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Swanbio gene therapy study
Anyone know how this study is going? I did a google search and there was something posted a few days ago but you had to buy the report. $500. I’m very interested but information seems hard to come by. It doesn’t sound like it would repair damage but stop or slow the disease. I wonder if it would eliminate
Anyone know how this study is going? I did a google search and there was something posted a few days ago but you had to buy the report. $500. I’m very interested but information seems hard to come by. It doesn’t sound like it would repair damage but stop or slow the disease. I wonder if it would eliminate
Golfdog3
in
AMN EASIER
3 months ago
A Miracle
Hi Everyone, It's been a while and I pray that everyone is one step closer to healing. I'm back to share good news and hopefully offer a glimpse of hope to others. My husband has recovered from PMR! This community was so helpful, encouraging and supportive that I had to come back and share. Moreover
Hi Everyone, It's been a while and I pray that everyone is one step closer to healing. I'm back to share good news and hopefully offer a glimpse of hope to others. My husband has recovered from PMR! This community was so helpful, encouraging and supportive that I had to come back and share. Moreover
Popsca
in
PMRGCAuk
3 months ago
insurance issue
hi guys, My mother was diagnosed with her2+ve braa we ya cancer stage 4. doctor recommended the below medications : Paclitaxel + cyclophosphamide + phesgo+ zolodronic acid . I have corporate insurance in new India insurance with mediassist. These people are not approving phesgo which is targeted
hi guys, My mother was diagnosed with her2+ve braa we ya cancer stage 4. doctor recommended the below medications : Paclitaxel + cyclophosphamide + phesgo+ zolodronic acid . I have corporate insurance in new India insurance with mediassist. These people are not approving phesgo which is targeted
Srikalakm
in
Breast Cancer India
3 months ago
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Treatment stopped
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
Adaughter
in
The Roy Castle Lung Cancer Foundation
3 months ago
Excellent speech/voice app for PWP.
FIrst a disclaimer - i am not associated in any way with the app i want to recommend, just a fellow 'parkie' looking for an app to help/complement my speech therapy. I was looking for something comparative with my speech therapy ( long vowels, functional terms, reading, improvized speech analysis..
FIrst a disclaimer - i am not associated in any way with the app i want to recommend, just a fellow 'parkie' looking for an app to help/complement my speech therapy. I was looking for something comparative with my speech therapy ( long vowels, functional terms, reading, improvized speech analysis..
inovator
in
Cure Parkinson's
3 months ago
Low cortisol
My 40 year old daughter has Hashimoto's on T4 /T3 combination therapy for 6 years. Optimal levels plus optimal B12, folate, vit d and ferritin.Dutch test has shown very low cortisol levels throughout the day. She says she doesn't have any stress, doesn't drink alcohol or coffee, goes to the gym 2 or
My 40 year old daughter has Hashimoto's on T4 /T3 combination therapy for 6 years. Optimal levels plus optimal B12, folate, vit d and ferritin.Dutch test has shown very low cortisol levels throughout the day. She says she doesn't have any stress, doesn't drink alcohol or coffee, goes to the gym 2 or
redhead41
in
Thyroid UK
3 months ago
Me again
Hi, here again. He's doing really well. He's out in the chair each day, still hoisted but he was trying to stand and they had to tell him no you're not strong enough yet. Monday he was in the chair when I got there and they didn't put him back to bed until I left. He was getting tired towards the end
Hi, here again. He's doing really well. He's out in the chair each day, still hoisted but he was trying to stand and they had to tell him no you're not strong enough yet. Monday he was in the chair when I got there and they didn't put him back to bed until I left. He was getting tired towards the end
Hidden
in
British Heart Foundation
4 months ago
How Do Those on T3 or Combo Therapy Navigate TSH Obsessed Doctors
After my pitiful NHS results in December ( before starting self sourced T3) my GP increased my Levo to 200mcg a day. I haven't been taking that much, obviously as I'm taking 150mcg of Levo and 12.5mgs of T3. The GP I spoke to said retest February and unfortunately my surgery have been uncharacteristically
After my pitiful NHS results in December ( before starting self sourced T3) my GP increased my Levo to 200mcg a day. I haven't been taking that much, obviously as I'm taking 150mcg of Levo and 12.5mgs of T3. The GP I spoke to said retest February and unfortunately my surgery have been uncharacteristically
Sparklingsunshine
in
Thyroid UK
4 months ago
Oxygen levels
I have had COPD for around 15 years and it is getting steadily worse. I have the normal inhalers , have a air physio device, a nebuliser and recently have been accepted for oxygen therapy. On my last visit to hospital I was given the device that checks your oxygen levels. As I have only had this device
