoporosis Support
1 year ago
Any advice on Aphasia
Hello again,I'm wondering if anyone can give me any advice. My husband had a severe tbi in August after falling off his bike and now in rehab .They have told me he has Aphasia, I'd never heard of it until now . The left side of his brain was badly damaged. He seems able to understand mostly what I say
Hello again,I'm wondering if anyone can give me any advice. My husband had a severe tbi in August after falling off his bike and now in rehab .They have told me he has Aphasia, I'd never heard of it until now . The left side of his brain was badly damaged. He seems able to understand mostly what I say
Janner123
in
Headway
1 year ago
Ovaries- stay or go?
Hi everyone. After over 30 years of pain and extreme bloating over the last two years, I’ve sadly no other option than to have a hysterectomy, I’ve been told. I’ve only ever had two laparoscopies in 2012. They’re reluctant to remove my ovaries, stating all the health related issues it can cause,
Hi everyone. After over 30 years of pain and extreme bloating over the last two years, I’ve sadly no other option than to have a hysterectomy, I’ve been told. I’ve only ever had two laparoscopies in 2012. They’re reluctant to remove my ovaries, stating all the health related issues it can cause,
Journeytowellness43
in
Endometriosis UK
1 year ago
When to start ADT, Salvage radiation or both for BCR after PSMA Petscan shows nothing?
Post RRP in 2009 and now having BCR with PSA rising to .20 over the last couple years, I was offered and opted for a PSMA Petscan to see if there was an identifiable spot of recurrence that could be treated early. The PSMA scan came back with no indication of the PSA source, so now I am wondering about
Post RRP in 2009 and now having BCR with PSA rising to .20 over the last couple years, I was offered and opted for a PSMA Petscan to see if there was an identifiable spot of recurrence that could be treated early. The PSMA scan came back with no indication of the PSA source, so now I am wondering about
hogwell
in
Advanced Prostate Cancer
1 year ago
Laser emitting diodes compared to LED light therapy ?
Bryan Johnson , a regenerative medicine extremist, uses Laser emitting diodes on his head instead of our standard red light therapy. This peaked my interest. https://www.vice.com/en/article/z34ay8/bryan-johnson-blueprint-aging-biotech https://lightforcemedical.com/improved-cognitive-function-after-transcranial-light-emitting-diode-treatments-in-chronic-traumatic-brain-injury-two-case-reports
Bryan Johnson , a regenerative medicine extremist, uses Laser emitting diodes on his head instead of our standard red light therapy. This peaked my interest. https://www.vice.com/en/article/z34ay8/bryan-johnson-blueprint-aging-biotech https://lightforcemedical.com/improved-cognitive-function-after-transcranial-light-emitting-diode-treatments-in-chronic-traumatic-brain-injury-two-case-reports
Little_apple
in
Cure Parkinson's
1 year ago
Tricky question... painful topic
Hi all, I've been with my current partner for 7 years, married for almost 2. We've been struggling to conceive for 6 of those years after a failed vasectomy reversal. Due to our history from when my SO used to be an alcoholic (he used to be VERY abusive and still has the odd rare mild episode) we are
Hi all, I've been with my current partner for 7 years, married for almost 2. We've been struggling to conceive for 6 of those years after a failed vasectomy reversal. Due to our history from when my SO used to be an alcoholic (he used to be VERY abusive and still has the odd rare mild episode) we are
KR2022
in
Fertility Network UK
1 year ago
Testosterone & RLS
I was aware of mild RLS from about age 10 nearly 62 years ago. Occasionally, I could control it by autosuggestion. Dramatically, this RLS stopped when I had reached puberty, 3 years later. It emerged 62 years later, immediately radiotherapy and hormone therapy for prostrate cancer commenced in 2012
I was aware of mild RLS from about age 10 nearly 62 years ago. Occasionally, I could control it by autosuggestion. Dramatically, this RLS stopped when I had reached puberty, 3 years later. It emerged 62 years later, immediately radiotherapy and hormone therapy for prostrate cancer commenced in 2012
Elouis
in
Restless Legs Syndrome
1 year ago
Transitioning into High School
Hello everyone, I have a 14 year old son who has ADHD, ODD and anxiety. He was diagnosed at 8 with it all and has been through many years of behavioral therapy and medication. He's very small for his age (just started on growth hormone therapy) and is currently taking the smallest dose of Vyvance for
Hello everyone, I have a 14 year old son who has ADHD, ODD and anxiety. He was diagnosed at 8 with it all and has been through many years of behavioral therapy and medication. He's very small for his age (just started on growth hormone therapy) and is currently taking the smallest dose of Vyvance for
tattooed_mom
in
CHADD's ADHD Parents Together
1 year ago
Zoladex wearing off??
Hi all, I've been on Zoladex since march last year , last week I had my 16th and final jab. Since January I've been getting alot of the Endo flare ups but they haven't been as intense as previous. So whilst painful I could still function to some degree. Last night however I had some spotting and pain
Hi all, I've been on Zoladex since march last year , last week I had my 16th and final jab. Since January I've been getting alot of the Endo flare ups but they haven't been as intense as previous. So whilst painful I could still function to some degree. Last night however I had some spotting and pain
AMJ88
in
Endometriosis UK
1 year ago
chatGPT's opinion on PD - Simple and wise
Unfortunately, there is no cure for Parkinson's disease, but there are several treatments available that can help manage the symptoms and improve quality of life. Here are some of the most common approaches to treating Parkinson's disease: Medications: There are several types of medications that
Unfortunately, there is no cure for Parkinson's disease, but there are several treatments available that can help manage the symptoms and improve quality of life. Here are some of the most common approaches to treating Parkinson's disease: Medications: There are several types of medications that
Xenos
in
Cure Parkinson's
1 year ago
Hoarse voice after thyroid surgery
Hello - I am 28 years old and I had a diagnostic thyroid lobectomy (right side) 5 weeks ago, histology results found it was follicular thyroid carcinoma but thankfully MDT concluded it was non -invasive so no further treatment has been recommended at this time. My voice was very hoarse after the surgery
Hello - I am 28 years old and I had a diagnostic thyroid lobectomy (right side) 5 weeks ago, histology results found it was follicular thyroid carcinoma but thankfully MDT concluded it was non -invasive so no further treatment has been recommended at this time. My voice was very hoarse after the surgery
Arby6
in
Thyroid Cancer Support
1 year ago
e2 patch
well I finally got to meet with y Oncologist last week regarding use of estradiol (e2) patch to battle against osteoporosis / osteopenia because the 90 day Xgeva dosing (down from every 28 daysx 2 years) doesn't seem to be doing much. He claims the possible cardiovascular side effects from the PATCH
well I finally got to meet with y Oncologist last week regarding use of estradiol (e2) patch to battle against osteoporosis / osteopenia because the 90 day Xgeva dosing (down from every 28 daysx 2 years) doesn't seem to be doing much. He claims the possible cardiovascular side effects from the PATCH
Hidden
in
Advanced Prostate Cancer
1 year ago
Cold Therapy After Heart Attack?
Hi, I used to enjoy cold showers twice a day and also after excercise before the heart attack exactly 16 weeks ago, 4 emergency stents inserted and the pile of meds each day I'm now feeling good but was wondering if anyone takes cold showers/ cold therapy after heart attack? thanks
Hi, I used to enjoy cold showers twice a day and also after excercise before the heart attack exactly 16 weeks ago, 4 emergency stents inserted and the pile of meds each day I'm now feeling good but was wondering if anyone takes cold showers/ cold therapy after heart attack? thanks
Blindheart
in
British Heart Foundation
1 year ago
BIOMAT
Something to think about and research. The Biomat is an FDA medical device (NOT APPROVED FOR CANCER TREATMENT)that combines state of the art far infrared light and negative Ion technology with the healing power of Amethyst (The healing stones) crystal. The mat heats to 113 degrees, which helps damage
Something to think about and research. The Biomat is an FDA medical device (NOT APPROVED FOR CANCER TREATMENT)that combines state of the art far infrared light and negative Ion technology with the healing power of Amethyst (The healing stones) crystal. The mat heats to 113 degrees, which helps damage
Lrv44221
in
Prostate Cancer Network
1 year ago
Prolea advice...pros cons
MO wants to start prolea injections ...for osteopenia, and repair met damage to spine....insurance has aproved....but i havent yet, the side effect esp jaw problems...is problematic to me as it seems the adt/ erleada has allready wreaked havoc on my smile......thoughts , ty in advance b.w
MO wants to start prolea injections ...for osteopenia, and repair met damage to spine....insurance has aproved....but i havent yet, the side effect esp jaw problems...is problematic to me as it seems the adt/ erleada has allready wreaked havoc on my smile......thoughts , ty in advance b.w
Boywonder56
in
Advanced Prostate Cancer
1 year ago
Free Live ADAA Webinar Tomorrow - Cognitive Behavior Therapy (CBT) for Tinnitus Distress: Your Questions
Featuring Dr. Bruce Hubbard. Tinnitus is a common neurological condition in which a person hears internal sounds which have no external source. Everyone hears tinnitus occasionally, but for about a billion people world-wide the sounds are persistent and chronic. Persistent tinnitus appears to arise
Featuring Dr. Bruce Hubbard. Tinnitus is a common neurological condition in which a person hears internal sounds which have no external source. Everyone hears tinnitus occasionally, but for about a billion people world-wide the sounds are persistent and chronic. Persistent tinnitus appears to arise
ADAATeamLise
Partner
in
Anxiety and Depression Support
1 year ago
Study: Addition of Short-term ADT Fails to Improve Survival over Radiotherapy Alone for Intermediate-Risk PCa
This is a very interesting large-scale study but it is only one study. Here's the Scoop: "The addition of short-term androgen deprivation (STAD) to dose-escalated radiotherapy did not improve overall survival (OS) for patients with intermediate-risk prostate cancer, although the regimen did produce
This is a very interesting large-scale study but it is only one study. Here's the Scoop: "The addition of short-term androgen deprivation (STAD) to dose-escalated radiotherapy did not improve overall survival (OS) for patients with intermediate-risk prostate cancer, although the regimen did produce
Revcat
in
Advanced Prostate Cancer
1 year ago
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