I have had COPD for around 15 years and it is getting steadily worse. I have the normal inhalers , have a air physio device, a nebuliser and recently have been accepted for oxygen therapy. On my last visit to hospital I was given the device that checks your oxygen levels. As I have only had this device
jackwok
in
Lung Conditions Community Forum
4 months ago
Music therapy
https://www.youtube.com/watch?v=yZsQ1FZtHw0 Most of us know about binaural beats, rife frequencies, rhythmic auditory stimulation, multiple wave oscillation etc and may even find them beneficial. I thought this YT video was interesting though, not least because some years ago I experimented with
https://www.youtube.com/watch?v=yZsQ1FZtHw0 Most of us know about binaural beats, rife frequencies, rhythmic auditory stimulation, multiple wave oscillation etc and may even find them beneficial. I thought this YT video was interesting though, not least because some years ago I experimented with
PDKiwi
in
Cure Parkinson's
4 months ago
wax treatments
having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I can get some positive help as I do suffer at times with pain and stiffness despite doing exercises. She also mentioned a wax bath treatment which
having had an appointment with the specialist nurse yesterday I have been referred to occupational therapy for some help with my clawed hands. Really hoping I can get some positive help as I do suffer at times with pain and stiffness despite doing exercises. She also mentioned a wax bath treatment which
Clangerscat
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
stage 3b/c inoperable non small cell lung cancer. Cannot tolerate durvalumab, (pneumonitis) No mutations - any hope?
hi, Im 57 and was diagnosed with inoperable non small cell lung cancer in October 2022. Since then Ive adopted a dairy, gluten & sugar free diet , organic only & prinipally vegan. I take millions of supplements a day plus Chinese traditional Medicine. I’ve had 3 rounds of chemo, then combined radio
hi, Im 57 and was diagnosed with inoperable non small cell lung cancer in October 2022. Since then Ive adopted a dairy, gluten & sugar free diet , organic only & prinipally vegan. I take millions of supplements a day plus Chinese traditional Medicine. I’ve had 3 rounds of chemo, then combined radio
ohayeai
in
The Roy Castle Lung Cancer Foundation
4 months ago
EP consult
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
The cardiologist I see is not able to provide medical management of my paroxysmal afib due to my low heart rate and low blood pressure (can't risk pushing either value lower), so I am hoping for an ablation. This morning, due to a cancellation, I was able to bring my initial EP consult forward by 1
Desertflowerchild
in
Atrial Fibrillation Support
4 months ago
Things, regimens,etc that are probably RLS worthless.
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
THINGS THAT DO NOT WORK FOR RLS All of us with RLS/PLMD have slightly different symptoms. We have tried various 'remedies' to try to relieve our RLS symptoms. We have read articles, some interesting, some ridiculous (bar of soap) that make amazing promises. And there is an entire array of things to
fritz34
in
Restless Legs Syndrome
4 months ago
ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
4 months ago
Another update
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
This is just a reply (edited), not an original post but readers may find it of interest. As far as I know all replies are public and can be viewed by any Enc. member. "To know we are still useful despite our disability is a big bonus. I used to open the curtains on the ward and make my own bed and the
Gandalf2
in
Encephalitis Society
4 months ago
Abiraterone + Olaparib: ASCO GU 2024 Highlights: BRCAAway Trial
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
"Highlighting the trial's results, he notes the combination therapy significantly extended median radiographic progression-free survival to 39 months, far surpassing the outcomes with either treatment alone. " 39 months progression free is not bad at all... https://www.urotoday.com/video-lectures/asco-gu
Maxone73
in
Advanced Prostate Cancer
4 months ago
T3-4-Hypo trial - Netherlands
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
Do view the original which includes a map and various links. 16 to 20 months is so much more sensible than the few weeks so many previous studies have been based on. [i]
T3-4-Hypo trial
[/i] [i]Updated on 25 January 2024[/i] [i]CALL – study T3 / T4 combination therapy[/i] [i]In most patients
helvella
Thyroid UK
in
Thyroid UK
4 months ago
Gene therapy
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
TOP TAKEAWAYSGene therapy has a potential place In the treatment • of Parkinson disease, but won't be the "be all end al as some may think. There are a lot of questions regarding drug development of PD gene therapies, Including which targets are the most promlslng/effectlve. Investlgatlonal right now
Farooqji
in
Cure Parkinson's
4 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
4 months ago
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